Torture, water-boarding and more: Part 3

[Eight hours have passed since I wrote Part 2 that chronicled the second phase of my recent hearing and vestibular testing at our local Balance Center.  Four hours of the eight were lost to persistent deep-brain convulsive episodes then passing out in exhaustion and tears for about 2 hours.  These episodes are different from those usually associated with epilepsy; I do not have epilepsy as I am awake, aware of my surroundings, sometimes able to communicate, and can often pinpoint the trigger of the living hell that follows.  (See this link for more information.)  The assessment was completed 1 1/2 days ago but its negative impact has lingered.  Here is my conclusion to this story with hopes of a little cathartic experience to follow as I use blogging to let go of the trauma that went before me.]

In Part 1 of this series I gave a brief history of the four years of illness that has precipitated the referral for testing at The Balance Center.  In Part 2, I shared the severe struggle I encountered with the first two parts of the second phase of test procedures rendering me useless on a treatment table with my own carbon mask covering my face, wretchedly seizing without end.  Eventually and by the grace of God the episodes finally stopped.  I learned that the 3rd phase of the testing would conclude in this third treatment room where I was lying and would normally take about 30 minutes to complete.  Alright, so again I rallied, sat up, got some new goggles calibrated, and got ready for battle.

The technician, “M,” had me lie back down on the treatment table for what appeared to be a simple process of keeping my eyes open in the darkened mask while she would be squirting some warm water into my ears, one at a time.  She said that the water would only be a couple of degrees warmer than my own body temperature but might feel much hotter than that.  She wrapped the left side of my head in A LOT of paper towels.  Then suddenly without any additional warning a massive blast of really hot water banged against my tender ear drum!  WTF?  (Seriously, I generally don’t swear so imagine something nasty like moldy f-ruitcake at this juncture!)  Then within seconds and before I could catch my breath CAME A SECOND BLAST of equally hot water!  Within 10 seconds I was massively dizzy, yes, the highest number on her 4-point scale, thank you very much!  How is this even possible?  What the heck could they possibly be testing through such a tortuous, water-boarding procedure?  I winced in more head and neck pain as the convulsive episodes immediately returned with a vengeance.  “Why Lord!?  Why all this suffering?” my heart cried.

I struggled as she kept telling me to keep my eyes open for two full minutes or we would have to repeat the sequence.  Oh dear not that!  All I wanted to do was close my eyes to retreat into the smallest cocoon in my mind and die.  (Someone please kill me now.)  Keeping my eyes open in a darkened room and blackened mask under these circumstances was more difficult that I can describe to you.  I was wearing my carbon mask PLUS the large black mask pictured in Part 2, much like Darth Vader in The Force Awakens!  Of course in the thick of the now-violent head banging it would be my only solace to close my eyes and hang on for a ride worse than a Mexican taxi driver racing along a dirt goat path along the side of a cliff.  (I know.  I have endured that too.)  I am not sure that I even breathed a peep for the remaining seconds.  “Please Lord.  Make it stop!” I pleaded in earnest.

“M” graciously gave me all the time that I needed to start to calm down enough to try again.  Perhaps, she said, she could allow me to skip the cold water-boarding torture test if I could only repeat everything on the right side too?  Well that almost seemed like some good news at last!  And there would only be one more test after this one.  “One more?  O.k.,” I thought to myself.  “I am not coming back to this holocaust-for-a-day ever again so I had better decide right now how much of this I can really take.”  And in the life of a believer in Jesus Christ the answer is faithfully:  all of it.  “Somehow, my Lord has seen me through so much hell in my life already,” I reasoned.  “Please Lord, help me finish so I can go home.”

The last 2 blasts of hot water were slightly less traumatic in my right ear since I now knew what to expect.  (Imagine that:  you are about to get burned in one of your most sensitive parts knowing that it will spike dizziness worse than any world-famous roller coaster ride.  You know that it is coming as the train click, click, clicks up the steep hill of the Gatekeeper at Cedar Point or some such nonsense.  Good times indeed.)  In that back room of The Balance Center I braced for impact.  Smash!  When the two minutes thereafter were done I wept from deep within my soul once again.  There no longer was anywhere safe for me, without sickness or pain, anywhere on the earth.  I am not being mellow dramatic.  I was a machetied puppy in my spirit and broken in my weary frame.  Everything hurt grievously.

In due time I was able to sit up, transfer to a chair, and finish the final light bar test.  I have no idea how I did this.  Suddenly the technician’s tempo increased and she revealed that she wanted to take me to the lobby so that she could clean the room!  I knew that I had taken longer than most patients in completing the battery of tests.  And that’s when her sweetness kind of stopped.  She re-appeared with a wheelchair as I was still deciding if I was alive or dead?  Could I move my limbs to get up or had I digressed into the neurological collapse that often follows severe convulsive episodes?  More shaking, more head-banging followed this time sitting up and it had not stopped yet when “M” returned.  (Those attacks are the worst kind, by the way.  No protection for my neck when flailing up in space.)  If my central nervous system was in collapse-mode then I would require maximum assistance to move.  Moments passed.  I breathed as best as I could.  I really needed to walk out of there under my own power . . .

And so I did.  I sat in the lobby for at least 30 minutes then another 20 minutes in my truck before even thinking about driving home.  I could barely eat a few bites of the makeshift lunch I had brought with me.  The words “shell-shocked” apply here.  By the grace of God I rallied again and was able to drive home.  Within a few minutes of arriving safely I came unglued, raced to our bedroom screaming and crying, overcome with grief, unable to speak to my beloved husband in complete sentences about all that I had endured that day.  My mind unraveled.  Somehow I completed the mold-avoidance procedures we follow when returning from any public place.  Hot tears streamed down my face, mixed with the cleansing water from the shower head washing away the horror, revealing the sinus and neck headaches, unmasking the fact that no where in my body was free of pain.  The bed received me at once with more thrashing/hell that was required to unwind all the damage that had been done.  Eventually I passed out for about four hours . . .

********************

Somewhere in this journey that the Lord has ordained for my life will be a glorious story of redemptive grace.  A miracle perhaps.  Healing?  Wisdom gleaned from the years the locusts have eaten, so to speak.  Blessings?  Those are promises that we all can count on when we walk with the Lord our God through His Son, Jesus Christ (Romans 8:28).  We will know that our trials will not be wasted.  Something good will come from them whether in this life or the next.  When I am more recovered from The Balance Center ordeal I will speak about this with more confidence that I can today.  What I want you to know is that I am not giving up.  My heart raced and I was unable to breathe during one of the most violent episodes that transpired during the test procedures but I did not die.  That being said, it is again crystal clear there must be more for me in the future.  I am still here so why not get ready to really live instead?  I can deal with that one for sure.

And so can you, Gentle Reader.  But if you are “dead” in your sins then that is a different matter.  Why not choose life in a personal relationship with Jesus Christ who will one day replace all of this suffering with fulfillment of His promises?  Please contact me if you want to discuss this further.  Please allow my suffering to bring you renewal, bring you cleansing once and for all.  We simply do not have any more time to waste!

Godspeed.  JJ

From the side of the bed

8th Anniversary 11.24.15
Celebrating our anniversary November 24, 2015

 

2015-11-28 23.11.54
Sick in bed November 27, 2015

He has seen it all

My beloved, the one with soft blue eyes;

In the medical facility or on the road as we pass across the miles

He looks to me with a precious love that makes me swoon all the time.

It doesn’t matter my status that day:

The screams of terror, the gentleness of a warm embrace,

He just looks at me as if we were lying under a canopy, shielded from the hot sun

By the lush branches of a mighty oak one summer’s morn along the way.

But that is not what has gone before me once again these past 3 days and more

His vacation was spent caring for me in ways neither one of us would choose.

He steps forth to do what must be done just the same

And says of our time:  “we had a nice week now didn’t we?”  I guess so, maybe in some ways we did my love.

I sigh in awe, something short of disbelief.  How did love like this find its way to this place between us?  This bed is marked more by sickness than passion night after day after night?

Surely it goes beyond that which either one of us can see!

This walk was borne from the One who made us thus and so

The One who set this path for goodness, for purpose yet unknown.

While wasted days is all that I can see very, very late this night

(With tensions mounting, wills weakening under the weight of it all)

I see that my Heavenly Husband carries our hearts with His special sip of tenderness

Bringing sweetness to our lips when we need it most as he has so many times before.

From the side of the bed

I look up and know more than my Love,

Surely I humbly receive care from more than the one I can see.

Thank you Jesus for my Steve.  Thank you Jesus me loving so!

So if ever you are graced by a love like this, dear Reader, and I hope someday that you do:

Hold tight, hold fast with praise, with alms beyond your brokenness to discover what the Lord alone can bring.

For you are witnessing more than a miracle in the midst of hurricane:

You are finding grace that will see you through anything, truly, truly with love I say this to you.

JJ

Waiting

Psalm 130 New King James Version (NKJV)

Waiting for the Redemption of the Lord

A Song of Ascents.

130 Out of the depths I have cried to You, O Lord;
Lord, hear my voice!
Let Your ears be attentive
To the voice of my supplications.

If You, Lord, should mark iniquities,
O Lord, who could stand?
But there is forgiveness with You,
That You may be feared.

I wait for the Lord, my soul waits,
And in His word I do hope.
My soul waits for the Lord
More than those who watch for the morning—
Yes, more than those who watch for the morning.

O Israel, hope in the Lord;
For with the Lord there is mercy,
And with Him is abundant redemption.
And He shall redeem Israel
From all his iniquities.

Psalm 130

Here I sit

Here I sit

Broken hearted

Trying to s__

But only farted!

And so goes the rhyme of 9 year-old boys and their older sisters!  It’s a little funny and a little sad for me right now.  It’s like our waiting for answers in the next step of my treatment process that is wearing heavily on my beloved, Steve, and me.  The stress is crushing.  We cannot do much but endure the next few days until the next consultation.  I am having to puree foods to keep the chewing motion of my jaw from triggering convulsions.  And still they happen on their own regardless.  This keyboard is my closest friend tonight.  Thank you for being here.  You are:

   2 Good

+ 2 Be

_________

4 Gotten!

Love to all, JJ

 

The Woman in the Mirror

roosterWho is that woman in the mirror?

I see her in a different view these days with less distortion than in days gone by.

The form of her face is increasingly unfamiliar with advancing age and the effects of illness.

When gazing into a full length silhouette I have less of a critical eye as the pounds have dropped over time.  This was not always so.

Close in and the imperfect details are no longer masked as I became allergic to make-up or unable to attend to the details of the perfectly plucked brow.  The latter used to be so relaxing to craft.

Instead I see the markings of days in the sun, storylines from broken nights of sleep, puffier cheeks for unknown reasons, shoulders elevated with enough muscle tension to throw out the shoulder pads in that dated blazer, and a jaw set in a pattern marked more by pain or grief than joy.

mirror quote

 

 

 

 

But wait.  There is something more!  Will you look at her eyes?  When she will dare to look with more than a fleeting glance I can see deeply into her soul like never before.  There’s a softening, a knowing, a sincerity, a connection, a spirit-filled peace, a sense that the stuff of this world is just not that important anymore, a different brand of confidence.  She might be o.k. just the way she is, no?  Her eyes say so perhaps . . .

So funny, isn’t it how the role of the bathroom or pocket mirror can change over the course of our lives?  As a teenager we strive to keep every bit of bang, drape of the shirttail, sparkle of the lip gloss and more just right.  After all that dashing blond-haired dreamboat may just look our way today so we must be ready!  The preoccupation continues until we actually land with that special someone at the Lord’s altar of grace and happiness; we may keep up appearances for a time then our image may fade as family priorities, career shifts, and the care of aging parents come crashing in.  There simply are not enough hours in the day to have a perfect manicure all the time anymore! 

I find myself in a curious variation of all of these themes.  Many times I have hated the change in my appearance with the onset of a serious illness.  Most of the time I was at a complete loss to do anything about it and had to nearly crawl out of the house with wet hair and no make-up.  I was grateful simply to be upright and moving!  By the time I became better at managing the symptoms of illness, the routines of daily grooming had already eroded.  It was just easier to go al naturale and spend the precious moments in which I was able to function on more important tasks.  Comfortable shoes became the norm every day even when I had acquired some cute low-heeled boots or slides.  The latter accentuate the calves don’t you know, in a lean, long leggy look anytime of year.  Nope:  that was generally off my radar until very recently.

Was it the discovery of a mineral-based make-up line that peaked my interest in stepping things up in my primping department?  Was it the opportunity to go out a little more that prompted me to look good for my hubby-boo?  I’m thinking that it is just plain fun to dress up again, allowing the inner peace to percolate out into the mainstream here and there a bit.  And if I do or if I don’t, it doesn’t matter as much anymore.  THAT IS VERY FREEING INDEED! 

After all, the woman in my mirror has grown into more self-acceptance than ever before.  Psalm 139 means a lot to me even in the face of serious illness when I know that this is how my Lord crafted me and is the place from which He will call me into His presence someday.  One day all this will be perfect so why sweat the small stuff now?  Taking care of myself and my appearance also reflects well on my husband according to the Proverbs 31 lady.  She wears purple!  The woman in the mirror is to be a solo consideration, not comparing the reflection to any magazine cover or member of the sisterhood.   Instead of comparing ourselves to others, we are to humble ourselves before our brethren (Phil 2:3-4).  That will keep our hearts pure and beautiful no doubt.  Further we are to carry into the world our own treasure chest of talents and giftings (Galatians 6:4-5) then boast only in the One who made us this way (1 Cor 1:30-31) all for His glory not ours.  Wow:  delighting in His creation (me) which is a testimony to His own reflection and the work of the Holy Spirit living in each of us who know Him as Lord and Savior.  Oh how I long to see the face of my Jesus someday!

When a sweet gal recently complimented what I thought was my very plain appearance, I realized that the most important accessories I need to wear are a smile on my face and joy in my heart.  The rest of my self image must transcend the beauty aisles at Macy’s.  So I say now that my inability to keep up with appearances as in the past has actually moved me away from the glassy mirrors!  These days I’d rather see myself in the eyes of a friend sitting across the coffee table than from any other place.  Perhaps the Psalmist King Lemuel said it best from the wisdom of his mother:

Charm is deceptive, and beauty is fleeting;
    but a woman who fears the Lord is to be praised.  (Proverbs 31:30)

Oh how I do pray that what you see here from me, Gentle Reader, is Him and not me.  I would have never made it this far in my life without Him:  that is for sure.  The mirror would have shattered years ago with the crumbling of my own strength, my own inability to keep up with much of anything at all.  May you always see Him in the people places and things around you.  May you come to know the Lord, Jesus Christ of your life as you gaze into your own beautiful reflection too.  It’s just how it’s meant to be my friend.  JJ

Fall reflection