Only my potato chips remain crushed today

Who knew that finely crushed, Unsalted Kettle Potato Chips would be like a salve to my wounded frame today?  In the spirit of my previous foodie post, I must say that finely crushed chips make my creamy beef stew-ish soup puree quite special.  Since there are potato chips in my belly, life will go on after all!

Yes, there is other good news after enduring 36-hours of hell, ending about an hour ago:  we believe we have identified the trifecta-root cause of much of my illness.  However, unlike a horserace where a bet on a trifecta identifies win, place, or show, we are not sure of the order of these little fillies:

  1. Two infected teeth with root canals
  2. Inflammation secondary to the infection and
  3. Dental galvanism from dissimilar metals in the crowns of the root-canaled teeth.

Now we recognize that while we certainly won’t know the exact cause until the teeth are extracted and I have treated the infection, if needed.  I am on a waiting list for a local surgeon after a trip to see a qualified biologic dentist out-of-state resulted in being passed on to someone else equally far from home.  My husband has led us to the decision to find someone else locally; I am on a waiting list to have my appointment moved up from April 2nd with the best local oral surgeon.  Those Gentle Readers who have followed me for awhile know that I have thought before that we found the “root cause” of everything.  The “it” still could be complicated by underlying Lyme disease, mold neurotoxins and the definite mercury toxicity fueling it all.  Yet one thing is now clear:  these teeth still have to come out!

Here’s a brief summary of these three new factors in my own words:

1.  When a person has a root canal procedure, a dead tooth is left behind.  The primary root canals consisting of nerve tissue and blood are scraped out and a rubber-like substance called gutta percha is stuffed into the remaining cavity.  While the opening is treated with an antiseptic, no one can ever know for sure if any secondary root canals were left un-cleaned and untreated.  Any remaining nerve and blood tissues dies and can provide food for aerobic and anaerobic bacteria.

Between the root canal channel and the outer enamel of the tooth is the dentin, consisting of 3 miles of dentil tubules.  These are too numerous to be completely sterilized before placement of the gutta percha.  Thus there is a possibility of infection seeping into the dentil tubules.  When a tooth is healthy, all of the dental tissues are washed with blood but this is no longer possible with the severing of the blood vessels during the root canal procedure.  However, if the infection grows, the bacteria can eventually seep from it’s hidden little factory in the tubules into the jaw bone and surrounding blood supply thus potentially affecting the mouth and rest of the body.  It is well-recognized that these bacteria can be exceedingly dangerous.

Lastly, during a root canal procedure the periodontal ligament is often left in place around the dead tooth, adding further risk for infection and necrosis from this dead tissue lying next to the gums or jaw bone.  Only in the dental industry is a once-living, now-dead tissue and a dead structure (the tooth) allowed to stay in the body; otherwise this tissue would be surgically removed as in the examples of damaged frostbitten fingers, gangrenous toes, severely burned skin, etc!

2.  As spoken by the nurse in my doctor’s office this past week, reddened tissue means inflammation and often indicates the presence of infection.  Pain in the upper left portion of my jaw has lasted over 13 years, increasing lately to the point of requiring periodic Ibuprofen and topical treatments such as (diluted) clove oil.  I now chew food only on the right side of my mouth, avoid hot and cold temperatures, and consume soft/pureed foods so as to minimize the chewing and pressure on my teeth that trigger convulsive episodes.  Geez!

3.  Though considered controversial by traditional dentists, it is easy to find hundreds of mainstream and holistic dentistry sites that have described the dental galvanism (aka “battery effect”) that can occur from the use of dissimilar metals in amalgam fillings, crowns, and dental appliances.  I had my amalgam fillings (generally consisting 50% of mercury) removed many years ago yet there remains a question if there is any remaining underneath one of my crowns.  The bigger issue is that three of the four crowns in my mouth consist of a combination of metals.  To establish if the presence of metals (in the presence of saliva) creates any currents between my teeth, yesterday my husband and I touched the probes of a voltmeter to the surface of the two teeth in question.  The voltage was TWICE that of my skin on my arm!  Steve questioned if this small amount of voltage would be of any clinical significance?  Note that microcurrent (significantly less than the voltage we measured on my teeth) is used in rehabilitation for the treatment of pain.  This means that the body must be affected by tiny currents.  Too bad the current in my teeth is not mitigating pain!    Conversely, I wonder if this battery-effect is over stimulating a part of my brain, triggering the convulsions instead?

Now to flesh out number 3 a little more, I refreshed myself on a little neuroanatomy.  The upper branch of the trigeminal nerve innervates the upper and lower jaw of the mouth.  The trigeminal nerve originates from a part of the brainstem called the “Pons” which sits on top of the spinal cord inside the back of the skull; three branches extend on each side of your head and across the face with the mandibular branch dividing over the top and bottom of the jaw.   During dental procedures, this is the nerve into which a dentist injects a numbing agent such as Novocain.  The motor division of the entire trigeminal nerve derives from the basal plate of the embryonic pons, and the sensory division originates in the cranial neural crest.

Fifth Cranial Nerve Distribution:  Trigeminal Nerve (from Wikipedia 2.27.15)
Fifth Cranial Nerve Distribution: Trigeminal Nerve (from Wikipedia 2.27.15)

To hypothesize what electrical stimulation from 1) this battery-effect flowing 2) BACK TO the brain in the first two of these three areas could mean for a person, I took some liberties and looked up the symptoms of the person who has a stroke affecting these three areas.  (The cranial neural crest has more significance in embryonic development and stem cell research than the discussion here so I left it out.)  My findings are fascinating.  Please note that the exact symptoms will depend on which biological “electrical circuits” and junctions are affected since the structures are so small and interrelated; we cannot know for certain which structures will be affected.  Regardless, I have listed a few symptoms that I do experience from each of these respective areas during my own seizure attack or convulsive episodes.

  • Damage to Basal Plate Symptoms:  Loss of movement, such as stiff, rigid or weak muscles; tremors or body shakes; aphasia (difficulty speaking); changes in eye movements; or changes in motivation or personality.
  • Damage to Embryonic Pons Symptoms:  Weakness of upper and lower extremity (arm and leg on same side as damage); dysregulation from inhalation to exhalation (difficulty breathing); sleep paralysis (inability to move when falling asleep or after waking up and altered dreams); difficulties with balance (ataxia); dizziness due to vertigo; or clumsiness of a hand or arm.  A person with a severe stroke may need help with self-care or feeding as a result.

Wow.  These all have happened in some combination with each “tazoring” as I call it.  Thankfully there are higher parts of my brain in the cerebral cortex that appear unaffected and thankfully the symptoms are not permanent so far!  I would not be able to write this blog if the damage was permanent.  But I know I cannot overthink all of this.  After the onset of acute upper back pain two days ago, I feared what the range of random electrical charges on my weakened frame could do to my heart.  Or was it a heart attack?  Well, no.  I had gone too far.  Pain comes from thrashing around and will be dealt with when I return to physical therapy and chiropractic care sometime after dental surgery.

Wasn’t this interesting?  There is much hope in putting all of this together.  Please join me in praying for the Lord’s will in all of this.  And if it is the Lord’s will, I would love to have these two crazy teeth outta here ASAP!  Time for these little ones to go!  I prefer to be toothless in Indiana with crushed potato chips on my soup of the day instead of this saga continuing.  Even if my hypothesis was wrong, I am grateful for the mental stimulation, the challenge of the hunt.  I trust that the Lord will use all of this for His glory.  Maybe this insight will help someone, somewhere, someday?

And you know and Lord willing, this year I AM GOING TO GET WELL!!!  Yeah baby.  Take care Gentle Readers.  JJ

 

 

I am sure of it

 

Multitasking cartoon

Unlike the brain fog of this cartoon, I am going to get well.  I am sure of it!

The second week into the use of an atypical chelating agent (Zeolite by Zeo Health)  for very high mercury levels has brought more moments of mental clarity than I can ever remember in my entire life.  Oh sure there are ongoing seizure attack episodes yet they are generally 50% improved overall!!!!!!  I could not say this after any other treatment protocol attempted these past 3 years.  I could not say this even after the initial relief from high CBD hemp oil (the industrial hemp counterpart to cannabis oil).  I could not say this after antibiotics or Rife treatment with the Beam Ray.  I did not say this after (27) IV infusions of magnesium last Fall.  I could not say this after extensive and expensive mold remediation in 2013.  Even after aggressive treatment for candida over 2 years, I could not say this.  But I will say it again:

I AM GOING TO GET WELL!!!!!!

There is only one person to thank for this new direction:  the Lord, Jesus Christ.  At a time when multiple factors have come together at last, the path has cleared and hope is restored over here because of His mercy and grace.  A key factor in this process is humility.  More on that in a moment.  I also want to thank my chiropractor:  Dr. Lee Nagel at DeKalb Chiropractic Center in Waterloo, Indiana.  He had a hunch early on in my care that I was suffering from mercury poisoning.  After all, two hair analysis tests revealed mercury and other heavy metal toxicity in the year 2000 and again in 2011 but both times my respective Family Practice Physician (FPP) minimized the results.  Both times the Dr. thought I would be unable to tolerate a special type of detoxification protocol called chelation that would be required to remove heavy metals.  So off we went each time in another direction instead until my life of hell began with viral hepatitis October 11, 2011 and escalated into daily seizures beginning in March of 2012.

Dr. Nagle had high mercury levels discovered by his cardiologist.  His health improved after treatment thus placing mercury issues on his clinical radar.  Dr. Nagle, father of three, is one of the most adventurist and athletic people I have ever met (behind my beloved Stevers of course!).  His chiropractic practice rarely includes medical testing but he made an exception with me.  Thank you!  It took a month to get the testing protocol right then the results revealed the shocking reality of a probable root cause of illness for me:  very high mercury levels.  (Please refer to this excellent summary to learn more about this devastating substance.  Original citation available upon request.)  After a false starts with a quack-y Dr. who claimed to provide chelation, my current FPP is guiding me in the use of chelation and increasing other gentle methods of detoxification that have worked well for me.  By the way, my FPP has also recovered from mercury poisoning that almost took his life!

All of this is very humbling after 3 wretched years of illness and 23 years of chronic pain aka fibromyalgia.  While I do recognize that I have a new, long course of treatment ahead of me, I am exceedingly grateful to discover a root cause of much of my suffering.  Holy cow!  A successful outcome could help more than the seizures.  Yeah God!  Both Steve and I are really hopeful this time.  And it is with mental clarity at 4:30 in the morning that I write this to you!  So grateful for the 3-hour nap earlier tonight.  Yeah, the weird sleep schedule continues a bit!

And now about humility.  These entire three years have presented challenges requiring me to trust God for everything up to my next breath.  I submitted to the loving care of my gracious husband as he needed to carry me to the toilet a hundred times; help me to shower, feed or dress me when I could not about once per week; carry me to bed often so he would be near as he tried to catch some sleep before work,  rush me off the emergency room FIVE TIMES, and so much more.   Oh Gentle Reader, have you sensed that I am a recovering Type A personality?  A first born of my siblings in my family of origin?  That I started working when I was 16 years old with babysitting jobs before then?  That I am capable of taking care of myself thank you very much?  This is the longest and most extreme period of need that I have ever experienced.  I have had to let go of everything during these past three years.  At another time I will write about facing death when my breathing would freeze multiple times during seizure attack episodes.  And with all of this, I did not die of embarrassment or lack of oxygen.  My Heavenly Father and earthly husband have carried me through to this next season of recovery.  I AM HUMBLED!  Thank you seems too small.  I love you both!

Briefly, there were two other tasks I believe needed to be completed during this time:  1) learning to depend completely upon my husband for material needs and 2) realizing that the little activities I got to do here and there would become new skills, new relationships, and new activities that would become my future.  Both were tasks that probably would not have come without grounding in Jesus Christ or needing to cope with the crises of severe illness.  I probably would not have seen so clearly and (hopefully) fully submitted to the incredible character strengths of my beloved had I not become so broken.  Steve is my spiritual leader and head of household and I am grateful.  Long before we met I know what it took when my life fell apart in 2003 to soften me into the kind of woman that my beloved would choose to love.  I now see more clearly what kind of man the Lord has provided for me to love in return.  I AM EXCEEDINGLY BLESSED!

So join me, if you will, for an amazing adventure of recovery from serious illness.  IT IS HAPPENING!  So much fun awaits!  Thank you for riding along with me.  May we both praise the Lord for the good that is here now.

Hope is a good thing, eh?  I am sure of it.  JJ

Psalm 62:5-8 (NIV)

Yes, my soul, find rest in God;
    my hope comes from him.
Truly he is my rock and my salvation;
    he is my fortress, I will not be shaken.
My salvation and my honor depend on God;
    he is my mighty rock, my refuge.
Trust in him at all times, you people;
    pour out your hearts to him,
    for God is our refuge.

 

Numb but Hopeful

I love Patrick Klein’s words from the Vision Beyond Borders newsletter this week:

Psalm 143:10-12 says, “Teach me to do your will, for you are my God; may your good Spirit lead me on level ground. For your name’s sake, O Lord, preserve my life; in your righteousness, bring me out of trouble. In your unfailing love, silence my enemies; destroy all my foes, for I am your servant.” Doing God’s will does not come naturally; our natural tendency is to satisfy our fleshly and worldly desires. We must be taught and transformed by God to do His will. When His Spirit leads us, it is on level ground. He alone can make crooked paths straight. Our duty is to remember that what we do is for His name’s sake. It is not about us. He alone can best determine how He desires for us to bring glory to His name. It is not for us to determine. Despite hardships, trials or persecution that may be allowed in our lives, God can preserve us and bring us out of our trouble. 

Our only responsibility in all of this is to simply remember our role. We are to be servants of Christ. Often we grow weary because we are trying to do His part. We are trying to figure out where He is taking us rather than allowing Him to lead us. We are trying to figure out how to preserve our lives and bring ourselves out of trouble rather than allowing Him to bring us out. We are trying to silence our enemies and destroy our foes when that is not our work. We are not made for those things, and it is exhausting. Our duty is simply to look to God and serve Him, allowing Him to do these things for His servants! We don’t have to strive, we simply have to come to Him. His yoke is easy and His burden is light; we will find rest for our souls. May we faithfully seek Him, serve Him and remain completely in Him, trusting Him to show us each step! 

Thank you Patrick.  Last night I started using yet another binding agent (Zeolite) to try to encapsulate and detox mercury from my weakened frame.  Afterwards I felt very weird!  We were Skyping with my husband’s daughter in Thailand and it was all I could do to chat a bit, smile a bit, and keep my shoulders from hiking up to my ears!  The nightly seizure attack episode was significantly shorter and I fell asleep at a more reasonable time, around 1:30 a.m.  Hell was waiting for me this morning and returned with more violence a couple of hours later.  Can you say “mad as a hatter?”  Well if you were a hatmaker in the 19th century you might be more familiar with mercury poisoning than the current medical profession.   So let’s see if we can figure this one out, eh?

#1  Trust in the Lord and lean not on our own understanding.  (Proverbs 3:5-6)

#2  Follow the clues and think about how chelation works for mercury and heavy metals.  Most protocols require regular treatments for a given interval of time, sometimes as often as every 4 hours.  (See the Cutler protocol.)  The rebound occurred about 12 hours after the first dose of a true chelating agent.

#3  Consider a repeat, low level dose at regular intervals to bind and remove the newly circulating toxins.

#4  Relief came within minutes when the detox agent was consumed with lots of water.

And after resting, eating, sitting out in the lovely Fall sunshine, I am upright.  This is good.  I am also extraordinarily humbled by some incredible blessings this week and will end with four to match the points enumerated above:

#1  Unfailing love in the eyes of my intended beloved, Steve.  When I am in his arms no matter what the circumstances, I feel the love, care, and compassion of my Heavenly Husband too.  Thank you Jesus for Steve.  Please love and bless Him.  Cover our marriage with your grace.  May others see a good work in all of this for your glory Lord.

#2  Treatment options that provide some relief.  I believe that the pattern of suffering is about to change for the better and we are exceedingly grateful.

#3  Wisdom that ultimately comes from the Lord.  I have learned so much these past 3 years and have received blessings, gained new skills, met new people, cleared out some excess baggage, and found a voice that I pray will glorify you here.

#4  Hope.  No matter what the burden may be (and we both need not look far to see horrific burdens that our brothers and sisters in Christ must bear for their belief in Him), He will prevail.  As a new friend, Karan Gleddie, brought to light this week we are to “set (our) minds on things above, not on earthly things.”  (Col. 3:2)  Therein we too will find our hope, our peace, our happiness.  And as Patrick reminded me, we are to serve with the strength of Christ for His namesake.  With our eyes on Christ all things are possible.

Gentle Reader, how may I pray for you today?

Colossians 3:2
Colossians 3:2

 

Just Julie Treatment Update

Brief update:  I seem to be in what an airline pilot might call a “holding pattern” lately.  When I can break through the perpetual feeling of sickness and get myself out of the house, even if it is to our backyard, there’s always a backlash of noxious symptoms.  Recently my chiropractor recommended a heavy metals blood test and after a month of getting the paperwork and procedures right we have the results:  high potassium and very high mercury.  Yipes!  So my husband and I are investigating chelation therapy.  I have an appointment with a Doctor of Osteopathy who provides chelation and other medical, nutritional interventions.  In the meantime I’ll check with my family practice physician and see if there’s enough data to proceed with caution.  We will be covering this in prayer.  For most folks chelation is a difficult journey.  But hey, I’m familiar with that already, eh?

More details:  The daily 2 to 5 hour waking seizure attack episodes continue.  One day each week the episodes exceed 8 hours on and off during which I am largely bed bound.  If I have pushed myself to complete heavy gardening tasks or more than about 2 hours of appointments outside of our home then the episodes can increase to 12 hours.  The rest of those days is pretty worthless.  I have at least two “worthless” days at home each week anyways, regardless of my activity level.  These are days where I pretty much take advantage of the lovely “3 hots and a cot” afforded by our home.  I may see you here at the computer and mope through other very sedentary tasks.  Dinner may or may not get prepared.  Thank goodness for my homemade freezer meals and frozen burritos for Steve on days like these!

The normal sleep-wake cycle remains elusive for me.  When I do go to bed around midnight it is usually because Steve has carried me there in the neurological collapse-mode of a seizure attack.  This happens twice per week.  I’ll pass out at some point thereafter only to awaken in less than 4 hours, usually with another episode of tazoring.  Many days the tazoring wakes me up in the middle of the night.  Good grief!  That’s what happened last night prompting this blog.  When I do wake up in the middle of the night I have to find a way to yank myself out of bed or they will continue indefinitely!  This also happens twice per week on average.  The other nights I endure an episode sometime between sunset and midnight then I am wide awake until 4:00 a.m. or so.  If I can wait until I feel sleepy then the episodes falling asleep will usually be shorter and sometimes not at all.  I love it when the latter happens!  The best schedule for me then is to be up late, go to bed and sleep until noon-ish, endure a shorter waking tazoring then attempt to move forward with the day.  I love days when I do not have any appointments that disrupt this schedule!

The only “treatment” I can tolerate at the moment is a strict diet, coconut oil, colon hydrotherapy to detox, and extreme mold avoidance.  Occasionally I can take a short walk late in the afternoon or use our elliptical for 5 minutes, usually in the middle of the night before bed.  My diet is mold-free, gluten-free, sugar and sweetener-free, dairy-free, and low oxalate.  The latter has produced some detox reactions that appear to be beneficial; bone broth is incredibly nurturing to my digestive tract.  Most medications, pharm-grade supplements, and typical detox/immunity foods (such as lemon water, probiotics, ground flax seeds or oil) produce convulsions.  Not good.  This syndrome has a name:  Chronic Inflammatory Response Syndrome or Multiple Chemical Sensitivity.  The good news is that my gut health is better than it has been in a long time.  That tells me that the dietary strategies are working!  There are times when I feel more alert and my thinking is clearer.  At times my memory is better.  To my delight the creative juices are flowing again as reflected in my latest designs at Trinity Jewelry by Design.  And sometimes I am even able to make jewelry during the daytime instead of just with the crickets outside the window of my cute little studio area . . .

October 11th will mark the 3 year anniversary of becoming sick.  (For more on that story, see the About Julie page.)  I’ve been off from work for 2 1/2 years now, the longest since I started working in at the Penny Candy Place as a teenager.  No work or disability income is in sight.   The Lord has provided for my every need through my gracious husband and His grace.  Through it all Steve and I have been challenged to the ends of our human strength through unbelievable trials yet somehow feel closer to each other and to the Lord than ever before.  Steve is my hero!  DSCF0245We trust in Proverbs 3:5-6, Psalm 41:3Psalm 71:14, Revelation 21:1-8 and more.  The Lord is faithful to His Word:  we have seen it, we hope in it, and His living Word carries us through it all.  Even in those split seconds when it feels like my heart, my breathing, and my brain waves have ceased to function and I do not know if life will continue for me, I am no longer afraid.  That’s how real the hope of heaven, the reality that my eternal life has already begun as a child of the King, the loose grip I have on the things of this earth are to me.  Oh Gentle Reader, can you say that too?

So many unknowns fill our days.  We can respond with woe and fear or we can respond with FAITH.  And our faith is only as strong as that to which we apply it.  I hope that you will join me or have put your faith in the omnipotent God over all.  Yes, I wrote all. 

Nothing less will do when faced with the next, er, bite in the shorts.  You know I had to say it didn’t you?!    :]

 

Wide-eyed and bushy tailed: Part 1 of 2

This pup can sleep no matter where she is or what time of day it is.  I’ll bet she is not alone in this.  Most dogs can sleep all day long if they like.  I guess it helps to have 2 layers of eyelids with one covered in heavy fur!  And in my experience, many of the male homo sapiens genre can sleep at will too!  🙂

Squinting early Spring 2014crop

 

Not so for me.  After a rough night, rough afternoon, and low grade episode in the middle of the night it’s as if I have toothpicks holding my eye lids open.  In about an hour my alarm will go off in anticipation of a birthday surprise outing for my beloved husband.  It has been re-scheduled or re-configured six times over the past week with the location, State, and parties involved changing many times due to various extraneous factors.  He only knows about the date changes.  Steve has been a champ through it all!  I kept him guessing with clues and silly gifts.  The changes of date, time, etc. has actually helped keep everything a secret.  I just hope I hold out too!

Sometimes sheer adrenaline gets you through that which you could never do on your own.  I know my Jesus is out front so please:  take the helm!

Seeya later with all of the details and pictures.  I’m headed for a puppy pillow.

:J