The view from here

Strangely dim or so it seems at times with

My cries, my prayers, the scripture that rolls off my tongue to no where

All serving as a cathartic drug I suppose I suppose.

My mind is stunned in an electric shock of sorts:

Body thrashing, limbs violently shaking, breathing withheld for a very long time

Until the darkness that seizes me lifts its grip on my life with the deepest sigh.

Living in hell will bring weeping and gnashing of teeth it is written

Surely worse than mine yet I still don’t like the taste that visits me,

Not knowing from whence it comes, from whence it goes rendering me useless for hours on end.

The next big thing keeps me chasing that miraculous dream inside:

To find a cure, the right Doc, the right stuff to end it all already

Should it exist this side of heaven we both ponder my sweet friend.

“What will be the villain’s name?” I wonder then do not care

The left side of my brain is tired and just wants to go home, to settle here in my heated bed

To sleep perchance to dream, aye, there is the rub as Hamlet said.

Not much has changed:  the beaten-down headache remains the same;

The husband lacks sleep and cries softly as his love tears our heart strings painfully once more.

What will his own lean on the Lord reveal from the Divine gift of a brilliant  mind?

We ponder a move.  We ponder a Mayo run.  We try variations on old remedies.  We pray for fumes to carry on —

As day falls into night and our intimate distance is lengthened over and over again.

Psalm 41.3

Yes, this is hard, Gentle Reader, and not a path for you I would ever choose.

It came this way anyways ordained by my Lord exactly for now as you have faithfully watched it unfold . . .

The nightmare is not over yet:  the final scene unwritten with the cast still shy of their curtain call.

So we will hang tough for the fourth year, the fourth act, that melts into a joyous season as they say

Of Christmastime when all we should do is look up anyways from our worries, from our homested.

It’s all about that Baby right (the One in the manger with stench all around His head)?

Yes:  He has come to save me, to save you, to make right that which hangs low on a starry night, for those who believe dontcha know?

My Jesus Who saved me with perfect grace once and for all

Will bring me to a better place with a view I cannot see from here:  one that faith beautifies beyond hope, beyond dreams, beyond the best love that has carried me thus far.

And when that moment comes when heaven is the only expanse of scenery from here

Twill be no matter the bumps, the downhill runs, the heights with hind’s feet lighting on high.

I pray that I will get to see you there Gentle Reader:  it is with you I want to celebrate it all!

For someday our cares, our view will be transformed and it will be as beautiful as promised.

But just assure me this:  will you be there in my view?

With love, Just Julie

 

The leopard print scarf in the bed

Perhaps it is the sheerness of the fabric that adds allure to the leopard print scarf in the bed with me this evening?  After all the fine braided fringe is as delicate as it is a bit racy draped from my waist, a little off to one side.  Yeah that was fun while I was upright earlier today!  I accepted the compliment from the only homo sapiens of the female genre that saw it.  Oh how I love a great twist on the ol’ oblong scarf look!

But this look continued long after bedtime and not for any reason other than I was not in any shape to return it to the scarf organizer.  So after a wretched series of breakthrough convulsive episodes I finally had the fine motor skills to untie the knot and remove it.  I rather like it draped around my neck in the wee hours of the morning as I sit here blogging in my partial day-wear, partial night-wear.  That’s in style, right?  The ultra casual look of pajama-like fabrics with a twist of animalistic flair?  Sigh.  O.k. It’s just plain weird, I know . . .

The part of the evening that went extraordinarily well was our new Skype Bible Prayer Group.  I am blessed to join a couple of lovely ladies, fellow bloggers for a bit of gaggle, scripture, prayer, and more gaggle.  It’s almost like having them over for a cup of bullet-proof coffee-n-coconut cream (my fav!).  If you too are largely homebound or isolated and want to join a couple of gals on Thursday nights who love the Lord, please contact me via this blog.  We are praying for the gals who may join us in the future; could it be you?  I will also help put together a gentlemen’s group if there is interest then bow out.  Please don’t sit there alone if there’s a tug on your heart to get back into some uplifting fellowship, k?

So some things are a little wild around here as I tweak a new treatment plan for mercury toxicity.  Steve and I are hopeful, really hopeful.  Healing crises are often in the mix of these kinds of things so we will hold on to the promises and cross of our Lord, Jesus Christ as we proceed.  Who knows?  I may even start a new bedtime fashion trend in the meantime!  Who says leopard prints are only for daywear anyways?  Tee hee.  Now I know where your mind just went and I’ll bet your beloved would agree to join you there.  Maybe it’s time for a little spice in this journey too?  Hmmmmm.  JJleopard cub

 

The small things matter too

My holiday weekend will be measured by small things, small joys.  And these are no less than the big trips, celebrations, fireworks, and gorgeous mountain views from my friends on Facebook.  Here are the things that matter most to me:

A view out a bedroom window that captures the emergence of the giant hibiscus flora.

The sweet look of concern from our furry friend when she knows what’s up and how to love with her eyes.

My beloved who can live in the moment with me no matter what life brings.

I made it through the time that needed to pass while awaiting a medical appointment on Tuesday.

The creative block with Trinity Jewelry by Design broke through with a new bracelet design and a bunch of cute variations with more to follow soon.

Tending to the William Battin roses that exceeded my expectations early this Summer.

Witnessing the promise of a bumper crop of cucumbers to redeem the poor showing with the cool Spring last year.

Time to relax with Steve at home, to review, to plan, to talk, to enjoy meals together.

A couple of phone calls with my brother who is making the most of a frustrating recovery from a stroke.

Long moments dwelling with my Lord in His Word yielding encouragement and refreshment for my soul.

A firework display from the comfort of our kitchen table, compliments of the neighbors next door.

Yes, the small things matter too whether you are recovering from a serious illness or not.  I’ll bet you can think of a few special things too?  I’d love to hear about them Gentle Reader.  Your words encourage my heart and I’d like to get to know you!  Take care,  Just Julie

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Home of the Brave

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Yesterday on the Fourth of July we celebrated the independence of America from Great Britain.  Among many patriotic sayings is a phrase from our national anthem:  Francis Scott Key’s Star Spangled Banner:

O say does that star-spangled banner yet wave,
O’er the land of the free and the home of the brave?

Indeed this song that was sung while waving our American flag is still a symbol of heroism in the United States of America.  And yet I submit to you that within the hearts of the great and mighty that exude bravery are the once ordinary citizenry that the Lord rose up for great deeds.  Those neighbors, husbands and friends chose to align themselves with the God of the universe who reigns supreme and will come again for His own.  Similarly if anything I write here telling my own story reflects bravery then it is a reflection of those everyday heroes in my life that hold me up as well:  many more than I can list here.  Allow me to share with you.*

*A dear friend, Cindy, who checks in on me regularly despite her busy work schedule and home life.  From her I learned to de-mystify alternative cooking for health (a task which consumes much of my waking hours these days!).  Canned coconut cream from a downtown Asian food market is my new delicacy and gratefully it goes with everything.  She’s probably the best resource person I know for local health and food stuff, is extraordinarily encouraging, and has a heart bigger than her petite frame.  Love you girlfriend!

*Three regular readers of this blog who graciously let me know they are out there from time to time:  Jennifer, Sherry, and Amanda.  Some may say that it is not a real relationship when you meet a person online and don’t have any face time with them.  I disagree.  After all, I met my husband online via Yahoo Personals many years ago!  And we are living happily ever thank you very much after having bridged the gap from anonymity to familiarity.  Yes:  very familiar indeed!  I appreciate the prayers, sharing, overcoming spirit, and support of these three lovely ladies in their own heartfelt blogs.  Amanda generously read and reviewed my first eBook last year.  Thank you ladies!  Find them at:

My Color is Lyme

A Labor of Love

Amanda Lannon

*My brother and his fiancé, Mike and Lisa.  My brother had a severe stroke 3 months ago and was subsequently dumped in an inner city nursing home because he didn’t have insurance.  Together they are navigating the difficult processes of securing Medicaid and Veteran’s Administration benefits.  The paperwork, dead ends, delays, and frustrations are intense as time passes without comprehensive medical care or ongoing rehabilitation.  While our conversations about all of these are certainly lively, I am impressed by my brother and Lisa’s overall prevailing spirit.  Mike is looking forward to the day when he can serve others in a similar situation possibly as a dog handler in a pet therapy program.  He is delving into the Word of God often now.  Lisa is fulfilling well her new role as Guardian despite being way out of her comfort zone.  These are good things.  I’m proud of you both!

*My husband Steve.  The love in his eyes for me never changes whether he is carrying me to the bathroom (due to daily episodes of neurological collapse) or showing me how to shoot a pellet gun at an empty gallon jug of orange juice.  He may not have had enough sleep for the previous four nights in a row and yet his love never changes.  He is my Jesus with skin on and greatest hero on this earth.  I love you River Bear!

*The Lord, Jesus Christ most of all.  When I found myself single at age 45, the Lord had become my Heavenly Husband and everyday companion.  He had to become real to me to fill the painful void leftover from my estranged ex-husband.  My Jesus also showed me the once empty places in my heart designed just for Him then filled them completely.  I know that I am never alone.  Ever.  He is the great I AM, worthy of praise, and a warrior for the cares of our days.  No matter what comes in this fallen world or how wretched, He has overcome all of it.  Those of us who believe in Him through a personal relationship with Jesus Christ will be saved and spared any more suffering when He comes again for His own.  The Lord is the ultimate hero in which we can place our lives, our confidences.  Every good thing and the bravery needed to face these challenging times comes from the one true God.  In the shadow of His wings I am comforted, protected, find rest.

For the nation of Israel, into which we believers are adopted as sons and daughters of the King, we find our freedom, courage to go on, and rest in the Lord.  It is the hope of my heart that you, Gentle Reader, will find these great gifts in the person of Jesus Christ too.  In Him we have the greatest of heroes:  brave beyond compare.  Now that’s a holiday worth celebrating today and every day.  Bang bang!

***************************

Psalm 147 (NIV)

Praise the Lord.

How good it is to sing praises to our God,
    how pleasant and fitting to praise him!

The Lord builds up Jerusalem;
    he gathers the exiles of Israel.
He heals the brokenhearted
    and binds up their wounds.
He determines the number of the stars
    and calls them each by name.
Great is our Lord and mighty in power;
    his understanding has no limit.
The Lord sustains the humble
    but casts the wicked to the ground.

Sing to the Lord with grateful praise;
    make music to our God on the harp.

He covers the sky with clouds;
    he supplies the earth with rain
    and makes grass grow on the hills.
He provides food for the cattle
    and for the young ravens when they call.

10 His pleasure is not in the strength of the horse,
    nor his delight in the legs of the warrior;
11 the Lord delights in those who fear him,
    who put their hope in his unfailing love.

12 Extol the Lord, Jerusalem;
    praise your God, Zion.

13 He strengthens the bars of your gates
    and blesses your people within you.
14 He grants peace to your borders
    and satisfies you with the finest of wheat.

15 He sends his command to the earth;
    his word runs swiftly.
16 He spreads the snow like wool
    and scatters the frost like ashes.
17 He hurls down his hail like pebbles.
    Who can withstand his icy blast?
18 He sends his word and melts them;
    he stirs up his breezes, and the waters flow.

19 He has revealed his word to Jacob,
    his laws and decrees to Israel.
20 He has done this for no other nation;
    they do not know his laws.

Praise the Lord. 

 

The Burger on the Bathroom Floor

Sometimes there’s a bride carried in the front door at the same time there’s another bride carried out the back door . . .

Hi there.  My name is Julie and I have a wacky life.  Not that my life has ever been boring, mind you.  Lots of difficult things have kept me on my toes (or on my knees before the Lord) for a good portion of my days on this earth.  I used to say it was like cooking with all of the burners on the stove cranked up to the highest setting.  Then there was this network marketing book entitled, Mach 1 with your hair on fire that described things pretty well for me too.  Helen Keller wrote in her book The Open Door, “Life is either a daring adventure or nothing at all.”  O.K.  You get the picture.  There is no rest for the weary so get over it, get on with it, and better get right with Jesus to see you through!

So what’s up with the burger on the bathroom floor, you ask?  Balancing my blood sugar is a key part of managing this crazy biotoxin illness that came on the heels of Lyme disease that came in through the backdoor of fibromyalgia many years ago.  Actually hypoglycemia came first followed by hypothyroidism, fibro, yada, yada, yada.  This all requires me to carry a protein snack and water with me virtually everywhere I go.  Popcorn doesn’t cut it very long.  I cheat sometimes with fatty veggie chips when grocery shopping only to follow-up with a chunk of lunchmeat from one of those ziplock bags from the deli counter usually at a stoplight when driving home.  Whatever.  Who needs a knife and fork anyways?

Dressed up for the wedding of my husband’s son yesterday and our friends’ son today, I opted for the bigger black leather purse (to match my shoes of course and the only other purse I own).  I could stash a butternut squash coconut muffin, some coconut cream, and a burger-lettuce roll-up secured in a Ziploc baggie in there and look like all of the rest of the women with maybe a little extra, er, baggage, if you know what I mean.  Who would know that I could survive an invasion of body snatchers for at least a day with no more than a twinge of hunger when it was all over?  I would be ready.  Unfortunately I did not plan on a wardrobe malfunction (a term coined in the USA after an egregious moment by Janet Jackson during the Super Bowl Half Time Show a few years ago.  I won’t go into it here).  Or rather a leather purse malfunction.  I barely made it through my own snafu with my dignity!

The D.J.s were cranking up the music at the Light Guard Armory to add some ambiance to the large plain, cinder-block walled room with metal doors pained beige to match and linoleum flooring that had been waxed for more years than I have seen the light of day.  The host families had done their best to decorate the place with table adornments inspired by nature and set up a simple, yet respectable snack table for later munching.  I knew I probably wouldn’t be able to eat any of it (can you say M&Ms and Reeses Pieces for dessert?) so I settled into the scene comfortable with the stash in my purse.  Surely the burger was o.k. unrefrigerated for a couple of hours.  The only problem was that I was getting very hungry!

What’s a gal to do waiting with all of the other guests for the wedding party to arrive, dressed up in her Sunday best with low blood sugar looming and a burger in her purse?  Well I learned a long time ago that if you need a moment of solace you can always escape to the bathroom.  No one usually questions your actions in there!  It’s a little different story, however, if you are a gal since gals tend to chat while tinkling, primping, washing their hands, and adjusting their bra straps not necessarily in that order! How do you fit in whipping out a burger in your purse?  Answer:  you don’t.

The next level of defense is to squirrel away in a bathroom stall, quietly unwrap the nourishment of choice, and snatch a few bites while crouched between the open areas on either side of the door.  If someone “accidentally” sees you wiping your fanny through the crack by the hinge it’s o.k. but eating in there?  EWWWWWW!  No way!  But who really cares anyways if you haven’t used the toilet just moments before and the place is clean.  I mean my hands were clean.  Oh yes, and one must make sure that no one else has camped there in the past hour either, if you know what I mean!  Once you have your sequencing down, you can hide your medical self care in this way if you so choose just like a diabetic might do the same when administering insulin in a public place.  Sometimes it’s just better to take care of it in the one private place to which you can always retreat.

I did not count on what happened next.  I was one large bite from finishing my life-giving, 1/2 burger wrapped in Romaine lettuce with a wedge of coconut spread when the burger went tumbling onto the floor.  Oh my goodness!  Not my precious sustenance!  Suddenly I became acutely aware of how really wrong it is to bring food into a bathroom.  Then trying to eat it there even in secret no longer seemed like a good idea.  Years of preserving my sense of social graces came to a screeeeeeching halt!  There’s a burger rolling on the bathroom floor and it came from my direction! 

Of course I did not count on what happened next either.  Just then I heard what seemed like a gaggle of women entering the restroom.  Holy crap!  (Pun might be intended here.)  In a flash I made a dash to pick up the chunk o’ meat, rinse it off in the sink, hide it in my hand, murmur something like, “excuse me my stuff is in there,” and retreat back into the stall with whatever style and grace I could preserve in my moment of horror.  How could I ever have explained a burger rolling on the floor?  Never mind.  Nothing came to mind.  I stuffed the once delectable beef/bison griller into the open piece of Saran wrap in my purse and zipped it closed.  Snack time was over.  I would have to survive on the bites consumed thus far.  I thought I would be o.k. with that so I walked “looking normal” out of the stall to wash my hands then leave.  The two unsuspecting witnesses left with their curious glances, having never stopped their conversation during their porcelain activities.  Cool beans.  I was now in the clear and free to leave as well.

Sigh.  Some things in life are strange at times.  You just gotta do what you gotta do and laugh about it if you possibly can.  Gentle Reader:  the next time you grab a burger off the grill try not to think of me munching somewhere in a bathroom stall, k?  It just might change your appetite a bit.  If you do try adding some more spicy mustard and you will be fine.  I promise.  JJ

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