Smaller Moments Mean More

When the mist on the pond lifts up to the air

The morning hath come and I give witness to life once again.

For I am up through the night, my old haunts hath returned

A way of coping, of living:  just what I gotta do for right now.

So I edit a magazine, make charts of treatments, plan for when I will be well,

Most folks would not notice the shifts ever so small

The wretched episodes continue albeit with shaking, less overall.

I had to gain courage to take more meds/more remedies than ever before

Go rogue to kill the monsters within with faith and every tool from this road.

“Parasites in the brain” sounds pretty scary might you agree?

Yet that is exactly where I have arrived so be that as it may

Find me spacey perchance to dream when restorative sleep comes that way.

The smaller treats of life mean more to me now in my softened state

I get to see them in slow motion and savior their texture, their smell even when awful like glue.

What is before me fills every moment in much more detail

Healing comes small before big so intentionally I walk through most of the day.

Don’t get me wrong, the chores fill more hours than they used to years ago

That ‘s just one part of the plan so is rest and in times of rest I believe answers we have found.

Wyoming, clouds, blog, metaphor, analogy, Chistian, faith, majesty, creation, God, sky, big
One does feel ever so small next to God’s majesty revealed in the big sky over Wyoming . . .

Hydration is Key

dehydrationHydration is key in health and down to the other

It makes everything better from one end to the other.

When I thought a drug might be my saving grace

I found that it was water that was my Lord’s gift of grace.

In 3 days and 2 nights 4,000 ml ran through my veins

In addition to many drugs in my tummy not my veins.

There was sparing of upsets from what I could not tolerate before

That number of drugs with Pepcid became my friend now like never b—–.

My Lord knew then showed my naturopathic Doc a few days later

That I would need to push fluids like never before for now and onto “later.”

So Smart Water and minerals in our Big Berkey will be my constant friend

When isolation of this Shingled hell keeps me from family and friends.

The Lord makes up the difference (as He always has) and grants me sleep

These last few days have been for rest and recovery and the deepest of sleep —

“To die, to sleep – to sleep, perchance to dream – ay, there’s the rub, for in this sleep of death what dreams may come…”

Hamlet does question if even death will bring dreams that will prevent peace when it comes.

But he is wrong for peace is granted here and now for those who believe no matter what may

For those who believe in the Lord who conquered death and knows the beginning from what may.

So once again, a thousand times I shall again proclaim

Alone in my Jesus I will drink the victory only He can proclaim!

************

If you are struggling this night, Gentle Reader, please hang in there.  Let me know your needs and I promise to pray as I lay your alms before our mighty Lord of Lords.  He cares for you, He cares for me.  And Lord willing, we are going to get well sometime between now and the day of His return.  Oh how I do hope you know Him this way?  JJ

In my neighborhood

If all I could see most days was that beyond my window

I would delight in the four seasons of color, of life given the neighborhood.

If all I could hear was the barks, creaks, whirring, whoosing inside our home

I would be reasonable for the solace of being alone brings peace between each one.

If all I could smell was the beast under my feet in our mostly clean house that we share

I would concede in the relative order of things that hasn’t gone to awry in my senesence.

If all I could feel was an occasional cool breeze blowing in from the opened blind beyond

I would love that this Fall has been quite mild, keeping my toes a wittle warmer at night.

If all I could sense was the softness of my baby blue-colored robe as I write these words to you

I would be glad for one area of comfort that stands out amongst the rest . . . in gratitude.

And if all of these things came true as they have this day in our home, in our neighborhood

Then I say that I am at peace with the world:  God is good.  All the time.  He is so very good.

For it is in the ordinary things of life in which we live and find our meaningfulness each day

On this street here with my hubby, our pup already asleep, with me saying “good night” one and all, and Godspeed too.

Psalm 121, peace, coming and going, gratitude, rest, forever

Only the Moment

Only in this moment are things not as they should be:

Soreness for no reason at all

Sizzling in between the neurons rising up, rising over

Dwarfed by insatiable hunger,

Rushes of warmness then cool,

Joints made of cardboard,

Ah the stress for having reached beyond.

Only in the past was there no name for this strife:

Some kind of pain condition they said

(A hormonal this or that)

Traumas from growing up the way we did were

Leading struggles to find my way in life

Whilst blooming late after deadheading, letting go.

Only looking forward can bring true hope:

The day my body calms at last

My Savior returns and all is made whole

Weeping ends, eternal Spring abounds whereas

The truth reigns supreme as all finally agree.

But only now is the moment in which I contend:

Living in love with my intended beloved

With nights as wildly structured as the days

And breaths carried between words terse with meaning.

For only in the moment is where we too must live:

Look around . . . is there more beyond the view to

Seize right away with a kiss of sweetness at the lips?  Surely something can taste good right now!

JJ

psalm 16, psalm 16:11, living life to the fullest, carpe diem, seize the day, peace, contentment

When the hospital comes home

We all need our spaces, our places of retreat.  Is it that corner where you curl up with a favorite magazine or book?  Maybe there’s an oasis in the backyard, coffee shop, or park down the way that brings a bit of renewal sometime during the week?  Perhaps in a busy household a mother of small children finds solace in the bathroom behind a closed door when sitting for a spell?  During a stressful transition in my life I would drive to downtown Chicago on a Sunday just to “see water” along Lake Shore Drive.  Yes, those moments are precious and necessary for sure.

For those with a special love to share one’s life, the hours alone together can bring refreshment in a whole new way.   Take a moment to enjoy the words of Christopher Marlowe who invites his lover to come hither to a far away place . . .

 Come live with me and be my love,
And we will all the pleasures prove
That valleys, groves, hills, and fields,
Woods or sleepy mountain yields.

And we will sit upon the rocks,
 Seeing the shepherds feed their flocks,
 By shallow rivers to whose falls
 Melodious birds sing madrigals.

And I will make thee beds of roses
 And a thousand fragrant posies,
 A cap of flowers, and a kirtle
 Embroidered all with leaves of myrtle;

A gown made of the finest wool
 Which from our pretty lambs we pull;
 Fair lined slippers for the cold,
 With buckles of the purest gold;

A belt of straw and ivy buds,
 With coral clasps and amber studs:
 And if these pleasures may thee move,
 Come live with me and be my love.

The shepherds' swains shall dance and sing
 For thy delight each May morning:
 If these delights thy mind may move,
 Then live with me and be my love.

The Passionate Shepherd to His Love
Christopher Marlowe

Ahhh, the delight of romance!  Is there any greater pleasure in life?  Well maybe yet perhaps we can agree that there are very few?  😉

During these years of serious illness, my refuge is largely our home.  For now what was once our retreat for romance and the stressors of life has been transformed into a place for a different kind of healing.  Indeed we have created a safe haven from noxious exposures that can make me quite ill elsewhere in the world.  I have become increasingly grateful for the work I had done a few years ago to decorate our dwelling place in pleasing colors with a lovely landscape to view out each and every window.  Little did I know when we were settling in here that I would spend most of the past 4 1/2 years housebound.  Little did I know that right when I started to get a little better, the comfort I found at home was about to drastically change.  I really don’t like it.  See what you think.

Three days per week a nurse comes dressed in medical garb to administer IV infusions.  Our living room morphs into a hospital outpatient clinic for nearly 3 hours with linens draped over the furniture to protect me, to protect her.  Packages arrive via Fed Ex at least one morning per week with bags of drugs on ice, medical supplies, and no presents, no card from mom.  The pup with the big brown eyes is sequestered in a back bedroom lest her presence or fur flying through the air risk breaking the sterile field needed to access the power port in my chest wall.  She whines and yelps for a time then drifts off to slumber as the drip, drip, drip of the IV bag empties into my body.  Gratefully my nurse is very skilled and unassuming.  She has the perfect temperament for all this stuff too.  I just wish we were out shopping instead, ya know what I mean?

I have tried very hard to pack everything up afterwards and in between home care visits.  The IV pole goes behind a door in a spare bedroom and the supplies fill a couple of bins and boxes in our office.  The laundry quickly goes into the washer after Michelle leaves to diminish the fragrance of her favorite laundry soap that lingers no matter how hard we try to avoid it.  Her shoe covers and all the used medical supplies get tossed into our makeshift trash bin and sharps containers.  Within the hour after my “visit” ends there is no trace of the intrusion that these treatments bring to our private spaces (except for the wooden sauna that rests where an entertainment center once was, that is!).

Oh well.  Thereafter with a foggy fatigue and soreness above my breast (from accessing and deaccessing the port each time) I make my way to bed for a very long nap.  The seizure attacks are coming down giving way to a time of rest.  At least I can retreat with a little more peace to the one place that remains undisturbed!

Perhaps one day I will find an internal space that refreshes when those around me can’t quite get it done.  Oh wait, yes, there it is in the shelter of the wings of my Savior, Jesus Christ.  He protects me and refreshes me from the trials, the troubles all around.  With Him I can face another day with renewed strength and courage.  You are my resting place, my hiding place, my refuge, my shield, my home.  Sigh.  This is good.  This is really good, thank you my Lord Jesus. With you I am truly home no matter where I am.  JJ

Psalm 142:5 (NIV)

I cry to you, Lord;
    I say, “You are my refuge,
    my portion in the land of the living.”