The Young Lad Down the Street

When I first met the 12 year old boy down the street, I found him to be quiet, pensive, and sweet. He was so tender towards his younger sister whom he often had the responsibility of supervising when both were hanging out in the cul-de-sac where Mr. Steve and I, Miss Julie, live. His 6 (now 7) year old sister was respectful of his authority. They got along quite well.

Then I saw another side to their relationship and perhaps his character. Nearly a year after that first meeting, my husband and I know more about each other’s families, living routines, schedules, activities, and personalities. We’ve had some fun activities together outside of the neighborhood as well as the opportunity to bless them with gifts, treats, etc. Kinda fun for us two older neighbors of grand parent age! (If our own grand kids only lived closer, eh? We rarely get to see them as they live several states away . . .)

One recent weekend afternoon, both H and E were staying on our side of town while visiting E’s Dad with their biological Mom. In other words, both boy H and girl E have the same Mom but two different Dads. H spent alternate weekends with his biological Father; E was virtually always down the street on Saturday and Sunday as her biological Mom and Dad often spent weekends together. So the two kids have the same Mom, 2 different Dads between them plus H has several half-brothers and sisters as well. The 2 kids seem to have adapted as well as can be expected with additional visits to some combination of biological grandparents sprinkled in over their weekends too. Somehow even with all of these adults in their lives, E then H came to develop a relationship with my husband, Mr. Steve. He taught H how to ride a big skateboard called a land paddle and raced E up and down the street on said land paddle as E provided the some pretty good competition on her pink 2-wheeler! “Want to race?” was all she said and off they went down the street and sidewalk, respectively.

Last weekend, the two children had spent the day with Mr. Steve in an EAA Young Eagles Introductory Flight experience while taking plane rides in a 4-seater Piper Archer. This was their second time riding in this airplane with Mr. Steve as the pilot. They each got to experience 3 flights on Saturday, a special lunch, and a mini ground school instruction. What a treat for each one of them! Well the extra banks and turns were a bit much for E’s tummy but overall they had a great time. I received them sitting on our patio at our home afterwards as they shared their stories of the day’s events. The kids had dozed off in the car on the 30-minute ride home from the airport; H was still tired and E was acting a bit “wired-tired.” But their “parents” weren’t home yet so hanging out with us would extend a little longer. That’s when I noticed some other dynamics of the relationship between this brother and sister that I had not seen before. Natural dynamics, of course. And yet perhaps a window into some of the stress they might feel when tired from more than this type of day’s events.

H was usually tender with his younger sister. This particular Saturday afternoon, H was relentless in his questioning of his younger sister on a trivial matter. I tried to change the subject and he returned to his chiding her shortly thereafter. Was there more to the stress of the moment than meets the eye? Surely he must get frustrated from time to time with the antics of a sister 5 years younger than him. I wondered, does he ever tire of his supervisory role and have enough time to just be a kid, be himself? Probably yes and possibly no. H is a very serious, thoughtful young lad who largely hides most emotions and speaks in somewhat measured speech at times. He is sure to correct himself to give the right response to a question. He’s the kind of kid a trusted adult male would do well to engage in playful wrestling or other physical stuff yet I get the idea it would be more horrifying than fun for him. Maybe he gets some of it with the land paddling with Mr. Steve? I hope so. I just wonder if there’s an outlet for what the heck he might be thinking or feeling inside. Does he feel loved? Does he have a place to let go or speak his mind freely like his little sister does (kind of all the time!)? He speaks of his babysitting responsibilities in the vernacular of that of a parent. It’s possible that the parental figures in his life expect this of him, to pseudo-parent her not just be a babysitter. That’s a lot of responsibility for a 12 year old boy from a broken home, at the beginning of so many other changes to come in his life as he matures into a teenager and young man. He takes this responsibility seriously. This particular day it was kinda wonky.

My Mom tried to put this type of responsibility on me for my 2 younger brothers but it didn’t work. They wouldn’t listen to me! They wouldn’t listen to our babysitters either when my Mom (a single parent of three children along with a serial dating and drinking problem) had to leave us alone to go to work or couldn’t find a babysitter. I do believe she did the best she could to manage our difficult situation with the tools and life skills she had. The when she left us alone, however, all hell broke loose at home. We were probably out of control. Such is the way children under stress behave when the consistent routines that they need erode, when there’s no one in which to confide, when there’s no outlet for the hurt burning inside a tender heart living inside a broken home. I wish I could have been more like how H is to his sister than I was to Mike and Rob. I yelled a lot. My Mom yelled a lot. There’s more. Surely us kids were struggling with the changes in our lives that were decided by the most-trusted adults in our lives: our parents. We hardly ever saw our Dad and then he moved out of state when we were teenagers; we never heard from him again for a couple of decades. Probably our best aspect of consistency/security was living in the same house all of those years. But inside those doors was a lot of hurt and anger that made it harder for me and my brothers to relate to one another as a family let alone find our way after entering adulthood. I wish I had known the love of my Heavenly Father back then. It would have made such a difference!

H occasionally talks about the Bible with Mr. Steve. I love that. My husband had the insight to give H a student Bible as part of his Christmas presents this past year; we gave E a children’s Bible too. Steve and I both try to weave spiritual topics into our conversations with H and E as we play in our yard, sip endless bottles of water, and chase our old pup Elle. But is it enough? Are we being intentional in our teaching as my beloved use to instruct young families at church to do with their children? All four of Steve’s adult children are walking with the Lord today. What an incredible testimony and tribute this is to the parenting, the love, the Biblical teaching, the mentoring that Steve and his ex-wife poured into their lives. All four are also successful in their respective occupations, one is married with two children of his own. As we get to know H and E, as they continue to come around and knock on our door on a Saturday afternoon, please join us in praying how to best love on them in a Christ-centered way. We desire to encourage and support their parents as well and be a special kind of older friend to all of them that the Lord has ordained for this season of their lives.

As I think about H in particular, some scripture references have come to mind that I hope I get to share with him sometime soon.

Colossians 3:21 (NIV)

Fathers, do not embitter your children, or they will become discouraged.

Ephesians 6:4 (NIV)

Fathers, do not exasperate your children; instead, bring them up in the training and instruction of the Lord.

If H is required to act as a pseudo parent/babysitter at times, these verses and passages speak to the authority and loving relationship of a Father to his children. They provide instruction which is tempered and guided in the manner described by the verses that surround each passage. (Hotlinks are provided to each chapter by clicking on the verse.) If unrealistic expectations have been placed on H to regularly care for his younger sibling then perhaps he still can learn to temper his tone with her as supernaturally guided by these verses and the Holy Spirit. Does H know Jesus as Lord and Savior, know the guidance that can come from the Holy Spirit? We are not sure. This is an area we need to explore further. With the possibility that the relationship of his Mom with E’s Dad is a tenuous one (as they have been apart for extended periods of time in the past), we cannot assume that we will always see H or E several times per month indefinitely. Each day is an opportunity to build our friendship with them and introduce them to Jesus Christ.

Romans 12:10 (ESV)

Love one another with brotherly affection. Outdo one another in showing honor.

This verse speaks to the relationship of brothers and sisters in Christ, our eternal family. I love the idea of showing honor, deference to the other party. The older brother, just like the child’s Father or Mr. Steve as an older male Father-figure, have an opportunity to help build the worth of a young girl as Christ sees her, as her husband one day will see her someday in marriage. An important part of her identity comes from interaction with the older males in her life. Her older brother’s joking, teasing, and correcting behavior all have their place in good fun along with complimenting, encouraging, and supporting the younger, female as she grows up. We know from God’s design for the roles of men and women in marriage that the woman is to respect her husband; the woman must also receive respect in addition to being loved and cherished. To show honor is to show love.

Matthew 6:33 (Amplified)

But first and most importantly seek (aim at, strive after) His kingdom and His righteousness [His way of doing and being right—the attitude and character of God], and all these things will be given to you also.

Our Heavenly Father knows what we need even before we ask anything of Him. He is ready, willing, and able to give us the best help possible! This is important to keep in mind when we are trying to figure out what to do, what to say, what decisions to make, how to think, which way to go. Then what about an unruly little sister or brother? Oh vey! I offer this verse as a reminder to pray, to seek the Lord for His wisdom as we interact with all of the other people in our lives. (How I wish I knew this and could take back all of those mean words I screeched at my brothers so many years ago!) Figuring out relationships is soooooo hard on our own sometimes! Our Lord will comfort our angst, guide us, and bring forth the best outcome for both how we want to come across and how we hope our brother, our sister in Christ will respond. We must stop ourselves, pause or take a deep breath for a moment, and ask for our Lord’s help. He will do so. This type of prayer also honors the Lord as well!

Hebrews 10:24 (NLT)

Let us think of ways to motivate one another to acts of love and good works.

The Lord is faithful to see us through everything including the ups and downs of our relationships with others. He cares deeply about our relationships with the members of our immediate family (as well as the body of Christ). What a privilege it is to be in a position to mentor a loved one who seeks and respects our authority or influence in his or her life. H has managed this big responsibly well despite the challenges of his own young life. This process of mentoring happens naturally with younger siblings who look up to their oldest sibling, to older cousins with younger cousins and so on, when handled well. The love between brother and sister in particular is a special kind of fellowship unmatched by any other in our lives. Our brothers and sisters are the first friends we make in life, the longest friendships we may ever have in our lives. We can find mutual hobbies, games, sports, ministries, and other activities to share together despite differences in age. We can encourage our siblings in following their dreams, the unique ways that the Lord has crafted their giftedness, and even in his or her silliness if younger than we are! When it is safe to do so, let them be! We want the happiest, most fulfilling life for our friends, right? Such is the desire of our Heavenly Father for each of us on each day and each hour we shall live, until the day comes when He will return in the ultimate fellowship with all of us.

After all Jesus was once a brother too you know . . .

Stock Photo by Janko Ferlic on Pexels.com

You just don’t know what you don’t know

I’ve got 2! How about you? Ugh.

When I was ruminating about how to manage some new symptoms, I stumbled upon the benefits of unsweetened bitter herbs in balancing blood sugars. This discovery has helped manage some wild fluctuations but it is not a fail-proof strategy. I still bottomed out yesterday with seizure attacks at the kitchen table about an hour after following this new sequence. My beloved had to feed me while I shook, leaning precariously on our glass dining room table. It hurt. This situation is still hell.

It’s clearer more now than ever before that the swinging of my blood glucose levels is contributing to seizure attack episodes and the difficulty managing both of them. The endoscopy ultrasound (EUS) this past week found a particular type of pancreatic cyst, pre-cancerous but one in which surgery is not currently recommended. So while I grasp the magnitude of what a 6-month surveillance program looks like for the potentially deadliest of cancers, I am dealing with yet another new diagnosis: pre-diabetes. Say what? Tis much to bear right now.

I’ve spent most of my adult life managing “borderline hypoglycemia” with diet. This means no concentrated sweets, higher fiber foods, protein-rich snacks between meals and only low-sugar fruits with the baseline concerns of dairy-free, gluten-free, low-medium oxalate, largely organic/non-GMO, and lower in the categories of red meat and night shades. Whew. It’s a miracle that I have found anything to eat at all! Or that I have not gained a ton of weight when battling serious illness these past 8 years. Food is fuel and there are now more specialized products on the market from which to choose. Thank you Lord! “They say” that hypoglycemia can turn into diabetes sometime in a person’s life. I also understand that pre-D can be reversible with lifestyle changes. O.k., so let’s go for that option.

Still I have come to the end of my ability to figure out what to do now. The Docs say that the pancreatic cyst, even though it’s in the organ that manages blood sugar for the body via insulin and glucagon, has little to do with blood sugar difficulties per se. Full blown diabetes is associated with a greater risk of cancer when you have a pancreatic cyst. What about pre-diabetes? “I can refer you to a dietitian if you like,” said the Nurse Practitioner in the gastroenterology oncology department. Why sure! What else have you got that I haven’t tried already folks? Exogenous ketone supplements without the sweeteners? I’m on it, however even the ketogenic diet under the direction of a hospital dietitian didn’t help me two years ago. Too much fat these days triggers belly pain anyways. Tough challenge for sure. Referral is now pending.

Call me cynical because I am. I am in shock. Thankfully there are Facebook and online support systems, even apps for these diagnoses so I will avail myself to them. The isolation of being home alone dealing with all of this is crushing however. I tried leaving the house the day before the EUS procedure to get some errands done and came home really messed up. I always carry a lunch bag of special foods and water with me when I leave the house. And now it’s just not enough. I’ve reached out to my Doctors at Mayo Clinic to see if there is more expertise out there on these matters, particularly in connection to the seizure-like episodes. I cannot get into see an endocrinologist locally until JANUARY!

I just don’t know what I don’t know right now. Are you working Your plans somehow through all of this my precious Lord? Help me Lord! JJ

P.S. My new favorite snack is Hippeas Himalayan Happiness

HIPPEAS Organic Chickpea Puffs + Himalayan Happiness | 4 oz, 6Count | Vegan, Gluten-Free, Crunchy, Protein Snacks

I gotta change my teeth!

Alright.  It’s a few decades too soon in my life to be fussing over fake teeth in a restaurant but that is exactly where I have landed.  Or an acrylic mouthpiece of sorts, that is.  Then there’s the one with metal wires in it.  Aaaargh!  This is all kinda gross, especially with bits o’ lunch in thar!

It’s not your average bear that carries around a bottle of mouthwash in a gallon Ziploc freezer bag with 2 paper towels, a funny little brush and a clam-shell plastic box with air holes in it with a spare mouthpiece in tow.  Gentle Reader, you knew I was not undergoing a normal treatment plan when I signed up for this next phase in my recovery from a serious illness.  After all, who said that specialized dental appliances would stop almost 7 years of daily seizure attacks?

The answer:  no one really.  Persons with Tourettes Syndrome, dystonia, and tics have found relief in addition to persons with severe TMJ or Temporal Mandibular Disorders.  Only one expert mentioned “atypical seizures” and another “movement disorders.”  It was the Lord who led me to  examine my own pattern of symptoms and triggers, led by an observation from an ENT in a recent exam, and extensive research that seemed to indicate that I, too, might benefit from this highly skilled approach within the dentistry profession.  It made sense to me that a Craniomandibular Disorder Specialist would be able to relief pressure on my aching jaw.  If it relieved pressure on cranial nerves in the surrounding tissues as well, then there would be a good chance that many of the episode triggers and the convulsive episodes themselves could go down.  So I interviewed thirteen professionals in the USA  then said, “sign me up!”  My beloved agreed.  Graciously, many wonderful folks helped make it happen.

And I am glad that it did happen.  The convulsive episodes are now EIGHTY PERCENT IMPROVED!!!  Yeah God!  Praise the Lord!  Holy cow!  Cool beans!  Plus every other exclamation of joy I have ever used on this here blog.  Just Julie is going to get well!  I can now lie down and get up from bed most of the time without 30 or more minutes of convulsive episodes.  THIS IS HUGE!  Bonus:  my reactivity to noxious sensory stimuli is also down.  My posture is better.  I am able to eat a few more foods that I have been able to in many, many years without triggering a seizure.  Other symptoms have come and gone yet even the nagging jaw pain is also reduced.  I am looking forward to seeing what will happen over time as the improvements continue . . .

The battle is not yet won, however, as my devices will need adjustments and I’ll possibly need new dental appliances as time goes forward.  This will require significant travel to my Doctor out of State, a leap of faith in the Lord’s provision, and a massive testing of my health status to travel by myself.  Am I up to the challenge?  Absolutely.  We will plan carefully and proceed with caution.  Looks like I am on a good path for recovery at last.  I am humbled and grateful beyond what I can put into words.  Thank you Jesus!

Here are a few pictures from the process from my first week on this new journey.  I look a mess in most of them yet that is because I was very sick going into these appointments.  I had six violent convulsive episodes just trying to do the 5 hours of evaluation and was quite depleted by the time it was over.  Afterwards, my hubby and I were so trashed that we stood in the parking lot late that sunny afternoon and ate every snack and drop of water we had with us!  It took days for me to recover yet somehow I knew that my life was about to change very soon.  Three days later I had another very long appointment to receive my mouth splints.  The changes began within a day and continue three weeks later!  Stay tuned for more good news as this story develops.

Gentle Reader, if you are struggling with serious health issues, I encourage you that the Lord sees your suffering, grieves for you, and promises to be there for you for each and every breath, now and forever.  Call upon His name.  There is “hope beyond” what we can see.  Consider trusting the person of Jesus Christ Who will see you through, carry you this day and always.  I would have never made it this far without Him.  I hope we can share in my joy together someday Gentle Reader.  Our God is good!  JJ

xray, dental, appliances, TMJ, TMD, specialized, dystonia, seizures, atypical, tics, Tourettes, Dr. Ralph Garcia, craniomandibular, disorder, treatment
Assistant Josh took about a dozen x-rays to start the evaluation process.

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Dr. Ralph Garcia takes a detailed history; the smell of acrylics from the lab requires wearing a mask.

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EMG testing of the face and jaw

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Bite evaluation by Dr. Ralph Garcia

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Assistant Julie takes photos with and without the new dental appliances.

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Multiple impressions are taken with soft polymers that triggered episodes when the material was cold. Trying to stay calm to get the proper fitting was challenging.

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Waiting room in Dr. Ralph Garcia’s office! We definitely are not in Indiana!

Sunset Beach, Florida, Tampa Bay, wife, husband, couple, married, sunset, sunrise
A little shy first time out in public wearing the smaller of the two dental appliances so I could have a snack while watching the sun go down on Sunset Beach. So grateful that my Dentist’s office was in sunny Tampa, Florida!

Frequent Flyer Miles

Hospital Christmas Tree, hospital, medical, ID, identification, patient, band

Travel frequently with any major airline and before long you will accumulate Frequent Flyer Miles.  Gather enough points and you can start planning a getaway weekend to someplace warm or maybe remote enough to forget the cares of everyday life.  Oh how I want to cash mine in soon . . .

So I walked into our neighborhood hospital for a test and the gal at the reception desk greeted me by name!  She had my red radiology folder already in-hand, clearly expecting me at any moment (with most of my “HIPPA” paperwork already started!).  Talk about customer service?  Er, no.  More likely it’s a function of my frequent visits to medical practitioners and departments within the past week:  SEVEN OF THEM!

It’s the week before Christmas so I thought I would photograph a few hospital I.D. bands within the bright green branches of a Dwarf Mugo Pine.  Kinda looks pretty, doesn’t it?  Ugh.  I digress. I’m alright, Gentle Reader.  The choking coupled with increased nightly seizures turned out to be symptoms of a sinus infection and all are gradually subsiding with a course of antibiotics.  I’m getting back to baseline.  Too bad they don’t award Frequent Flyer Miles for taking care of yourself or enduring a bumpy flight!

Overall, I am grateful to have these healthcare “destinations” to guide me along my journey towards recovery.  Various medical appointments are my daily occupations of late, mixed in with wrapping a few gifts and trying hard to focus on serving others in this season of giving.   It really does help to put your eyes on the needs of others to help lessen the burden you may be carrying.  I was reminded of this in the middle of this past week, sitting alone in the chapel of our local hospital.  Ever visit one?  They are a sweet oasis when needed.

Thank you my Lord, Jesus Christ, for meeting me there in my own time of need.  So glad you always take a flyer on me when I call . . .  JJ

 

You not Me

If my eyes can gaze upon you not me

To care, to serve, to pray, to worry some

Then maybe my burdens will soften a bit

For I have fixed my angst off my tender frame.

If I can plan my day to give more away

My time, talent, and resources to you not me

For a new challenge that maybe stretches me a bit

Then we shall both emerge stronger when tomorrow comes.

For what good is a man if he gains the whole world

And weakens his soul by burying it deep in self-pity

When we can travel together for awhile

You and I, carrying your bags then you lifting mine.

Seems like a better deal dontcha think

For the moments when I do return home to rest, to reflect

Will find new meaning in what it means to live

When the Lord dwelling in my heart spills over to you.

He is the One Who makes all these things possible

These ups, these downs, these trips veering off that away

We must but trust in His gracious plan, every detail

As He is the reason for you, for me, for glory and goodness too.