Said goodbye to a group I started on Facebook that grew to well over 3,000 people, my Co-Admin and I helping them with mercury toxicity as best as we can. My leave-taking occurred over a period of weeks and ended yesterday. It was time to free up some energy for other projects. Still, you have meant so much to me.
Experiencing fewer serious convulsive episodes lately after embarking on aggressive treatment for systemic Candida albicans plus flares of herpes simplex, and herpes zoster. The ramp up was very difficult yet, coupled with another treatment for a chronic MARCONs infection in my sinuses, it appears the body burden of infection is going down. Along with it there are at least 2 days every week for the past 5 weeks without convulsive episodes or tics! Only one severe episode every 5 days! Having more moments of relative freedom means so much to me after 9 years trapped in a prison cell with fear-of-episodes: avoiding triggers seemingly present in every aspect of living. Thousands of convulsive episodes nearly destroyed my health, my life. Now the the beatings have lifted some.
Simple changes in the timing of compounded hormone creams coupled with specific pharmaceutical grade supplements to help regulate cortisol levels took about a month to affect my sleep-wake cycle. This all came together rather casually when my Family Doctor reviewed the treatments of my Integrative Medicine Doctor. Both of them contributed to a significant change and so did I. I ventured out to find yet another recommended supplement and braved taking it when literally hundreds of treatments in the past have resulted in disaster. The Lord guided me in tweaking the dosing. And now most nights I sleep at least 5 hours during the normal time of night. This means so much to Steve and me.
A quagmire of new dental issues furthered my belief that not much in the medical realm is simple for me anymore. A simple cavity took a total of 4 dental visits to resolve, 2 with conscious sedation and all with considerable suffering, serious side effects. The latter included another flare-up of shingles! But now the insurance coverage for ongoing treatment of HHV1 and HHV3 is better and I am tolerating the dosing most of the time. So what if I have to soak the dye off of the tablet so it doesn’t cause a headache. I digress. PTL, He helped me figure it out. After my mouth fully heals and I can return to regular wearing of my specialized dental appliance, I should be stable once again. No more pureed or chopped food. To be stable means a lot to me.
The diagnosis of Occipital Neuralgia dovetailed multiple cranial nerve issues (vagus, trigeminal, glossopharygeal) that result in convulsive episodes. This discovery has led to new treatment strategies that work for me. No, it’s not fun to sleep with an ice wrap around my head at night but if it largely prevents a seizure attack episode falling asleep then I WILL DO IT! Nerve block injections tomorrow have the possibility of confirming this dynamic. It means so much to me to have tools to help my symptoms, to lessen my suffering. Very sparing use of new medications has rescued me on my worst days. Over the past 5 months, it only took a failed visit to the Cleveland Clinic and four visits to the professionals at a local pain management clinic that actually listen to me to figure it all out. At long last, I’ve got tools that work to lessen pain! Less pain means fewer convulsive episodes. Who knew?
The difference between my self esteem getting bruised from chronic illness and graciously seeing the Lord’s hand in delivering me from the hardest parts of chronic illness often lies in the hands of nurses at various medical facilities. They run these places. When a nurse actually delivers care and not just a procedure or worse yet ABUSE, I can endure much. The nurse who shamed me, blamed me for things things at the infusion clinic yesterday that were not my responsibility was out of line. I wept once they pulled the curtain to start my IV fluids. I left there in a weakened state albeit made worse with the needle-stick pain of the Huber needle coming out of the infusa-port in my chest wall. I sat in an outer lobby and cried again before emotionally limping as I left the building to come home. I really hate this stuff. I don’t want to be there. Insurance changes then other problems required me to return to a hospital setting instead of continuing in home health. You have to do what they tell you to do much of the time no matter what it means to you.
We have come into a time of year that means the most to me. It’s springtime. The temperature outside is in the 50s and it’s the same to me as a warm sunny day if I can get dirt underneath my fingernails in a garden. Less severe illness symptoms parts of days a couple of days per week means that I can push myself to do more than my basic self care. And so I have. No one needs to counsel or push me to get up and get moving. If I feel better, activity follows. I don’t want to be sick anymore. I’ve learned a lot but never “got anything” out of being sick. I hate and hated being sick but it happened anyways. The Lord has seen me through it all and is leading me into some new projects. These activities stretch me greatly and increase my pain level temporarily. They also increase my interaction with other people, strengthen my broken body, stimulate my mental capacity, and add value to our home and hopefully the lives of others too. By the grace of God I have earned the title of Extension Master Gardner. By the grace of God he has called me to serve others with these abilities so I have chosen to step out in faith by hosting some community gardening classes and even repairs in our own landscape. Sometimes I have to take things an hour at a time. Steve helps, thankfully! I actually get to check things off of my To Do list! Praise the Lord!
We have no idea what tomorrow will bring nor how long it will stick around. When it’s bad news we all go through a process of questioning: why me? why now? What am I supposed to do to get rid of this or perhaps worse yet, deal with this? I submit to you that the only Person to ask these questions to is the Author of life, the Lord, Jesus Christ. He is the beginning and the end, all that the heart seeks to be fulfilled despite living in a fallen, satanic world. He has a plan and a purpose for each of our lives. Every detail matters and is ordained in His crafting of our days, the days of the entire world and its people. You matter. I matter. And that worth does not change based upon our circumstances, thoughts, or other people. No one wearing a badge can take away your ordained purpose on this earth, on this side of the grave. Even if you die, your life will have made an impact somewhere to someone. And if you believe in the sacrifice of Jesus Christ on the Cross, you will live on in paradise where everything is perfect, well, good, and beautiful. Thankfully we get glimpses of heaven here on earth, especially in the garden where His fingerprints color the fauna around us.
One of the most compelling truths I have learned enduring serious illness for nearly a decade is to walk softly when considering the hardest questions of life. Nothing is wasted in a life surrendered to the Lord, a life redeemed by the Lord. Everything will be alright in due time. We can bear way more than we think we can. We pray for the Lord to help us when we cannot see or trust, when the pain is too great. He will bless us. And further there is always something for which to be grateful. Even during a pandemic. Even during tyrannical events in society. Even when our relationships or health or finances suffer a seemingly fatal blow. We are not dead yet! We are also never alone. If we but walk softly as we consider the days of our lives then in due time, our precious Savior will reveal Himself to us. The seizure of our spirits will not last forever, Gentle Reader. One day we will know what it means to be truly free. JJ
In Part 1 of this story, I disclosed a horrific scene that has plagued my mind and body for decades. The only way for the incident to have been true and for me to have survived without going completely MAD, is by the grace of repression. It’s a coping mechanism of our mind that we have to deal with severe trauma lest we fall into addiction, self-destructive, catatonia, mental illness, homicidal/suicidal behavior, or worse. Even though we may not “remember” what happened, the mind and body never really forget and for me, the stored memories of a fateful day has been revealed in bits and pieces over a very long period of time. A strong image, smell, sound, or new traumatic event can trigger a chain of events that brings it back and more recently for me that trigger has been convulsive episodes. The episodes revealed the truth.
A waking seizure attack comprises convulsive episodes for me that are not epileptic nor psychogenic. The seizure comes virtually anytime and, less than 1% of the time, a memory has gotten unlocked underneath it before the episode ends. It’s as if my brain freezes and goes back in time accompanied by a feeling of terror so intense that my brain feels like it is on fire; I cannot stop the screaming. There is horrific pain, gasping for air, and thoughts that slow waaaay down. An observer would describe it as a seizure followed by a nearly catatonic state when I cannot move or speak or breathe. Limbs often shake, one violently flapping then the other, then both legs involuntarily move very rapidly together-and-apart like that of a child in an autistic fit of sorts. I am awake; my eyes are closed but eyelids twitch or squeeze as if squinting (in one eye or both). I am always aware of my surroundings although I may or may not be able to speak when it stops. This electrical activity of my brain-on-fire has had the power to unlock images and scenes from my past that fit what I already recall in my history. It’s as if the terrifying emotion that I was unable to express at the time of the incident is finally released to the light of day. It is not fake. The memory always fits a scene that I do recall from my past, much like what happens when you finally locate a missing piece of a puzzle. A puzzle with edges fried by fire, that is. Finally you can see the full image albeit tainted by the horror of what you are now seeing more clearly.
I concluded Part 1 with two methods that my mentally ill father used to try to get me to forget what happened at his home when I was a pre-teen. Years later I would come to understand that he was 1) using methods that he probably had tried on himself to manage the thought disorder of his own paranoid schizophrenia, 2) experimenting with mind control methods popular in the fields of psycho-cybernetics and psychology of the 1970’s, 3) drinking a lot of wine, 4) not hiding what he was doing most of the time (i.e. there were witnesses who have corroborated pieces of every scene that I have recalled), and 5) trying to get me to forget what happened, perhaps knowing the damage that trauma in his own childhood had done to him. I believe that his mental illness was a consequence of ritualistic (i.e. continuous) verbal and physical abuse by his mother/passive father until he found a way out of the home as a young adult by marrying my Mom. But RoseAnne was fleeing her own abusive father/passive mother. Their marriage was doomed shortly after it started as abusive patterns repeated themselves between them, spilling over into the lives of little Julie, Michael, and Robert. Eventually my Dad ran away, came back, then ran away again for twenty-seven years. What a mess.
Sadly when those really bad things happened to me at his home, he wouldn’t know the difference between how to help me and how helping me ended up hurting me even more. To get me to forget a horrific murder scene, the maiming of his pet German shepherd in a satanic ritual, and the sexual abuse by two women ALL DURING THE SAME DAY of a visitation to his home, my Dad tried used a method of instilling intense FEAR. He wanted me to forget what happened by attempting to cover it with other intense emotions, images, and threats. Forget trying to talk about it!!! (I am aware that there are witnesses who were in the house at the time who have either been sworn to secrecy or were under the influence of so many drugs and alcohol that they have some level of amnesia as well. Maybe something will trigger their memories one day? Maybe one of them will try to find me through this blog?) My Dad was wrong. Subjecting me to more fear compounded the torture, the trauma even more. Eventually I remembered the most important parts of the story. I wrote about it to release it’s power over me and highlight the power of our Lord to overcome my dark hell on earth.
I describe one method my dad used to instill fear in Part 1: nearly drowning me in our backyard pool. The damage to my neck has continued for my entire life. Another method he tried was injecting me multiple times with a psychedelic drug that left pock marks on the inner surface of both of my elbows. Perhaps he thought that the altered mental state created by the drug would cover my memories? He was right: I didn’t recall most of it for two decades. The blisters that appeared right afterwards then later the scars raised repeated suspicion from our family doctor, sure that I was shooting up drugs but hey, I was just a kid at the time. I still have the scars to this day albeit distorted by the effects of aging. Another family member disclosed that some people in my dad’s circle of people used hard drugs in addition to satanic rituals such as seances; sadly he won’t tell me anything else, alluding to needing to protect his wife who I believe was also present. The seances were very likely held at a table right in front of the couch to which I retreated during that fateful day at his house. This exposure to the supernatural world opened me up at a tender age to demonic influences of the occult (that would be compounded by teenage curiosities with a Ouija board). The abuse, the occult, the psychedelic drugs, and perhaps even changing body chemistry of puberty created a lock-down in my mind and body that most people would never survive. I know. It took me a year in a healing prayer ministry to start to understand the power of the demonic and how to stand firmly with the power of Jesus Christ. And as I write this, I am the only surviving member of my immediate family, all tainted by various forms of evil known as abuse.
Three More Methods
For most of my life I have had difficulty falling asleep. It used to take me up to 90 minutes to settle down enough to finally drift off to sleep or rather endure the difficult sequencing required to let go. The problem? Intensely fearful thoughts to the level of waking night terrors at times. If I’d ever had a nightmare more than once, my mind would often recall them again and again at random while I was trying to calm my thinking down enough to be able to sleep. Sometimes a scary scene would continue getting worse and worse then other times it would just keep repeating itself like a scene viewed from a broken piece of film flapping in an old theater projector. As I grew older I learned a technique of trying to re-write the dream or images to a happier ending. Sometimes it helped and sometimes it didn’t. Eventually I passed out anyways from mental exhaustion. Most of the abuse that I experienced in my childhood happened either at night or when falling asleep. No surprises here that I would need to work on this problem for most of my adult life: dealing with night terrors and waking nightmares, terrifying dreams overnight, then flashbacks of abuse.
Another problem was the black-and-white flashes of lighted psychedelic designs that spun in my mind’s eye or were thrust near-and-far at quick intervals before stopping. These occurrences happened every single night as I was trying to fall asleep, somewhere between the first and second stages of REM sleep. I thought it was normal. It was as if someone was focusing the beam of a flashlight on a toy pinwheel or a spinning saucer 2 to 3 feet in front of my face. The bedroom would be dark and my eyes closed after lying down to sleep but the lines and designs in my “mind’s eye” were as clear as a pen and ink drawing on bright white watercolor paper. There was no way to stop these images from coming to mind. They happened every single night of my life for decades. Even though I had taken psychology classes in college and worked many years as an Occupational Therapist in the mental health field, it didn’t register to me that this nighttime behavior wasn’t normal until I finally started getting counseling in my 40’s specifically for this type of abuse. Ritual abuse occurs when a person of influence uses a repeated, harmful behavior to control another person for the gain of the abuser, over an extended period of time. It can be spiritual, demonic, or other forms as well. Flashing black-and-white images in front of my face when I was falling asleep is the third method of ritual abuse that my Dad used to try to get me forget, to try to control me and my thought processes. (It’s actually related to a twisted form of psychocybernetics invented by Maxwell Maltz in the 1960s and described here.)
I cannot explain exactly when or why the nighttime “flash-treatments” began. I don’t know if my Dad said anything when he did this or when he eventually stopped them. How many times did it take for it to become almost permanent in my mind? There was enough repetition to cause harm. After I came to faith in Jesus Christ and about a decade of therapy, the images slowed then stopped. I don’t see them anymore when I am trying to fall asleep. Praise the Lord! In examining all of this, I realized that my dad’s use of strange rituals that were frightful to me as a child were not isolated events. In Part 1 I described how my dad tried to help my brother Mike via messages of his voice on a tape recorder that he played on a special speaker under his pillow as my brother was falling asleep. Those messages were intended to help my brother’s self esteem. Decades later Mike would tell me how much they damaged him, that his Dad must have thought so poorly of him that my dad had to repeatedly tell Mike via a cassette tape that he was a “good boy.” Why didn’t my Dad just say it to Mike’s face? Tell Mike that he loved him? Since I do not recall much affirmation from my Dad as the oldest sibling (who actually looked like a member of my dad’s family; Mike did not and this was an important point that my Mom told me many years later), I doubt Mike got any affection at all. But how could he? My father had none to give . . . Such realizations ultimately helped me to forgive my Dad and paradoxically paved the way to remembering more of my past, good and bad.
Perhaps this all sounds too crazy to believe. Maybe for you but not for me. My Dad’s experimentation didn’t end there though and it would be sprinkled in some manner throughout the years that my Dad was still around. One night when my parents were still together, my Dad had taken the crucifix down from the wall in my brothers’ room to make some kind of repair. When he didn’t come back with the cross right away, I snuck down the stairs to see what he was doing. I believe Mike followed sometime thereafter but I am not sure. The lights were on in the stairway but the basement was very dark, which seemed strange to me. The stairwell was placed in the middle of the basement area of our ranch home and my Dad had created two rooms on either side of it: a laundry room on one side and a workshop on the other. There was no door on either room so you could travel from one to the other underneath the stairs between the two rooms. The walls were a white stucco over concrete, the floor was poured concrete, and the entryway into each room was made of brown paneled walls with a light-colored wood trim around the edges. I spent a lot of time in both areas, fascinated by all of the tools in the workroom.
I slowly peeked around the edge of the paneling into the doorway of the darkened room and was frightened by the face of my Dad lit up by candlelight. What the . . .? He had a look of surprise on his face that I had come down there; evidently I was very quiet sneaking down the steps, dressed in my pajamas and socks. I came around to the width of the opening just long enough to see the cross propped up on a wooden table in front of the mirror of our old bathroom vanity (affixed like a cabinet to the side of the wooden staircase). The Jesus figure and front of the wooden cross shined in the glow of the candle held by my Dad. He was looking at the reflection of the cross in the mirror and doing something that I knew was weird and scary and that I shouldn’t be seeing at all. I don’t know if my Dad made his usual “Yaaaaarl” sound to get us out of there and back upstairs or if it was my sheer terror that caused me to turn and escape as fast as I could. Who knows where Mike was in all of this?! The rest is a blank slate in my memory. It was at least a day later before the cross was back on the wall in my brothers’ room. Seeing that nail hole in the wall without the Catholic cross hanging there sure was creepy until then. I don’t recall my Dad or anyone else ever saying anything about it ever again.
The fourth method that my Dad used to get me forget became the seed of agoraphobia that would plague me my entire life. Sure, it’s normal to be afraid of spiders. What is not normal is experiencing a fear so terrifying that you KNOW you will DIE and have physical symptoms that appear to be fatal when faced with anything larger than a tiny bug on a bedroom floor. Then there are the nightmares for days afterward seeing one even in a movie or a TV show. The fear never, ever goes away or gets better with exposure, talking, desensitization techniques, or whatever anyone tries to do to help me get it to change. I know, I have tried. It’s just not that simple especially when the origin for me was the deliberate use of an already fear-mongering creature to scare me so badly that I would forget the trauma somehow associated with it. I am not even sure how the association was made, just that I knew I would DIE if I remembered what happened that fateful day at my Dad’s house; the phobia reinforced the amnesia. Layer it all with demonic oppression where satan himself uses the fear, the memory, the remembering, the telling, the physical symptoms against you with lies and a worsening of all associated types of pain. They call it spiritual attacks. Perhaps the Lord allowed him to inflict me with convulsive episodes all these years? Perhaps it’s now a tool to uncover the truth of what happened so many years ago? To let me know just how bad the scenes were that it would take thousands of profound electrical misfirings of my brain to uncover it? Talk about a lock-down . . .
Maybe you recall the scene in first Home Alone movie where an 8-year-old boy named Kevin McCallister was accidentally left home alone then tried to outsmart a pair of thieves? One of the booby-traps he sets for them includes letting loose his pet tarantula. I cringed in horror as I knew what was about to happen at some point when the spider met its intended victim. One of the bandits screamed in fear as the spider crawled on his face when he was lying face-up on the stairwell inside the home. Granted probably most of us would scream holy terror as well! But we would not go catatonic in an effort to avert death. A true phobia is not a rational fear, not a moment of screaming that resolves thereafter. My Dad put the large spider on my face to get me to forget the trauma of three horrific scenes of terror in a single day. Equally as traumatizing as the huge spider was the image of black beady eyes of that spider staring at me. I really cannot say anymore right now. It’s still quite disturbing to put all of this together here. This realization only came to me recently and I have just begun the work of unpacking it. The effects of using fear to control me has resulted in lifelong behavioral anomalies, irrational fear, supreme difficulty studying pests and insects as a Master Gardener, avoidance behaviors, nightmares, and more. That is what a phobia does to a person. It starts a survival mechanism of the mind then continues despite its harm. And in the end, it did not get me to forget forever what happened, what I witnessed. Eventually I did remember. In the end, it just inflicted even more harm.
A fifth method was hypnosis although I don’t think that it was applied directly to me. All 3 of us kids were in my Dad’s workroom with him one afternoon when I don’t think my Mom was home. She was often at church doing work as President of the Altar Society at St. Cletus Church. I remember my Dad sitting one of my brothers on a metal stool, the one with the red vinyl top on it, and dangling a chain with a pendant on it in front of his face. My Dad instructed him to keep his eye on the pendant as it moved from side to side. My other brother and I were watching intently as my Dad went through some kind of sequence in a slow, low, calm voice. “You’re getting sleepy” or something like that. I don’t recall if either one of them fell asleep or changed posture in any way; I know that I was able to look around the room shortly thereafter, feeling like it didn’t affect me at all. My other brother was next. I didn’t volunteer. I was curious but also just old enough to know that there was something not right about what my Dad was doing with us. I wish I could remember what the goal was, if there were any special instructions my Dad tried to “suggest” under the influence of hypnosis but I do not. I may have asked what it was used for? Funny how a child is curious about what he or she is seeing a parent do even when it is exceedingly harmful and never should have happened. At a gut level, this experience made me resist the offer of hypnosis from every therapist I have had in my life who wanted to “help me” remember the forgotten years of my childhood. No, no, never!
We should never experiment with mind control techniques on another person when we are not trained to do so and I believe rarely even if the person of influence is trained. The Lord will bring back the memories in His own way and in His own time when the person is ready for them. More importantly I can see no reason for even a trained person to use mind control techniques like hypnosis on a child! It doesn’t matter if it worked for someone else. It’s not the same thing to use a method or object or saying or rationale for mind control over someone else especially without the consent of the other person. A child cannot give such consent as he or she cannot understand the potential risks. I also disagree with a parent providing consent for a child to be hypnotized. If what anyone is doing runs the risk of violating another human being’s right of consent at any age then it may construe undo influence and potentially abuse. We must filter our actions as an adult with what is morally good, what is right, what is fair, and what our Lord Jesus Christ instructed in His Word for how we should live; consulting mediums and mind-altering drugs and ritualistic sayings/prayers are taboo! Tapping into the unconscious mind runs the risk of inviting the supernatural world of which satan rules. Satan only seeks to deceive and destroy. Don’t try to get ahead of God! Please do not yield to “whatever works” Gentle Reader!
Stated another way, we must not “experiment” on another human being, especially a child, hoping for a certain outcome when we can easily run the risk of hurting him, her, or even yourself and your relationship if we don’t get it right. How do we know we will get it right? Neural retraining and the like are popular now in the treatment of Non-epileptic seizures and many chronic illnesses these days. If you must use mind-altering methods, please choose degreed and certified professionals with proven track records and decades of success. Further, I contend that a parent must never treat his or her own child even if degreed or certified in a given technique. My Dad was one of the most extreme examples of the damage that can be done when this happens. My Dad inflicted immeasurable harm that damaged me and my brothers. Although mentally ill, he was still responsible for his actions as we all are. Knowing that he was mentally ill, struggling to overcome it, and abused as a child helped me much later to forgive him and begin to heal. If my Dad did not repent and come to faith in the Lord, Jesus Christ, then God’s Word promises that my Dad will punished one day by a righteous God. He said that he came to faith in Jesus and I hope that is true; the Lord’s mercy and grace will cover him. I don’t like to think that my Dad will face eternal damnation; it’s just not for me to worry about as I focus now on what I have learned along the way and even some good memories that came forth with the bad ones. We did get to make our amends of sorts in 2011 and for that I am very glad, at peace. Further, I have come to understand that everything that happened to me was ultimately a consequence of a larger concept called “sin” and of living in a fallen world. This world is laden with evil led by satan himself. My ritual abuser willfully opened himself and even enlisted the power of satan and his minions not knowing that ultimately satan comes to destroy: he will not help you control your mental illness nor the unruly behavior of 3 innocent children! Sadly, my Dad battled mental illness his entire life.
For me it was not the same thing to know what happened to me as it is to become free of the impact it had on my life. The former is exceedingly painful. The latter is freeing. It’s not the same thing decades later to have a seizure disorder of unknown type and 1) have Doctors claim then that it must be psychological, for some kind of personal gain (yeah right, how sick is that?!) vs. 2) the electrical activity of seizures jarring locked-down memories of horrific trauma. Thank the Lord that I did forget such horrific trauma so I could survive, focus as much as I could on living. Years later it was explained to me that I didn’t have a seizure when the abuse occurred so there’s no psychological reason for me to have seizures now. I had flashbacks of really bad things for twenty years before the onset of convulsive episodes eight years ago. Each memory came back to me when the Lord ordained the timing, when I was ready to handle more of the truth. It took time to work though each nasty piece, lay each one at the foot of the Cross, and figure out how to go forth after reclaiming the full picture of a mixed-up, dysfunctional family, a once mixed-up dysfunctional Julie.
I just wish that now that I can see how the Lord used the seizures for some good in reclaiming my past that they would stop already! I still deal with numerous abnormal lab tests and scans that all could be contributing to the convulsive episodes and tics, confirming an organic cause. Years of treatments have alleviated, changed the pattern of, reduced, and some days even stopped episodes. The latest contributing factor is Autonomic Dysfunction. This diagnosis confirms why vagus nerve stimulation techniques have helped me so much, particularly those of the parasympathetic nervous system. It’s no surprise that it is the opposite, sympathetic nervous system that gets revved up when abuse happens and, for example, would have contributed to decades of difficulty falling asleep at night. My mind and body are more calm now in general than ever before. So I guess I can say that these nine years of battling serious illness has become a serendipitous opportunity to free my life from the various things that trauma and the serious illness itself did to me. I have a long rap sheet of medical problems but my spirit is lighter now than ever before. Good things have happened! This is true even though I still have tics or episodes virtually every day. It’s just taking a long time to find the CURE for whatever is their CAUSE. Lord willing, one day I will be healed!
In the book of Genesis, Joseph professes to his brothers that sold him into slavery the following:
You intended to harm me, but God intended it for good to accomplish what is now being done, the saving of many lives.
Genesis 50:20
Joseph’s brothers were jealous of a dream he had shared with them that one day they would serve him even though he was the youngest member of the family at the time. They faked his death! In the end Joseph survived, endured tremendous trials and years later, rose to fame in Egypt as second in command of the nation that saved the lives of many peoples because of his inspired leadership. When his estranged family came calling for help, Joseph ended up saving their lives as well in addition to reconciling with them. All was restored including his relationship with his beloved father who feared he would die if he lost another son. He didn’t. He gained a son he thought was once lost.
My Dad did very bad things at least partially knowingly what he was doing, akin to those of Joseph’s brothers. Then as the Lord showed me the abuse that my dad had suffered, our familial patterns of alcoholism and mental illness, and brought me to a saving relationship with His son, Jesus Christ, I was able to move from hurt and anger to forgiveness. That forgiveness had many layers as more truth came into the light and as I got to see him after TWENTY SEVEN years of estrangement from our family. I still didn’t know back in 2011 what I know now. The serious illness that developed into daily convulsive episodes came at the end of the year 2011 and after my dad had passed away. I cannot go back to my father and ask him about what has been opened up to me most recently. I simply have to trust the Lord’s timing in how all of this came together, put any pain at His Cross and leave it there.
Recently an expert instructed me how the Lord divinely sequences every detail in our lives. My understanding of this sequencing has not been the same in the past as it is now. I may weep in the moment but it doesn’t last very long. I try as best I can to live around this scourge, my thorn in the flesh perhaps. It is my firm belief that our God endorses and redeems everything we endure in this life as we prepare, we mature for our eternity with Him. Nothing that happens in our lives is wasted: not the good, not the bad, not the ugly. Nothing is hidden from our Heavenly Father either. He sees and He grieves for our suffering. He rejoices in our victories! I know that He will not only make all things right and new one day but also bring justice and reward for the faithful. The truth will come into the light. Believe it Gentle Reader! I do. JJ
10 Am I now trying to win the approval of human beings, or of God? Or am I trying to please people? If I were still trying to please people, I would not be a servant of Christ. (Gal 1)
From the perspective of the supernatural power of grace bestowed by my Lord, Jesus Christ, I write to you this day. For my flesh is more broken than before, hopes beaten up from the road, and spirit exasperated from the waiting. Yet I am compelled to look beyond my angst to the call to grace . . .
If I have fallen short of praising my Lord then I am sorry. Please forgive me. The alms and adoration to my Savior is what shall draw me nearer to Him and lift my sorrows.
Should I have focused too much on my own needs and not those of others then my selfishness has thus blinded me. The trials of life have more to do with our response to these trials (and more importantly to others) than to their resolution. I cannot serve others when my mind is full of woe. There is always room to love on others.
When I act to make my own plate o’ food and have not called upon God’s infinite power to feed my family then I have shorted all of us to the weakness of my own hands. My Lord is sufficient for me, enables me to serve beyond my ability.
Where my face has turned to the shiny distractions of this life, pining after them (or worse coveting that which I have been blessed) then I have really made my world smaller. Who knows the blessing that will come from sacrificial giving? Gratitude? And proper placement of my gaze to the Cross?
How much better it is to wait on my Heavenly Father than to cry out my need only to act thereafter in my own strength? Oh Lord, help me to wait, to listen, to dwell and nothing more during these times.
That about sums it up right now. Thank you to those who prayed for me last week and who remember me in your prayers. Please let me know how I may serve you too, k?
The little reminders that things are going to be o.k., that the Lord is in charge, and that you have all you need are quite an encouragement to me today. I am seeing this more clearly as my head clears after a whirlwind “Plan B” long weekend.
We never made it to Branson, Missouri for the celebration of my Other Mom’s (aka mother-in-law’s) 80th birthday celebration. Family was scheduled to land there from 4 States for a long weekend including the 4th of July. My Other Dad (aka father-in-law) had an acute worsening of multiple joint pain and was unable to drive the two of them cross-country from California to Missouri so we made the decision to do what was best: cancel and reschedule the trip for the Fall. We all scrambled to cancel various reservations made for camping, cabins, the Dixie Stampede show, watering of the garden in our absence, etc. Then this wifey-poo decided she still needed to get away . . .
Meanwhile, my life continues to be dominated by the treatment of chronic Lyme disease, a serious fungal co-infection (protomyxzoa rheumatica), and the complicated detox/supplement regimes that go with it. While I am grateful for a solid treatment plan, the making of our home into a hospital plus the tangible reminders at home of thousands of hellish convulsive episodes begs for a change of scenery when possible. Sure looked like the enormous effort to get away was going to be worth a bit ‘o respite from all of those reminders. I reacted selfishly when everything changed. I was more crushed for my own sorry lot than my mother-in-laws cancelled family gathering, big birthday celebration. Maybe I need less of “poor me baby,” sentiment, eh?
Steve and I thought through our options. We had cancelled supporting a paddling race in a town about 100 miles away since we were going to be gone so we re-volunteered to help out and bring our Stellar kayak display. But travelling a total of 200 miles plus standing out in the hot sun all day recording race times and hosting Steve’s booth seemed a bit much after 3 straight days of IV antibiotics. So what about camping afterwards? In the end we worked into the wee hours of the morning the night before the race to make Plan B a reality!
Supporting the race.
Finishing up all shopping plus cooking within a day for my special diet.
Making new reservations to camp in 2 places over a holiday weekend beginning north of the race and en-route to a new destination.
Continue north to Silver Lake Dunes and the campground adjacent to a Christian camp where a young couple we know has worked for about 7 years.
Return home after the 4th of July for Steve to return to work, allowing him to finish some important training and projects that we would have missed had we gone to Branson.
Resume treatment at home after a 5-day break.
Commence about 8 loads of laundry, post-camping melee, etc. too!
So with a tremendous effort, the ebb-n-flow of violent reactive episodes that followed being off of my treatment schedule, and some sweet memories sprinkled therein we had a decent weekend overall. At some level I exclaim: how crazy! And: Is it worth it? Well my answer this time is different than in the past: NO! There still are too many noxious exposures from campfires in any campground to succeed at avoidance even inside a modest travel trailer. There is always some type of breakdown that ends up stressing us out, creating conflict even nearly 5 years down the road from dealing with this serious illness. When we got back I was ready to sell the travel trailer the Lord had provided the resources for almost 3 years ago. What were we thinking back then anyways? Trying to continue with a normal life was my focus then when I did not have a clear treatment plan. Killing the beasts within me at an extraordinary cost is my focus now. The proceeds from the sale could pay off some of our debt. I was ready to let it go should the Lord be leading me to do so.
In a Christian marriage, the husband is the God-ordained spiritual leader of the home. His headship is God’s design for the protection and provision of his wife and family as he follows the leading of the Lord. I have come to trust this, be blessed as well in submitting to Steve. As it turns out in the scenario I have shared here, Steve suggested that we wait to make a decision about the trailer until later this year. We have a couple more trips planned and it is clear that he wants me with him on all of them. How sweet! His love is amazing. We will make some further adjustments in how we handle things next time and hope that I will be doing better as my treatment progresses; going with a partial treatment holiday could work out better for travelling than dropping everything, Lord willing!
Oh did I mention the blue footies yet? I bought a large box of disposable medical shoe coverings in anticipation of developing a new product this past Spring. (I could earn some money to pay for the development of my real invention by my company, Two Step Solutions, Inc.) Attaching a Swiffer-style duster with Velcro to the bottom of a disposable slipper makes a great foot-broom for dusting wood floors. This saves a lot of time and effort as compared to other cleaning methods, IMHO! Then when I continued to have difficulty functioning, the idea got shelved instead of developed. Dang! Flash forward 2 months later and those cute booties are part of the garments I ask my home health nurse to wear to avoid chemical/dust exposures when administering my IV antibiotics three times per week. Works great! And in thinking through all of this today I am reminded of these truths:
John 16:33 New International Version (NIV)
33 “I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.”
Matthew 6:25-27 New International Version (NIV)
25 “Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more than food, and the body more than clothes?26 Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they?27 Can any one of you by worrying add a single hour to your life?
My Heavenly Father and Husband is so good to me. He loves me so and I get to feel it everyday in the arms of my beloved Stevers. The Lord is there in times of wretchedness, times of joy . . . none of it will be wasted as He leads me home to dwell in the heavenly mansion of many rooms, near the river of Life, with the saints who have gone before me sheltered in His majesty beyond imagination. Thank you Lord that you sprinkle some of that goodness into my days to encourage me, to encourage my beloved. Thank you for caring about all the details of our lives. I submit them to You. We will wait upon the Lord, Jesus Christ, until You walk us home to sit at Your feet in awe and wonder of all that has gone before us: from blue booties to a lighthouse along the shore.
This rings true above all else: You are so good to me. Thank you Lord.
Kayaking at Lighthouse Beach along Silver Lake Dunes
Jesus is for the Wounded 
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