endurance – Page 12 – Jesus is for the Wounded

A Pig for Sale

Published on August 21, 2014August 21, 2014 by Jesus is for the WoundedLeave a comment

Only in Indiana. Or maybe in any other State with farming. Well that would include all 50 States. I guess it’s just new to me . . .

The Facebook page for selling stuff in my town had a posting for a pig for sale: $300 for the live beast. I actually thought about it for a moment! The biggest issue would be finding a place to store all of that meat. Our lil’ freezer just ain’t big enough for my hubby’s ice cream and my bone broth in addition to a virtual bevvy of pork! Darn. I’ve been missing BBQ ribs for some time now!

I suppose that someone else with a chest or upright freezer will jump on the offer. Maybe our neighbor who bought our used freezer will find it in her budget to feast on Porky Pig for the rest of the year? Or maybe not. But if she invites us over for some Famous Dave-style ribs I am sure that we would oblige! We will even bring my Grandma’s famous potato salad. Yeah I won’t forget the horseradish, pickle relish, and bacon grease (aka “secret ingredients”)!

We live in a time where you can buy and sell just about anything. With the diversity of our world and our accessibility to most of it via the internet, we can get much of what we want for a price. Do you want someone to paint your business logo on his hairy belly and sing a song for you? Just check out the gigs on http://www.fiverr.com and it will be yours for the price of a latte’. My preference for that one would be “NOPE.” That is, in the physical realm. There are other realms for which I would need a song you know. And tonight my heart realm can’t buy me even a lullaby for peace of mind. My heart is breaking and there simply is not much I can do about it but pray.

My brother, Mike, whom everyone else calls Michael, continues to live in a wretched inner city nursing home after a serious stroke. He is four months post-CVA and three months enduring the “3 hots and a cot” provided by a one-star facility. I flipped when I found out that he had an infectious rash on his hemiplegic hand! I asked his fiancé and Mike to check for signs of bed bugs and call the State Ombudsman immediately if they found any signs of them. Mike’s roommate itches too. Hopefully it will be a case of an allergic reaction to the laundry detergent. But why would the bumps become infected? Good golly. Water (no juice, milk, or coffee) for breakfast, a delayed response for significantly elevated blood pressure, and no follow-up whatsoever on a 6 cm kidney tumor ARE ONLY THE FIRST THREE items in the long list of substandard care complaints. So sad.

Lisa, Mike’s precious fiancé, is at her wit’s end trying to get Veteran’s Administration or Medicaid benefits processed correctly to change his situation. She faithfully visits him when she can, brings him home-cooked food, and follows up the paperwork nightmare as Mike’s legal guardian. Just when I wonder if things moving forward fast enough or why she hasn’t returned my phone calls I find out that she has started a new job to try an better their overall situation. She is such a trooper. Thank the Lord for Lisa’s love and care for her Michael. And our cousin, Lisa, helps out where she can as well. Cousin Lisa is an optometrist for the nursing home and has more than once been able to positively influence his care by her presence, her visiting, her dipomacy, her support of fiancé Lisa. They are doing the best they can and that is both a gift and all I can ask from 200 miles away.

This is such a curious situation, you know. I am an occupational therapist with over 30 years of professional experience including patients with the very same medical condition as my brother. Yet due to a severe illness I am enduring, I cannot even visit him! The dirty conditions of his living environment would surely trigger seizure-like attacks for me. Chronic Inflammatory Response Syndrome, Multiple Chemical Sensitivity, or whatever you want to call this nightmare is keeping me from seeing my brother. And this is the Lord’s plan for both of us right now. I don’t understand it. My heart is hurting. I would be honored to work more closely with Mike, even provide supplemental therapy or visits. I cannot do it right now. Oh sure, I send him something in the mail occasionally or make a phone call to his facility and get placed on hold for a very, very long time before actually getting through to anyone less than 50% of the time. We are all doing what we can and waiting on the Lord. It’s just so very frustrating for each of us!

So if you’ve got an extra 300 bucks to donate to our cause, kindly send it to St. F—— Nursing Center in D—–, room 207. Leave the pig and get my brother out of there please! They might not notice Mike missing for awhile since a piece of meat is a piece of meat when you don’t care much for the sweet sense of humor that used to characterize my tall lanky sibling. Oh geez, I’m getting a little upset here aren’t I? Well at least the pig will stomach the food a little better without complaining. Like the Cheerio’s commercial said many decades ago, “he’ll eat anything! Hey Mikey!” Yeah but it won’t be Mikey. One day Mikey will be gone from the place he and his fiancé are calling, “the dump.” May the Lord pour out His grace on those left behind when he does go.

I just hope that moving day will be soon. O.k. I’m done venting. Gotta get back to praying. JJ

Handling loss is a skill for living well

Published on August 18, 2014August 19, 2014 by Jesus is for the Wounded3 Comments

Some disappointments this past week have reminded me of the importance of handling “loss” well. Change is a certainty in this life and many of us have had more than our share of both the voluntary and involuntary fare. Change often means letting go of something or someone we cherish. For the Christian we can view change as part of becoming more like Christ, maturing in our faith, and working out the details of our lives with the Lord. It is necessary! And all too often it doesn’t feel well though.

Here are 5 changes that came in rapid-fire succession for me lately:

A counselor that I have been seeing to handle the grief of this serious biotoxin illness I’m dealing with, suddenly discharged me from her care. A week ago Tuesday I had a major seizure attack episode in her office and had to leave abruptly. The episode went on while standing outside the front door to her office then continued as I struggled to get back into my truck. An hour and a half later I was able to leave to return home. She checked on me multiple times during the event and even called me a few times to discuss our next appointment. Until that day she had been opening the window in her office for me to increase air circulation before our starting time. When she did not do so until I was about to walk into her office (on a rainy, humid afternoon), the scented “warming candle” residuals, soil aerosols from her live plant, and possible contaminants embedded in the office carpeting were too much for me. She is now unwilling to meet me in a nearby library conference room since her driving time simply would not be reimbursable, won’t fit into her busy schedule. So for now it’s bye bye Julie.
For the third year in a row I had to miss my husband’s United States Canoe Association Nationals due to illness. I am sad. I love watching Steve compete in his surf ski (racing kayak) and missed both of his races including the exciting trial class event with our outrigger canoe. It sounds like there was a photo finish as he crossed the finish line and I was not there to take it all in or take pictures. Sigh. We love taking road trips together. Even if we could have afforded the expense of travelling together, I cannot tolerate the fragrances of hotel rooms, conditions of camping, or the unknowns of renting a travel trailer. Such is life with Multiple Chemical Sensitivity and Chronic Inflammatory Response Syndrome! I stayed home with our German shepherd pup in our “safe home.” Parts of the two full days were actually better by the way: I got to dig in the dirt of a new garden bed. The second day was terrifying however with two, severe, hour-long episodes while home alone. My Jesus saw me through when I thought I would stop breathing. I did not. My husband needed this time away. Besides, having someone stay with me or check on me in the end dangerously increases risks to my health. We made tough choices indeed.
I realize that the isolation that accompanies this illness is killing my spirit. I sense my social skills eroding. Sitting in my truck in a cemetery adjacent to a Garden Walk event on Saturday, I nearly panicked because I was late and there were cicadas plunking my windshield as I tried to wrap up a phone call with Steve! I had not talked to anyone but my dog for 24 hours so I was glad for his call. However, I had felt awkward and alone getting ready. And I know that these were just feelings. The evening out went fine with barely a few tic zips, enjoyment of select entrees, and meeting some really nice fellow gardeners. It’s just that the social part of my life is so unnatural, absent, and different now. Just like when I went through a divorce, lots of people have left my life once again. Reaching out has been tough when it’s so complicated just to get together. I will keep trying though. I have to . . .
An occupational therapy (O.T.) recruiter for an agency for whom I used to do contract work called me TWICE this past week! I guess they really needed someone! Oh how I miss working. Last night I did the equivalent of 4 hours of (free!) continuing education credits for my O.T. license, inspired perhaps by the phone call earlier. Maybe someday there will be an equivalent at-home professional job that I can do that will utilize my skills. Just gotta get rid of some daily seizure attack episodes first, eh? Today they lasted most of the day. My “job” was to take a shower and make dinner. Done. Don’t need an App to keep track of this kind of schedule, I tell ya! Sish.
Most of the time my worship is in isolation. For a long time I looked to my husband to try and fix this one for me. Why wasn’t he trying to find a church for us in a newer building that wasn’t water damaged? My criticism of him and “our” church goes on from here; it is not good. I have tried to fill the void with a read-the-Bible-in-a-year App, Christian radio talk shows, following various ministries via email or Facebook, interacting with other believers via the same, and continuous prayer throughout the day including praying with Steve. But I crave real Christian fellowship. I crave Women’s Bible Study. There wasn’t even an outdoor baptismal service with our church this year and the annual hot dog roast will be a “no” in October due to the noxious exposures from the campfire. (The smoke was hell for me last year.) My heart is breaking on this one. I know the Lord sees it too. I trust Him. Just today I got the sense that I may need to reach out a little more and not wait for someone else to fix it. I contacted our “Encouragement Ministry” leader about starting something with others who are home bound and I am waiting to hear back from her. Hopefully it will be soon!

While we could discuss the solution to these problems the more important point here right now is that I know that each of these will bring goodness in due time. I have realized the promise of the Lord “restoring the years the locusts had eaten” (Joel 2:25) after my life fell apart in 2003. Joy returned and reminders of it are all around me. I have chosen to write about these things in hopes that you will pray alongside me for the Lord’s will and redeeming grace for these recent losses. Perhaps you, too, have loved and lost much while enduring all kinds of trials. Please let me know about them and I will pray for you.

Gentle Reader: we are to stand firm on the foundation of our faith in Jesus Christ who will:

Make all things new. (Revelation 21:5)
Direct our paths. (Proverbs 3:5-6)
Extend His love, compassions, and faithfulness in newness every morning. (Lamentations 3:22-23)
Remember us in our low estate with love that endures forever. (Psalm 136:23)
Reward us for our faithfulness. (Matthew 6)
Bless those who are good stewards of time, talents, and resources. (Luke 16 & Matthew 25)

And so much more. I am encouraged. My Jesus sits on the throne of my life and the throne of grace. He will make beauty from the ashes (Isaiah 61) which are the losses that characterize living a full life here with Him as our Lord and Savior. I trust His Word on this and hope that you will too. Let us rejoice with great expectation for the goodness to come!

Isaiah 61

¹⁰I delight greatly in the Lord;
    my soul rejoices in my God.
For he has clothed me with garments of salvation
    and arrayed me in a robe of his righteousness,
as a bridegroom adorns his head like a priest,
    and as a bride adorns herself with her jewels.
¹¹For as the soil makes the sprout come up
    and a garden causes seeds to grow,
so the Sovereign Lord will make righteousness
    and praise spring up before all nations.

The small things matter too

Published on July 7, 2014July 8, 2014 by Jesus is for the WoundedLeave a comment

My holiday weekend will be measured by small things, small joys. And these are no less than the big trips, celebrations, fireworks, and gorgeous mountain views from my friends on Facebook. Here are the things that matter most to me:

A view out a bedroom window that captures the emergence of the giant hibiscus flora.

The sweet look of concern from our furry friend when she knows what’s up and how to love with her eyes.

My beloved who can live in the moment with me no matter what life brings.

I made it through the time that needed to pass while awaiting a medical appointment on Tuesday.

The creative block with Trinity Jewelry by Design broke through with a new bracelet design and a bunch of cute variations with more to follow soon.

Tending to the William Battin roses that exceeded my expectations early this Summer.

Witnessing the promise of a bumper crop of cucumbers to redeem the poor showing with the cool Spring last year.

Time to relax with Steve at home, to review, to plan, to talk, to enjoy meals together.

A couple of phone calls with my brother who is making the most of a frustrating recovery from a stroke.

Long moments dwelling with my Lord in His Word yielding encouragement and refreshment for my soul.

A firework display from the comfort of our kitchen table, compliments of the neighbors next door.

Yes, the small things matter too whether you are recovering from a serious illness or not. I’ll bet you can think of a few special things too? I’d love to hear about them Gentle Reader. Your words encourage my heart and I’d like to get to know you! Take care, Just Julie

The 5 1/2 hour window of time

Published on June 23, 2014June 23, 2014 by Jesus is for the Wounded1 Comment

Ready to head home with the 24-foot outrigger and ama on the roof! — Ready to head home with the 24-foot outrigger and ama (float) on the roof!

So grateful to be out with my River Bear!

We came to a clearing in things and went for it!

These pictures were taken after a wonderful evening paddling our tandem outrigger canoe (OC-2) on Sylvan Lake here in Indiana. How wonderful to be out on the water for a second outing with Steve this year. I am so very grateful!

Sadly the evening ended worse than the earlier part of this day. Tic attacks had started in the car on the 45-minute ride home. Within an hour after getting home and unpacking the car I was feeling sickly. We ate some quick salads before I scampered off for bed, still in my paddling clothes. Low grade seizure attacks ramped up over the next hour, escalating into one of the worse episodes I have had in a long time. Screams of terror filled our home. The best that I could do was hold on and focus on continuing to breathe . . .

Eventually I was able to call Steve for help getting off the damp clothing and showering. In my stupor and neurological collapse (requiring complete assistance to transport myself to the bathroom) I figured out that I must have gotten exposed to the blue green algae we encountered in the narrower sections of the lake. I had taken numerous precautions to limit exposure to the water. However, some simply cannot be avoided when splashing about, paddling from an open cockpit of an OC-2. And perhaps the slimy green pond near the port-a-potties in the parking lot were releasing aerosols that were not to my liking as well? I didn’t touch any food or the mouth of my water bottle since we did not have hand sanitizer with us. I guess it wasn’t enough: I am too sensitive to any form of biotoxin to get anywhere near them in any form until things change.

Thankfully after about three hours I regained motor control of my body. I was better able to communicate and we processed what had occurred this evening. Steve agreed that we probably need to limit paddling together to waters treated for algae, such as the private lake of a friend’s home. This means not being able to join the local kayaking group outings on Tuesday night for the third year in a row! That’s a major bite in the shorts! To get strong enough to go out with them for two years was a major accomplishment for me and lasted until I got sick October 11, 2011. Just getting into a kayak (and now an outrigger canoe, solo and tandem) simply had never happened before I married Steve. We have so many great memories being a part of the group in addition to his kayaking competitions. (Goooooo Steeeeeeve!) Sigh. And I was really enjoying the switch from a kayak to an outrigger, sporting my carbon-fiber bent shaft paddle too. So awesome.

Last night I watched most of the video story again of Justin and Christa Vanderham. Christa suffered from chronic Lyme disease and mold exposure for years before finding proper treatment with antibiotics, supplements, and nutrition. A fellow sojourner in recovery and reader of this blog graciously reminded me recently that Christa’s illness looked a lot like the videos that I have posted here and on You Tube. Yes, both our symptoms of distress appear wretched: intractable pain for Christa and relentless seizure attacks for me. We both scream at times due to our agony. In chronic Lyme and biotoxin illness it’s not the exact matrix of symptoms that is so significant as it is making sure you have the right diagnoses and treatment protocols to get well. We don’t say that we have different illnesses because our symptoms are a little different. We do say that we both might benefit from similar aggressive treatment protocols if reasonable test data and clinical presentation indicate Lyme or biotoxin illness. Unfortunately for me, EVERY SINGLE TREATMENT INTERVENTION exacerbates daily seizure attack episodes that average 3-4 hours per day! I simply cannot survive the treatment protocols of which I am aware to date. The multiple chemical sensitivities (aka Chronic Inflammatory Response Syndrome) already leaves me largely homebound to try and prevent noxious symptoms. Lately they are on the rise again (up to 8 hours!) regardless of where I am or what I am doing. When I take a 5 1/2 hour window of time when the symptoms subside and test the waters, so to speak, I usually pay dreadfully for doing so. This gal just can’t get a real break I guess. I keep trying the wrong things. On the surface, you could say that I am out of options . . .

Regardless, this I know: my Jesus goes before me and knows the desires of my heart. He knows that my heart is breaking right now to realize that I can no longer be with my dear husband 2 to 3 days per week when he pursues his sport on the water. I learned to kayak to be with my River Bear and was delighted to discover that I enjoyed it too (at a slower pace of course!). My Lord knows how isolated I am when I am home alone because of this illness. He has provided the safety and security of a lovely dwelling with plenty of time with my Heavenly Husband. He was my best buddy before I met Steve; He saw me through life changes equally as traumatic all the way to the restoration process in due time. I’ll be hanging tough and trusting Him with this door closing on open water activities, no matter how I may feel about it. The fact is that my Lord and Savior loves me more than I can ever know. He wants what is best for me. I will wait with great expectation at His throne of grace for His plan for me, whether or not a new door or window opens in due time. If I don’t lay down my will for His will then I will denounce all that He has shown me of His love for me in the past. I don’t want to waste all that I have learned. During those trials is when my faith grew to be what it is today. That is when the Holy Spirit became real to me, guiding me and comforting me always. Nothing can take that away from me. Nothing will.

Gentle Reader, do you know faith in God like this through His son, Jesus Christ? Please share with me your experiences if you do. I know it will encourage me to hear from you in addition to other Readers. Oh and if you could say a prayer for my Stevers that would be great. He hasn’t been getting much sleep lately. Thanks a bunch.

Better finish that mulching project in the gardens soon. Love to you, Just Julie

A Psalm for Times Like These

Published on June 21, 2014 by Jesus is for the WoundedLeave a comment

Psalm 40

New International Version (NIV)

For the director of music. Of David. A psalm.

¹I waited patiently for the Lord;
    he turned to me and heard my cry.
²He lifted me out of the slimy pit,
    out of the mud and mire;
he set my feet on a rock
    and gave me a firm place to stand.
³He put a new song in my mouth,
    a hymn of praise to our God.
Many will see and fear the Lord
    and put their trust in him.

4 Blessed is the one

    who trusts in the Lord,

who does not look to the proud,

    to those who turn aside to false gods.
5 Many, Lord my God,

    are the wonders you have done,

    the things you planned for us.

None can compare with you;

    were I to speak and tell of your deeds,

    they would be too many to declare.

6 Sacrifice and offering you did not desire—

    but my ears you have opened—

    burnt offerings and sin offerings you did not require.
7 Then I said, “Here I am, I have come—

    it is written about me in the scroll.
8 I desire to do your will, my God;

    your law is within my heart.”

9 I proclaim your saving acts in the great assembly;

    I do not seal my lips, Lord,

    as you know.
10 I do not hide your righteousness in my heart;

    I speak of your faithfulness and your saving help.

I do not conceal your love and your faithfulness

    from the great assembly.

¹¹Do not withhold your mercy from me, Lord;
    may your love and faithfulness always protect me.
¹²For troubles without number surround me;
    my sins have overtaken me, and I cannot see.
They are more than the hairs of my head,
    and my heart fails within me.
¹³Be pleased to save me, Lord;
    come quickly, Lord, to help me.

¹⁴May all who want to take my life
    be put to shame and confusion;
may all who desire my ruin
    be turned back in disgrace.
¹⁵May those who say to me, “Aha! Aha!”
    be appalled at their own shame.
¹⁶But may all who seek you
    rejoice and be glad in you;
may those who long for your saving help always say,
    “The Lord is great!”