CVA – Jesus is for the Wounded

Only my potato chips remain crushed today

Published on March 1, 2015March 1, 2015 by Jesus is for the Wounded4 Comments

Who knew that finely crushed, Unsalted Kettle Potato Chips would be like a salve to my wounded frame today? In the spirit of my previous foodie post, I must say that finely crushed chips make my creamy beef stew-ish soup puree quite special. Since there are potato chips in my belly, life will go on after all!

Yes, there is other good news after enduring 36-hours of hell, ending about an hour ago: we believe we have identified the trifecta-root cause of much of my illness. However, unlike a horserace where a bet on a trifecta identifies win, place, or show, we are not sure of the order of these little fillies:

Two infected teeth with root canals
Inflammation secondary to the infection and
Dental galvanism from dissimilar metals in the crowns of the root-canaled teeth.

Now we recognize that while we certainly won’t know the exact cause until the teeth are extracted and I have treated the infection, if needed. I am on a waiting list for a local surgeon after a trip to see a qualified biologic dentist out-of-state resulted in being passed on to someone else equally far from home. My husband has led us to the decision to find someone else locally; I am on a waiting list to have my appointment moved up from April 2nd with the best local oral surgeon. Those Gentle Readers who have followed me for awhile know that I have thought before that we found the “root cause” of everything. The “it” still could be complicated by underlying Lyme disease, mold neurotoxins and the definite mercury toxicity fueling it all. Yet one thing is now clear: these teeth still have to come out!

Here’s a brief summary of these three new factors in my own words:

1. When a person has a root canal procedure, a dead tooth is left behind. The primary root canals consisting of nerve tissue and blood are scraped out and a rubber-like substance called gutta percha is stuffed into the remaining cavity. While the opening is treated with an antiseptic, no one can ever know for sure if any secondary root canals were left un-cleaned and untreated. Any remaining nerve and blood tissues dies and can provide food for aerobic and anaerobic bacteria.

Between the root canal channel and the outer enamel of the tooth is the dentin, consisting of 3 miles of dentil tubules. These are too numerous to be completely sterilized before placement of the gutta percha. Thus there is a possibility of infection seeping into the dentil tubules. When a tooth is healthy, all of the dental tissues are washed with blood but this is no longer possible with the severing of the blood vessels during the root canal procedure. However, if the infection grows, the bacteria can eventually seep from it’s hidden little factory in the tubules into the jaw bone and surrounding blood supply thus potentially affecting the mouth and rest of the body. It is well-recognized that these bacteria can be exceedingly dangerous.

Lastly, during a root canal procedure the periodontal ligament is often left in place around the dead tooth, adding further risk for infection and necrosis from this dead tissue lying next to the gums or jaw bone. Only in the dental industry is a once-living, now-dead tissue and a dead structure (the tooth) allowed to stay in the body; otherwise this tissue would be surgically removed as in the examples of damaged frostbitten fingers, gangrenous toes, severely burned skin, etc!

2. As spoken by the nurse in my doctor’s office this past week, reddened tissue means inflammation and often indicates the presence of infection. Pain in the upper left portion of my jaw has lasted over 13 years, increasing lately to the point of requiring periodic Ibuprofen and topical treatments such as (diluted) clove oil. I now chew food only on the right side of my mouth, avoid hot and cold temperatures, and consume soft/pureed foods so as to minimize the chewing and pressure on my teeth that trigger convulsive episodes. Geez!

3. Though considered controversial by traditional dentists, it is easy to find hundreds of mainstream and holistic dentistry sites that have described the dental galvanism (aka “battery effect”) that can occur from the use of dissimilar metals in amalgam fillings, crowns, and dental appliances. I had my amalgam fillings (generally consisting 50% of mercury) removed many years ago yet there remains a question if there is any remaining underneath one of my crowns. The bigger issue is that three of the four crowns in my mouth consist of a combination of metals. To establish if the presence of metals (in the presence of saliva) creates any currents between my teeth, yesterday my husband and I touched the probes of a voltmeter to the surface of the two teeth in question. The voltage was TWICE that of my skin on my arm! Steve questioned if this small amount of voltage would be of any clinical significance? Note that microcurrent (significantly less than the voltage we measured on my teeth) is used in rehabilitation for the treatment of pain. This means that the body must be affected by tiny currents. Too bad the current in my teeth is not mitigating pain! Conversely, I wonder if this battery-effect is over stimulating a part of my brain, triggering the convulsions instead?

Now to flesh out number 3 a little more, I refreshed myself on a little neuroanatomy. The upper branch of the trigeminal nerve innervates the upper and lower jaw of the mouth. The trigeminal nerve originates from a part of the brainstem called the “Pons” which sits on top of the spinal cord inside the back of the skull; three branches extend on each side of your head and across the face with the mandibular branch dividing over the top and bottom of the jaw. During dental procedures, this is the nerve into which a dentist injects a numbing agent such as Novocain. The motor division of the entire trigeminal nerve derives from the basal plate of the embryonic pons, and the sensory division originates in the cranial neural crest.

Fifth Cranial Nerve Distribution: Trigeminal Nerve (from Wikipedia 2.27.15)

To hypothesize what electrical stimulation from 1) this battery-effect flowing 2) BACK TO the brain in the first two of these three areas could mean for a person, I took some liberties and looked up the symptoms of the person who has a stroke affecting these three areas. (The cranial neural crest has more significance in embryonic development and stem cell research than the discussion here so I left it out.) My findings are fascinating. Please note that the exact symptoms will depend on which biological “electrical circuits” and junctions are affected since the structures are so small and interrelated; we cannot know for certain which structures will be affected. Regardless, I have listed a few symptoms that I do experience from each of these respective areas during my own seizure attack or convulsive episodes.

Damage to Basal Plate Symptoms: Loss of movement, such as stiff, rigid or weak muscles; tremors or body shakes; aphasia (difficulty speaking); changes in eye movements; or changes in motivation or personality.
Damage to Embryonic Pons Symptoms: Weakness of upper and lower extremity (arm and leg on same side as damage); dysregulation from inhalation to exhalation (difficulty breathing); sleep paralysis (inability to move when falling asleep or after waking up and altered dreams); difficulties with balance (ataxia); dizziness due to vertigo; or clumsiness of a hand or arm. A person with a severe stroke may need help with self-care or feeding as a result.

Wow. These all have happened in some combination with each “tazoring” as I call it. Thankfully there are higher parts of my brain in the cerebral cortex that appear unaffected and thankfully the symptoms are not permanent so far! I would not be able to write this blog if the damage was permanent. But I know I cannot overthink all of this. After the onset of acute upper back pain two days ago, I feared what the range of random electrical charges on my weakened frame could do to my heart. Or was it a heart attack? Well, no. I had gone too far. Pain comes from thrashing around and will be dealt with when I return to physical therapy and chiropractic care sometime after dental surgery.

Wasn’t this interesting? There is much hope in putting all of this together. Please join me in praying for the Lord’s will in all of this. And if it is the Lord’s will, I would love to have these two crazy teeth outta here ASAP! Time for these little ones to go! I prefer to be toothless in Indiana with crushed potato chips on my soup of the day instead of this saga continuing. Even if my hypothesis was wrong, I am grateful for the mental stimulation, the challenge of the hunt. I trust that the Lord will use all of this for His glory. Maybe this insight will help someone, somewhere, someday?

And you know and Lord willing, this year I AM GOING TO GET WELL!!! Yeah baby. Take care Gentle Readers. JJ

And then I got up

Published on September 22, 2014September 22, 2014 by Jesus is for the Wounded4 Comments

It was the most horrific of reactions: writhing and such.

Even our pup could not make guttural sounds like me in my muck.

Earlier I sensed a reaction soon was a’comin’ . . .

And lo on the way home the tics started showin.’

So we showered once home, throwing our clothes in the wash

In case you think romance followed I’ll tell ya that was ‘nash —

Not the way it came down I say as I leaped into bed

Barely dried off and with a wet towel flung from my head.

An hour many would not survive followed me in there

I marveled as my lungs, heart, and mind would again persevere.

My beloved raised me in his arms to feed me some water

Then with more wimpers and smaller jolts he sensed the cause of the matter:

An older building, became soiled with everything one could imagine

‘Twas cosmetically upgraded with bright lights and smiles on everyone.

It was hard to tell during a visit as important as this

That there would be hell to pay later for pursuing a visit.

But that’s the way it goes when your brother finally gets the care he needs

In a 4-star nursing home upgraded from one he survived where they could subtract at least 3.

We chatted, we laughed and the pupster Elle provided all the charm

The rekindling of family love, fulfilled with treats from my oven still warm.

Then came the gift from my bro when Mike let me play O.T.

And minister to his contracted frame, providing hope to both him and me.

My skills were still there and his muscle memory someday could return

Lord willing we shall see His purpose and be grateful for this wild ‘journ.

So how can I complain that some new treatment of my own did not hold

When I just started 2 days ago then walked into a fiery test a bit too bold.

‘Cause long after the last jolt, the last choreathetoid seize

I was able to get up and make myself something to eat.

Now sitting here listening to my slumbering beloved who works in the ‘morn

I am grateful for so much although tonight so much is yet unknown.

“When will this crap end?” I ask myself and the darkened night air

“In just a little while,” responds the Lover of my soul Who holds my life in His care.

So even in this I will trust in the God Who has promised

That all things will be good. Get back to bed. Good golly it’s almost (morning)!

A Pig for Sale

Published on August 21, 2014August 21, 2014 by Jesus is for the WoundedLeave a comment

Only in Indiana. Or maybe in any other State with farming. Well that would include all 50 States. I guess it’s just new to me . . .

The Facebook page for selling stuff in my town had a posting for a pig for sale: $300 for the live beast. I actually thought about it for a moment! The biggest issue would be finding a place to store all of that meat. Our lil’ freezer just ain’t big enough for my hubby’s ice cream and my bone broth in addition to a virtual bevvy of pork! Darn. I’ve been missing BBQ ribs for some time now!

I suppose that someone else with a chest or upright freezer will jump on the offer. Maybe our neighbor who bought our used freezer will find it in her budget to feast on Porky Pig for the rest of the year? Or maybe not. But if she invites us over for some Famous Dave-style ribs I am sure that we would oblige! We will even bring my Grandma’s famous potato salad. Yeah I won’t forget the horseradish, pickle relish, and bacon grease (aka “secret ingredients”)!

We live in a time where you can buy and sell just about anything. With the diversity of our world and our accessibility to most of it via the internet, we can get much of what we want for a price. Do you want someone to paint your business logo on his hairy belly and sing a song for you? Just check out the gigs on http://www.fiverr.com and it will be yours for the price of a latte’. My preference for that one would be “NOPE.” That is, in the physical realm. There are other realms for which I would need a song you know. And tonight my heart realm can’t buy me even a lullaby for peace of mind. My heart is breaking and there simply is not much I can do about it but pray.

My brother, Mike, whom everyone else calls Michael, continues to live in a wretched inner city nursing home after a serious stroke. He is four months post-CVA and three months enduring the “3 hots and a cot” provided by a one-star facility. I flipped when I found out that he had an infectious rash on his hemiplegic hand! I asked his fiancé and Mike to check for signs of bed bugs and call the State Ombudsman immediately if they found any signs of them. Mike’s roommate itches too. Hopefully it will be a case of an allergic reaction to the laundry detergent. But why would the bumps become infected? Good golly. Water (no juice, milk, or coffee) for breakfast, a delayed response for significantly elevated blood pressure, and no follow-up whatsoever on a 6 cm kidney tumor ARE ONLY THE FIRST THREE items in the long list of substandard care complaints. So sad.

Lisa, Mike’s precious fiancé, is at her wit’s end trying to get Veteran’s Administration or Medicaid benefits processed correctly to change his situation. She faithfully visits him when she can, brings him home-cooked food, and follows up the paperwork nightmare as Mike’s legal guardian. Just when I wonder if things moving forward fast enough or why she hasn’t returned my phone calls I find out that she has started a new job to try an better their overall situation. She is such a trooper. Thank the Lord for Lisa’s love and care for her Michael. And our cousin, Lisa, helps out where she can as well. Cousin Lisa is an optometrist for the nursing home and has more than once been able to positively influence his care by her presence, her visiting, her dipomacy, her support of fiancé Lisa. They are doing the best they can and that is both a gift and all I can ask from 200 miles away.

This is such a curious situation, you know. I am an occupational therapist with over 30 years of professional experience including patients with the very same medical condition as my brother. Yet due to a severe illness I am enduring, I cannot even visit him! The dirty conditions of his living environment would surely trigger seizure-like attacks for me. Chronic Inflammatory Response Syndrome, Multiple Chemical Sensitivity, or whatever you want to call this nightmare is keeping me from seeing my brother. And this is the Lord’s plan for both of us right now. I don’t understand it. My heart is hurting. I would be honored to work more closely with Mike, even provide supplemental therapy or visits. I cannot do it right now. Oh sure, I send him something in the mail occasionally or make a phone call to his facility and get placed on hold for a very, very long time before actually getting through to anyone less than 50% of the time. We are all doing what we can and waiting on the Lord. It’s just so very frustrating for each of us!

So if you’ve got an extra 300 bucks to donate to our cause, kindly send it to St. F—— Nursing Center in D—–, room 207. Leave the pig and get my brother out of there please! They might not notice Mike missing for awhile since a piece of meat is a piece of meat when you don’t care much for the sweet sense of humor that used to characterize my tall lanky sibling. Oh geez, I’m getting a little upset here aren’t I? Well at least the pig will stomach the food a little better without complaining. Like the Cheerio’s commercial said many decades ago, “he’ll eat anything! Hey Mikey!” Yeah but it won’t be Mikey. One day Mikey will be gone from the place he and his fiancé are calling, “the dump.” May the Lord pour out His grace on those left behind when he does go.

I just hope that moving day will be soon. O.k. I’m done venting. Gotta get back to praying. JJ

Inspired by Michael

Published on May 11, 2014May 11, 2014 by Jesus is for the WoundedLeave a comment

Gotta love a wacky sense of humor! Call it gallows humor if you will. Today it is keeping me sane.

Here are a few momentos as I support my brother, Mike, recovering from a stroke. Enjoy! JJ

And then you just hope to move sideways

Published on May 9, 2014May 11, 2014 by Jesus is for the Wounded1 Comment

Here’s a brief update on my brother, Michael, and me with a prayer request:

At this moment Mike is moving from an acute, inpatient rehabilitation facility to one of the lowest-rated nursing homes in the city of Detroit. The social workers claim that of the 35 facilities they have contacted, St. Francis is the only one who would accept him. The reason? He is “Medicaid Pending” and does not have any other insurance. We are sad and concerned.

Today Mike’s rehabilitation stops until Medicaid is approved. Today Mike learns how the indigent of our society are left behind in facilities located across the street from an abandoned buildings in scary neighborhoods. Today Mike decides whether or not he is a FIGHTER. I only got to talk to him briefly before the transport vehicle came to wheel him out of his private room and begin the next leg of his recovery journey. He has made tremendous gains in cognition, swallowing, self care, transferring from one seat to another, and even walking. Mike has had close monitoring of his medical condition, medications, and test results. The plan to address a complex cyst on a kidney remains unclear as he moves away from his rehabilitation and medical specialists. None of them go to the new facility. It is unlikely that he will receive any rehabilitation therapies from this point forward until his Medicaid is approved. We are sad and concerned.

We are hoping that this transfer is a move sideways and not the beginning of a downward slide. At this point I do not believe that he knows that he will be receiving fewer services. He is concerned about the facility location and the comfort level of his fiancé visiting him in an unsafe neighborhood. Gratefully our cousin, Lisa, is an optometrist who sees patients there every 6 weeks. She has known the staff there for 10 years. We are hoping that this helps place Mike in a favorable light. Lisa has also offered to accompany Mike’s fiancé, also named Lisa, on her first visit to the new place. I am exceedingly grateful for this. I wish I could be there too. I cannot go at this time.

I had my own questionable “move” this past weekend. Difficulty breathing and bizarre, violent seizure attack episodes landed me in the emergency room. I received “treatment” and returned home; the last three days have been marginal yet better in some ways. I saw my family practice physician yesterday and was able to put together a few plans to tighten up my treatment plan. Unfortunately I had to escape outside for fresh air THREE TIMES due to the mold aerosols in his water-damaged office building! Did I mention that I was already wearing a charcoal mask? Geez. I was re-reading the Clinical Summary this morning from my visit and collapsed at the kitchen table into a pile of seizure-like tics. Perhaps the aerosols followed me home on the porous copy paper? Who knows. My gracious husband has seen me through it all, threw out the papers this morning and opened the bay windows to help me revive. Thank you my beloved Steve!

Sometimes it looks like things are going downhill when actually we have just stepped a little to the side. Many hidden blessings have come from my brother’s stroke: developing a closer relationship with his fiancé, rekindling a friendship with my amazing cousin Lisa, and seeing a few family members step forth to love on my brother are wonderful. And in my own situation I now have a biotoxin illness doctor who is willing to go to bat for me when headed to the ER on a Sunday in addition to an incredible husband who is my kinsman redeemer. Steve is willing to love me, care for me, and defend my special needs when needed on my journey to wellness. He believes me that this crap-ola-ski is NOT all in my head and is helping me overcome it too. In both my brother’s and my own situation, I am seeing new expressions of love that have not been there in our lives before. Cool beans. Thank you Jesus!

Gentle Reader, would you kindly pray this scripture with me? I pray that we will lean on the Lord, trust in the Lord, and have courage to move forward when-and-as the Lord leads these next few weeks. I need to rest in the tender care of my Jesus and not get ahead of the work He is accomplishing in today. After all, I do not want to miss the richness of His tender care, His presence in each breathing moment. Such a joy it is to know that He is here carrying Mike this afternoon in that transport van. Such a joy it is to know that He is here too with me and you carrying our thoughts and prayers to our Heavenly Father for His wise care according to His Divine plan for our lives. Perhaps sideways is a good place to be right now.

Want some bulletproof coffee? Let’s go out on the patio and sit for awhile. The sun is shining this afternoon and the narcissus, tulips, hyacinths, and buttercups are blooming!