It Just Doesn’t Matter that much anymore

What others think of me, especially online, used to concern me to the point of scrutinizing every typo and punctuation mark!  Tell you what, it just doesn’t matter that much anymore (IJDMTMA).

Keeping in mind the reason for every significant action in my life so I can justify it, rationalize any lapse in judgment, or simply give me another reason to criticize myself occupies less of my mental space these days.  It takes too much energy.  Any other reasons would go against what I just said!  IJDMTMA.

Cataloging significant records that document the divorce I endured, the major court case I lost, the medical conditions that have come my way, too many artifacts and photos of special events, and purchasing new file cabinets to keep track of these events and more (I have 15 packed drawers in various lateral files, desk drawers and file cabinets, plus quite a few plastic bins around!) involves more-purging-than-storing these days.  If I need it that badly surely I can find it online somewhere, right?  IJDMTMA.

I now live in a town where the cost of living is so affordable that a few people I know have a second home just to store their stuff!  Or folks rent storage spaces in addition to their primary residences (and I am not talking about those living in an apartment or condo!). Gratefully my husband, Steve, and I live in a modest home that requires us to purge stuff periodically!  We don’t want to keep accumulating stuff!  This Christmas I will need to discard numerous Christmas decorations that were up before we remediated our home for mold damage.  The most treasured items will be consolidated into one bin.  I’m going to have to get tough and proclaim:  IJDMTMA.

Similarly, musty memories, painful flashbacks, grief beyond what most must endure, and the drag-me-down burdens that comprise life’s worries have come to the surface with the wretched convulsive episodes of the illness I have been battling.  I simply could not stop the process if I tried.  Perhaps these came as a consequence of a few illnesses that have affected my brain?  No one knows.  What I do know is that If there are to be any redeeming benefits to the nightmares of these past 4 years it must include the involuntary healing that came as these demons were set free.  Yes, the seizures helped release some bad stuff going on in my head.  Carrying this mental baggage has gone down immensely along with the emotional pain.  A different kind of healing has occurred as a result.  Joyfully, IJDMTMA.

The losses of what I once held so dear (i.e. many relationships, my occupational role of 32 years, more financial freedom, certain activities, physical fitness, and the ability to function normally) has been heartbreaking.  But just like learning to let go of other people, places, and things in my life, these intangibles had to be released to the care of my Heavenly Father as well.  At this point I do not know if any of them will come back.  Amazingly I have discovered that I still can have some good moments, make new friends and memories, have everything that I really need, and experience love like never before even with a total life makeover.  To the need for having things be just so I say, IJDMTMA.  Life goes better when held more lightly in the wonder of the moment . . .

How do I convey that “IJDMTMA” is a relatively peaceful, not a sad or angry place in which to be?  I simply have to be here right now.  This attitude has become like a protective coating to keep me from falling apart, from losing what is left, from thinking that my Jesus has abandoned me. He has not!  IJDMTMA is the construct into which I must retreat lest the grieving of what is no longer here overtakes me and blinds me to the goodness that still remains.   In Ezekiel 3:8, the Lord shows His prophet that He will indeed allow him to become “hardened” so that Ezekiel may not lose heart as he carries out the work of ministering to the nation of Israel still in exile.  Wow!  A God-ordained rebellion of sorts will help keep Ezekiel from discouragement.  A toughening will help him and his gifts to continue to be used for God’s glory.  Yes, I want the will and glory of my Lord too.  In the cocoon my Lord has woven for me I can say to all that other stuff:  IJDMTMA.

It just doesn’t matter that much anymore that things aren’t the way they should be or used to be.  I am still here and that matters to me.  Much goodness still surrounds me as I look around this room where I am sitting and see the pictures, handiwork, awards, furniture, and records that tell the stories of Steve and Julie.  Cool beans.  Better yet, just look into our eyes or sit and chat a spell to see more closely what real life looks like in those who are grounded in trusting the Lord for each hour of the day.  It isn’t perfect.  We don’t want our lives to be perfect anyways.  I have a sense that maybe yours isn’t perfect either.  It’s going to be o.k. for those who are in Christ Jesus.  One day soon we will be in His presence and the real stuff of life will be revealed.  And with His glorious light shining all around us we will be with our Lord and Savior for always . . .

Coming to faith in Christ does matter to make this all possible.  Dwelling in the presence of the Lord for all time will bring lightness of heart for all of eternity.  I will be there.  Will I get to see you there too Gentle Reader?

I’m tired.  Goodnight all.  JJ  Ezekiel, harden not your hearts, suffering, endurance, it don't matter to me, what matters most, Christian, marriage, overcoming, chronic illness, chronic pain, hope, trust, the Lord

The Extended Forcast is Good!

Cast your burden on the Lord, and He shall sustain you; He shall never permit the righteous to be moved.  Psalm 55:22

But I want you to know, brethren, that the things which happened to me have actually turned out for the furtherance of the gospel.  Philippians 1:12

I am 2 days post surgical removal of 2 root-canaled teeth and THE CONVULSIONS ARE GONE!!!  Yipppeeee and praise the Lord!  This 3 years of daily hell for me and my beloved husband, Steve, is finally over!

While there is still much work to do to detox mercury toxicity and re-evaluate chronic Lyme and mold illnesses, I feel more optimistic that I will be able to tolerate those treatments someday.  Until this week, I was failing.  I was bedridden most every day with convulsive episodes.  The grief and impact was huge on everything from our finances to my aching neck.  My husband no longer got a full night of sleep and this illness had changed virtually every activity inside/outside of our home.  How would Steve find me when he came home from work?  Would he have to make me my pureed dinner and feed me again before bed tonight?  Carry me to the toilet?  Our hearts were weary after 3 years of this living hell.

Nine months ago I began investigating how two sore molars in the upper left section of my jaw might be impacting my health.  Four dentists and three oral surgeons, a cone beam CT, MRI, and pano plus regular x-rays later (including a consultation out of State) we had no objective data to guide us.  Everything looked “fine.”  The teeth had bothered me for over 13 years!  Fifteen years ago I had all my amalgam fillings removed but was never guided to chelate for mercury.  Were there silver filings containing mercury remaining underneath the crowns over these two teeth?  We will never know the answer to that question.  My saliva had started tasting metallic.  Eating started triggering the convulsive episodes.  With Steve’s support, we took an expensive leap of faith and pursued a dental solution.

Additionally, seven weeks before what would become the big day, I started eating only on the right side of my mouth.  Two and one-half weeks later I started a pureed diet to eliminate the chewing action that seemed to make things worse; all this was quite a feat since my struggle to get well led me to eat low oxalate, virtually dairy-free, and completely sugar/sweetener-free, gluten-free, and mold -free foods too!  Another two weeks later and 1 week before the surgery I noticed that using plastic utensils delayed the onset of convulsions after eating.  Even drinking my foods through a straw helped initially then ultimately triggered episodes.  I feared eating anything at all!  The only problem with that was hunger and thirst could also trigger convulsions or make them worse.  I felt trapped!

Three and one-half days before the dental surgery my doctor recommended trying an EMF deflecting device.  “It might help” he said, like so many other recommendations I had received all over the spectrum of traditional and alternative medical care.  After one such technology (a Rife machine called a Beam Ray) I tried 3 years ago to treat “Chronic Lyme,” the daily tic attacks started.  Within a year these episodes would escalate to waking seizure attacks then convulsive episodes lasting 2 to 5 hours per day.  We had tried to shield me from wireless technology in our home in the past yet the results were initially helpful then inconsistent.  This time the GEOMACK from Spain reduced the intensity of the convulsions 50%.  That reduction gave me a tiny boost of strength that I needed to physically and mentally prepare for surgery.  My husband got some much needed sleep as well!  Could their be an electrical cause after all?  (See this blog for more anatomy and discussion.)

The morning of the surgery went as usual.  Convulsive episodes began shortly after opening my eyes and periodically as we prepared to leave the house.  Seizure zips ripped through my hungry and thirsty frame as my beloved drove us to the hospital.  We were still reeling from the large check we had to carry with us since the oral surgeon insisted on performing the extractions near a crash cart, I guess.  And after some prayers, many silly jokes and one last shake/rattle/and roll with placement of the IV in my arm, the time had come to let go and not look back.  We reviewed my situation with the anesthesiologist and oral surgeon, surgical tech, and several nurses.  They were not to abort the mission if I seized under anesthesia!  Just wait a moment and get the job done.

I’d like to say that I woke up in a calm, blissful state but that simply was not the case.  I became nauseous and pain management was a problem over the next day and one-half.  Oh well.  One thing was certain:  THERE WERE NO SEIZURES OR CONVULSIONS!   The “battery effect” of dissimilar metals in 2 adjacent crowns over root-canaled teeth WERE FRICKIN’ GONE!  No more tazoring of my brain would continue.  And hey, if there was hidden infection in the root-canaled teeth then the problems caused therein are now also “history.”  The hell is over.

My job now includes retraining my brain to relax when falling asleep instead of bracing for impact.  My job now includes remembering all of the relaxation techniques I used to train my patients in psychiatric hospitals to deal with anxiety.  I need to rework those memory pathways and feelings of impending doom that followed me, waited for me every night, every morning, every time when I was exposed to noxious stimuli, or even on the clothing or breath of my beloved anytime, anywhere.  Hey, no problemmo.  I am ready to live and the extended forecast is good!

Thank you and big hugs to those of you who have followed my story for any length of time,  You have been an important part of my lifeblood to go on when I could not.  Sometimes my husband could not be home with me and I was alone, feeling terrified mostly of even greater suffering and it came.  The worst episodes were never captured on YouTube videos because my warrior husband was needed to hold me tightly to keep me from greater harm instead of holding onto a camera.  Sometimes the Lord was silent even when I cried out to Him when breathless, facing death again and again when my breathing stopped.  When He did speak I gained the courage I needed to face the next trial.  In the end, death was not my greatest fear.  Dying without my Heavenly Husband was.

But you know what?  I made it through.  Steve made it through.  A new chapter in our lives is about to begin.  I’m going to take some time now and regroup.  I am very weak.  An infusion of my Jesus is needed.  The warmest embrace with my beloved must follow.  And really good food cannot be far behind.  After tomorrow the putty d’ jour will be history!  Yeah God!

Pureed Tri-Color Carrots, Cauliflower, Bacon, Ground Round, Potato Chips, Homemade Broth, and Sea Salt
Pureed Organic Tri-Color Carrots & Cauliflower, Bacon, Organic Beef & Potato Chips, Homemade Broth, and Sea Salt in the Recovery Room!

With love, JJ

But the Lord was my support. He also brought me out into a broad place; He delivered me because He delighted in me.  Psalm 18:18b-19

Cast your burden on the Lord and He shall sustain you; He shall never permit the righteous to be moved.  Psalm 55:22

UPDATE:  The holiday from convulsive episodes did not last, unfortunately.  There were many benefits from having these two infected teeth removed:  significantly less mouth pain, less congestion in the upper shoulder and neck, decreased TMJ symptoms, decreased auditory anomalies, reduced ringing in my ears, and more.  Then there was a miracle:  our insurance company covered most of the $10,000 bill.  Amazing!  :J

Waiting on the Lord

Waiting on the Lord,

Clinging to this keyboard,

Playing the “how long psalm” in my head.

 

Where does my help come from?

So obvious that it’s Him once again

And yet the troubles trouble on.

 

“God is not Santa Claus,”

I once wrote a fellow sufferer, or

One who hands us our lottery happiness ticket.

 

The Lord knows no boundary of time

So our journey must not be measured so

Lest we push ourselves out of His perfect plan.

 

For if we take the reigns

And steer off course by will

We may never see His glorious promise revealed.

 

He will never leave us or forsake us.

He is with us now and til the end.

His mercies renew and He graces us with abundantly more.

 

Humbly shall I remain

Waiting on my Lord with open eyes

For His return in glory:  it will be soon.

 

And on that day I know I will be glad for all.

like a river glorious

 

Just Julie Treatment Update

Brief update:  I seem to be in what an airline pilot might call a “holding pattern” lately.  When I can break through the perpetual feeling of sickness and get myself out of the house, even if it is to our backyard, there’s always a backlash of noxious symptoms.  Recently my chiropractor recommended a heavy metals blood test and after a month of getting the paperwork and procedures right we have the results:  high potassium and very high mercury.  Yipes!  So my husband and I are investigating chelation therapy.  I have an appointment with a Doctor of Osteopathy who provides chelation and other medical, nutritional interventions.  In the meantime I’ll check with my family practice physician and see if there’s enough data to proceed with caution.  We will be covering this in prayer.  For most folks chelation is a difficult journey.  But hey, I’m familiar with that already, eh?

More details:  The daily 2 to 5 hour waking seizure attack episodes continue.  One day each week the episodes exceed 8 hours on and off during which I am largely bed bound.  If I have pushed myself to complete heavy gardening tasks or more than about 2 hours of appointments outside of our home then the episodes can increase to 12 hours.  The rest of those days is pretty worthless.  I have at least two “worthless” days at home each week anyways, regardless of my activity level.  These are days where I pretty much take advantage of the lovely “3 hots and a cot” afforded by our home.  I may see you here at the computer and mope through other very sedentary tasks.  Dinner may or may not get prepared.  Thank goodness for my homemade freezer meals and frozen burritos for Steve on days like these!

The normal sleep-wake cycle remains elusive for me.  When I do go to bed around midnight it is usually because Steve has carried me there in the neurological collapse-mode of a seizure attack.  This happens twice per week.  I’ll pass out at some point thereafter only to awaken in less than 4 hours, usually with another episode of tazoring.  Many days the tazoring wakes me up in the middle of the night.  Good grief!  That’s what happened last night prompting this blog.  When I do wake up in the middle of the night I have to find a way to yank myself out of bed or they will continue indefinitely!  This also happens twice per week on average.  The other nights I endure an episode sometime between sunset and midnight then I am wide awake until 4:00 a.m. or so.  If I can wait until I feel sleepy then the episodes falling asleep will usually be shorter and sometimes not at all.  I love it when the latter happens!  The best schedule for me then is to be up late, go to bed and sleep until noon-ish, endure a shorter waking tazoring then attempt to move forward with the day.  I love days when I do not have any appointments that disrupt this schedule!

The only “treatment” I can tolerate at the moment is a strict diet, coconut oil, colon hydrotherapy to detox, and extreme mold avoidance.  Occasionally I can take a short walk late in the afternoon or use our elliptical for 5 minutes, usually in the middle of the night before bed.  My diet is mold-free, gluten-free, sugar and sweetener-free, dairy-free, and low oxalate.  The latter has produced some detox reactions that appear to be beneficial; bone broth is incredibly nurturing to my digestive tract.  Most medications, pharm-grade supplements, and typical detox/immunity foods (such as lemon water, probiotics, ground flax seeds or oil) produce convulsions.  Not good.  This syndrome has a name:  Chronic Inflammatory Response Syndrome or Multiple Chemical Sensitivity.  The good news is that my gut health is better than it has been in a long time.  That tells me that the dietary strategies are working!  There are times when I feel more alert and my thinking is clearer.  At times my memory is better.  To my delight the creative juices are flowing again as reflected in my latest designs at Trinity Jewelry by Design.  And sometimes I am even able to make jewelry during the daytime instead of just with the crickets outside the window of my cute little studio area . . .

October 11th will mark the 3 year anniversary of becoming sick.  (For more on that story, see the About Julie page.)  I’ve been off from work for 2 1/2 years now, the longest since I started working in at the Penny Candy Place as a teenager.  No work or disability income is in sight.   The Lord has provided for my every need through my gracious husband and His grace.  Through it all Steve and I have been challenged to the ends of our human strength through unbelievable trials yet somehow feel closer to each other and to the Lord than ever before.  Steve is my hero!  DSCF0245We trust in Proverbs 3:5-6, Psalm 41:3Psalm 71:14, Revelation 21:1-8 and more.  The Lord is faithful to His Word:  we have seen it, we hope in it, and His living Word carries us through it all.  Even in those split seconds when it feels like my heart, my breathing, and my brain waves have ceased to function and I do not know if life will continue for me, I am no longer afraid.  That’s how real the hope of heaven, the reality that my eternal life has already begun as a child of the King, the loose grip I have on the things of this earth are to me.  Oh Gentle Reader, can you say that too?

So many unknowns fill our days.  We can respond with woe and fear or we can respond with FAITH.  And our faith is only as strong as that to which we apply it.  I hope that you will join me or have put your faith in the omnipotent God over all.  Yes, I wrote all. 

Nothing less will do when faced with the next, er, bite in the shorts.  You know I had to say it didn’t you?!    :]

 

Where do you think I was taking you?

trust-in-the-lord-proverbs-3-5-6A dear sister in Christ shared with me a story today of another time in which she was struggling in her walk with the Lord.  A year later she ran into an old friend who was in a time of severe struggle.  As she listened closely to her friend she was reminded of how the Lord gave her victory the previous year and how he gave her an image that made a lasting impression. 

Picture this:  you are walking behind, faithfully following the Lord Jesus Christ who is walking in front of you.  Your hands are placed firmly on the back of His shoulders as He leads you forth.  You are not trying to get ahead of Him or push Him faster down the road.  But you are straining to look over His shoulders, attempting to peer around His sides, jumping to see over His head.  Where is He taking me?  Why don’t my circumstances show me what lies ahead for me?  Why can’t I see where we are going, the point to all of this agony? 

 

Now that doesn’t look much like following in faith now does it?  Yeah.  I have been there too.  Trying to get ahead of the One Who loves me and has carefully crafted my life as His own child, under the protection of His loving arms.  Instead I am going to remember the image that my friend said came next:  she gently looked down, perhaps drawing a little closer to His mighty frame, and simply walked behind Him in His footsteps.  She let the Lord lead her through the trials and in due time they ended.  And a year later her tenderness for her friend encouraged both of them.  I am sure of it.

My friend shared that in her heart long ago she heard the words, “where do you think I was taking you?”  Where indeed.  May our answer always be, “anywhere you lead my Jesus.”  Anywhere.  JJ