When in doubt, take a nap!

Gotta Sleep Some More!
Gotta Sleep Some More!

I must apologize for the wacky edits on this posting!  I’m on a borrowed computer, borrowed time.

The Bible tells us that man makes His plans and it is the Lord who orders our steps.  Proverbs 16:9.  Indeed. I was hoping to do so much yesterday in my home to help my husband and myself.  Today marks 2 weeks of displacement from our home, first from a vacation then second due to complications of Lyme Disease.  Yesterday I had hoped to return home for a few hours wearing my trusty pink respirator mask and pack up the Christmas decorations with the help of a dear friend.  Er, no.   Instead my husband and I suddenly moved me out of the hotel and into the home of a sweet family and their baby.   I had to leave the hotel because the furnace wasn’t working and the maintenance guy triggered the spewing of burning electrical wires into my room trying to fix it.  We temporarily moved to another room in the middle of the night and 5 degree weather just to sleep.  Just seizure attacks this time, in both rooms, no neurological collapsing and a temporary headache.  I guess that’s good?  Still, time to move on again!

This family where I am is as sweet as it gets.  I am safely tucked away in the gun room with the worldly possessions of a nomad all around me.  We could make this work.  Only problem is that I woke up with a dozen seizure attacks this morning.  What could it possibly be now?  I had unplugged the electrical cords wrapping around the bed and it bought me another hour of sleep.  This is a newer home with no known history of water or mold damage.  Is it the smell of gun oil?  Or the new insulating drapes on the window?  Lord, have mercy.  I gotta live somewhere! Time for a nap then a Dr. appointment later this afternoon.  Maybe the Lyme Literate Medical Doctor (LLMD) can help me figure it out.  My husband and I are at ourwits end.  I have tasted relief for 36 hours a couple of times in a few of the ELEVEN BEDROOMS in which I have slept this past month until something noxious happened.  All I want is somerest.  Is that too much to ask?  Well maybe I really want to be well.  Maybe I want it all.  Yeah, that’s it. Must be time for a nap . . . on the couch!

Stay tuned.  By now this blog is reading like an action-packed work of fiction with just enough plot reversals to keep us all guessing — and you are my editors, gentle readers.  Let me know if you have any ideas, eh?  Seeya later!  :J

Maybe I don’t want to go to bed

peanutschristmascure74045_10151380532502386_87513810_nMaybe I don’t want to go to bed tonight.

If I go to bed, I might have seizure attacks and that is not fun.

If I go to bed and get up in time to do my morning treatment, I won’t have enough time to take a post-treatment nap before an appointment at noon.  Then I’ll probably want to rest after the appointment so my schedule is going to be messed up anyways.

But what if I stay up and get hungry again?  I don’t have enough protein already prepared to satisfy my hunger because this diet is just too weird.  For instance, I thought the son-of-the-owner-whose-been-cutting-meat-and-cheese-his-whole-life was going to laugh when I asked if they sold wild hog meat.  He smiled and said it was illegal to sell it in Indiana, just like it’s illegal to sell deer meat (aka venison).  Geez.  Wild hog on Amazon?  Yup, that’s what my Electrodiagnostic Naturopath told me to do.  She’s ordered alligator online before due to food allergies.  Alligator?

Is anyone else laughing in addition to me?  GEEZ!

So we had Cornish hens for Thanksgiving and I think there’s going to be a repeat menu of the little chickies for Christmas.  But for tomorrow, I’m a little stumped as to what to eat.  I guess I’m going to have to negotiate the pre-Christmas grocery store mania tomorrow after my after-appointment, post-treatment nap.  Could be fun, actually.  It will make me take a walk since I’ll have to park so far away from the store to get a parking spot!  Could be good.

Then again, maybe I will go to bed now.  Thanks for the chat.  It’s like I’m talking to Linus of the Peanuts comic strip.  And if I was talking to Snoopy, I know he’d understand too . . .  Goodnight.  :J

What Do a Furnace and a Sleep Lab have in Common?

furnaceimages

apnea2

Looks like the Doc is a duck or about to diagnose, well who knows what?

Far fetched you say?  Not according to my experience in a Sleep Lab last night!  If I understand this correctly, my yet unnamed Sleep Doc’s report will look something like this:

7:30 p.m.  Arrive at sleep lab with way too much stuff packed to keep me busy, plus my pillow and minus my shampoo.  Oops.  Check-in paperwork.

8:00 p.m.  Dinner from a zip lock bag of ingredients from my special “anti-seizure” diet.  The HGTV marathon begins.  We don’t have cable or dish at home.  I’m jazzed!  Love it or List It.  Yeah baby!

8:30 p.m.  Get approval for a later bedtime since I usually can’t fall asleep until 2 or 3 in the morning.  So they’ll confine me to bed at 11:30 p.m. and I can lay there in the dark with them looking at me through camera behind the black plexiglass window on the ceiling.  I could arrange some funny faces or something.  I’ll have the time to think of something until I fall asleep . . .

9:00 p.m.  Demo and trial of a CPAP mask and machine.  Talk about feeling suffocated, yipes!  Actually felt relaxed 20 minutes later and wanted to keep it.  Not so fast, Missy, as you only get to use it during the study if the test results the first half of the night warrant it.  Notice that this means they will be waking me up to suffocate me if I warrant it!  Modern medicine.

10:00 p.m. Hardware glued and taped to my head, ribs, face, and legs.  Fingertip vice called a pulse ox secured to my right index finger.  Lots of colored wires (around 20) are attached to a blue box that would put the back of your computer tower to shame, and hung around my neck.  Great.  I’m feeling sleepy already, not!

11:20 p.m.  Get the “10 minute warning” that they are coming in to put me to bed.  How nice.  No pillow mints though.  No bed either.  There’s a Murphy bed in the wall that hasn’t come down yet.  Modern medicine indeed.

11:30 p.m.  Tech “K” tells me I have to turn off the t.v. and I haven’t found out if the couple will keep their remodeled duplex without the promised new kitchen and bathroom or spring for the $949,000 move-up mansion.  Did I mention they came in 5 minutes before the end of the HGTV program twice already?  Geez!  Anyways, she helps me get settled as best I can into bed with not one but two probes in my nose in addition what appears to be the back of the fuse box connected to my body.  Time for bed!  Lights go out.  Seizure-like tic attacks begin.  No need to make faces; the show has begun.

12:00 – 2:00 a.m.  Up to the bathroom twice, tossing and turning, praying, praying, praying.  Tics on and off with sweats.  Sweating persists throughout the night.  Why is this mattress so hot?  Room temperature feels warm then I’m not sure.  Tech “K” comes in twice with each trip to the bathroom to disconnect me from the secret control panel in the cabinet next to the cabinet holding my bed.  Remember the old Dick Van Dyke T.V. episodes where the Murphy bed folds back up with the person in it?   Yeah, I’m remembering it about now.

2:30 a.m.  Start crying and can’t stop.  The sound of the furnace is just too loud.  My nose itches just too much.  I can’t get comfortable and I can’t sleep.  I’m sick and tired of being poked, tested, probed, scanned, analyzed, drugged, drained, and worse.  I feel very small.  And Jesus meets me here.

2:30 a.m.  Tech “K” comes in to try to figure out why I’m crying and how to get me to stop.  Do I want to stop the test?  Sit up?  Stop the test?  Wondered why she asked me the last question twice.  Maybe I’m a handful.  She said the most interesting patient she had pretended to be riding a bicycle in the air while sleeping.  Guess my show wasn’t that good through the black plexiglass window after all.  Then again, I mention the loud furnace.  In seconds, we are walking to another room and find that it is much quieter.  Praise the Lord!  And she says it’s no problem to move to another room.  We pack up, bring down another bed hidden in the wall of cabinets and before long I’m in bed again.  This room is warmer; feels good initially . . .

I think I fell asleep sometime around 3:00 a.m. after some tic jolts and a few tosses this way and that way.  I probably woke up six times (before they said it was 9:00 a.m.), overheated from underneath.  Must be a down feather pillow top mattress or something.  And before I knew it, the voice on the speaker from above was saying, “good morning Julie, it’s time to get up now.”  A few tic zips rang in the new day and then Tech “J” appeared.   Tech “K” has gone home.  It’s now over for me too:  time to unplug, de-stick, and crawl home.  We made it Lord.

This day was a rough one, with a straining feeling from broken sleep and feeling torn between napping and sticking it out to go to bed early.  Tried the latter and wasn’t able to sleep, again!   A host of flu-like symptoms distracted me all day long.  It’s one of those times when you wished you could throw up and get it over with — twice.  Ate lightly including the prescribed  portion of cooked rabbit.  Yes, I have a weird diet to match my weird story.  (See blog entitled, “Rascally Rabbit,” for more!)

What do a furnace and a sleep lab have in common?  One keeps the lab working and the other works despite the furnace.   Modern medicine.  Have you taken yours today?