A rebirth of sorts

How do you keep the music playing in your life? The kind that gives meaning to the days, warmth to the nights, zest to ordinary moments, flow to the blood in your veins?

The answer will be as individual as us all. Your passions, my loves, their mission, his one thing, her “can’t live without” until life changes, that is. Then when we find something new or even reminiscent of what has gone before, we can get excited all over again. Life is just like that, eh?

I thought I knew what to do in relationships then realized that I have only known a part of what it was like. There’s always the other person’s perspective. Then there’s the erosion as memory fades or doubt enters in or something else altogether. Then one party moves away. It could be death. It could be a parting of ways. It could be the presence of someone new that pushes out the old or questions you, him, her. And if by chance the whole encounter or encounters or memory or memories become tainted by emotion then everything changes again. We may crumble into a pile of tears. We may strike up a rage within us, swearing to never live that way again. We may never want to love again for to do so would risk the pain of loss: too great a price to pay. Or so we say. Chances are good that we probably WILL love again. Or love something instead of a someone. To love is to be alive, really. And I submit to you that we must never ever give up.

I’m not sure why the relatively sudden passing of an Uncle is bringing up so many different thoughts and emotions. My Uncle Larry, my Mom’s brother in-law, was well loved by so many and is now gone. I was the first in my extended family of cousins to meet him as I was the oldest grandchild in both of my parent’s families. At age 5, I was the flower girl in the wedding of my Mom’s sister Shirley, to the man who would become my Uncle Larry. As the years went on I would have painful memories with him along with many good ones too. Swimming in his parent’s in-ground pool was simply the best. But most of the better memories have come in more recent years. I am older now. I can now say that I am glad I got to live all of these moments; I can see now that even the more painful ones were used by God to teach me things, toughen me, humble me, and bring me to the altar of forgiveness. Letting my Uncle Larry go means releasing everything from our relationship as family in addition to the varied emotions that pulled me around for too many years. The goodness in the mix is more important now and will be ones with which will go forward in my life. 

So I will focus on the goodness. I cannot say the same for my immediate family. My younger brother is now gone. My youngest and other brother is now gone. My Mother is now gone. My Father is now gone. Their stories with Larry are long gone with the passing of all of them. Although I have had many brushes with death myself, looks like I am living on to tell at least one of the stories here. And so I shall.

It was probably the mid 1970s. My Mom had picked up her pictures from the local drug store that developed them at a time when to do so would have been a great luxury for us. Polaroid photos along with the negatives came back in a divided envelope, printed with inserts naming all of the ways you could reprint your keepsakes for a fee. We never did. We just placed the 3″ x 5″ images in a shoe box for to put them in an album was too much work for a single Mom. Finding the old shoe boxes was like opening up a treasure chest in the bottom of our Mom’s closet, filled with memories of Christmas, birthdays, graduation parties, and more. The golden nugget for me was the collection from that Thanksgiving dinner at Grandpa and Grandma R’s house.

The house was so cloudy with cigarette smoke that family had to wash the walls once per year to remove the yellow streaks and stains that would build up on them. We never knew my Mom’s parents’ home any differently. My Mom smoked at home right at the kitchen table or when washing dishes at the sink. She placed an ashtray nearby with a third by the side of her bed. I don’t recall my Dad smoking but he would have been long gone somewhere else for decades after their divorce and before this: one of the last times we celebrated Thanksgiving at my Grandparents’ home. Glass or aluminum ashtrays graced my Grandparents’ black-and-white Formica table as well; a kind of family tradition of sorts. Sad, really. I retreated to the family room after all the dishes were done to get away from the fresh billows of smoke and noise. I don’t recall anyone else smoking, just my Grandparents and my Mom. With only so many places to go in that 3 bedroom ranch, there were still cousins and aunts and uncles everywhere. Eventually as our family grew, we would move our holiday dinners to My Uncle Larry and Aunt Shirley’s home for Thanksgiving; Christmas was always at our house.

My Uncle Larry must have either borrowed my Mom’s camera to take pictures or gave her that one photo of me some weeks later. I do recall him taking it. I didn’t want to look at him directly. Why would he be taking a picture just of me anyways with so many other kids around? I was wearing my brown corduroy blazer that I had made myself on my Mom’s Singer sewing machine. Sewing was the only way for me to get really nice clothing for special occasions. The rest usually came as hand-me-downs from Uncle Larry’s more affluent family. I guess they were just trying to help us out, my Mom being a divorced woman raising three kids on her own. No child support. At least from my Father, that is.

Friends had told me that I was pretty but I never had a boyfriend. Someone nominated me for homecoming queen and I declined to participate fully. My self-esteem had been destroyed by abusive events earlier in my childhood. Self-worth would come for me from what I could do, make, achieve, or accomplish so any recognition that I would accept would be the ones coming from those activities. This way of being actually became a type of addiction, becoming a “human doing” instead of a “human being” and yet it helped me survive the first three decades of my life. Then I found Jesus Christ and a measure of healing with a self worth that came from being a daughter of the King: my Heavenly Father and perfect source of love and acceptance, recognition and more. That is another story!

In the picture I had my hand over the right side of my face. Perhaps I was leaning on my cheek with my elbow on the arm of that recliner chair in which my Grandfather would take naps when we were little. The room was dimly lit as it was nighttime by the time we were done with dinner and dessert, dishes and too many bottles of Town Club pop. In that picture I saw for the first time in my life, a beautiful young woman. I had never seen her that way before. Evidently my Uncle Larry saw something too, worth capturing forever on film. I’m sure that I looked at the negative from which the photo was printed. Even from that strip of plastic, when held up to the light, I would be able to see myself for the first time from a perspective separate from my own inner struggles. Emotion had no say. There it was back-lit by the blue walls stained with time and their own stories. On Thanksgiving as a teenager, I was not lost but captured forever in a lovely pose amidst the mayhem of a simple family gathering. Gee, what if I had moved my hand, my Mother would ask. Knock it off Mom I would later reply silently. The composition was as it should be. And I was beautiful in it.

Thank you Uncle Larry for this memory that I will cherish forever. Almost 30 years later I found a love relationship that makes me feel like the day I saw the young woman in that photograph. You met my Steve a few times during fellowship with other family members and, I believe, have extended your approval of him, and of me both. You know that I have found my Intended Beloved at last. Steve is an engineer, a family man, car guy, and really smart, just like you were. Maybe you know that I have finally found a way to play the music intended for my life, with all of its passions that transcend the minutia of the days. He is the one, after my Lord and Savior Jesus Christ, who makes my heart sing!

Gentle Reader, my prayer for you is that you may re-capture a memory today in a beautiful way. And then run with it to your heart’s content! JJ

As long as you have a dog

Julie and Elle in our Nissan Frontier, summer of 2017 as we headed west. Destination: USCA Nationals in Dubuque, IA then Wyoming, Idaho, Utah, and Colorado.
Bella and Julie at our local dog park.

Life is good as long as you have a dog.

A pup brings a furry friend for virtually every moment of her life. She lives to be near you (albeit closer to her next meal, of course). I get that.

Their brown or darker eyes tell the stories of every moment you have spent together, then remember only the ones in which the day was grand. Because to them, they all are grand!

I’ve heard it said that the problem with having a dog is that they don’t live long enough. Oh so true I have come to understand this to be.

Before you know it she limps or lists through her day, still smiling deeply into your eyes as if everything is still going to be o.k. If only, my pet.

Elle dragged through her last moments of life, trying to tell me that she loved me more as I stroked her thick fuzzy coat. Are you sure?

I still miss her you know. She was my first dog and fulfillment of a lifelong desire to have a companion like her. Oh the places we have gone together!

My husband and I had our special ways of relating to our Elle; she responded in kind. I loved that.

Sitting on the floor in front of the sink each night, she knew to lie beside me for her goodnight snuggles, belly rubs, and treat. Yes, I do remember.

My worst memory was our last: her bony butt walking away like a lamb to the slaughter at Animal Control, the day that was to be her last. No fanfare there at the loading dock with a vet tech there more to do her duty than comfort our weeping hearts for our Elle, our Currrrrr.

We cried sitting there in the parking area, for as long as we needed. She was gone. There was just so much pain in saying goodbye after 13 years of living together, us three.

You loved us well and were such a good puppers, our friend. You gave the best kind of love: selfless and sweet. How could we go on without you? You were so more than just a dog.

Time went on and the hole in our hearts got less sore. We discovered that we just needed one more like you, oh canine gift from above, to fill our empty nest with more love.

It took a failed adoption (aka foster), checking dozens of pet rescues, the viewing of hundreds of profiles, and two near-misses to find the next member of our family. Her name is Isabella, whom we shall now call Bella, and she is beautiful.

A month has gone by and we are slowly becoming a new pack as puppy power gives way to awesome wonder. Who is this nearly 2 year old beast who runs like the wind and leaps like a deer?

I am looking forward to our adventures to come, even if it be just to the local dog park in our changing times where travel isn’t quite the same anymore.

Each day brings a new surprise with you tender beast: so strong, so fast, so smart, so loyal as we have discovered in such a short time together.

Bella Bean you rock! It’s time to go!

That’s all she needs to know . . . as we three are off and running once again!

JJ

I’m not going to lie

Just when you think you have figured something out, it’s really maddening to realize that there is more to know and you simply are clueless!

laxative, medical humor, gallows humor, Lyme disease, chronic lyme, catamenial seizures, non-epileptic seizures, coping with illness, chronic illness Hope Beyone

Hi, my name is Julie and I am the reluctant writer behind this blog after I got sick on October 11, 2011 and never recovered. I started my journey here online in August of 2012 after reading the blogs of 2 acquaintances. Journaling had been a life-long practice of mine, beginning with a diary that I wrote as a girl. The cover was shiny and flowery in white, pinks and reds. It had a little flap over the edge of the pages that I could lock with a tiny key. That still wasn’t enough to keep out my brother, Mike, to my horror! I don’t recall what I wrote but I do recall that he teased me mercilessly just the same. After that I got better at hiding my private things.

Flash forward many dozen years and the trend these days is to pour your heart out in a blog to the watchful eyes of the world. Just when you think that no one really cares about your stubbed toe or smashed fender, you realize that some stealth follower from another part of the world relates and responds to you in kind. I find it a kinda special occurrence and a reminder of our shared humanity. Still there are some topics better left untouched and facts left unsaid of course!

Be careful in sharing good news. If you are disabled, the government might use your day of reprieve as evidence against you that your life is restored when clearly it is not. That examiner probably won’t read the hundreds of other blog entries that describe some personal hell of one type or another. Like the convulsive episode I had this afternoon that yielded only after a prescription intervention, followed by a 5-hour nap. Or the second seizure attack a couple of hours later that yielded only after another type of remedy that actually worked this time. Thank the Lord that my beloved was home and willing to help me. I am grateful. And it all came just hours after helping our local Park while sitting here alone through the night to update their website: a good thingy!

If you happen to have dysfunctional family members or friends reading your blog then there might be entirely different consequences to complaining about blah, blah, blah over and over again. To this person I say well then don’t read my blog or (limited) Facebook posts honey! How about minding your own business a little more? Isn’t keeping a positive attitude, getting up in the morning, saving enough money in the bank for emergencies, and the like hard enough to manage these days than to meddle in someone else’s daily drama too? Do you really think I would fake this hell for self aggrandizement? I am not that kind of a sick puppy lady! You’ve got it all backwards. I’d rather remain anonymous or conversely, receive recognition for an admirable accomplishment. Like raising a rank as a Master Gardener largely from publishing our county’s newsletter in the middle of the night. Or volunteering in a public garden despite the heat exhaustion that came alongside many of the hours out there. And it all came on the hundreds of days each year when I did not have to crash back into bed, unable to function normally. Got it?

So where does a thyroid biopsy to rule out cancer fit into this muddied scenario? Will having major surgery thereafter legitimize my enduring serious illness and the varying opinions of persons on the sidelines cheering at times or throwing barbs at others? Nope. Others simply give witness to your life for the parts that he or she can see, to the extent that he or she can step outside of his or her own story. And none of us can do that fully. The peeps who truly love you will come closer to a sense of understanding. That is a gift for sure. However, it is only in a personal relationship with the Lord, Jesus Christ, in a life surrendered to Him that you will feel completely validated, loved, understood, accepted, and forgiven. He created you and ordains all that you are, what happens, when your life begins, and when your life will end. All for a purpose greater than anyone else will ever know. Lord willing, He will grant you insight into some of your life’s meaning along the journey and be merciful. He loves you so!

I’m not going to lie. Everything from what other people have thought and will think about me to questioning the Lord’s plan for my life is smeared across a messy collection of hundreds of blogs over these 8 years of chronic illness. Will it be cancer on top of everything else? Cancer: the one diagnosis that suddenly legitimizes one’s fears and suffering and need for compassion? So what. This stuff could really mess with my head. But what is really going on inside my mind? Not that much really. I feel like my Jesus is simply carrying me through it all. I feel numb inside and out. Often my thoughts are blank. When the tears come they are shallow, like a reservoir running dry after years of siphoning off for this trauma or that one. There’s not much left in my fuel tank. With no catharsis left for my angst, one might wonder who or what will nourish me now?

The answer would have to be the Lord Himself. Hold me please. I hereby place my journals, my blog, my illness, my life in your lap. Cover the Gentle Readers out there with your loving care too. Send forth your angels and Holy Spirit to care for, to guide us all. This is a tough world to live in these days. The suffering of your saints is great. We need you NOW!

Freedom from Rain

Rainy weather working its foggy magic on a landscape is beautiful. A rainy day encourages introspection. Or at the very least a nap. I love the rain in all of its spirited and benign forms. But we have had rain day after day without much respite. This is rain of a different sort. Too much rain foments rot both above and below ground. Too much rain spoils blooms. Too much rain dampens the spirit. We have had all of the aforementioned. 

Deborah Silver

Is it the rain or the cold that gets to my weary bones far beyond the havoc it reigns in the garden landscape?

Perhaps the dry-out late in July that parches the land through the Fall is even worse, when my soul aches for a simple cup of relief?

How will I look back on this season of my own life where moments of respite, nourished from the right care gives way to occasional relapse and now tragedy?

Alas my dear brother, survived with me but not with our youngest, Rob, lies in a coma amidst the sterile hum of machines you could never repair

In your appliance servicing days let alone fix your own broken spirit from never quite fitting into the affections of our Dad but perhaps too much by our Mom?

What is Mike’s world like right now: can he hear the buzz, taste the plastic tube down his throat, smell the air now sanitized and finally free of cigarette smoke?

I ache for you as I did for Rob. You two never did get the advantages I had as the oldest nor fight long enough for better despite our childhood traumas.

Or perhaps that first year of my life cinched it when there was more love to give in both bloodlines . . . oh how I wish I could go back and carve more out for you!

The Lord grieves for us three as now you are now in the juxtaposition from time to eternity. It’s just not how He meant it to be you know.

I will love you forever Mike. Godspeed if this is the end. Go to your Maker and live at last, totally freeeeeeeeeeeeeeeeeeeeee!!!

A rain garden rises from the soil and rocks, bringing beauty and purification. Consider this a sign in the natural world of His creation that imitates the glory of a life surrendered to Christ.

A Rain Garden in the Making 8.4.18

Jumping from a home landscape to a specialized garden in the community is a huge leap on many levels.  The size and the scope of the project just multiplied by too many factors to count.  I have barely pitched the project to the President of the Board of the 501c3 that owns the Community Park and drawn up a basic Site Plan.  Just 6 days later, there is a 22 x 26 hole dug in the ground!  Wait, what?

rain garden, site plan, design, storm water, runoff, public park, initial, proposal, draft, drainage
Initial Site Plan Huntertown Family Park Rain Garden, August 4, 2018

When I heard that there would be a Kubota tractor available to scratch-dig the rock hard base of the proposed Rain Garden, I had to move quickly!  I was going to try to attend the Community Park work day on Saturday to get a sense of how things worked, meet some of the volunteers, and learn more about the park facilities.  The Pres gave me a more detailed tour of the grounds, introduced me to “the guys,” shared some more history and vision, then mentioned that they would be finishing that afternoon, the prep for a sidewalk adjacent to the proposed rain garden area.  The tractor would be available after that, wow, in about 3 hours!

I noticed some mega weeds around the entrance to the park so I grabbed my shovel to do some impromptu weeding; I did what I could in the hot sun.  A really nice man came over from where he and his wife were staying with family across the street and offered to donate some mulch to the Park.  His brother-in-law had just bought a local landscape supply business and this man wanted to know if we needed anything before an event coming up the next weekend.  I gave him the President’s contact information and mentioned the rain garden project ’cause, hey, there are already mountains of mulch already on the property but not landscape-quality; tell him Julie would love the offer of some “dark hardwood mulch!”  (Later the Pres just smiled; I’ll bet it’s a go!)  By the time I left the park, I had met this man’s wife who became my first volunteer for the Rain Garden Project.

Off to Walmart I went to pick up some marking paint for the Pres then came home to prepare some treats for these amazing men.  My energy was waning but some kind of momentum had taken over.  A bunch of food, a glass of chicken bone broth and a ton of water helped revive me enough to keep going!  I had most of the ingredients at home for chocolate cookies and a gallon of lemonade; surely some “appreciation treats” would be welcome as temperatures soared above 91 degrees?  The conditions were tough on everyone for sure.  By 1:30 p.m. I was back at the park to hang out in the shade of the picnic shelters and learn.

I am learning as much about general carpentry and construction as I am about how members of a community can work together, how much fun these men have just hanging out with each other no matter what they are doing.  Most of them are retired from the trades and in their 40’s and 50’s.  Building this Community Park is how they love to spend their free time together after breakfast at the Kitchen Table restaurant down the street.  Perhaps it has a lot to do with the years they all once worked together in one way or another and the small town friendliness I had never witnessed up close from our housing addition across the highway.  The Pres treated all of them like contractors, co-workers, brothers, and sons alike.  It was beautiful to witness as they helped to craft the public facility already enjoyed by dozens of folks every day.  They worked REALLY HARD that day in their respective projects!

Kubota, rain garden, community, project, Huntertown, family, park, runoff, storm water, digging, construction, volunteers

About 3:00 p.m., the man in the Kubota tractor was ready to scratch-up the base of the rain garden.  Its claw-bucket digging down few inches deep didn’t loosen up the nasty crab grass in the compacted clay/sand mix so down a full foot he had to go.  It took about 30 minutes to complete the 22 x 26 foot area, much like the shape of a baseball diamond in miniature.  As I do additional calculations we might need to increase the size of the rain garden yet that is still bigger than the initial site plan noted above.  I realized that those dirt clods would be rock hard within half a day so I tried to weed a few chunks of those grass plants as I could in the searing heat . . . with a couple of breaks just to cool off a bit.  It took a long time, leaving much more for another day and team of volunteers.  Even I was munching on a chocolate cookie and drinking lemonade before the day was done!  🙂

Sunday morning the guys would be meeting again for breakfast at the Kitchen Table before finishing adding the mesh to the sidewalk plus other preparations before the delivery of concrete on Monday by 2:00 p.m.  I was glad that the Pres had shared with me about the sidewalk so I could ask if they cold add the crushed limestone instead of dirt along the outer edge; this would match the other stone edge already in place along what would become the top of periphery of the rain garden (i.e. the front horizontal and right perpendicular edges in the photo above).  It might not be the most aesthetic choice of materials however those two stone borders would definitely be easier to maintain than a berm made of dirt that would eventually grow weeds.  While I have begun seeking  volunteers from the Master Gardener and Native Gardener groups locally to help build and maintain the the rain garden, I see signs all over the park of “good idea” projects that don’t look as good anymore, lost to poor follow-up.  Low maintenance must be part of this garden design!

Some interest in the rain garden project grew among the guys, just by being there, hanging out, and helping here and there where I could.  One gentleman told a story of how he used Roundup to kill all the grass in his yard before re-planting his lawn.  So we talked about the effect of glyphosate on beneficial insects, how it can effect plants in the area for up to 6 months, and how it would basically not work with the project here.  Beneficial insects pollinate the flowers of the tap-rooted plants that hold and filter the water runoff plus help prevent all the flooding that lasts for days on this side of the bathroom building after heavy rains.  No insects, no healthy plants, no rain garden.  Another man suggested using the extra pavers they had on the property which we could use for the outer border (i.e. to form the berm that prevents spillover; we would add drainage windows too).  Even the Pres said he could probably work with a local landscaping company to build a flagstone path through the area which would enhance  interest for visitors in addition to helping with weeding and such.  I agreed, taking lots of mental notes.  Chances are that I will see these hardworking men again . . .

rain garden, Huntertown, family, park, runoff, storm water, native plants, Monarch butterfly, community, project

So tonight I put together a flyer about the Community Family Park Rain Garden project.  How poetic to set in motion something like this that will actually come to fruition through the “organic” interest and talents of so many wonderful folks in my community.  Momentum has started as I continue to recover from a setback in July.  So grateful to have something else focus on:  my own Horticulture Therapy!  The flyer will likely become a temporary sign along the edge of our big dirt hole so that folks attending the Heritage Festival this weekend will know that something really cool is about to happen there soon.  Maybe some will join in and help?  I feel really privileged and honored to have this opportunity that came about just by taking a little online class, just by making a little post on Facebook, .  There is so much more going on here and it transcends me for sure.

Then again, that is always the case now isn’t it Gentle Reader?  Yeah God!  JJ

Isaiah 58:11

11 The LORD will guide you always; he will satisfy your needs in a sun-scorched land and will strengthen your frame. You will be like a well-watered garden, like a spring whose waters never fail.