What a date we had tonight.
Dinner: Parkview Hospital 24-hour grill.
Movie: HGTV on the ER Suite flat screen.
Drinks: Bottled beverages and 1114 cc fluids for me.
And a whole lot of shaking going on: 3 hours of seizure attacks, non-stop.
It’s as I have heard it said that life is either a daring adventure or nothing at all.
I am feeling much better now. I love IV fluids! (Weird, I know.)
We are sleepy!
Here’s a brief update on my brother, Michael, and me with a prayer request:
At this moment Mike is moving from an acute, inpatient rehabilitation facility to one of the lowest-rated nursing homes in the city of Detroit. The social workers claim that of the 35 facilities they have contacted, St. Francis is the only one who would accept him. The reason? He is “Medicaid Pending” and does not have any other insurance. We are sad and concerned.
Today Mike’s rehabilitation stops until Medicaid is approved. Today Mike learns how the indigent of our society are left behind in facilities located across the street from an abandoned buildings in scary neighborhoods. Today Mike decides whether or not he is a FIGHTER. I only got to talk to him briefly before the transport vehicle came to wheel him out of his private room and begin the next leg of his recovery journey. He has made tremendous gains in cognition, swallowing, self care, transferring from one seat to another, and even walking. Mike has had close monitoring of his medical condition, medications, and test results. The plan to address a complex cyst on a kidney remains unclear as he moves away from his rehabilitation and medical specialists. None of them go to the new facility. It is unlikely that he will receive any rehabilitation therapies from this point forward until his Medicaid is approved. We are sad and concerned.
We are hoping that this transfer is a move sideways and not the beginning of a downward slide. At this point I do not believe that he knows that he will be receiving fewer services. He is concerned about the facility location and the comfort level of his fiancé visiting him in an unsafe neighborhood. Gratefully our cousin, Lisa, is an optometrist who sees patients there every 6 weeks. She has known the staff there for 10 years. We are hoping that this helps place Mike in a favorable light. Lisa has also offered to accompany Mike’s fiancé, also named Lisa, on her first visit to the new place. I am exceedingly grateful for this. I wish I could be there too. I cannot go at this time.
I had my own questionable “move” this past weekend. Difficulty breathing and bizarre, violent seizure attack episodes landed me in the emergency room. I received “treatment” and returned home; the last three days have been marginal yet better in some ways. I saw my family practice physician yesterday and was able to put together a few plans to tighten up my treatment plan. Unfortunately I had to escape outside for fresh air THREE TIMES due to the mold aerosols in his water-damaged office building! Did I mention that I was already wearing a charcoal mask? Geez. I was re-reading the Clinical Summary this morning from my visit and collapsed at the kitchen table into a pile of seizure-like tics. Perhaps the aerosols followed me home on the porous copy paper? Who knows. My gracious husband has seen me through it all, threw out the papers this morning and opened the bay windows to help me revive. Thank you my beloved Steve!
Sometimes it looks like things are going downhill when actually we have just stepped a little to the side. Many hidden blessings have come from my brother’s stroke: developing a closer relationship with his fiancé, rekindling a friendship with my amazing cousin Lisa, and seeing a few family members step forth to love on my brother are wonderful. And in my own situation I now have a biotoxin illness doctor who is willing to go to bat for me when headed to the ER on a Sunday in addition to an incredible husband who is my kinsman redeemer. Steve is willing to love me, care for me, and defend my special needs when needed on my journey to wellness. He believes me that this crap-ola-ski is NOT all in my head and is helping me overcome it too. In both my brother’s and my own situation, I am seeing new expressions of love that have not been there in our lives before. Cool beans. Thank you Jesus!
Gentle Reader, would you kindly pray this scripture with me? I pray that we will lean on the Lord, trust in the Lord, and have courage to move forward when-and-as the Lord leads these next few weeks. I need to rest in the tender care of my Jesus and not get ahead of the work He is accomplishing in today. After all, I do not want to miss the richness of His tender care, His presence in each breathing moment. Such a joy it is to know that He is here carrying Mike this afternoon in that transport van. Such a joy it is to know that He is here too with me and you carrying our thoughts and prayers to our Heavenly Father for His wise care according to His Divine plan for our lives. Perhaps sideways is a good place to be right now.
Want some bulletproof coffee? Let’s go out on the patio and sit for awhile. The sun is shining this afternoon and the narcissus, tulips, hyacinths, and buttercups are blooming!
Focusing on breathing today. It’s all I can do. The stress level is high as Steve and I anticipate travelling out of State to see my brother tomorrow. Gratefully I report that it appears he is stabilizing after having had a severe stroke this past weekend. My own struggles with illness and daily seizure-like episodes continues. A new treatment for me didn’t pan out too well, increasing the severity of the post-treatment episode. Oh well. The Lord goes before me and all of us as we call upon His mighty name: Abba Father!
We got this. Philippians 4:13
I just found out that my brother (Mike) had a stroke and is hospitalized in Detroit, Michigan. I’m calling on you, Gentle Readers, to please pray for Mike, Mike’s fiancé (Lisa), her son (Alex), and my husband (Steve) and me as we face this situation.
Our grandparents, parents, and youngest brother (Robert) are now deceased. Mike had just started a promising new job and got back in touch with me as interest in our father’s business (Dyna-rewind) resurfaced after almost 50 years. My heart is heavy and sad as we all face the unknowns in the days to come. I pray that I will be well enough to travel to see everyone in the Detroit area before too long.
Thank you. More later. Just Julie
Therefore, send not to ask for whom the bell tolls, it tolls for thee. (John Donne, 1624. Meditation 17. Devotions upon urgent occasions.)
Such is the reflection of these famous words scripted by John Donne and later repeated by Ernest Hemmingway in one of his most famous works of literature. The intent of each author is to emphasize the interdependence of humanity; no man can truly live or function as an island. Whether we live or die, honor God or blaspheme His name, our actions at some point will touch the lives of others around us given time and opportunity.
Case in point: I’ll never forget that day in Dominicks, a grocery store in the west suburbs of Chicago, Illinois. It was my day off from work and I was picking up a few groceries before heading home. I’m not sure why I was dressed up while running a few errands . . . I do recall wearing my nice and warm, long wool coat to fend off the early Spring chill still lingering outside. Suddenly at the end of the aisle was my good friend’s dad! He said a cherry “hello” and explained that he was in town visiting for some family occasion. Mr. Y. always had a gracious way about him: asking permission to tell you another story or joke before parting ways. He laughed about me humoring an older person by talking with him or something like that then shared a quick note to give his regards to my husband. I looked him straight in the eye. He had no idea.
Immediately Mr. Y knew something was wrong. I walked closer to him, recognizing that I was about to open my heart in the middle of a grocery store aisle! My former spouse was discovered in an affair less than 3 weeks before. Intervention from our church had begun and my life was in turmoil as my heart was still reeling in crisis mode. It didn’t help that my grandmother had also died and I was in the middle of facilitating the refinancing of our home (not knowing if I would be living there in the future or not). All of that stuff was about me and my drama. What I did not expect was the look on Mr. Y’s face when I told him my story. Do you know that look in the movies when someone has just been punched in the stomach so hard the person could not breathe? The smile on his face turned to anguish. He could not speak.
Mr. Y’s reaction showed me the reality of love between the body of believers or those who call Jesus Christ Lord and Savior. We bear one another’s burdens (Galatians 6:2). We know what it means from a human level, a heart level, and a violation of God’s plan for us when a brother in Christ falls. Craig probably never realized that his actions affected so many people and perhaps did not care. This was astounding to me. He was a leader in our Bible church and a gifted Sunday school teacher. Craig excelled in his work in the mental health field, loved working out, and was quite good at photography. He loved a good philosophical discussion and we had many. It is a matter of history that my coming to faith in Christ was facilitated by these very sessions: Craig helped answer many of my questions and led us to both a seeker-friendly church then a smaller, more intimate body of believers. I got saved because I dated Craig. In that Bible church is where I had met Mr. Y and became good friends with his daughter, Deb. Friends like this are closer than my own family at times.
So where am I going with all of this? When I am home alone every day, not even leaving the house for days on end, of course it is easy to forget the love of dear friends and family in my life. Sure the pup looks up at me with soft brown eyes when I walk into the kitchen but it’s just not the same! My intended beloved, Steve, is away from home a lot and often into the early evening. Since I don’t feel well most of the time I just stay home if I don’t have an appointment or urgent need for food! This week was particularly dry in this regard. As it turns out, most of the week was devoted to adjusting to a new treatment we’re hoping will eliminate the daily seizure-like episodes. I slept or moped about most of the week anyways; I didn’t notice that I was by myself as the quiet was itself healing medicine. When I come out of this fog of late and I’m still isolated at home, I must remember that I am totally never alone.
Do you have this confidence Gentle Reader? We are connected by this blog. For that I am humbled and honored, that you have taken the time to step closer to me. We probably resonate some on the issues of life or you would not have chosen to stop by when so many other bloggers have their own yada yada yada to share. Our connection will be even more meaningful to me if I know that it goes beyond my stories and our simple humanity to the very essence of what gives meaning to life: a shared faith in God through His son, Jesus Christ. If you do not yet have the peace, love, and joy that comes from knowing the Lord intimately then I invite you to step before the throne of grace today. Ask Him to reveal Himself to you and seek Him with a sincere heart through the Bible, His words. When we repent and invite Jesus into our hearts we receive the indwelling of the Holy Spirit; we are never alone again. Please tell me what you find, k?
For those of you who share the love of Christ already: I look forward to meeting with you one day! Whether in this life or the next, we’re going to have a great time celebrating the glorious riches of a life surrendered to our King. Standing in the presence of the Lord will wash away our tears and troubles bringing joy beyond what we could ever see today. May the glimpses of His holiness and glory in the goodness that surrounds each of us sustain you, encourage you, and lift you up until we arrive in our eternal home. Therein the bell will toll with tales of triumph for all of us. Such a sweet sweet sound that will be!
Jesus is for the Wounded 
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