rehabilitation services – Jesus is for the Wounded

Only in Indiana. Or maybe in any other State with farming. Well that would include all 50 States. I guess it’s just new to me . . .

The Facebook page for selling stuff in my town had a posting for a pig for sale: $300 for the live beast. I actually thought about it for a moment! The biggest issue would be finding a place to store all of that meat. Our lil’ freezer just ain’t big enough for my hubby’s ice cream and my bone broth in addition to a virtual bevvy of pork! Darn. I’ve been missing BBQ ribs for some time now!

I suppose that someone else with a chest or upright freezer will jump on the offer. Maybe our neighbor who bought our used freezer will find it in her budget to feast on Porky Pig for the rest of the year? Or maybe not. But if she invites us over for some Famous Dave-style ribs I am sure that we would oblige! We will even bring my Grandma’s famous potato salad. Yeah I won’t forget the horseradish, pickle relish, and bacon grease (aka “secret ingredients”)!

We live in a time where you can buy and sell just about anything. With the diversity of our world and our accessibility to most of it via the internet, we can get much of what we want for a price. Do you want someone to paint your business logo on his hairy belly and sing a song for you? Just check out the gigs on http://www.fiverr.com and it will be yours for the price of a latte’. My preference for that one would be “NOPE.” That is, in the physical realm. There are other realms for which I would need a song you know. And tonight my heart realm can’t buy me even a lullaby for peace of mind. My heart is breaking and there simply is not much I can do about it but pray.

My brother, Mike, whom everyone else calls Michael, continues to live in a wretched inner city nursing home after a serious stroke. He is four months post-CVA and three months enduring the “3 hots and a cot” provided by a one-star facility. I flipped when I found out that he had an infectious rash on his hemiplegic hand! I asked his fiancé and Mike to check for signs of bed bugs and call the State Ombudsman immediately if they found any signs of them. Mike’s roommate itches too. Hopefully it will be a case of an allergic reaction to the laundry detergent. But why would the bumps become infected? Good golly. Water (no juice, milk, or coffee) for breakfast, a delayed response for significantly elevated blood pressure, and no follow-up whatsoever on a 6 cm kidney tumor ARE ONLY THE FIRST THREE items in the long list of substandard care complaints. So sad.

Lisa, Mike’s precious fiancé, is at her wit’s end trying to get Veteran’s Administration or Medicaid benefits processed correctly to change his situation. She faithfully visits him when she can, brings him home-cooked food, and follows up the paperwork nightmare as Mike’s legal guardian. Just when I wonder if things moving forward fast enough or why she hasn’t returned my phone calls I find out that she has started a new job to try an better their overall situation. She is such a trooper. Thank the Lord for Lisa’s love and care for her Michael. And our cousin, Lisa, helps out where she can as well. Cousin Lisa is an optometrist for the nursing home and has more than once been able to positively influence his care by her presence, her visiting, her dipomacy, her support of fiancé Lisa. They are doing the best they can and that is both a gift and all I can ask from 200 miles away.

This is such a curious situation, you know. I am an occupational therapist with over 30 years of professional experience including patients with the very same medical condition as my brother. Yet due to a severe illness I am enduring, I cannot even visit him! The dirty conditions of his living environment would surely trigger seizure-like attacks for me. Chronic Inflammatory Response Syndrome, Multiple Chemical Sensitivity, or whatever you want to call this nightmare is keeping me from seeing my brother. And this is the Lord’s plan for both of us right now. I don’t understand it. My heart is hurting. I would be honored to work more closely with Mike, even provide supplemental therapy or visits. I cannot do it right now. Oh sure, I send him something in the mail occasionally or make a phone call to his facility and get placed on hold for a very, very long time before actually getting through to anyone less than 50% of the time. We are all doing what we can and waiting on the Lord. It’s just so very frustrating for each of us!

So if you’ve got an extra 300 bucks to donate to our cause, kindly send it to St. F—— Nursing Center in D—–, room 207. Leave the pig and get my brother out of there please! They might not notice Mike missing for awhile since a piece of meat is a piece of meat when you don’t care much for the sweet sense of humor that used to characterize my tall lanky sibling. Oh geez, I’m getting a little upset here aren’t I? Well at least the pig will stomach the food a little better without complaining. Like the Cheerio’s commercial said many decades ago, “he’ll eat anything! Hey Mikey!” Yeah but it won’t be Mikey. One day Mikey will be gone from the place he and his fiancé are calling, “the dump.” May the Lord pour out His grace on those left behind when he does go.

I just hope that moving day will be soon. O.k. I’m done venting. Gotta get back to praying. JJ

While my brother’s fiancé is there at the hospital with him in the thick of things, his next of kin is a bit upset. I am too upset to make any rational decisions. The feelings run deep with me. It’s all I could do to be polite on the phone today to the social worker from the rehabilitation unit where Mike is hospitalized. At least Steve and I have the weekend to sort things out . . .

Very likely Mike will get booted out of the hospital next week and sent to be housed in a nursing home without additional rehabilitation services. His insurance is “Medicaid Pending” and his requiring of 24-hour physical care post discharge, a situation that cannot be met at home for valid reasons, is pushing the hospital to discharge him from their care. I don’t get it. In my 30+ year career in rehabilitation as an occupational therapist, the discharge criteria virtually always hinged on a lack of progress, not the particulars of discharge planning. It’s a new day: a new reality. If you can’t do what the government-driven healthcare system wants you to do then I guess they can wash their hands of you.

Perhaps he will go to a nursing home or perhaps by some miracle the Veterans Administration (VA) will accept him on such short notice. If the decision is the former, he will be fed 3 meals per day, kept clean and dry, and left to sit slumped in an overstretched wheelchair or geri chair in front of an out-of-tune entertainer from the long term care circuit with a pair of maracas shoved into his functional hand. The wailing of the demented residents will woo him to sleep at night as he tosses on his waterproof mattress to get comfortable around the bedsores that no one will find until it is too late for healing. Thickened Pepsi to drink? Not a chance. At least until his fiancé cleans up her make-up from crying long enough to ignore the swale of urine stench long enough to bring it to him. God bless her faithfulness visiting every day through this incredibly stressful ordeal!

Or perhaps it won’t be that bad. Maybe he will get into a VA rehabilitation facility with little red tape and get stronger. Regardless, the hope of at least a few weeks of physical, occupational, and speech therapy has vanished for the time-being. And Michael has no idea yet, what is about to happen to him next week. I left a message for his saint of a fiancé and she has not gotten back to me yet. Maybe she is in as big of SHOCK as I am. Maybe she is exhausted and horrified from touring nursing homes closer to where they lived in the “thumb” area of Michigan. I don’t blame her for taking a little time for herself to sort things out. My heart goes out to Lisa. She has been through so much these past two weeks as her life has changed forever.

As for me, 200 miles to the south and struggling with four hours of seizure attacks multiple times per day, I am overwhelmed with the stress of it all. Just seeing the missing flooring in our bathroom from yet another mold remediation project is enough to stub my toe even when the light is on. Somehow I completed a few errands outside the home this afternoon and made a simple dinner. I talked to a few family members who offered mixed consolation while I was stepping on the elliptical for 20 minutes, phone in hand. Geez! I haven’t used that thing in a few weeks! I must be stressed out. Thank goodness the nightly seizure attack episodes haven’t fully ramped up yet tonight: I needed to talk to you, Gentle Reader! I started to type and there you were. Thanks so much for being here. I can barely speak I am so very upset.

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Life goes on despite the drama of the moment. If Steve and I don’t impulsively drive 3 hours north to go to the hospital tomorrow and I’m stable enough, we will attend the 50th wedding anniversary open house of some friends. It will be good to enjoy some Christian fellowship. Then maybe my beloved Steve will start to work on the bathroom floor tile project and I’ll put together the jewelry orders that have been sitting at my work table this past week. Lord willing I’ll continue with the Spring clean-up of our gardens and Steve will mow the grass for the first time this year. Looks like the narcissus will be blooming within a day or two with their yellow-throated happy faces reaching up to soak up the sun. The sunshine will feel good on my broken frame as well and I will enjoy the freshness of the air this time of year. There’s no better hue of green than that of the tender leaves emerging from their Winter slumber: truly lime, truly sublime too. Some call it “horticulture therapy.” Gee, maybe I should go right now poke my finger in the dirt of the violets waiting to fill the self-watering planters I thought I might plant tomorrow . . . I need a fix of something and a shot of tequila is out of the question these days . . .

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Please pray for us. This sister bear is hurting more for her brother than anything right now. My beloved Steve has been so loving despite the challenges of my illness, demands of his work, and his other responsibilities. Lisa has got to be struggling as well, balancing work, the care of her teenage son (Alex), and assuming increasing responsibility for Michael’s affairs. She and Michael have known each other almost 7 years. Her 13 year old son has a great relationship with Michael too. Oh Lord, hold us all closely this night. Help us. Show us Your love, mercy, and grace. Guide us with wisdom. If it is Your will, heal my brother from the effects of this devastating stroke. Comfort him as he realizes all that has happened to him and show him hope, be real for him on his bed of sickness. He has reached out to you in his time of need. I am grateful for this and grateful that you are here with us. And thank you for the encouragement we find in Your Word:

¹⁶Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. ¹⁷For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. ¹⁸So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal. (2 Corinthians 4)

In Jesus’ name I pray. Amen.