After another dead end in the road

So many times I have chosen the road less travelled.

  • Finally detaching myself from toxic, addicted friends and family members beyond the proverbial geographical cure that didn’t work.
  • Working hard in Al Anon Adult Children of Alcoholics as I discovered the extent to which abuse, dysfunction, relying on survival skills alone, and the absence of a Christ-centered view of the world made my world smaller and darker than it needed to be.
  • Accepting Jesus Christ as my Lord and Savior.
  • Pursuing my goals of higher education degrees in a family where at the time, only one blood relative had done so.
  • Starting and operating a home business several times despite not having all of the strengths needed for success.
  • Divorcing the man instrumental to my coming to faith in Christ when he would not return to our marriage nor his faith of sorts.
  • Embracing the Lord’s restoration of my life after much tragedy: a life total makeover of sorts.
  • Moving out of State to marry my Intended Beloved and start a new life in which I knew no one else but Steve.
  • Finding things that I could learn and still do despite a serious decline of my health and loss of my profession.
  • Never losing hope in the Lord or that better days lain ahead somewhere despite wretched convulsive episodes virtually every day for ten years.

Tough stuff, eh? Thank you Lord for your mercy and grace through it all! Tonight I’m not sure what to make of things when I find myself at the end of another road, another lifeline of a rope that has given me so much. After 3 1/2 years, I have decided to step down from my role as Editor of the monthly newsletter for the Extension Master Gardeners in our county. My 42 newsletters have been a labor of love for me: challenging my creativity, communication, and computer skills as applied to my favorite topic of gardening. I need to open up some time and energy to find new solutions to boost my health. Working on a newsletter in the middle of the night (because that is most often the time I am stable enough to do so) then being trashed all day the next day, then repeating this pattern a few times per month is just too much. It has become a dysfunctional pattern of living just to earn 15 volunteer hours every month. Regardless, I am sad to let it go. I need to let it go. I need to let it go not knowing to where the Lord will lead me from here. I will miss being “in the know” about our local volunteer gardening activities, upcoming events, and exciting developments on the horizon. Gee, I did ask myself about taking the next step towards becoming a board member and advance within the organization: a logical next step. Supervise the new Editor in addition to two other communications coordinators? No, came the answer to my prayer. Not this time or in this way. Sigh, I just wanted to figure out my next steps ahead of time. That’s not the type of road I am travelling on right now. The GPS is stopping right here. I have arrived at a blank screen. But why not?

Geez oh man. Talk about what is looking like another endless path with no answers. Let’s add a few more.

  • Why haven’t the thousands of hours of medical care, excess of a hundred thousand dollars of expenses, many hundreds of hours of research, and prayers of the faithful including my own yielded more fruit so to speak? We don’t know. No one knows.
  • Why did my Mother die right before I met my Intended Beloved? She never got to meet him. She would have loved him dearly.
  • Why did my former supervisor’s house burn to the ground the day before she intended to cancel my trip to see my estranged father right before he died? I didn’t know he was dying and had not seen him in 30 years. Turns out that I got to see him and she didn’t return to work until months later.
  • Why did my Grandmother die the day after I discovered my former husband’s affair? I couldn’t get out of bed to go to work, so overcome with grief.
  • Why have I survived all of the members of my immediate family with no one to carry on the family name? This leaves me feeling pretty empty at the holidays or special occasions.
  • Why did I get to marry the man of my dreams only to not be able to fly with him when he lifts off to so many cool places?

Just because, Gentle Julie. This isn’t heaven. You live in a fallen world marked by sin and evil with only glimmers of my majesty and goodness sprinkled amidst the darkness. Even so, I am God. I am doing a different kind of work in your heart, in your life with a different kind of reward for your faithfulness to follow me instead of the way of the world. I know all of your story. I know all of your sorrows, including ones that only I can see. I know because I am there loving you and seeing you through it all. Thank you for letting me in . . . could you do so even more? I grieve and suffer with you in ways that you can only imagine from what you can see, from my Word. Meet me there. I promise you that the strife, the unrelenting striving that leads to seemingly dead ends will be redeemed when I come again in glory. Lay your cares at the foot of my cross. I will hold them tenderly with your tears. Trust me. I will never leave you or forsake you.

So this blog is a bit of a downer tonight but it doesn’t end there. I write the truth as I know it and about the truth that sets me free. Me and you too, Gentle Reader. Do you know many sorrows too? Weep with me. Weep for your losses, your hurts, your unanswered prayers. Then take each one and place it beneath the cross of our Lord, Jesus Christ right next to mine. He will take them for us from here. It doesn’t matter that we don’t know where the path we are on is leading us when we are living unto the Lord and following Him. What matters is the trail we are leaving behind. JJ

It’s not the same thing

In all this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. These have come so that the proven genuineness of your faith—of greater worth than gold, which perishes even though refined by fire—may result in praise, glory and honor when Jesus Christ is revealed. 1 Peter 1:6-7

When someone doubts your story, especially one that is partially revealed to you years after it has occurred, you might be tempted to defend that it is true, that it is real. Know that their denial is about them not you. The truth is the truth and if it was not so, you would not grieve so badly when it comes forth. It would not have affected you so. You don’t continue to have flashbacks or grieve for years a nightmare from a bad night of sleep. At least in your right mind you don’t. (An exception might be the delusional thinking of mental illness. Most of us do not make crazy claims indiscriminately, however.) It’s not the same thing as a random even fearful thought verses the triggering a memory of an actual, horrific event that happened to a long time ago.

Then when your truth and the grieving that follows in dealing with it has found both the light of day and the Lord’s healing grace, the transformation of your character or mind or spirit should be enough to prove that what happened was real. You can’t fake a flashback. You can’t fake character flaws or insecurities that right themselves when you heal from the trauma. The truth revealed, processed, and lain before the throne of grace transforms us. It doesn’t matter that the story is too fantastic to believe. It doesn’t matter whether or not there is corroborating evidence (yet we can rejoice if there is proof or witnesses willing to back your story). It doesn’t matter how old you were at the time of the incident or if you told anyone then or now. Sometimes the mind has to push away the horror to survive aka repression. It’s a survival mechanism, a coping strategy of the mind. Then there are the body memories, stored in the tissues that come forth when you have an injury. Or a seizure. If your mind did not repress the trauma for you, the pain of the event often plunges a person into addictive behaviors (i.e. alcoholism, drug abuse, pornography, sexual promiscuity, compulsive behavior, workaholism), suicide, homicide, or mental illness just to survive. I know. Everyone in my immediate family has battled one of these. Our life stories were just that bad.

I am the only one left in my immediate family. There is no one remaining to corroborate the facts of my story as extended family who might know something are not willing to talk to me about what they know. I have asked more than once. My brother Mike did help fill in some details for me but he is now deceased. He had his own horrors to endure. Extended family members have their own baggage that they have dealt with in various ways. Thankfully they just didn’t have it as bad as me and my two brothers did . . . no wonder we were largely outcast (or looked down upon) from them and neighbors too.

Funny thing about memory as it is not perfect nor is it like watching a movie where you know the plot and see the beginning and the end. When the Lord reveals bits and pieces over decades of time, it is up to you to reconcile the information. Therein lies a particular danger as the mind wants to fill in the blanks for the scenes to make sense but we must resist trying to do so. Similarly, when therapists ask probing questions we must guard against confabulation, false memory syndrome, and other pitfalls in trying to make sense of a seemingly too-hard-to-believe flash-backed piece of our story. Why did a particular image present itself in my “mind’s eye” with the sound of a helicopter flying overhead in bed one night? Why did I cry for so long thereafter? For the believer in Jesus Christ, the Holy Spirit will show you what you need to know, hold you as you come to grips with what really happened, lead you to a place of acceptance and healing, and transform it all for His glory.

The flashbacks for me have always come forth with emotion so intense that I believed that I would die if I felt it fully let alone say it out loud. The fear on the front side of the wall of truth was stifling, immobilizing. I believe for me, this is why the pieces of my personal history have come forth in such small bits, spread out over THIRTY YEARS. It’s also why I don’t remember much of my childhood. The first memory of sexual abuse came back in my late twenties as I was preparing to get married. Sometimes a flashback was a moment of intense emotion that I would discover matched a specific location or incident; other times the emotion showed me the origin of a ritualistic behavior of mine, particularly with nighttime routines, that I would come to know as abnormal. The realization equipped me to let it go. It has taken decades of working with skilled Christian counselors, retreats, Bible study, prayer, research, journaling, processing memory triggers that happened spontaneously by the events of life, and more that the Lord has allowed me to remember more of my childhood. With the bad stuff also came memories of the good times that I had forgotten. So it’s not all bad. Reclaiming one’s past is good!

The worst incident has taken the longest to piece together. Here’s what I know.

My parents were divorced when I was twelve years old. Visitations to see my Dad involved him taking one of us three kids at a time as Mom said he could not handle more than one of us at a time. He often didn’t show up on one of these Saturdays to pick one of us up for the day; this happened more with my brother Mike than with me or Rob. So sad. The visitations were strange. I recall my Dad taking me on my day to a movie theater, buying me lots of popcorn and candy, then trying to sit me down by myself in the dark theater while he went off to sit with a woman in another row. Somehow I had the nerve to say “but I want to sit with you.” The next thing that I remember is the 3 of us sitting together and me feeling sick from eating all that crap . . . or maybe it was from the realization that he was there to see her and not me? I could tell a half-dozen stories like this one.

Rarely did we visit our Dad at his house in Roseville, Michigan. We lived in Warren and I figured it was too far away to visit very often. Years later, Mike told me that my Dad had a wall made out of wine bottles in his house; I don’t recall seeing it. I do recall seeing a German shepherd dog in his backyard one day when my Mom drove us over there, I think to get our car repaired. His home was on a corner lot with a chain-linked fence that came around the side of the house and side of the garage that faced the other street, perpendicular to the house. People entered the home from the side door. I was probably 12 years old so who knows what I would have focused on at that time. I just wanted to see my Dad! He had left town a couple of times (for California and to Florida) and now he was back. Too bad that his return had nothing to do with us kids though.

In my thirties, my Dad’s youngest brother and his wife gave me a photograph of my father as a boy. By this time I had learned of the horrific abuse that my Dad had endured as a child: my grandmother destroying his model airplanes, the daily verbal abuse, beatings, the physical torture of being locked in closets or having to sit up at the kitchen table ALL NIGHT LONG because he didn’t eat his dinner then suffering a head injury when he fell asleep and out of his chair. I was just starting to recover some of what had happened to me has a child from my mother’s father’s sexual abuse, a neighborhood boy’s sexual abuse, my mother’s physical and emotional abuse, and what I would come to understand as ritual abuse from my father. That photo was probably the best gift I could have ever received from my dysfunctional family! I was able to step outside of myself and grieve for my Dad. He was robbed of his own childhood, so badly that he would go on to develop a serious mental illness that would plague him his entire life. I believe that head injury contributed to him developing Parkinson’s disease later in life. I cried and cried for what my Dad had endured as a boy and how he surely must have struggled to try to function as an adult let alone as a husband and father. I started to understand why he ultimately had to separate from our family through divorce then finally disappear for TWENTY-SEVEN YEARS! And why he sent my grandmother hate letters for about a decade. He was so very messed up. In due time I forgave him for everything I have written about here and elsewhere.

How amazing that the Lord will give me this insight before I would come to fully understand what happened to me that fateful day at my Dad’s house in Roseville. The memory fragments gathered over time still don’t fit together well. It’s like a jigsaw puzzle with edges singed by fire, warped by water damage, and with dozens missing but then again you don’t know how many pieces there are in total. You can only hope to understand the little chunks that you can see when you do not have the picture on the cover of the puzzle box. The ones I see now are very, very clear.

My Dad told me not to go in the basement but somehow I wandered down there anyways. There was a dead German shepherd dog in a large tray on a table, dead. The basement was dingy and dark with electrical cords hanging from the ceiling. The table with the dog was over by a utility sink and washer and dryer; some kitcheny-type items were strewn about along with a lot of blood. The nipples (as in a pregnant dog) were cut off of the dog. The wounds were red with dried blood. I don’t remember anything else other than the sense that my Dad had scolded me for being down there. I know it took a long time for me to be able to get back up the stairs under my own power for lack of strength.

The next thing I remember is lying on a couch upholstered in some kind of plaid pattern. There were no pillows or cushions upon which to lie my head. I was sickly. I desperately needed to rest.

I discovered about that time that there were other people in the house, in a bedroom a the back of the house. It was a small ranch home so it couldn’t have been very far away but it seemed very far to me at the time. My next memory is inside that back bedroom. There were naked people writhing around on a double bed. In those days no one had a queen or king-sized bed as they were either too expensive or the bedrooms were just too small. Two women grabbed me, one on either side of me, to restrain me. Years of tiny memories of this scene, recalled with horror and emotion so raw that I thought I would not survive the telling or finally feeling them, knew that they violated me sexually. I physically remember the touch. My shoulders have funny pinch marks where the posterior deltoid muscles should be and I wonder if it was from their firm grip on me at a time when my body was growing from childhood into a teenager? Seems to me that someone on the bed took notice of what was going on. Seems to me that I may have recognized at least one of the people on the bed but I cannot be sure. That person denies any activities akin to an orgy but does admit that my Dad had seances with groups of people around his coffee table in the front room some nights at his house. (The coffee table in front of the couch where I was lying earlier.) Years later I and expert would hypothesize that my Dad was experimenting with the occult and psycho-cybernetics to try and control his mental illness. What a sick, twisted mess.

My Dad came into the room and ripped me from the grips of the two women. There was some kind of paraphernalia on the dresser that was strange to me that I would later hypothesize was for taking drugs. He broke the neck of the first woman he grabbed and put her out on the front porch, out the front door just beyond the couch. The house cleared out although I do not remember the people actually leaving. I was back on the couch as nightfall set in. I don’t remember falling asleep, eating anything, going to the bathroom, or my Dad talking to me. She was still out there on the porch. It’s all a horrifically terrifying blur . . .

It was daylight when my Dad put me in the backseat of my Mom’s car. The vehicle was an older tan sedan with red seats that used to belong to my grandfather; how fitting for it to have red seats! My Dad scolded me firmly to crouch down in the backseat and not come out. I remember the wide floor area and bench seat of the backseat. He must have plopped the woman’s body into the front passenger seat before we took off down the road as I knew that she was there with us. Somehow I gathered that we drove north since you have to drive north to quickly get from the crowded suburbs of Detroit to the country. But I didn’t drive at the time so I don’t really know which way we went. The towns of Flint and Pontiac stick in my mind and I’m not sure why.

He pulled over at one of those pull-off areas along the side of the highway. It wasn’t a freeway like I-94 or I-75 and there wasn’t much traffic driving by. When I heard the front passenger side door open and the sound of my Dad pulling her out of the car, I figured I could pop up and look out without being seen. I saw him struggle then drop her floppy body over the guard rail to what looked like a drop-off down below the level of the road. There aren’t any mountains per se in Michigan so I have no idea how this worked out or where it happened that there would be such a cliff. (About 20 years later I looked at maps of areas north of Detroit to see if I recognized any names of streets or topography that might help me identify the area. I even called the State police and talked to a sergeant who would have been working in the approximate area about 20 years prior to my call. When the internet became available, I searched the archives of several newspapers for stories of bodies recovered in that area and even the name of an Uncle’s old girlfriend who I thought might know something. Nothing panned out.)

My Dad was working on my Mom’s car that week or weekend which is why he was driving her car. The next thing I remember is being home with the car and my Mom asking me how my visit went. I wasn’t able to say anything. My Mom and I weren’t exactly on friendly terms in those years so she asked nothing further. The horror was locked up inside of me and remained there for many, many years.

Even with all of the holes in the recounting of these crimes, abuse, satanism, evil, wretchedness, there is more confirmation for me that it is all very real. My Dad did things to try to get me to forget what had happened. We still had a pool in our backyard for a couple of years after my parents divorced. One afternoon when no one else was around, he took me onto the pool deck to inspect the liner. I vividly recall the blue shade and pattern of the liner above the water line and below the metal cap (that we would jump off of into the water). The deck was cedar and stained a medium brown color. My Dad had built the largest deck around, complete with a flip-up staircase that we could lock in an upright position to keep kids out in between pool parties.

I recall my Dad pushing my head up and down into the water repeatedly, over the edge of the deck with my body splayed out, face-down on the surface of the deck, as if to try and drown me! I don’t know what he was saying or if he said anything at all. I feared for my life, gasped for air. It was way worse than my brother Mike trying to hold me underwater when we would play “hold your breath the longest” games in the pool. He was a mean kid back in those days. The truth of what my Dad did came out through the course of most of my adult life treating headaches and neck issues. I have a flattening in the curvature of my cervical spine. I often wonder if it was from the physical trauma committed that day? Anyways, seems to me that he was trying to cover one trauma with another. I believe that his action was a twisted interpretation of the psychological experimentation of the 60’s and 70’s. He tried another version of messaging with my brother Mike via brainwashing him with a recorded message he had him listen to before going to sleep. I still remember the “pillow speaker” and cord that went from the speaker to the tape recorder in the basement. The effect on Mike was opposite of what was intended, damaging his self esteem for much of his adult life.

The strongest evidence that supports my Dad’s effort to try to get me to forget something bad that had happened is reflected in the scars on the inner surface of both of my elbows. My Mom had taken me to the Doctor for something and through the course of the exam, the Doctor asked about the circle of blisters on each of my inner elbows. He asked if I had been shooting up drugs with a needle? Injecting myself with something? He asked over and over again. The blisters were fluid-filled bumps about 1/8-inch in diameter and tall. I remember touching them and the fluid moving beneath my fingers. I had no idea how they got there. At first they were on one arm then they were on both arms, same patterning but maybe it was the right arm had more bubbles than the left arm? I was tempted to burst them but something inside me decided that was not a good idea. Eventually the blisters deflated, the skin dried up, and the crusted tissue healed. The scar of pock-marks inside each forearm remained visible on my skin for decades.

In my late forties, I started working with a counselor who specialized in ritual abuse. When we talked through the story that I have recounted here and the blisters, he suggested that my Dad had injected me with a psychodelic drug in an effort to get me to forget the trauma that had happened. In my Dad’s sick thinking, if I forgot then I would not be affected by what happened (and perhaps no crime was committed). In an exceedingly deranged way, my Dad was trying to help but he did so by inflicting more abuse. This is a form of ritual abuse: using a ritualistic behavior for the purpose of controlling another person. There are other examples of rituals to which he exposed me and my brothers to through the course of his mental illness that I may discuss at another time. What is important here is that there remains to this day, although faded from the atrophy of my skin that normally occurs with aging, a physical reminder that something was done to me decades ago that should never have happened. About 2 weeks ago I felt the Lord lead me to apply a frequency-generating treatment device to my inner arms to see what would happen. Spontaneous tears followed that I could not stop if I tried. Holy cow. This is what they call tissue memory, body memory. And now at last, that tissue is free from whatever happened, the effects of shooting up some drug into each of my arms.

In all this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. These have come so that the proven genuineness of your faith—of greater worth than gold, which perishes even though refined by fire—may result in praise, glory and honor when Jesus Christ is revealed. 1 Peter 1:6-7

It’s not the same thing to make up a story for personal gain versus sharing a part of your history for no personal gain. It’s not the same thing to try to piece together wacky thoughts in your head versus processing emotionally laden images that come to mind when you know they are parts of events that really happened and do not conflict with what you already know, history, physical evidence, and what people have been willing to share with you. It’s not the same thing to pray for a seizure to end versus the electrical/chemical rush associated with a seizure masking-and-triggering memory of an incident long buried in the tissues of your brain, ready to finally come out. It’s not the same thing for a (dangerous) counselor to use hypnosis to “recover lost memories” versus the The Holy Spirit strengthening the faith of the born-again believer to receive truth in more forms than you ever imagined at just the right time in your life, thus changing you for the good, forever. It’s not the same thing to tell a sad, scary story for pity versus championing the work of the Lord in the life of His daughter whose faith has helped her overcome evil in the hopes of shining a light on the mighty power of our Savior, Jesus Christ.

Our Lord overcomes the worst, the darkest, the most sinister evil you could ever imagine or have ever endured. This is not only true for me, for my story. This is an important truth for such a time as this. Our sovereign Lord reigns now and will reign forevermore. He is here for me and for you, will sustain you no matter what may come or has gone before us. Believe it Gentle Reader! I do! JJ

What forgiveness looks like: the Lord restored “the years the locusts had eaten”
just before my father passed away in 2011.

Too many directions are no matter to Him

When the movement forward becomes murky from the treatment that sent me sideways

When the latest result became a scare not for cancer but still not not quell my burning question

When the past perks up and says hello, by the way, can you spend some time over here with me?

When the fog settles all around you, nightmares rob your rest, and things look worse but they really are not

You run to Jesus my friend.

Where did the money go when a gift seemed like it would settle all accounts again and again?

Where do you turn for comfort when isolation has become your friend and this is your normal normal?

Where do the roads lead that seem to have no arrival of merit in space, of substance, in meaning?

Where does the time go when it is no longer measured by the hour but the task of survival sun up to sundown?

It all goes to Jesus my friend.

Why do prayers seem to go no where when surrendered by obedience yet are tethered with strands of the unseen?

Why must suffering continue ad nauseum, day without end, manifesting in new ways over and over again?

Why didn’t I have a happy childhood such that my years reinforced it rather than set the little one inside free?

Why does the Lord delay in making it right for those who groan worse than I ever will?

Because He is Lord my friend.

What a day it will be when we know the answers we seek, when the glory is replete for all to see

What a treasure we will behold when the whys matter less where we put them and there’s perfect peace

What am I doing pining for that day to come if I can choose to dwell in His goodness now?

What witness will I leave until my own days have their end, my talents can no longer shine?

For He’s beyond what you see my friend.

It’s just me, It’s just You

It’s just me Lord

Laying my burden at your feet of glory.

Tempted to pick it up again

To etch out stains left on my life, on my story.

Alas Your Word doth profess

You have it already in your plan:

The end, the redemption

The entire beginning from the end.

For the race is so hard

I admit day after day

When the lows speak loudest

And overshadow the sunnier ways.

It’s not as bad

I do proclaim overall

At least I can rest

And in the quiet, hear Your call.

What a gift to behold

Your goodness in so many forms

Let it not shadow under

These deviations from the norm.

For You know the score

The rise and fall of my failings, my pain

Holding my tears

Allowing me to rise out of bed once and again.

It’s just me in humanity

My weakness, shame, failings, doubt

Oh could You just take

My thorn, soon and forever pull it out?

Seems so simple

Yet I cry and too easily give in to worry

Will have to be You my Lord

Leading us onward, yes for Your glory.

Dealing with the trauma of illness

Not that I have a total handle on this topic or anything but hey, I have learned a few things worth sharing . . .

Every day for over 5 years I have suffered waking seizure attack episodes of varying duration and intensity.  For over a year (ending last year) they averaged 2 to 5 hours per day!  At least once per month they would spike up to 12 hours on and off in a single day, sometimes requiring an Emergency Room intervention.  I have been to 3 different emergency rooms a total of FIFTEEN TIMES including once by ambulance.  After nearly a year of IV antibiotics for chronic Lyme disease these episodes are generally less than an hour per day now with some positive changes in triggers and patterning.  Significant testing and other treatments, research, and patient “networking” remain my primary occupation.  I am grateful for the improvements that have come including overall less pain from the repeated physical trauma of “head-banging” and wretched writhing movements (thanks to  periodic intervals of physical therapy and periodic chiropractic adjustments).

The journey is hell at times.  At my worst times I have questioned if I could endure this level of suffering one more moment.  My breathing has stopped numerous times and there has been one significant near-death experience with visions of “white lights.”  I have had to pray many times for the Lord to give me the strength to get to the bathroom when alone during hours of convulsive episodes.  Every type of healthcare provider I have ever seen and most close friends and family has witnessed them.  My husband is a saint, having cared for me often late into the night then getting up and going to work the next day.   A total of probably a hundred times he has had to carry me across our home when I could not walk, feed me, take me to the bathroom, assist me with bathing, take me to the emergency room, run urgent errands, and the like as my primary caregiver.  Probably a thousand times he has volunteered to bring me some type of “rescue remedy” to attempt to get the seizures to stop (generally at night or upon waking in the morning).  He never complains.  He is my hero for sure.

In other blogs you will read about all the avenues we have pursued to try and get me well:  chronic Lyme disease, heavy metal detox, mold remediation, obscure infections, dietary restrictions, neurology workups, dental issues, nutritional deficiencies, epigenetic testing and coaching, electrosmog, gut issues, yada, yada, yada.  I spend hours per week researching, managing my healthcare, dealing with extreme mold avoidance and other preventative strategies, and accessing my support system online or by phone.  Church worship is also online to minimize triggers from environmental stimuli, however this strategy also increases my social isolation.  Trips away from home are generally focused on essentials during my best times of day and occasionally with transportation help from a couple of sweet gals from church.  I wear a mask in their cars and sit on a towel covering the passenger seat but we find a way to connect anyways during those trips when help is needed about once per month.

As you can see, there is much abby-normal stuff during my days.  Social isolation and the ongoing seizure attacks are my biggest heartaches.  The latter causes both physical and emotional trauma when they are severe which still happens two of the seven days per week still marked by ongoing episodes.  The two this week included:  1) a violent reaction to an ingredient in an new injected medication that I need to treat osteoporosis and 2) a new strategy to treat severe Small Intestinal Bacterial Overgrowth.  Both of these conditions very likely are complications of ongoing illness as they were not present before I got sick on October 11, 2011.  Each new diagnosis will bring its own special kind of discouragement if I don’t keep my worries in check with my hopes placed in the redemption promised with belief in Jesus Christ.  Already I mentioned a few of the strategies I use for managing the social isolation.  What about the trauma?

I manage the trauma of severe, ongoing illness by trusting in my Lord and Savior, Jesus Christ.  This used to mean that I trusted in the promise of Jeremiah 29:11:

11 For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.  (NIV)

Surely if there is a purpose for all of this suffering then it won’t be wasted.  It becomes part of a greater plan, encouraging me enough to endure even the worst of the pain and anguish I am enduring.  This viewpoint has helped me cope during the first 5 1/2 years of this illness.  It carried me through the decisions to spend the rest of some savings with the hope of a cure and to endure the side effects of such treatments.  I can look back and point to the skills and information that I have learned, write about them here, take to heart the remarks of others encouraged by my stories, and note the Divine sequencing of many things that have happened along the way.  The Lord has provided so much for my care that gratitude has replaced temporary doubts, frustration, discouragement, intractable pain, and so on.  Seeing some meaning in what I am going through or shortly thereafter, gave both me and Steve enough hope to keep moving forward no matter what the “cost” may be.  But what about when the process stopped?  The money ran out.  I am not recovered.  There was no where else to go this past Winter when I got to the bitter end of my proverbial rope with worse symptoms than I could ever imagine!  Yeah, that was the onset of facial shingles in December.  More hell and a hospitalization too.

That’s when I needed to learn to trust whether there would be a purpose I could see or if there would be no purpose or direction at all.  I discovered that complete trust in our Heavenly Father builds faith and the strength to carry each of us through ANYTHING and EVERYTHING.  It’s a supernatural gift bestowed upon believers in God Almighty who trust Him.  For those of us chosen to travel a path of excruciating suffering, we must find our way to this level of trust in the Lord our God.  Our faith will grow as a result and both will carry us through the dark times no matter how dark they become.  Did I tell you that frightful demonic attacks have come during the worst of the waking seizures?  Yes.  It’s more terrifying than I can describe but may try to do so another time.   At those times only the spiritual armor of God (see Ephesians 6:10-18) and this reassurance spoken by the apostle Paul will quiet my spirit.  God is greater than any threat in this world, in my world, period.

2 Timothy 1:7  (NKJV)

For God has not given us a spirit of fear, but of power and of love and of a sound mind.

Because what is my worst fear anyways?  Dying?  For me it is probably not dying but suffering even more with dying as the end result.  So finding peace when dealing with the trauma of physical and mental suffering must be accompanied by the reminders of Who overcame death, in Whom have I placed my trust, and in Whom will I find victory over my fears.  To extinguish the fearful thoughts I must again turn to the “sword of the Spirit” as described in Ephesians 6:17 as the word of God.  In the Book of John we find Jesus comforting a grieving friend when:

John 11:25-26 (NIV)

25 Jesus said to her, “I am the resurrection and the life. The one who believes in me will live, even though they die; 26 and whoever lives by believing in me will never die. Do you believe this?”

Not only did Jesus overcome the grave when He rose from the dead on Resurrection Sunday (Easter), He gave those who believe in Him the promise of a glorious eternal life in His presence where there will be no more weeping, no more sorrows.  There will be rewards for the faithful too.  There will be perfect peace, love, and joy forever.

the cross

I may never see healing this side of heaven.  I may see healing this side of heaven.  I really have no idea which one it will be or when it will happen.  In the meantime I will simply trust in Jesus Christ who knows my name and sees my suffering (Psalm139) and ordains it somehow for good.  He will be here with me always.  I ain’t dead yet so I trust that He will add His grace and power to see me through to my last breath.  Until then Gentle Reader I ask you,

Do you believe this too?