Gotta love a wacky sense of humor! Call it gallows humor if you will. Today it is keeping me sane.
Here are a few momentos as I support my brother, Mike, recovering from a stroke. Enjoy! JJ




In his first solo CD, Huntley Brown clinked the keys of a grand piano with such magnificent flow that it sounded like the rushing waters of a mighty river. Check it out yourself on You Tube at: https://www.youtube.com/watch?v=up1ygB0ZYes I first heard this amazing piece when he was first performing in churches across the United States about 20 years ago. This native born Jamaican had surely witnessed the glory of majestic waters crashing upon the sandy beaches of his homeland. Yes! I can picture it. How about you?
The imagery of a river is meaningful to me. When I was a child I fell into a river when helping groom a trail along the Clinton River in Michigan. It was part of a day camp experience and I was scared then upset because I had to stay in my muddy, wet clothes for the rest of the day! Oh the trials of childhood!
Trials indeed. When I would break down into tears as a young girl my brother, Mike, would taunt me mercilessly. He stood in front of me with the palms of his hands facing upwards and sneered, “cry me a river!!!” I burned with anger. He had no idea the pain underneath those tears that finally spilled down onto my face after holding so much hurt inside: hurt with no safe place to go. I had endured two of three sexual abusers by this age: the damage was done. No river could contain my tears, or at least that is how it felt, should the “dam ever break open.”
Flash forward 40 years. The abusers are now deceased and forgiven; my heavenly Father has filled the hurt with His amazing grace and love. I married my intended beloved and he introduced me to kayaking on the rivers of Fort Wayne, Indiana. We began on the water together in a Hobie Oasis (i.e. a pedal-driven kayak) until I progressed to a solo Think Fit Sea Kayak. By October of 2011, I was in the best physical shape of my life despite an underlying chronic pain condition and had upgraded to a beginner surf ski kayak: the Stellar SR. For almost three years my husband and I had enjoyed kayaking with a local recreational group on Tuesday nights all summer through the early Fall. The wonder of the rivers and waterways we explored together eventually changed my perception of them; after all I had grown up by the polluted Detroit River, downriver from the steel mills! Rivers? Yuck! Boating on the water back then for me meant exploring the Five Great Lakes and clear blue inland lakes of Michigan by speedboat not human-powered slo-mo vessels!

Well who knew that Indiana was so beautiful? We witnessed young deer up close, sneaking to the edge of the water for a drink and Great Blue Herons feeding their young in the tops of trees. Paddling with a gaggle of 20 or more colorful kayaks with double-bladed paddles gently sliding through the water was a really cool sight to see. For the first time in my life I felt “cool!” The evening excursions were sweetened by the chocolate chip and peanut butter monster cookies from a fellow kayaker as the sun was setting over the boat launch at the end of the day. The sunset is simply glorious on the waters of a river winding through the woodland . . .
It sure is a curious thing that the most significant episode of illness in my life would begin after kayaking in a local reservoir and river. The complicated course of events that followed prevented me from all but limited excursions on the water for the next two and one-half years. I’ve now sold both kayaks mentioned here and we have replaced them with solo and tandem outrigger canoes. My balance skills have suffered of late so the Hawaiian-style outrigger provides stability with maximum performance. After all, Steve is a competitive kayak racer so we are grateful to have fast and great gear along with really cool looking boats! Lord willing, I look forward to getting on the water again sometime this year.
And so I was praying, crying out to the Lord recently when the most difficult parts of this illness had led to feelings of despair. Perhaps you read the previous blog entitled, “Psalm 71?” Yeah, I hit rock bottom a couple of nights ago. Within a day the Lord led me through His Holy Spirit to an understanding of where I am and where all of this might be going. This did not come with exacting answers of time or place initially. I came to understand that the process of searching a new treatment option was like that of waters moving from one place to the next. The Lord placed me in the middle of the stream of new research and methodically led me through the steps of discovery to a new treatment modality. I will write more about what it is another time. What I will say here is that I am in awe that there were no barriers along the way just an open current, if you will, of information even when I could not see where the research was leading me. When I finally landed at a decision, like putting-in or taking-out at a boat launch that both sends you on an adventure or returns you home, He showed me the symbolism of a river, glorious. The image of a river made sense to me. The residual pain from my brother’s comments so many years ago finally faded. The Lord gathered my cries for help like a gentle stream at the mouth of a river leading to His heart. I believe there will be a significant measure of healing this time.
Psalm 98:7-8
Let the sea resound, and everything in it,
the world, and all who live in it.
Let the rivers clap their hands,
let the mountains sing together for joy;Song of Songs 8:7
Many waters cannot quench love;
rivers cannot sweep it away.
If one were to give
all the wealth of one’s house for love,
it would be utterly scorned.Isaiah 43:2
When you pass through the waters,
I will be with you;
and when you pass through the rivers,
they will not sweep over you.
When you walk through the fire,
you will not be burned;
the flames will not set you ablaze.Lamentations 2:18
The hearts of the people cry out to the Lord. You walls of Daughter Zion, let your tears flow like a river day and night; give yourself no relief, your eyes no rest.
Amos 5:24
But let justice roll on like a river, righteousness like a never-failing stream!
John 7:38
Whoever believes in me, as Scripture has said, rivers of living water will flow from within them.
Revelation 22
Then the angel showed me the river of the water of life, as clear as crystal, flowing from the throne of God and of the Lamb 2 down the middle of the great street of the city. On each side of the river stood the tree of life, bearing twelve crops of fruit, yielding its fruit every month. And the leaves of the tree are for the healing of the nations. 3 No longer will there be any curse. The throne of God and of the Lamb will be in the city, and his servants will serve him. 4 They will see his face, and his name will be on their foreheads. 5 There will be no more night. They will not need the light of a lamp or the light of the sun, for the Lord God will give them light. And they will reign for ever and ever.
Tonight I rest along the banks of my Heavenly Father’s river of life.
Thank you, Lord, for carrying me downstream as far and as long as was needed to bring me to this new place of hope. Oh my Lord, forgive me for my desperation, for not trusting You. Help me to trust you, to continue to abide in your streams of righteousness, wisdom and grace. Renew my faith, strengthen my sea legs if You will, until it’s time for me to come home. I love you. Julie
Sometimes in life things do not occur in any sane, logical order. Well after the original Creation of all things, that is! Before Creation there was only God and we came with His speaking into existence time, space, the earth, and so on. All I can say is that after I was born a lot of things happened in a fairly reasonable sequence. However after I became an adult that all changed!
I started my career, graduated with a Masters degree, and was married 12 years without ever having had any children. I see now the paradoxical blessing of never having had a family as a young woman; it just didn’t make sense why this happened as the years went on until more recently. It was the Lord’s plan for my life. Regardless I now have had the privilege of “adopting” my intended beloved husband’s grandson this past year and it is GRAND! I love it! Sitting here in the great State of Indiana following the stream of photos on Facebook of little Jackson and his parents in North Carolina is the new replacement for dinner-with-the-family on Sunday afternoons. Well o.k. Works for me.
Ah yes, work. I began my career as an occupational therapist, dabbled in worker’s compensation insurance, ventured into a home business three times (where I continue now as a hobby), bounced back after a few orthopedic injuries, and landed in an extended medical leave two years ago. I would have thought that I would be more vulnerable to such a serious illness when undergoing some of the more significant and stressful transitions in my life but it didn’t happen that way. Illness came when I was happily married, living closer to my hometown of Detroit, Michigan, secure in my relationship with the Lord, and largely homebound in a pretty place with a cool dog too. I have never felt more loved and it came after age 47, not as a baby girl. Works for me.
And there it is again. Work. My training as an occupational therapist brings a fascination with all things “work:” from the menial tasks of housekeeping to the time-and-motion requirements of an assembly line worker. I am amazed at the inner workings and outer performance capabilities of the human frame in addition to our ability to love, to hate, to dream. Later in life I would also come to know the Creator of mankind as my Lord and Savior, Jesus Christ: the One who made me and you in His image. Oh how lovely He must be for all of us to be a copy of His humanity! My life has been a wacky journey of discovery for all that He has made and gifted me to be; my weaknesses in addition to my strengths are crafted at His hand, in His time. This brings me to the current day.
I received a job notification from a prominent continuing education company for a part time Lead Occupational Therapy Education Planner. Wow, that sounds cool! The Planner would assist in the development and promotion of continuing education courses for occupational therapists and occupational therapy assistants nationwide. I have spent my entire career continuing my love for learning as I moved from one specialty area to another, adapting from one work setting and set of skills to another. Then when illness struck and continued into the year 2012, the Lord guided me into an online jewelry business. I knew very little about ecommerce at the time! Within a year I am grateful to report that I had customers from most sections of the United States and had learned a variety of jewelry-making techniques. I could adapt my creative schedule any time of day or night. And the marketing and writing skills of previous endeavors got applied and developed further, including photography and the use of social media.
Even with all of that, my greatest joy lies right here with you. This blog has received my heart, my hopes, my fears, my dreams, my failures, and my successes too. You have been there for me, Gentle Reader, through yet another transition in my life. I have recently doubted my ability to return to gainful employment due to the nature of the illness in my life. And yet the skills of reading, writing, creating, and social networking have grown despite any hardship. So I applied for the position! I included the online business, eBook, and this blog as accomplishments of late. It’s just like an occupational therapist to examine the skills needed to get through the day and a person’s ability to match it to what is needed in his or her life. This is exactly what I have done these past 2 years and in considering this new venture.
Thank you, Lord, for creating me as an occupational therapist. You knew the skills I would need to navigate the events of my life and breathed the seeds of them into me decades ago. And if it is your will that I move forward with gainful employment with this new company, then I am ready for this challenge. I don’t need to know if it’s the right timing, if I need to do something else first as in the chicken or egg dilemma. I’ll just trust you with all of the details. How timely that earlier today I was talking with a friend about her preparation and experiences attempting to return to work after a personal leave of absence. I place both of us at your throne of grace that your wisdom and strength would infill both of us for the opportunities that lie ahead. In Jesus’ name I pray. Amen. JJ
Whenever I am down and out
Instead of rising up and giving a shout,
I’ve learned to keep my big mouth shut
And hold my poker face to save my gut.
I used to sputter and blurt out a reply
And earned a reputation like that of an un-nice guy;
They called me “bold” but it got me no where
Just too many nights right here alone in my under____.
Well not really but it rhymed you see
‘Cause appearances were all the rage back then to me;
All the while He waited in silence
Beckoning me with hope and a promise.
Decades flew by and it weren’t too pretty
My youth faded: I lost more than an itty bitty:
My husband, my mom, my brother, my dad
I had more than enough reasons to be quite sad.
So where did I land when the fires took it all
The shell of a woman who once spoke a little too proud and tall?
****************
Hmf. This broken child crawled before the throne
Put down my sword and picked up His own.
The dragons we slew: the Christ Jesus and I
My strength now His, my voice that of One on high.
My steps softened, tears sweetened at last and for better reasons
Even the fruit of my labors grew differently in the coming seasons.
I have not any idea where all this will go
Will I ever “get there” or find the answers I need to know?
It almost doesn’t matter ’cause even one bummer leads to the next joy
So ‘just hold on Little Julie, this next chapter’s gonna be quite a ride!
Sometimes I just don’t recognize myself anymore. I have used many words for myself such as Julie Anne, Recovering Type A, Recovering Catholic, Adult Child of an Alcoholic, Jul, Child of the King, Snookums, Just Julie, and Booberry. Many other labels inside my head will not make it to this blog as they are unkind and reflect the stinking thinking that was an outcome of my childhood. While I have come a long way there is still so much to do!
My biggest challenge these days is having some kind of identity when my world is smaller; there is less going on. I am sick a lot of the time. I am isolated most days. I go fewer places, see fewer people, engage in fewer activities, and generally do less than at any other time in my life for longer than any other time in my life. Whilst engaging in various activities a person engages in various roles that comprise one’s identity, for example: friend, church goer, Master Gardener, sister, sister in Christ, kayaker, exercise enthusiast, and so on. All of the roles that I have mentioned have severely diminished for me in the past 2 years because of a serious illness. I do not know when this will change. The tendency is to ask the question, “where have I gone?”
I really miss my life before illness. Sure it wasn’t perfect. I still had chronic pain, went to the doctor and had some type of treatment for pain a couple of times per month, and limited my work schedule to a maximum of 30 hours per week. But I was also the most physically fit I had been in my entire life, had the greatest financial freedom that I have ever had, enjoyed rewarding work as an occupational therapist with a flexible schedule, and went to lots of neat places with my amazing husband. My mind was sharp, my confidence was growing, and I felt really loved. Things are more mushy now. Most of the time I feel lost. I am not even convinced I have the correct diagnosis or treatment plan. So this translates into the reality that I don’t really know when I will be well again. This is tough stuff indeed.
And yet there are many new activities that have emerged these past two years. While I don’t work in all-things-gardening as much, I did become an Advanced Master Gardener AFTER I got sick. That was an amazing and humbling accomplishment! The Lord gave me the opportunity to explore blogging, learn more about social media, publish an eBook (Hope Beyond Lyme: The First Year), learn to make macramé jewelry, and launch an online jewelry business (Trinity Jewelry by Design). I’ve made some amazing friends via a local Lyme Support Group in addition to some compassionate folks online. I have kept a journal for most of my life and now my blog has a growing list of really cool followers from around the world. Talk about humbling! Wow. If only you could see my heart right now, transforming from an identity crisis between the lines of this blog tonight to a woman with a vision. You do that for me, Gentle Reader, guided by the Holy Spirit. Thank you for listening as this gets worked out within me . . .
If we were to examine the experiences of my life, we would probably agree that I have had a life that has been harder than most. Over and over again I have had to find Little Julie then Jul and Just Julie amidst a firestorm of hurt, loss, and strife. I have come to understand that the Lord has had His guiding hand, loving arms, and protective wing around me all along where the good people and perks of life were missing. He has allowed the trials and tears to bring me closer to Himself, to help me to see beyond the circumstances around me. The Lord has shown me that the bad stuff was not wasted or intended to hurt me. The Lord wants me to be complete and allows all this to conform me into the image of Christ. I pray that I will not lose heart during the refiner’s fire. I pray that I will see His blessings soon as I have seen so many times in the past. I just gotta hang on a little longer, let Him carry me a little more.
Where have I gone? I am in another wilderness experience like Moses and the Israelites of the Old Testament who wandered in the hot, dry desert for decades wondering if they would ever be “there yet.” I must keep my eyes on Jesus: the light that leads and the cloud that blots out the forces of evil that taunt my doubts, fester my feelings of inadequacy. It just doesn’t matter anymore where I have gone. What matters now is where am I going?
Happy new year, Gentle Reader. Will you go with Him too in 2014?
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