Whatever it takes?

Ten years ago I was Divinely selected to endure an often horrific chronic illness. I trust that the Lord ordains this plan for my life for my highest good and perhaps something good for the people around me. Certainly there was much bad for me and for the people around me, especially my husband of 3 years at the time, Steve. A decade later I am not exactly sure where Steve is on things at the moment but for me my mindset remains: WHATEVER IT TAKES!!! But maybe not in the way that you might think it does.

We have endured much, Steve and I. The stress level was so high during the remediation of our home for mold in 2013 that one night we nearly breached the fatal blow of divorce. I stated that “I would not hurt me to love you.” We just stared at each other. I had been living in a hotel at the time which was during the 76 days I was away from home. We were hemorrhaging money trying to figure out what to do and each of us had different ideas that barely overlapped. My Doctor had prescribed both traditional and alternative medicine treatments, one of the latter of which had made my condition much worse only we didn’t know that at the time. Steve was travelling between the house and the hotel while his adult daughter chose to stay in the house. With full time work and other obligations ongoing for Steve, his stress level was visible, tangible. And then the work on our house was done and I was able to come home. But unfortunately, the daily violent convulsive episodes quickly ramped up again. We were exasperated. The hardwood floors in our home are still nice though.

Ten years of researching, doctoring, extensive medical testing and treatments, genetic coaching, physical rehabilitation, trips to major medical centers, supportive counseling, pharmaceutical grade supplements, science-based modalities, specialized and traditional dental interventions, and finally pain management have improved my quality of life. My worst symptom, the convulsive episodes, have diminished; there’s about one bad episode every 5 days now; tic attacks most days with at least one day per week without one at all. Score! Yay God! I still have to avoid most strong noxious sensory stimuli such as sustained loud noises of a certain pitch and some types of mold that grow inside buildings, homes. We practice a version of extreme avoidance to make our home (and travel trailer when on the road) as safe for me as possible. The ongoing re-testing and treatments are still very expensive, limiting our budget for other projects and interests. The ongoing whacks of illness are still very costly in terms of social engagements and recreation. I still sit home alone a lot more than before I got sick with a serious illness and yet the isolation is breaking somewhat as I learn to navigate some improvements in functioning. It’s a natural process. I feel better and do more. I feel sick and do less. Such is the life I have come to understand.

Then one Friday night came with a major setback. I had recently pursued pain management services and was prescribed a few interventions largely for neck and headache pain that have reduced my symptoms up to 50%. After experiencing headaches so bad for the past year (and earlier in this illness) that I couldn’t get out of bed, THIS IS HUGE!!! The progress is tenuous however. Just like any chiropractic care or physical therapy: the next seizure attack episode wrenches my neck so badly that the gains can diminish or even disappear. This happened again with the surgical nerve blocks about 6 weeks prior. Dang. The violent convulsive episode 2 nights after writing this blog was so bad that it erased all gains from the Pain Management clinic completely! Not only was I horrified by the violence and scope of the episode, I have a new whiplash, a new back injury with which to contend. I AM CRUSHED!!! It’s spring for crying out loud. I’m an Extension Master Gardener who uses her better days to get outside in the dirt or serve as Editor of our county Extension’s newsletter. It’s a real struggle at times but it’s my “job” right now. I still rarely get out for anything social or worship-oriented, however. The challenge has always been to figure out how I was going to do anything in the post-ictal/recovery phase of the daily episodes when I can’t even figure out how to get out of bed? I had a setback like this on Friday; it was that bad all day yesterday.

For some reason yet to be determined, Steve was 42 minutes late picking me up at the local grocery store. I had a minor tic episode about 3 hours earlier and was fatigued from the recently diagnosed dehydration and other abnormal labs, troubling symptoms. IV fluids and more labs were scheduled the next week. We really needed groceries so I talked with Steve about how I could get the shopping done and best manage my depleted energy levels. The plan was for him to drive me to the store and pick me up later. But for some reason our timing got way off. I was left standing in an exceedingly moldy entryway of the store, not realizing what was going on, exhausted plus trying to stay calm and manage the thirst and need to go to the bathroom that were increasing. I had forgotten my phone. He knew that. I felt vulnerable standing there as I was getting sicker, worried that I would have an episode in public. People came and went and I just stood there, checking for Steve in our truck about 18 times. Maybe he forgot me? I was panicking. Somehow I exchanged eye contact with a very friendly-looking woman leaving the store with her own full grocery cart and figured out how to say the words needed to ask her to use her cell phone. (Forgetting my phone should have been another clue that I should not have gone to the store for and hour and a half of shopping. Maybe I should have done the remote shopping service we had used in the past? I just didn’t want to use up my Saturday dealing with 2 weeks worth of a grocery order while my husband was away at a sporting event. I wanted a day-off too. But you don’t get a day off when battling a serious illness, even when in the slow-mo phase of what appears to be recovery.) I made the call on her phone. Steve arrived 24 minutes later. I raced back into the store to use the bathroom while he loaded the groceries into the truck.

My physical discomfort came down a notch as I walked from the store back out into the cool spring air to the truck. I hoped it was reviving me some for the chores to follow at home of dealing with the groceries and making something for us to eat. That’s not what was to be, however. My mind was clearing enough for it to register that I had been in a moldy foyer of the grocery store too long and that the continuous opening-and-closing of the automatic doors did not protect me from a major mold hit. I quickly became aware that I was in the pre-ictal phase: the ramp-up to a major convulsive event. My gait got stiffer as I honed in on the door of the truck just wanting to avoid tripping and falling in the darkness. Steve was holding the door open for me. I could not speak. I believe I thanked him. Maybe I didn’t.

What followed can only be described as a waking hell-on-earth. I don’t know why I have to be awake for these violent convulsive episodes but that is what happens for me. I would rather pass out and deal with a bump on my head than know the horror of the wretchedness of my limbs shaking in various combinations that ramps up to spontaneous vocalizations of terror, writhing like a child with severe cerebral palsy, then hanging like a limp doll until the next wave hits. Whiplash, repetitive motion injury, flare of painful peripheral neuropathy in my fingers and toes, back pain, gasps for air, inability to speak, loss of motor control (aka hemiparesis), and increased sensitivity to all 5 senses that can intensify the episode, filled the next hour or so. My body extended so stongly, it pushed me between the front seats and into the back passenger area. Finally I could sit in the front passenger area and Steve fastened my seat belt for me. I couldn’t use my hands that were involuntarily drawn up to my chest in a flexion posture. He drove us home as I continued to seize. I remember Steve opening the car door once we were in our driveway and asking me what he could do, what did I need? Somehow I blurted out that the frozen food, now thawed, needed to go in the freezer. My eyes were open, my eyes pulled closed then they were open again. My left arm was already useless then my right arm fell lifeless off my lap and into the space near the seat belt and out the open door of the truck. The cool spring air blew over me and I was simultaneously chilled, re-awakened, and glad for my choice to wear flannel-lined jeans. The jeans kept me warm. Steve left my door open as he unpacked the groceries. The tears flowed and my face became a mess with snot and tears. It all burned on the skin of my face: another hypersensitivity anomaly. My mind moved in slow-motion, desperately trying to assess the situation, this medical crisis, from every possible angle. Most importantly I begged the question in my mind: how the hell do I make this nightmare stop! I prayed.

Many minutes passed. I couldn’t hold up my head any longer. It fell forward creating even more of a neck strain and worry about how I was going to continue to breathe let alone deal with the increased pain that would surely follow. I now have pain medications to take for specific symptoms but my liver enzymes are elevated. I have been cautious to only take a drug when absolutely necessary. The only “alternative” method that works is icing so I do that every night. But in that moment I couldn’t do anything but try to keep breathing and hope Steve didn’t accidentally close the door on my ankle dangling off the side of the floor board, out the door. I prayed some more. I always do in these moments, pleading for the Lord’s mercy. As during many times before, I asked for wisdom even on how to wipe my nose to stop the burning feeling on my upper lip. Maybe I could twist my torso in an attempt to reach my arm to wipe my face with my sleeve? I thought it was the last bastion of function left in my battered frame. Big mistake. The episode ramped up to a whole new level of hell as my torso extended, twisted and writhed to the left, sliding me off the backrest of the passenger’s seat AGAIN and into the space between the front seats. My head hung overstretched into the backside of the driver’s seat. I couldn’t stop it. Any of it. This new neck injury further crushed my spirits. And all I could do was hold on and try to breathe some more . . .

For those of you trying to do an armchair diagnostic workup at this point in my story, please stop. Thank you for your care and concern. I’ve seen the best medical providers in the country and completed all of their recommendations. And here I am. My own research led by the Lord and all I have learned from these professionals has brought me the most effective improvements overall. Please just pray for me and Steve. The Lord knows.

Eventually my beaten frame settled back into the front passenger’s seat and I was able to open my eyes, to breathe somewhat freely again albeit labored. I searched my frame and shifted my torso for signs of life in my limbs. Could I move my arms and legs yet? At this point probably 45 minutes had passed since the episode had begun. Steve had asked twice if I wanted him to carry me into the house. I couldn’t reply. My thoughts went elsewhere. I was aware of what was happening and the circumstances leading up to them yet not sure enough of the reason why Steve was late; I didn’t want him touching me just yet. I needed him but didn’t want his help. I was upset at so many levels and my remaining shred of personal dignity required me to find my own way to get into the house. I reviewed the steps over and over in my mind of how to ambulate into the garage, what I could use for support, how to disrobe for a shower, then how to wash off any mold residue on me into the cleansing comfort of a long, warm shower. By the grace of God I was able to advance my left leg by dragging it as I pulled myself out of the truck, limped into the garage then house, drag my dead leg down the hall, and get into the shower. I was so very weak. The pain was excruciating throughout my beaten frame. What is going on? I thought I was getting better? I had endured several mold hits in April in Florida and yes, had some minor episodes but NOTHING LIKE THIS ONE!!! Perhaps my seizure threshold had gone way down with the repeated exposures during that trip. WTF? This far down? I don’t get it. Eventually I lost it and could not hold back my angst any longer. No matter how many incidents like this we endure, each one is difficult for both of us and traumatizing for me. Please pray for us. This serious illness is really, really hard for both of us to live with, to try to live around.

Another thing is as clear for me that Friday as it was in 2013: I will endure whatever it takes to fulfill the purpose the Lord has for my life, no matter the level of suffering or loss, no matter what it takes. Each major “hit” like the one shared above challenges everything I know about life and death, love and hate, Divine Providence vs self-determination, the Lord’s provision, the economy of time in our finite lifetimes, and the question about where the heck did my serenity go if it can leave so quickly? At times of crisis I am ready to run away. Then wonder where would I go? We take ourselves with us when we run away, which includes virtually all of our problems with us wherever we land. It’s like the yellow felt banner painted in purple letters in the office of a counselor I knew in 1983 that read, “Bloom where you are planted.” Funny to recall this now. That was long before I would ever get into gardening. But even back then it was decades into living through the tragic hardships of my childhood and young adulthood. I did try to run away from my problems at home after I finished college. Turns out about a year and one-half later after I moved out of State I realized that I had taken most of them with me! The dysfunctional dynamics of my biological family were reflected in the relationships that filled my “new life” 300 miles away. How is that even possible? So much seemingly had changed. I took the geographical cure, right? Wrong. That’s just the way it works when you “do what it takes” to try to improve your life without first surrendering those dreams to the Lord, Jesus Christ. He knows the desires of your heart and has a Diving plan for our lives. Flash forward about 4 decades and He has fulfilled more of those dreams for me than I could have ever imagined. My life is better overall than I ever dreamed could be. I didn’t know Jesus back then. I know Jesus now. And life is still really hard at times.

To do whatever it takes to stop wretched convulsive episodes is not the most important task in the overall view of my life. Friday night I was in survival mode. I/we did whatever we had to do to get through it and will do the same to deal with the aftermath. Perhaps you get what survival mode is like? Sometimes we must focus on the task directly in front of us and simply HOLD ON. We have to make the hard decisions to cut the cancer out, end the abusive relationship, quit the job that puts our professional license in jeopardy, sacrifice resources usually spent on pleasures for medication or emergency food supplies instead, and move out of state to find yourself, to find Jesus. When those decisions are rendered unto the Lord, He will bless them and ultimately use them for His glory. We will be fulfilled beyond our wildest dreams. The pain of the suffering will diminish while the lasting joy of walking everyday with the Lord magnifies. And when we need to grieve, crash on our bed of sickness, the Lord Himself will meet us there in a tender embrace. He did that for me today at 3:30 in the morning on the day I described above. I had almost built that wall between Steve and I in my heart that we faced in 2013. I was ready to run away again or worse. The pain of the incident that Friday, the trauma of what had happened AGAIN, the loss of nearly 2 days afterwards trying to recover/manage the physical and emotional hurt, the burden of tasks not completed, and the lack of clarity of what to do from there are all just too much to bear alone. But I do know from past experience that I can separate my feelings from my faith. My faith is stronger. My trust in the Lord has been built over many tragedies that I have been entrusted to endure. Yes, it’s a kind of stewardship. What will I do with what has been ordained for my life, the good, the bad, and the ugly? Perhaps I will know someday.

With weakness I shall go forth. With a once baby faith that now roars like a lion I will trust that the Lord will lead me, give me what I need to live. It’s only in His strength that I have gotten through thousands of episodes just like the one described many times at Hope Beyond; any one of them could have killed me but didn’t. I survived. And having said that Gentle Reader, I will thrive from this day forward as unto the Lord. It just looks and feels a little different than it may look and feel for someone else, perhaps for you. Keep looking to the face of Jesus, little Julie. Keep looking at Him. You too Gentle Reader. We can do this if we but follow Him. It will all make sense one day. He promised. JJ

P.S. Steve and I worked things out. It was hard. We did it. Some better days followed and for that we are grateful. We are grateful for so very much . . .

St. George's Island, Florida, travelling, sick, chronic illness, better days, convulsion disorder
Getting out of the truck a few weeks later on my own. A better day indeed at St. George’s Island, Florida!

So little. It’s still pretty

Full-time I used to serve others in my healthcare profession and now I can barely get a meal to my husband on a daily basis. My reserves for giving are diminished but not gone, or so he says.

Each night and morning I poured over my caseload, looking for the best ways to make the most of each patient’s time in occupational therapy. Shall I bring Sally a 2-pound weight that I picked up at Walmart or load up adaptive equipment for a better education and training session? Now I’m lucky if a couple of times per year, I can drop off a gift to a friend after one of my medical appointments. Or ride an exercise bike for 5 minutes in the middle of the night.

Sending a card for each birthday and gift for close family has shifted from 1) before his or her special date to 2) days or weeks afterwards. We apologize. It’s the thought that counts, right?

Then I send a PM (or is it DM?) to a friend via social media to ask how she is doing when I really need to pour out my own heart on how wretched I feel, the new symptoms and diagnoses that get added to my pile. Aren’t you tired of my tears Lord?

But enough of my sorry lot. Giving to others in my own strength will never balance the angst of my days. Pitching the good against the opposite is a mental exercise at best that risks the tasks being done for the wrong reasons; they barely even measure on the MET scale of physical activity anyways. What’s the point? My weak bones need resistive exercise as do my muscles that are softening by the day. Both my mind and my frame need REAL exercise. The kind that stretches me, tears down and re-builds muscle fibers for measurable strength. The kind that transcends a weary heart. But how is this possible? Gee. Looks like I need a refresher here on how this really works.

If I can only do a little then that little bit needs to be pretty enough. If I am to do anything significant then my strength must come from a source outside myself. I don’t have it. The Lord does! If He leads me through the Holy Spirit to these acts of grace then I trust that He will provide whatever is necessary to finish the task. This is true even if it stretches me beyond what I think I can do. His power is infinite! And if I can keep my eyes on my Jesus no matter the horror of my suffering then I know I will be stronger somewhere down the road than I ever could have imagined. Seeing our Lord’s power in our lives is how we grow our faith. Moving towards Him as He leads makes it so, makes us resilient as we go. And the more we follow His lead in His power, like a weak muscle trained over time, we will shine for His glory not ours. It’s really better that way anyways.

Doncha think, Gentle Reader? JJ

Less shock, more bounce

Initially I suppose it’s like when a balloon breaks. There’s a pop then a blubber when the rest of the air rushes out. The rubber skin is thin and gives way all-at-once except for the last little bit of air. The spent orb lies limp on some horizontal surface never to have value again. How unlike the balloon we are when we are popped into shock then deflated by trauma. With the Lord’s help, we can bounce back!

Photo by Gratisography on Pexels.com

Emerging from a violent convulsive episode, the kind where I am awake and cannot breathe or move, has the effect of popping my mind into a state where I cannot communicate. My Doctor described it as a dulling of my ability to think but that’s not what I experience. When I am struggling to breathe and ANY initiation of movement, even from my tiny vocal cord muscles or diaphragm trying to produce speech, throws me back into seizing. I have to ride it out for a time. Sometimes I have to cough to re-start my breathing reflex. Through it all, I have to evaluate if I can blurt out any intelligible words and if it’s worth the probable blow-back, rebound of seizing that follows. And when I do speak, I choose the fewest number of words that will communicate the most. Pithiness is key. The rest of me becomes as limp as that deflated balloon if the entire episode has gone beyond a minute or two. Usually I can’t even move my arms to try to take a rescue remedy until the seizing has somehow paused! Kind of backwards dontcha think? Weakness and headache and ringing in my ears and all kinds of nasty effects usually last a long time such that I may need to be fed or carried to the bathroom or bed, or just lie motionless until motor control returns. Then there’s the neck pain. Feels like whiplash. Then there’s the horror of realizing what someone else has just witnessed me this episode. I just want to disappear from the world afterwards, become invisible.

My last post was after an episode so horrible that I could not write about it in complete sentences. My husband graciously had taken off from work to drive me to a Doctor’s appointment. I was already in a lot of pain whilst sitting in the waiting room. The seizing started early in the visit and escalated so violently that I had slid down in my chair, curled to my left side trying to brace my head-and-neck as gutteral screams of holy terror emerged from deep within me. I struggled to breathe. Dr. J attempted to evaluate my back and right-sided pain so he could do a chiropractic adjustment. Seriously? He had Steve lift me up from under my arms as my legs gave way beneath me. Attempting to stand exacerbated the seizing. I had to let go which left me hanging from his arms. All I could do was cry in between gasps for air. Dr. J pushed on several upper lumbar segments of my back then had Steve put me back into the hard office chair. The convulsions didn’t stop. Dr. J had Steve pick me up again to attempt more “hanging adjustments” then plop me onto the exam table. Dr. J had discovered in prior visits that cervical impingements had the power to worsen my condition; cervical adjustments could bring me out of an episode when I was in a lot of pain as well. So within a minute of some adapted type of manual manipulation to my neck, my body screeched to a halt. The episode was now over.

I lain on that exam table staring at the ceiling, in shock. All of this was not a new phenomenon but each one is exceedingly disturbing. Dr. J has seen and brought me out of dozens of horrific episodes before. But i don’t think that Dr. J has seen a complete neurological collapse of my lower extremities nor repeated screams as if my brain was ON FIRE!!! Coupled with the gasps to breathe, searing pain, and violent amplitude of convulsing, this was probably the worst episode I’d ever had in Dr. J’s office. I whimpered as I eventually returned to my padded but hard office chair, shell-shocked by what was still going on in my life. We are nearly 9 years since the first convulsive episode on November 20, 2011. Why hasn’t anyone fixed this yet for crying out loud?! Dr, J’s timer had long gone off during the office visit and he appeared to be wrapping up his clinical summary on the computer. Somehow I found the strength to blurt out, “can we do some kind of labs or testing?” Evidently I’d hit the BINGO button with Dr. J. He ordered labs, an MRI, ultrasound, and office tests on the spot. It was time to re-evaluate a bunch of things. Results have now started coming in as I finish up the last of the scans, pending insurance approval of course.

It took me a day to partially recover from that incident last week. The next day I pushed myself to go grocery shopping early in the morning BEFORE going to bed (as my sleep/wake cycles continue to be reversed) and it took another day to recover from that outing. All of this came on the heels of a full moon, failed 2-week trial of an anti-fungal that escalated the convulsive episodes to FIVE HOURS PER DAY until I stopped it, the Doc visit and stress of follow-up medical testing, and short trial of an anti-parasitic medication before the full moon. More testing and IV fluids continue this week. I am exhausted. But hey, a new herbal anti-fungal came in the mail two days ago so whadddya say I try that? Geez. Why do I even try anymore? I just do.

18So I say, “My splendor is gone
    and all that I had hoped from the Lord.”

19 I remember my affliction and my wandering,
    the bitterness and the gall.
20 I well remember them,
    and my soul is downcast within me.
21 Yet this I call to mind
    and therefore I have hope:

22 Because of the Lord’s great love we are not consumed,
    for his compassions never fail.
23 They are new every morning;
    great is your faithfulness.
24 I say to myself, “The Lord is my portion;
    therefore I will wait for him.”

Lamentations 3:18-24

This scripture from the October 10th meditation in A Spectacle of Glory by Joni Eareckson Tada equips me to bounce back from the darkness of my suffering. Unlike a balloon that is left lifeless, useless, and seemingly hopeless, the Lord renews me enough each day so that I may carry on the tasks, the journey that He has ordained. Like getting all of those lab tests done, on top of other labs and medical appointments already scheduled for me. On top of some basic self care and chores that must be done. But hey, I would have never met Gary in the waiting room at our local hospital if the tests hadn’t been written that fateful day in Dr. J’s office nor had I gotten to the first lab too late to do the lab draws there. Nope. The man in visible pain rolled his walker to the chair right next to me for a Divine appointment of prayer and ministry that bounced me out of my own stuff without hesitation. He said he doesn’t have anyone praying for him. He has several tests and a kidney procedure coming up soon. I hope you will pray for Gary too, Gentle Reader. And me too. Gotcha covered already. Thanks a bunch, JJ

It’s not the same thing

In all this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. These have come so that the proven genuineness of your faith—of greater worth than gold, which perishes even though refined by fire—may result in praise, glory and honor when Jesus Christ is revealed. 1 Peter 1:6-7

When someone doubts your story, especially one that is partially revealed to you years after it has occurred, you might be tempted to defend that it is true, that it is real. Know that their denial is about them not you. The truth is the truth and if it was not so, you would not grieve so badly when it comes forth. It would not have affected you so. You don’t continue to have flashbacks or grieve for years a nightmare from a bad night of sleep. At least in your right mind you don’t. (An exception might be the delusional thinking of mental illness. Most of us do not make crazy claims indiscriminately, however.) It’s not the same thing as a random even fearful thought verses the triggering a memory of an actual, horrific event that happened to a long time ago.

Then when your truth and the grieving that follows in dealing with it has found both the light of day and the Lord’s healing grace, the transformation of your character or mind or spirit should be enough to prove that what happened was real. You can’t fake a flashback. You can’t fake character flaws or insecurities that right themselves when you heal from the trauma. The truth revealed, processed, and lain before the throne of grace transforms us. It doesn’t matter that the story is too fantastic to believe. It doesn’t matter whether or not there is corroborating evidence (yet we can rejoice if there is proof or witnesses willing to back your story). It doesn’t matter how old you were at the time of the incident or if you told anyone then or now. Sometimes the mind has to push away the horror to survive aka repression. It’s a survival mechanism, a coping strategy of the mind. Then there are the body memories, stored in the tissues that come forth when you have an injury. Or a seizure. If your mind did not repress the trauma for you, the pain of the event often plunges a person into addictive behaviors (i.e. alcoholism, drug abuse, pornography, sexual promiscuity, compulsive behavior, workaholism), suicide, homicide, or mental illness just to survive. I know. Everyone in my immediate family has battled one of these. Our life stories were just that bad.

I am the only one left in my immediate family. There is no one remaining to corroborate the facts of my story as extended family who might know something are not willing to talk to me about what they know. I have asked more than once. My brother Mike did help fill in some details for me but he is now deceased. He had his own horrors to endure. Extended family members have their own baggage that they have dealt with in various ways. Thankfully they just didn’t have it as bad as me and my two brothers did . . . no wonder we were largely outcast (or looked down upon) from them and neighbors too.

Funny thing about memory as it is not perfect nor is it like watching a movie where you know the plot and see the beginning and the end. When the Lord reveals bits and pieces over decades of time, it is up to you to reconcile the information. Therein lies a particular danger as the mind wants to fill in the blanks for the scenes to make sense but we must resist trying to do so. Similarly, when therapists ask probing questions we must guard against confabulation, false memory syndrome, and other pitfalls in trying to make sense of a seemingly too-hard-to-believe flash-backed piece of our story. Why did a particular image present itself in my “mind’s eye” with the sound of a helicopter flying overhead in bed one night? Why did I cry for so long thereafter? For the believer in Jesus Christ, the Holy Spirit will show you what you need to know, hold you as you come to grips with what really happened, lead you to a place of acceptance and healing, and transform it all for His glory.

The flashbacks for me have always come forth with emotion so intense that I believed that I would die if I felt it fully let alone say it out loud. The fear on the front side of the wall of truth was stifling, immobilizing. I believe for me, this is why the pieces of my personal history have come forth in such small bits, spread out over THIRTY YEARS. It’s also why I don’t remember much of my childhood. The first memory of sexual abuse came back in my late twenties as I was preparing to get married. Sometimes a flashback was a moment of intense emotion that I would discover matched a specific location or incident; other times the emotion showed me the origin of a ritualistic behavior of mine, particularly with nighttime routines, that I would come to know as abnormal. The realization equipped me to let it go. It has taken decades of working with skilled Christian counselors, retreats, Bible study, prayer, research, journaling, processing memory triggers that happened spontaneously by the events of life, and more that the Lord has allowed me to remember more of my childhood. With the bad stuff also came memories of the good times that I had forgotten. So it’s not all bad. Reclaiming one’s past is good!

The worst incident has taken the longest to piece together. Here’s what I know.

My parents were divorced when I was twelve years old. Visitations to see my Dad involved him taking one of us three kids at a time as Mom said he could not handle more than one of us at a time. He often didn’t show up on one of these Saturdays to pick one of us up for the day; this happened more with my brother Mike than with me or Rob. So sad. The visitations were strange. I recall my Dad taking me on my day to a movie theater, buying me lots of popcorn and candy, then trying to sit me down by myself in the dark theater while he went off to sit with a woman in another row. Somehow I had the nerve to say “but I want to sit with you.” The next thing that I remember is the 3 of us sitting together and me feeling sick from eating all that crap . . . or maybe it was from the realization that he was there to see her and not me? I could tell a half-dozen stories like this one.

Rarely did we visit our Dad at his house in Roseville, Michigan. We lived in Warren and I figured it was too far away to visit very often. Years later, Mike told me that my Dad had a wall made out of wine bottles in his house; I don’t recall seeing it. I do recall seeing a German shepherd dog in his backyard one day when my Mom drove us over there, I think to get our car repaired. His home was on a corner lot with a chain-linked fence that came around the side of the house and side of the garage that faced the other street, perpendicular to the house. People entered the home from the side door. I was probably 12 years old so who knows what I would have focused on at that time. I just wanted to see my Dad! He had left town a couple of times (for California and to Florida) and now he was back. Too bad that his return had nothing to do with us kids though.

In my thirties, my Dad’s youngest brother and his wife gave me a photograph of my father as a boy. By this time I had learned of the horrific abuse that my Dad had endured as a child: my grandmother destroying his model airplanes, the daily verbal abuse, beatings, the physical torture of being locked in closets or having to sit up at the kitchen table ALL NIGHT LONG because he didn’t eat his dinner then suffering a head injury when he fell asleep and out of his chair. I was just starting to recover some of what had happened to me has a child from my mother’s father’s sexual abuse, a neighborhood boy’s sexual abuse, my mother’s physical and emotional abuse, and what I would come to understand as ritual abuse from my father. That photo was probably the best gift I could have ever received from my dysfunctional family! I was able to step outside of myself and grieve for my Dad. He was robbed of his own childhood, so badly that he would go on to develop a serious mental illness that would plague him his entire life. I believe that head injury contributed to him developing Parkinson’s disease later in life. I cried and cried for what my Dad had endured as a boy and how he surely must have struggled to try to function as an adult let alone as a husband and father. I started to understand why he ultimately had to separate from our family through divorce then finally disappear for TWENTY-SEVEN YEARS! And why he sent my grandmother hate letters for about a decade. He was so very messed up. In due time I forgave him for everything I have written about here and elsewhere.

How amazing that the Lord will give me this insight before I would come to fully understand what happened to me that fateful day at my Dad’s house in Roseville. The memory fragments gathered over time still don’t fit together well. It’s like a jigsaw puzzle with edges singed by fire, warped by water damage, and with dozens missing but then again you don’t know how many pieces there are in total. You can only hope to understand the little chunks that you can see when you do not have the picture on the cover of the puzzle box. The ones I see now are very, very clear.

My Dad told me not to go in the basement but somehow I wandered down there anyways. There was a dead German shepherd dog in a large tray on a table, dead. The basement was dingy and dark with electrical cords hanging from the ceiling. The table with the dog was over by a utility sink and washer and dryer; some kitcheny-type items were strewn about along with a lot of blood. The nipples (as in a pregnant dog) were cut off of the dog. The wounds were red with dried blood. I don’t remember anything else other than the sense that my Dad had scolded me for being down there. I know it took a long time for me to be able to get back up the stairs under my own power for lack of strength.

The next thing I remember is lying on a couch upholstered in some kind of plaid pattern. There were no pillows or cushions upon which to lie my head. I was sickly. I desperately needed to rest.

I discovered about that time that there were other people in the house, in a bedroom a the back of the house. It was a small ranch home so it couldn’t have been very far away but it seemed very far to me at the time. My next memory is inside that back bedroom. There were naked people writhing around on a double bed. In those days no one had a queen or king-sized bed as they were either too expensive or the bedrooms were just too small. Two women grabbed me, one on either side of me, to restrain me. Years of tiny memories of this scene, recalled with horror and emotion so raw that I thought I would not survive the telling or finally feeling them, knew that they violated me sexually. I physically remember the touch. My shoulders have funny pinch marks where the posterior deltoid muscles should be and I wonder if it was from their firm grip on me at a time when my body was growing from childhood into a teenager? Seems to me that someone on the bed took notice of what was going on. Seems to me that I may have recognized at least one of the people on the bed but I cannot be sure. That person denies any activities akin to an orgy but does admit that my Dad had seances with groups of people around his coffee table in the front room some nights at his house. (The coffee table in front of the couch where I was lying earlier.) Years later I and expert would hypothesize that my Dad was experimenting with the occult and psycho-cybernetics to try and control his mental illness. What a sick, twisted mess.

My Dad came into the room and ripped me from the grips of the two women. There was some kind of paraphernalia on the dresser that was strange to me that I would later hypothesize was for taking drugs. He broke the neck of the first woman he grabbed and put her out on the front porch, out the front door just beyond the couch. The house cleared out although I do not remember the people actually leaving. I was back on the couch as nightfall set in. I don’t remember falling asleep, eating anything, going to the bathroom, or my Dad talking to me. She was still out there on the porch. It’s all a horrifically terrifying blur . . .

It was daylight when my Dad put me in the backseat of my Mom’s car. The vehicle was an older tan sedan with red seats that used to belong to my grandfather; how fitting for it to have red seats! My Dad scolded me firmly to crouch down in the backseat and not come out. I remember the wide floor area and bench seat of the backseat. He must have plopped the woman’s body into the front passenger seat before we took off down the road as I knew that she was there with us. Somehow I gathered that we drove north since you have to drive north to quickly get from the crowded suburbs of Detroit to the country. But I didn’t drive at the time so I don’t really know which way we went. The towns of Flint and Pontiac stick in my mind and I’m not sure why.

He pulled over at one of those pull-off areas along the side of the highway. It wasn’t a freeway like I-94 or I-75 and there wasn’t much traffic driving by. When I heard the front passenger side door open and the sound of my Dad pulling her out of the car, I figured I could pop up and look out without being seen. I saw him struggle then drop her floppy body over the guard rail to what looked like a drop-off down below the level of the road. There aren’t any mountains per se in Michigan so I have no idea how this worked out or where it happened that there would be such a cliff. (About 20 years later I looked at maps of areas north of Detroit to see if I recognized any names of streets or topography that might help me identify the area. I even called the State police and talked to a sergeant who would have been working in the approximate area about 20 years prior to my call. When the internet became available, I searched the archives of several newspapers for stories of bodies recovered in that area and even the name of an Uncle’s old girlfriend who I thought might know something. Nothing panned out.)

My Dad was working on my Mom’s car that week or weekend which is why he was driving her car. The next thing I remember is being home with the car and my Mom asking me how my visit went. I wasn’t able to say anything. My Mom and I weren’t exactly on friendly terms in those years so she asked nothing further. The horror was locked up inside of me and remained there for many, many years.

Even with all of the holes in the recounting of these crimes, abuse, satanism, evil, wretchedness, there is more confirmation for me that it is all very real. My Dad did things to try to get me to forget what had happened. We still had a pool in our backyard for a couple of years after my parents divorced. One afternoon when no one else was around, he took me onto the pool deck to inspect the liner. I vividly recall the blue shade and pattern of the liner above the water line and below the metal cap (that we would jump off of into the water). The deck was cedar and stained a medium brown color. My Dad had built the largest deck around, complete with a flip-up staircase that we could lock in an upright position to keep kids out in between pool parties.

I recall my Dad pushing my head up and down into the water repeatedly, over the edge of the deck with my body splayed out, face-down on the surface of the deck, as if to try and drown me! I don’t know what he was saying or if he said anything at all. I feared for my life, gasped for air. It was way worse than my brother Mike trying to hold me underwater when we would play “hold your breath the longest” games in the pool. He was a mean kid back in those days. The truth of what my Dad did came out through the course of most of my adult life treating headaches and neck issues. I have a flattening in the curvature of my cervical spine. I often wonder if it was from the physical trauma committed that day? Anyways, seems to me that he was trying to cover one trauma with another. I believe that his action was a twisted interpretation of the psychological experimentation of the 60’s and 70’s. He tried another version of messaging with my brother Mike via brainwashing him with a recorded message he had him listen to before going to sleep. I still remember the “pillow speaker” and cord that went from the speaker to the tape recorder in the basement. The effect on Mike was opposite of what was intended, damaging his self esteem for much of his adult life.

The strongest evidence that supports my Dad’s effort to try to get me to forget something bad that had happened is reflected in the scars on the inner surface of both of my elbows. My Mom had taken me to the Doctor for something and through the course of the exam, the Doctor asked about the circle of blisters on each of my inner elbows. He asked if I had been shooting up drugs with a needle? Injecting myself with something? He asked over and over again. The blisters were fluid-filled bumps about 1/8-inch in diameter and tall. I remember touching them and the fluid moving beneath my fingers. I had no idea how they got there. At first they were on one arm then they were on both arms, same patterning but maybe it was the right arm had more bubbles than the left arm? I was tempted to burst them but something inside me decided that was not a good idea. Eventually the blisters deflated, the skin dried up, and the crusted tissue healed. The scar of pock-marks inside each forearm remained visible on my skin for decades.

In my late forties, I started working with a counselor who specialized in ritual abuse. When we talked through the story that I have recounted here and the blisters, he suggested that my Dad had injected me with a psychodelic drug in an effort to get me to forget the trauma that had happened. In my Dad’s sick thinking, if I forgot then I would not be affected by what happened (and perhaps no crime was committed). In an exceedingly deranged way, my Dad was trying to help but he did so by inflicting more abuse. This is a form of ritual abuse: using a ritualistic behavior for the purpose of controlling another person. There are other examples of rituals to which he exposed me and my brothers to through the course of his mental illness that I may discuss at another time. What is important here is that there remains to this day, although faded from the atrophy of my skin that normally occurs with aging, a physical reminder that something was done to me decades ago that should never have happened. About 2 weeks ago I felt the Lord lead me to apply a frequency-generating treatment device to my inner arms to see what would happen. Spontaneous tears followed that I could not stop if I tried. Holy cow. This is what they call tissue memory, body memory. And now at last, that tissue is free from whatever happened, the effects of shooting up some drug into each of my arms.

In all this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. These have come so that the proven genuineness of your faith—of greater worth than gold, which perishes even though refined by fire—may result in praise, glory and honor when Jesus Christ is revealed. 1 Peter 1:6-7

It’s not the same thing to make up a story for personal gain versus sharing a part of your history for no personal gain. It’s not the same thing to try to piece together wacky thoughts in your head versus processing emotionally laden images that come to mind when you know they are parts of events that really happened and do not conflict with what you already know, history, physical evidence, and what people have been willing to share with you. It’s not the same thing to pray for a seizure to end versus the electrical/chemical rush associated with a seizure masking-and-triggering memory of an incident long buried in the tissues of your brain, ready to finally come out. It’s not the same thing for a (dangerous) counselor to use hypnosis to “recover lost memories” versus the The Holy Spirit strengthening the faith of the born-again believer to receive truth in more forms than you ever imagined at just the right time in your life, thus changing you for the good, forever. It’s not the same thing to tell a sad, scary story for pity versus championing the work of the Lord in the life of His daughter whose faith has helped her overcome evil in the hopes of shining a light on the mighty power of our Savior, Jesus Christ.

Our Lord overcomes the worst, the darkest, the most sinister evil you could ever imagine or have ever endured. This is not only true for me, for my story. This is an important truth for such a time as this. Our sovereign Lord reigns now and will reign forevermore. He is here for me and for you, will sustain you no matter what may come or has gone before us. Believe it Gentle Reader! I do! JJ

What forgiveness looks like: the Lord restored “the years the locusts had eaten”
just before my father passed away in 2011.

Knees to the Grass

Humble yourself before the Lord and He will meet you there every time.

Having just whacked my shoulder with the handle of a rake, the pain seared deeply from my flesh to my soul. It is now bruised.

So cried, I did: weeping that lasted a long time. So much sorrow in my broken heart of late.

How can I go on with so many hours spent lying in bed? Seizing the last grips of life until my breathing starts again? Plans reduced then cancelled to much, much less?

The window to the neighbors’ bedroom was not far away out there in the darkness of night and my own beloved worked 2 rooms away beyond the double-paned windows

Oh how long must this sad song go on: the one that mixes grief from the death of loved ones with the pain of suffering so?

My Lord, you bestow so much goodness yet this night my heart aches for the dearth in my broken frame.

Just let it all out Gentle Julie. Your heart needs a good cleansing at the foot of my cross. For I hung there for all your sorrows with my blood dripping for your tears.

There will come a day when I will restore all that has gone before you.

There’s a period at the end of that sentence beloved one and this one too.

My love shall forever surround you, my spirit dwell within you, my angels minister for your care.

Keep seeking my face and you will find me there with you every time. I love you more than you can ever know. Just try to keep seeking and I will lead you home.

And so I shall. Oh how I long to go home! Yet weakly I shall go on . . . JJ