mold illness – Page 4 – Jesus is for the Wounded

It’s only a matter of time

Published on August 25, 2014August 25, 2014 by Jesus is for the Wounded2 Comments

Let’s see. If I had a timer going for a few events these past few days, this is how I would measure up:

Friday: Made dinner. 1 1/2 hours.
Saturday: Unloaded compost with hubby and tinkered with a few garden tasks. Made dinner. 3 hours.
Sunday: Sat outside. Posted some new jewelry on Etsy and surfed the net. All day.

The rest of the time was characterized by self care, supreme sickness and recovery. Who knew that seizure attack episodes on Friday and Saturday could take on a violent, writhing character for 10 minutes straight of unbelievable hell? I am so very glad that the other episode of 2 hours of non-stop seizing plus aftermath would not take me to the emergency room in the middle of the night, early Saturday morning. Alas, my beloved got a few hours of sleep. But today it’s just sad that I missed my husband’s shooting class. All of this is a really big bite in the shorts, I tell ya.

As it turns out the most difficult issue for me to face during these last almost 3 years of illness is a “waste of time.” I value the meaningful use of my time more than money, people, places, and things. It’s just how I am wired and I don’t want to spend a 60-minute counseling session trying to figure out WHY! This aspect of illness really cuts to the core of my being. I will, however, submit my will to the wisdom of my Heavenly Father. Perhaps it is a supreme opportunity to soften this issue of time measuring value for me. Value is not measured by time in the eyes of the Lord. Value is measured by simply being. (Now that’s another topic for another time!) Maybe today I should explore the topic of time in a walk through His Word?

God created time. Genesis 1:14 ¹⁴And God said, “Let there be lights in the vault of the sky to separate the day from the night, and let them serve as signs to mark sacred times, and days and years,

Time will end, thereby increasing its value. Revelation 10:6 King James Version (KJV) ⁶And sware by him that liveth for ever and ever, who created heaven, and the things that therein are, and the earth, and the things that therein are, and the sea, and the things which are therein, that there should be time no longer:

There is a time for everything, good and bad. Ecclesiastes 3:1 There is a time for everything, and a season for every activity under the heavens:

Time is measured by God. All things happen in His appointed time. We are to wait patiently for His divine timing of both the events of our lives and the events prophesized in the Bible. Daniel 12⁷And I heard the man clothed in linen, which was upon the waters of the river, when he held up his right hand and his left hand unto heaven, and sware by him that liveth for ever that it shall be for a time, times, and an half; and when he shall have accomplished to scatter the power of the holy people, all these things shall be finished.⁸And I heard, but I understood not: then said I, O my Lord, what shall be the end of these things?

⁹And he said, Go thy way, Daniel: for the words are closed up and sealed till the time of the end.

¹⁰Many shall be purified, and made white, and tried; but the wicked shall do wickedly: and none of the wicked shall understand; but the wise shall understand.

¹¹And from the time that the daily sacrifice shall be taken away, and the abomination that maketh desolate set up, there shall be a thousand two hundred and ninety days.

¹²Blessed is he that waiteth, and cometh to the thousand three hundred and five and thirty days.

¹³But go thou thy way till the end be: for thou shalt rest, and stand in thy lot at the end of the days.

We have no idea when things will really happen or not happen. Better to keep our eyes fixed on the Lord our God. The most important event is His return in glory. Mark 13³²“But about that day or hour no one knows, not even the angels in heaven, nor the Son, but only the Father. ³³Be on guard! Be alert! You do not know when that time will come. ³⁴It’s like a man going away: He leaves his house and puts his servants in charge, each with their assigned task, and tells the one at the door to keep watch.³⁵“Therefore keep watch because you do not know when the owner of the house will come back—whether in the evening, or at midnight, or when the rooster crows, or at dawn. ³⁶If he comes suddenly, do not let him find you sleeping. ³⁷What I say to you, I say to everyone: ‘Watch!’”

God ordains certain tasks in the lives of believers at certain times until our days are over. When in doubt we are to fast and pray that the Holy Spirit may counsel us, lead us, comfort us through our days. Esther Chapter 4. ¹⁴For if you remain silent at this time, relief and deliverance for the Jews will arise from another place, but you and your father’s family will perish. And who knows but that you have come to your royal position for such a time as this?”¹⁵Then Esther sent this reply to Mordecai: ¹⁶“Go, gather together all the Jews who are in Susa, and fast for me. Do not eat or drink for three days, night or day. I and my attendants will fast as you do. When this is done, I will go to the king, even though it is against the law. And if I perish, I perish.”

Our time is to be spent gaining wisdom among other tasks He ordains for us to do. Psalm 90:12 ¹²Teach us to number our days, that we may gain a heart of wisdom

We are to spend our time in meditation on the things that matter most. This requires inactivity! Philippians 4:8 Finally, brothers and sisters, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable—if anything is excellent or praiseworthy—think about such things.

Time spent with the Lord is infinitely multiplied as He is timeless. 2 Peter 3:8 ⁸But do not forget this one thing, dear friends: With the Lord a day is like a thousand years, and a thousand years are like a day.

God orders the steps, the events of our lives for His divine purposes. They are not random. They are not without meaning or purpose. Proverbs 16 ⁹In their hearts humans plan their course, but the Lord establishes their steps.

His plans include blessing, a future and a hope. In this promise we can find rest. Jeremiah 29. ¹¹For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.

And yet we are to live fully in the moment and consider the future according to His will. James 4 ¹³Now listen, you who say, “Today or tomorrow we will go to this or that city, spend a year there, carry on business and make money.” ¹⁴Why, you do not even know what will happen tomorrow. What is your life? You are a mist that appears for a little while and then vanishes. ¹⁵Instead, you ought to say, “If it is the Lord’s will, we will live and do this or that.”

Not only are the events and timing of our lives planned as part of His will. They are ordained for His glory! Ephesians 1. ¹¹In him we were also chosen, having been predestined according to the plan of him who works out everything in conformity with the purpose of his will, ¹²in order that we, who were the first to put our hope in Christ, might be for the praise of his glory.

O.k. I think I’m getting a better perspective on things! Not only does my Lord and Savior care for all of the details of my life (Psalm 139), He carefully constructs the timing of everything as well. When I am up late at night writing this blog I remind myself that it is an honor when someone reads what I have written. You, Gentle Reader, have chosen to spend some of your valuable time with me. And if I have succeeded at any level to bring each of us closer to the throne of grace, the love of Jesus Christ, well that is time well spent indeed for both of us. To Him be the glory. May He mark our time for His purposes. After all, it’s only a matter of time. There is so very much more . . . JJ

If the story made a difference

Published on July 28, 2014July 28, 2014 by Jesus is for the Wounded4 Comments

A blog is an interesting vehicle in one’s life. You get to write about anything you want and just about anyone, anywhere can read it. At least that is how this blog is structured. Funny thing is that once you get going on a particular topic, there’s a high likelihood that you might reveal a little more about yourself than you might if you were in person. The ideas just flow when here alone at the keyboard and if it is a personal blog (instead of a professional or business forum) well things can get personal quite easily! If you are honest, that is!

Why bring this up? Well I have come to realize that some tragic events in my childhood are influencing the nature of my recovery from illness. The question I have grappled with of late is whether or not to write about it. Oh the story is juicy enough to draw some interest and you bet I’ll let you know how the Lord has helped me endure and overcome the pain of it all. Healing has come for these hurts because of the love of my Heavenly Father manifest in my personal relationship with His Son, Jesus Christ. The Holy Spirit has guided the process: providing counsel, “Jesus with skin on” in the form of loving sojourners, helpful tools, and His glorious written Word leading me to hope. So why share the hairy details anyways?

Possibly I would because horrific illness may trigger past hurts for others more than me. I don’t want you to feel alone if that is part of your story. New trauma often stirs up old wounds: at least the one we might find are not fully healed. We might not know that they are not fully healed until something new happens in our lives as in the course of serious illness. I view many of these events as “another involuntary growth experience” and am often left feeling more whole when I work through the tender issues correctly. The problem is that when you happen to mention to a medical professional that waking nightmares, seizures, involuntary screaming episodes, and convulsions have triggered scenes that might be from your past YOU GET A PSYCHIATRIC LABEL AND THEY STOP TRYING TO TREAT THE MEDICAL ILLNESS. This is frustrating indeed! The medical illness came first. Healing secondary issues is a bonus, like clearing out cobwebs in a musty garage. Cool beans and all that jazz. Keep the treatment focus on the root cause people!

So for me to share old or emerging facts from my abusive past runs the risk of my physical symptoms not being taken seriously. Convulsions require serious examination, eh? I paid dearly this past Saturday for venturing out on a private lake for my husband’s canoe and kayaking class hosted with a friend. Even though the water was treated with blue dye to prevent algae growth, it was there anyways. I have never had such violent, animalistic, horrifying convulsions in these 2 1/2 years of seizure attacks as I did one hour after I returned home. You would not believe the level of torment I endured continuously for 2 wretched hours! The rest of the evening was awful too with a rebound of episodes on Sunday. I lost over a day of my life in payment for enjoying a paddling outing with my beloved and some friends. The biotoxin illness won and I lost. Tell me how this is all in my head as the working out of an unhappy childhood? NO WAY.

If the story of my sorry childhood made a difference to the “Hope Beyond” I would like the Gentle Reader to find, I would write about it here. However in doing so I would risk selling myself short in the process for those who might not follow my whole story. One of my blogs generally covers only one topic as in a chapter of a book. Further, reading a posting about a waking nightmare that was remarkably similar to a very bad day a long time ago would put the focus on the past and not on the exposure to cyanobacteria earlier that afternoon. And in the end we bloggers don’t need to share everything about ourselves to be heard, to make a difference in the literary world. We only need to be genuine to ourselves, to our subject matter. Should I need to share a scene from my past to make a point I might do so briefly. To say more will put the focus in the wrong place. I need to keep my eyes fixed on my great expectation for what lies ahead of me (and all who believe), in the glorious presence of my Lord and Savior. One day when my life on this earth is over He will make right all that was not right back there and heal me then, if not sooner. I believe there will be a blessing for my stewardship of the experiences, sacrifices, ministries, and choices of humility He allowed in my life if I have succeeded in acting according to His will. And if I have acted according to His will then it is only because He helped me to do so! This stuff is way too hard to make it on my own.

The story that truly makes a difference is not mine. The story that has the power to transform the lives, the hearts of mankind is that of the person of Jesus Christ. Let His own Words of His life, His pain and suffering as chronicled in the Gospels (the first 4 books of the New Testament in the Bible) lead you to His throne of grace. Lay your burdens before the One Who is, Who was, and Who will forever be. Let His love redeem the pains of the past so that both you and I may live freely in His presence forevermore. What great fellowship we shall enjoy one day soon! What great joy we will know when He calls each of us by name Who knows Him as Lord and Savior. Oh how I long to hear His stories of how much He loves us, He takes our prayers to the Father, and has prepared a glorious place for us to dwell in together: Him and I; you and Him; the fellowship of believers; the cherubim and seraphim. Yeah that’s where my focus outta be!

Philippians 4:8New International Version (NIV)

⁸Finally, brothers and sisters, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable—if anything is excellent or praiseworthy—think about such things.

Oh yeah! Now that’s some great writing! ;J

High CBD Hemp Oil and Me

Published on July 25, 2014February 8, 2019 by Jesus is for the Wounded2 Comments

So we had a great go of it, HCBDHO and me.

This past winter I gave it a try for about 3 months after discovering some research linking reduced seizures to consumption of a particular type of cannabis oil. When I found out that there is an industrial hemp oil with only trace amounts of THC and that it would be legal for me to purchase it in my State, I purchased a bottle online. I worked with the manufacturer and a couple of Facebook groups on dosing. My initial results were very encouraging!

Within 2 weeks I required increased drops of HCBDHO to receive the same benefit. This fit the profile of many other users of the product. Some required nearly 1/2 bottle to stop their seizures even if a child was taking it. There are lots of details here so I refer the Gentle Reader to previous posts by searching CBD oil on this site. In general as time wore on, the benefits diminished no matter what the dosing. Also in time I started having bad dreams then bizarre nightmares. The nightmares frightened me. I could not figure out why they were happening! Then I read that some folks are sensitive to even trace amounts of THC: the compound in cannabis oil that creates a high when taken in products that have a higher percentage of this cannabinoid. Well I wasn’t having a good time at all!

Eventually I stopped taking HCBDHO altogether. Now that I am sensitized to it, I do not intend to take it again. The risk of altered thought processes in my precious sleep (that I desperately need to recover from these wretched daily seizure attack episodes) overrides the small improvements that remained after 3 months. The benefits did not outweigh the risks. I am majorly bummed that it did not work for me. Nothing has worked for me. No combination of things have worked for me. I cannot tolerate treatment that works for others without ramping up to violent convulsions. Detoxing is impossible without noxious, severe side effects. Talk about being boxed into a dark corner without a flashlight. Will hope ever shine through again?

Sure it will. Lately I’m experimenting with magnesium threonate and may try a particular brand of Tahitian Noni Juice. The latter helped Kurt and Lee Ann Billings, the authors of Mold: The War Within, who did not do the typical protocols of cholestyramine, activated charcoal or benonite clay to get well. Yup, all of those three caused me noxious, severe side effects as well. Sish. I am very glad that there are new things to try despite the dead ends of my medical team at the moment. Thank you Lord that you are always my hope with or without Tahitian Noni: my forever guiding light Who uses the hardships for Your glory . . .

So for those of you considering using high CBD hemp oil (from industrial hemp) or other cannabis products (from hemp classified as medical marijuana), I encourage you to learn all you can at informational sites such as the following Scientific Review of the research literature: You are also invited to “Like” my facebook page which contains all of the pertinent research that I did when making my decision to try HCBDHO. The articles include the legality of industrial hemp products and the difference between them and medical marijuana. Here’s a link to get you started: Seizure Free Zone on Facebook

May the Lord bless you on your journey too, JJ

Perspiration, Inspiration, and a Some Exasperation

Published on July 9, 2014July 10, 2014 by Jesus is for the Wounded1 Comment

When I was going to college we used to say that many gals were there more to look for their “MRS” degrees than prepare for a career. Then when I went to graduate school we used to say that our Master’s thesis was 90% perspiration and 10% inspiration. And as life carried on, while grateful for my education and degrees, I realized that what I would accomplish in life had little to do with either. Who I became had more to do with what I was willing to endure in the refinement of my character as a believer in Jesus Christ than anything else . . .

Psalm 23 (NIV)

A psalm of David.

¹The Lord is my shepherd, I lack nothing.
²    He makes me lie down in green pastures,
he leads me beside quiet waters,
³    he refreshes my soul.
He guides me along the right paths
    for his name’s sake.
⁴Even though I walk
    through the darkest valley,
I will fear no evil,
    for you are with me;
your rod and your staff,
    they comfort me.

⁵You prepare a table before me
    in the presence of my enemies.
You anoint my head with oil;
    my cup overflows.
⁶Surely your goodness and love will follow me
    all the days of my life,
and I will dwell in the house of the Lord
    forever.

Yea for those who call Jesus Lord of their lives; ruler of their hearts; and the Way, the Truth and the Life we have so much goodness to see us through.  This was never more clear to me than earlier this evening.  Brace yourselves as this is not for the faint of heart.
Around 9:15 p.m. I was having one of the most wretched seizure attack episodes and spiritual battles since becoming sick 2 1/2 years ago.  Nothing in particular triggers these battles of late:  for the last month this has been my nightly rite of passage into the next day.  My screams of terror, violent writhing, head banging, and pleading for the Lord to deliver me continued non-stop for over an hour.  My beloved came near to check on me at a moment when my nerves were on edge like a dry ember along a raging fire.  I cried out in sudden frightfulness when surprised by his silhouette in the darkness.  Later he returned to check on me again, clarify what had happened, and continue to pray for deliverance from the hell that I was enduring.  I had a sense that more wretchedness was welling up inside me so he was willing to grab the camera and videotape the horrifying moment in time.  Then all was quiet.  I lain on the bed exasperated with exhaustion.  My voice was hoarse, my frame sore from the thrashing about.  I was fried yet awake at the same time.  Man did my neck and shoulders hurt!  (sigh)
It’s times like these I have to ask myself if I am even going to make it through the evening.  Sometimes I am not sure based upon what I am experiencing.  I have to push through the binding down as I am seizing to even breathe while holding a pillow around my head (to avoid injury).  What in the world causes this?  Sadly the worst was not over:  it just needed to take a new form.  The spiritual attacks ramped up next as Steve returned so I asked him to hold me tightly.  He prayed aloud, sang a few hymns, and made sure I was safe as I wrestled with the effects of the attacks.  The new seizures, vocalizations, gut-wrenching tears went on for another 30 minutes or so with a few breaks for us to catch our breath, thankfully.  And then the worst was over.  A few zips, tic attacks, and guttural utterances slipped through with some low level shaking that looked a lot like shivering.  The whole episode had started with shivering before it escalated into full body wrestling.  Good grief.
The rain started swiftly outside the bedroom window around midnight.  The rushing sound of the water hitting the glass sounded more like my truck going through a car wash than a summer downpour.  And then suddenly I felt a strong urge to go outside . . . into the rain.  I needed to get up out of bed to try to put some closure on all that we had endured in the past 2 hours.  Lying there could invite more aftershocks so I strained to get up.  Alas I needed cleansing from the darkness.
Now I know why I selected the new black-n-white header photo for this blog.  The picture shown above came into mind as I walked decisively outside and into the redeeming  waters from heaven.  Now I didn’t go crazy or anything with holy laughter or getting drenched by the chilly droplets pouring onto my weakened frame.  Just for a few moments I stepped into the night to feel the cool wetness and look up into the sky above.  Three times I retreated under the covered porch to warm myself slightly before stepping back out into the night.  It felt good!  My socks were getting really wet though so I removed them as I went back into the house on the way to a lovely warm shower.  A little giddiness slipped into my steps as I realized how many decades it had been since dabbling in a summer rainfall.  I thought of the girl in the black and white photo.  Yes, little one, I understand your smile completely.
Gentle Reader let’s be clear on one thing:  if there was a remedy for this illness of course I would take it in a heartbeat!  While these episodes provide rich fodder for spiritual lessons and blogging, I’m cool with someday writing about gardening instead!  Earlier today a root canal specialist doubted that there is any infection hidden in my gums causing systemic issues or chronic illness that would create waking seizures.  Hey, my upper left jaw has been sore for many years so it was worth a shot to have it ruled out.  Sure I’ll see an oral surgeon in a couple of weeks for a special scan just to make sure of things.  Looks like it might be another dead end to a “bunny trail.”  I guess I just need to wait on the Lord for a time until he leads me beside “waters” that will “quiet” the unrest in my central nervous system.  I’ll see my Lyme literate medical doctor on Friday for a status update.  We have so very much to discuss with the ER visit 2 weeks ago and recent worsening of symptoms.  The arduous process of managing my care thus continues.
And yet in the worst moment of this evening, the one where it’s as if Satan himself taunted me to give in to his schemes instead of trusting in my Jesus, a teeny tiny voice inside me uttered that I will continue to trust in the Lord regardless of the suffering.  Steve reminded me of how Job of the Old Testament questioned what was happening to him even as he waited on the Lord in horrible circumstances.  Then when God reminded Job who He is:  His mastery over all He created, His almighty power, omniscience, and omnipresence, Job fell to the ground despite his gaping wounds to submit in worship.  I wonder if he heard a tiny voice stir inside his spirit as well?  I am just so very grateful that this inner voice, the leading of the Holy Spirit within those of us who believe, remains no matter what the trials may bring.  I heard it today and His refreshing words comforted me like the healing rains outside my window.  Thank you Lord that You are here with me like You were with Job.  You are the same today as yesterday and worthy of our praise.  YES, I will trust in You!
So if you think you too are facing circumstances that create perspiration and exasperation I encourage you to hang on until the inspiration comes.  Specifically, Gentle Reader, I encourage you to hang on to the Shepherd who refreshes the soul and will bring comfort in due time.  We must remain vigilant in keeping our eyes fixed on the face of Jesus Christ lest the evil one gain a foothold in our hearts, our minds.  Put on your spiritual armor (Ephesians 6:10-17) with the holy scriptures and he will flee in the name of Jesus Christ.  I guarantee you that warm fellowship with the One who loves you more than anyone will minister to your needs completely.  Hang tough.  Greener pastures are coming soon!  JJ

Inside my heart

Published on June 30, 2014June 30, 2014 by Jesus is for the Wounded3 Comments

If a heart weeps for all that is gone

Must it place value in only that left behind?

If a moment in time is all that we have together

Will you remember me when your last breath reminds you there is none left?

If a baby bunny can nourish itself from my well-tendered garden intended for me

Could the disease inside of me eat away at my strength til there is none left to redeem?

Yeah that last one doesn’t encourage me much so I better stop right there. I’m struggling to make sense of the 12 hours of seizure attacks that ended yesterday. Periodic re-occurrences continued of course leaving me afraid to go to bed whenever I got brave enough to go to bed. Wretchedness with writhing, head-banging, moaning, and more greet me in the first stages of “sleep” every night. Make sense out of that one! These episodes make me suspicious of anything that might trigger them. Inside my heart I am angry, I am hurt. I am exasperated. I am . . .

I am in need of renewal inside and out. Where are you Lord? Fill my spirit with your unending grace. Please make your presence known such that I might endure, recover from this hell. I submit to You my king. There is none like You. For your glory. Amen. JJ