non-epileptic seizures – Page 3 – Jesus is for the Wounded

Missing you terribly

Published on April 14, 2015April 15, 2015 by Jesus is for the WoundedLeave a comment

There’s a Barbara Streisand song with lyrics that go something like this:

If we had the chance to do it all over again, tell me would we . . .

Could we . . .

The way we were.

It’s not that I would like to go back to my former self or anything like that. I have had chronic pain for most of my life and lived with pain inside my heart for longer than that. Many of my own mistakes were downright damaging. Still other experiences damaged me and it would take until very recently to be free of their dark spiritual underpinnings. The freedom I experience in today from the drama of yesterday’s trauma was worth the good and bad spent getting here. But there is one part I am not sure what to do with . . .

I was never really physically fit and virtually always held a critical eye toward my physique even when at my ideal body weight. All that did not seem to matter to the stream of the male persuasion that came my way, ever since I was twenty years old. (Not sure what they were waiting for before that!) I always rode my bike as a kid EVERYWHERE. I did not think of it as exercise at the time, just a means to get me to the home of a friend. Several times in college I tried running around the sidewalks of the sprawling campus. “Library Hill” was a killer! Maybe I should say that I ran on most paths except the 27 or so degree incline of Library Hill! Carrying a full load of books up and downhill to class or to study late into the evening at the library should have earned me an extra degree in something or another!

What I miss most is the innocence of moving without thinking about it. Every day lately brings stark reminders of the convulsions that have returned. Every day brings a new version of shaking that hurts my neck the most and leaves some version of a headache behind. Every day the hope of exercising for the enjoyment of it alludes me only because I cannot; I actually had grown to like high intensity workouts before I got sick 3 1/2 years ago. Even with chronic pain I worked out with weights, unloaded my truck bed filled with sod/dirt/mulch, and kayaked for a couple of hours each week. I loved being strong.

Today I miss being strong. The trauma of seizures and convulsions have taken their toll. The sickness after an episode usually lingers for hours, days. I never really know for sure when the next episode is coming although the bedtime and waking-up patterns have been fairly consistent throughout this ordeal. Somehow despite my weakness, I HAVE NOT GIVEN UP for more than a day. Yesterday Steve and I went for a walk with our pup, Elle though most of the time the walking is through the halls of our home or a medical facility . . . or this past Saturday’s date night to the grocery store. It’s something, eh?

O.K. so I am bummed out. I have missed writing and did not blog so as not to bum you out, Gentle Reader, in reporting that the surgery did not stop the episodes as I had hoped. There are tiny improvements and for these I am grateful. I think I’ll need a little longer to recover and clear the anesthesia completely out of my system. In desperation I went on a water fast for 24-hours last week. It was awful! Amazingly I did not have seizures until the 24th hour! I believe the Lord gave me the wisdom through it all to start a ketogenic diet so new research and a new direction began the next day.

A ketogenic diet is a high fat diet where the fat becomes fuel for the body instead of carbohydrates. The version for seizure control (generally used for children) is unlike the keto diet for weight loss in that fats are consumed more than protein “macros.” Grams of carbs are the tiniest portion of the three. The increase in ketones are measured in either the urine or blood and thought to be the mechanism that brings some level of seizure control in 25-50 percent of children. In children the diet begins after a 24-48 hour fast in a hospital. Hmmm. My great Physician led me here after my own fasting experience too. So with the MyFitnessPal nutrition app in-hand, I am moving towards the ideal ratios of fats, proteins, and carbohydrates. Good news: that means lots of bacon! And at least I am off the pureed diet now!

The way we were. Can it be that it was all so simple then? Or has time re-written every line? If we had the chance to do it all over again, tell me, would we? Could we?

Perhaps the real longing requires me to not look back at all. Then what is it Lord? Fill this emptiness, please. Ease this hurting. Thank you for new tracks to run on, so to speak. I still need you desperately to guide me. I realize that I may not be alone in this desire you know. Please comfort the Gentle Readers out there who need you too. JJ

Off in the distance

Published on March 14, 2015March 14, 2015 by Jesus is for the WoundedLeave a comment

This is a tough one for me and likely for everyone reading this at some level or another. Let’s add a Biblical perspective:

There is a time for everything,
    and a season for every activity under the heavens (Ecclesiastes 3:1)

The Lord is good to those whose hope is in him,
    to the one who seeks him;
²⁶it is good to wait quietly
    for the salvation of the Lord. (Lamentations 3:25-26)

And let us not be weary in well doing: for in due season we shall reap, if we faint not. (Galatians 6:9)

And there is more from my own experience in life. Waiting on the Lord in the past was where my faith in Him was strengthened. I remember a time when the crisis was so severe that the Pastor and Elders in my church kept asking me how I was doing with the basics of life: eating, drinking enough fluids and sleeping. Yes, they were all a struggle. By the grace of God and many good sojourners I got through that season of life with sweet victory. And here I am again in another . . .

March 26th is the day that Steve and I hope everything will start to change for the better. As written in the potato chip blog, we believe that a dental procedure will vastly reduce if not eliminate the hours of daily convulsive episodes. Yesterday it was on and off for 24 hours! You know it’s bad when you see stars and are gasping for air. Despite nearly a hundred episodes, somehow I read a book while in lying in bed. It served to protect my mind from dwelling on the wretchedness when I could focus. I am hoping it preserves a few of the neuronal synapses in my brain from damage. And focusing despite the pain does carry me through the daytime, the nighttime. Talking to Jesus a lot is a given . . . .

Thirteen more days and this hell could be over. In one month will be the 3-year anniversary of when the tics began while thinking I needed to treat a clinical diagnosis of Lyme disease with a fancy Rife machine. The Beam Ray was a mistake for me. It has taken 3 long years and many failed attempts at various treatments to figure out what is causing the tazoring of my central nervous system. Lord willing with removal of the source of what could be “dental galvanism” in my head, I will begin to heal from so much. And so in my weakness I rest at the throne of grace that delivers me each day unto the next. Lord willing, I am going to get well. Off in the distance is the hope of this new beginning for me and my beloved, Stevers. We are hopeful that His goodness awaits.

Gentle Reader: Just wait for the shining glory of His light through the words on this page as that day comes. Are you ready for it? Brace for impact! It’s going to be a good day real soon! Like the old Barbara Streisand song goes, “there ain’t no tellin’ what a satisfied woman can do!” ;J

If I get to see you . . .

Published on January 16, 2015January 18, 2015 by Jesus is for the WoundedLeave a comment

If I get to see you in the coming year, please understand that I will be singing songs of joy in my heart! Social isolation has been one of the most devastating effects of serious illness from these past 3 years. Should the Lord allow the circumstances for me to get out for an activity other than medical or a trip to the grocery store, I CELEBRATE!!!

So if I might ask for a few accommodations when we get together and you graciously oblige and I still get sick then blame any negative symptoms you may witness in me as the consequence of illness and not you! Very few folks live in a “clean room” like we have here at home. I did not clean at this level either until it was a matter of survival. Steve did not engage in my extreme mold/contaminant behavior strategies until two years ago. These strategies are necessary for this season of our lives together. Overall I do better when we follow certain guidelines resulting in less reactivity, the worst of which are fewer seizure-like and convulsive episodes which continue daily. We are implementing some “due diligence” from what we have learned to reduce my suffering with the goal of eliminating this illness altogether. We believe that the Lord has allowed these trials for mysterious reasons and ultimately His glory. He is good!

Both Steve and I recognize that there are definite signs that I am getting better. We have trained our eye to search for even tiny changes in the pattern and intensity of episodes, pain, and reactivity to keep us hopeful that one day I will be well. It is happening! So please don’t be discouraged when either one of us might mention that I had a rough night or you witness a significant setback. Recovery is a long, jagged line of progress, setbacks, and lateral “bunny trails.” The overall trending is positive!

The most important accommodations that would be helpful if we get together are as follows.

Meeting in a public place: Select a place with less noise and less loud music. Newer buildings are generally better than older ones; please no historic buildings or ones with known basements or crawlspaces and history of flooding. Restaurants that make their own food with fresh ingredients are better able to modify dishes to meet my food sensitivities. This rules out most fast food places! Letting me know the name and phone number of the establishment ahead of time will allow me to contact them with my needs and make the experience of ordering food more pleasant for both of us! Please do not wear cologne or perfume that day. I will need to greet you and depart with a “virtual hug” to avoid exposures to hidden elements that might be on your clothing or coat. Forgive me if I sometimes forget this step in the joy of the moment when I see you!

Meeting in your home: This is still a situation that I avoid since there are too many variables at this time that may cause serious problems. I cannot come over if you have 1) ever had flooding in your home of any kind from a leaky toilet to a wet basement or 2) have older carpeting. If you are willing to have me then please remove all fragranced products at least the day before we are scheduled to be together (such as plug-in or spray air fresheners, candles whether lit or not, potpourri, etc.) Keeping windows cracked open in cooler weather or open in warmer weather to allow fresh air inside always helps (unless someone is burning something nearby outside!) I prefer to visit in the area of your home without carpeting and sit on non-upholstered furniture. Wood, plastics, and leather are best.

Staying overnight: If we are invited to stay overnight then we will either bring our own linens, blankets and towels, or ask that you wash and dry everything in fragrance-free detergent and softeners (including dryer sheets). Please replace a moldy shower curtain liner with a new one! I will bring most of my own food and hand soap where possible. Providing non-cured, non-smoked meat cooked only with salt, plain oatmeal, plain salad-type vegetables or zucchini/cauliflower without seasonings will be a HUGE treat! I will always bring the extra condiments and food that I can tolerate.

Yeah, I know that this is a lot for a busy household to prepare! Thank you for helping us out with this stuff. Steve and I are exceedingly grateful to have recently obtained a travel trailer which has helped manage all of this tremendously well. (It is a lot of work for us too, I tell ya!) Both of our families and many close friends now live out of State so travel is necessary to see them. This single change in our mode of travel has allowed me to leave our home overnight much more safely and go places from which I have been cut off for most of the past three years. We are humbled and blessed! I really like having a mobile safe house that has already opened up my world, provided privacy during setbacks on the road, and aided sleep with a really comfortable bed that can be hard to find when away from one’s own humble abode at home. Thank you Jesus!

Visiting Daniel and Elizabeth in Alabama

We are hoping that the ongoing extreme avoidance and dietary strategies are temporary; some level of precaution albeit more relaxed than the current level will likely continue for some time. How long will we need to do all of this? We simply do not know. We believe the Chronic Inflammatory Response Syndrome (or Multiple Chemical Sensitivity) is due to mercury toxicity and we finally have the correct treatment protocols to get me well. I have excellent medical guidance and a proven treatment plan to follow. We are hopeful that I will be in better health within this year! I AM GOING TO GET WELL!!!

And that Gentle Reader, is much to celebrate! JJ

Mercury Toxicity Resource

Published on November 24, 2014November 24, 2014 by Jesus is for the WoundedLeave a comment

Gentle Readers:

If blog posts here have peaked your interest in mercury detoxification and chelation, you are invited to join a new Facebook group. This closed group specifically covers the Quicksilver Scientific protocol and related issues. We are simply fellow sojourners sharing our experience, strength and hope; we are not experts. Check it out at:

Quicksilver Mercury Detox Group

This is by no means an official Facebook group of the company Quicksilver Scientific!

The official company Facebook page is:

Quicksilver Scientific

The company’s product-oriented Facebook page is:

Quicksilver Scientific International Distributor

While there are many protocols for mercury chelation, detoxification, and ridding ourselves of toxic heavy metals, this is the lab I have chosen for testing and remediation. Godspeed to all on the path for wellness and may your journey ultimately lead you to the person of Jesus Christ. He is our true hope!

With love,

Just Julie

Request for Personal Assistance

Published on November 16, 2014November 16, 2014 by Jesus is for the Wounded8 Comments

Dear Gentle Readers:

I am most blessed to be in touch with you through this wonderful world of blogging. Today I am asking for your help!

Last week I started some baby steps in a new treatment protocol (called a Pretox Treatment Protocol) for mercury toxicity. The program is based upon the brilliant work of Dr. Chris Shade and Quicksilver Scientific. I am exceedingly grateful that my family doctor attended a conference where Dr. Chris Shade had presented on mercury toxicity. Dr. Shade developed mercury speciation testing and specific treatment regimes to open elimination pathways in the body of inorganic- and methyl-mercury. I completed several lab tests including their Tri-Mercury test and their Blood Metals Test is now in process. After suffering nearly 3 hellish years with daily seizure attacks and numerous failed approaches, we finally have hope for complete recovery.

The only problem is that I am having difficulty tolerating the Pretox Treatment Protocol! No surprise there: I react to everything these days. So here is my request:

Would you kindly contact Quicksilver Scientific and ask for a special consultation for me with Dr. Chris Shade? The company is exceedingly busy with expansion and Dr. Shade’s speaking schedule so a little extra noise might be helpful. Here’s the link to their website and where you can leave a message with my name and email address ( be sure to convert to an email address the following with numbers instead of words and “yahoo.com”: psalmthree4eightonezero@yahoodotcom):

http://www.quicksilverscientific.com/about/contact-us

I made this video for Dr. Shade to illustrate exactly what mercury poisoning has brought into our lives over here and my dilemma:

My husband Steve and I are hopeful that I am going to get well! We are exceedingly grateful for prayers and support of everyone and look forward to the day when we can celebrate together all that the Lord has done in this season of our lives. He is good. All the time. He is good!

Thank you for your consideration.

Take care,

Just Julie