Don’t Give Up: Timely Reminder!
Tag: encouragement
Handling loss is a skill for living well
Some disappointments this past week have reminded me of the importance of handling “loss” well. Change is a certainty in this life and many of us have had more than our share of both the voluntary and involuntary fare. Change often means letting go of something or someone we cherish. For the Christian we can view change as part of becoming more like Christ, maturing in our faith, and working out the details of our lives with the Lord. It is necessary! And all too often it doesn’t feel well though.
Here are 5 changes that came in rapid-fire succession for me lately:
- A counselor that I have been seeing to handle the grief of this serious biotoxin illness I’m dealing with, suddenly discharged me from her care. A week ago Tuesday I had a major seizure attack episode in her office and had to leave abruptly. The episode went on while standing outside the front door to her office then continued as I struggled to get back into my truck. An hour and a half later I was able to leave to return home. She checked on me multiple times during the event and even called me a few times to discuss our next appointment. Until that day she had been opening the window in her office for me to increase air circulation before our starting time. When she did not do so until I was about to walk into her office (on a rainy, humid afternoon), the scented “warming candle” residuals, soil aerosols from her live plant, and possible contaminants embedded in the office carpeting were too much for me. She is now unwilling to meet me in a nearby library conference room since her driving time simply would not be reimbursable, won’t fit into her busy schedule. So for now it’s bye bye Julie.
- For the third year in a row I had to miss my husband’s United States Canoe Association Nationals due to illness. I am sad. I love watching Steve compete in his surf ski (racing kayak) and missed both of his races including the exciting trial class event with our outrigger canoe. It sounds like there was a photo finish as he crossed the finish line and I was not there to take it all in or take pictures. Sigh. We love taking road trips together. Even if we could have afforded the expense of travelling together, I cannot tolerate the fragrances of hotel rooms, conditions of camping, or the unknowns of renting a travel trailer. Such is life with Multiple Chemical Sensitivity and Chronic Inflammatory Response Syndrome! I stayed home with our German shepherd pup in our “safe home.” Parts of the two full days were actually better by the way: I got to dig in the dirt of a new garden bed. The second day was terrifying however with two, severe, hour-long episodes while home alone. My Jesus saw me through when I thought I would stop breathing. I did not. My husband needed this time away. Besides, having someone stay with me or check on me in the end dangerously increases risks to my health. We made tough choices indeed.
- I realize that the isolation that accompanies this illness is killing my spirit. I sense my social skills eroding. Sitting in my truck in a cemetery adjacent to a Garden Walk event on Saturday, I nearly panicked because I was late and there were cicadas plunking my windshield as I tried to wrap up a phone call with Steve! I had not talked to anyone but my dog for 24 hours so I was glad for his call. However, I had felt awkward and alone getting ready. And I know that these were just feelings. The evening out went fine with barely a few tic zips, enjoyment of select entrees, and meeting some really nice fellow gardeners. It’s just that the social part of my life is so unnatural, absent, and different now. Just like when I went through a divorce, lots of people have left my life once again. Reaching out has been tough when it’s so complicated just to get together. I will keep trying though. I have to . . .
- An occupational therapy (O.T.) recruiter for an agency for whom I used to do contract work called me TWICE this past week! I guess they really needed someone! Oh how I miss working. Last night I did the equivalent of 4 hours of (free!) continuing education credits for my O.T. license, inspired perhaps by the phone call earlier. Maybe someday there will be an equivalent at-home professional job that I can do that will utilize my skills. Just gotta get rid of some daily seizure attack episodes first, eh? Today they lasted most of the day. My “job” was to take a shower and make dinner. Done. Don’t need an App to keep track of this kind of schedule, I tell ya! Sish.
- Most of the time my worship is in isolation. For a long time I looked to my husband to try and fix this one for me. Why wasn’t he trying to find a church for us in a newer building that wasn’t water damaged? My criticism of him and “our” church goes on from here; it is not good. I have tried to fill the void with a read-the-Bible-in-a-year App, Christian radio talk shows, following various ministries via email or Facebook, interacting with other believers via the same, and continuous prayer throughout the day including praying with Steve. But I crave real Christian fellowship. I crave Women’s Bible Study. There wasn’t even an outdoor baptismal service with our church this year and the annual hot dog roast will be a “no” in October due to the noxious exposures from the campfire. (The smoke was hell for me last year.) My heart is breaking on this one. I know the Lord sees it too. I trust Him. Just today I got the sense that I may need to reach out a little more and not wait for someone else to fix it. I contacted our “Encouragement Ministry” leader about starting something with others who are home bound and I am waiting to hear back from her. Hopefully it will be soon!
While we could discuss the solution to these problems the more important point here right now is that I know that each of these will bring goodness in due time. I have realized the promise of the Lord “restoring the years the locusts had eaten” (Joel 2:25) after my life fell apart in 2003. Joy returned and reminders of it are all around me. I have chosen to write about these things in hopes that you will pray alongside me for the Lord’s will and redeeming grace for these recent losses. Perhaps you, too, have loved and lost much while enduring all kinds of trials. Please let me know about them and I will pray for you.
Gentle Reader: we are to stand firm on the foundation of our faith in Jesus Christ who will:
- Make all things new. (Revelation 21:5)
- Direct our paths. (Proverbs 3:5-6)
- Extend His love, compassions, and faithfulness in newness every morning. (Lamentations 3:22-23)
- Remember us in our low estate with love that endures forever. (Psalm 136:23)
- Reward us for our faithfulness. (Matthew 6)
- Bless those who are good stewards of time, talents, and resources. (Luke 16 & Matthew 25)
And so much more. I am encouraged. My Jesus sits on the throne of my life and the throne of grace. He will make beauty from the ashes (Isaiah 61) which are the losses that characterize living a full life here with Him as our Lord and Savior. I trust His Word on this and hope that you will too. Let us rejoice with great expectation for the goodness to come!
Isaiah 61
10 I delight greatly in the Lord;
my soul rejoices in my God.
For he has clothed me with garments of salvation
and arrayed me in a robe of his righteousness,
as a bridegroom adorns his head like a priest,
and as a bride adorns herself with her jewels.
11 For as the soil makes the sprout come up
and a garden causes seeds to grow,
so the Sovereign Lord will make righteousness
and praise spring up before all nations.
The Exchange Rate
Acts 5 New International Version (NIV)
Ananias and Sapphira
5 Now a man named Ananias, together with his wife Sapphira, also sold a piece of property. 2 With his wife’s full knowledge he kept back part of the money for himself, but brought the rest and put it at the apostles’ feet.
3 Then Peter said, “Ananias, how is it that Satan has so filled your heart that you have lied to the Holy Spirit and have kept for yourself some of the money you received for the land? 4 Didn’t it belong to you before it was sold? And after it was sold, wasn’t the money at your disposal? What made you think of doing such a thing? You have not lied just to human beings but to God.”
5 When Ananias heard this, he fell down and died. And great fear seized all who heard what had happened. 6 Then some young men came forward, wrapped up his body, and carried him out and buried him.
7 About three hours later his wife came in, not knowing what had happened. 8 Peter asked her, “Tell me, is this the price you and Ananias got for the land?”
“Yes,” she said, “that is the price.”
9 Peter said to her, “How could you conspire to test the Spirit of the Lord? Listen! The feet of the men who buried your husband are at the door, and they will carry you out also.”
10 At that moment she fell down at his feet and died. Then the young men came in and, finding her dead, carried her out and buried her beside her husband. 11 Great fear seized the whole church and all who heard about these events.
Now that’s a serious consequence for lying! A death sentence! In the early Christian church, believers were giving freely of their wares and wealth for the cause of spreading the Gospel of Jesus Christ. I love our pastor’s commentary on this story (Paul Mowery). He explains that the point of the story is not that everyone had to sell everything they had to live as followers of Jesus Christ. The point is that Ananias and Sapphira were hypocritical in their outward gesture of donating the money from the sale of their land then holding back a portion for themselves. They were “lying by omission,” or making an appearance of generosity that was not completely true. They paid for their masquerade with their lives as the Lord was purging sin from the early church. To have a pure message of honesty and transparency was critical in the beginning of a movement that would change the world forever.
To die for one’s actions or beliefs is the highest exchange rate for one’s actions that can possibly be paid. What could be greater in this life? That is why the Lord gave His own life at the cross in exchange and atonement for our sins. He gave the greatest gift He could possibly sacrifice so that we may be forgiven of our transgressions and live in fellowship with Him forever in heaven. Gratefully we often get a second chance to make things right, seek forgiveness, and so on when we fail in our Christian walk. We don’t usually die for our sins, per se. Should I face death for my actions someday I do hope that it will be for my faith in Jesus Christ and not as a consequence of my mistakes. Or as a hypocrite. Gentle Reader: have you thought about such things?
Hmmmm. The ultimate exchange rate is death. Today I can relate to a lesser one too. Let me explain.
Yesterday I was given an opportunity to participate in an outdoor show of Master Gardener artisans and their handiwork. Gratefully I was among five vendors on display in the Woodland Garden of the Allen County Extension Office (Indiana) as part of our annual Garden Walk. I enjoyed putting together a new display of the best creations from Trinity Jewelry by Design, visiting with my fellow Master Gardeners, and meeting many avid gardeners/shoppers who came by. A few went home with some of my jewelry to the delight of my heart! The weather was mild and the cost was only a small donation and a few bug bites! The morning was lovely indeed.
However I knew I was over my activity limit as we were cleaning up afterwards: I could hardly hold my face together to smile. By the time I got into my truck to drive home I wasn’t sure just how I would make it home. If I relaxed even a tiny bit it felt like my body would erupt into seizure attacks. If I rallied enough energy to drive home with the utmost intensity of focus I would probably make it the 25 minutes o.k. but face more intense seizure attacks later on. I opted for plan B.
The next 21 hours after I got home were hell on earth. Sure I was unable to unpack my truck and take care of the dog before crashing onto our bed. Then I came unglued with a long episode of seizure attacks yet gratefully not the worst of late. The exhaustion from 3 hours of sleep the night before somehow reduced their intensity. Well, o.k. Thank you Jesus for the 4 more hours of uninterrupted sleep that followed! Unfortunately, things did not go so well as I was waking up. When a feeling of “tazoring” greets the disorientation of a deep sleep, all is not well with the world. I lain in bed with tic attacks on and off until midnight. When I got up to finish a light meal thereafter I’d wished I was back in bed! Convulsions are dangerous sitting at the kitchen table and it certainly worried the pup quite a bit too. Oh yeah, Steve was standing by as my daily night in shining armor, just in case he needed to carry me back to bed. Nope. Made it on my own this time.
The middle of the evening was quite interesting as well. Steve and I now agree that his paddling on the murky waters of the St. Mary River in Fort Wayne this morning provided an insidious, noxious exposure for me. He had taken numerous precautions after returning home from his victorious kayak race. As it turns out, one shower and change of clothing was not enough. This dear man took a second shower with a second clean towel and change of clothing for me despite exhaustion from racing and mowing the lawn while I was sleeping! Yes, Steve is a saint! Figuring all of this out was very intense for us with both a heated exchange of words and extremely violent convulsions. The three episodes of the latter included screaming in torment at the top of my lungs! I could not help it. My brain was on fire and the vocalizations just came out. Those of you who do not believe that hell is a real place have never experienced a glimpse of it here on earth. The Bible talks about weeping, gnashing of teeth, eternal fire, and eternal torment. I say get right with Jesus NOW! You don’t want this forever if you don’t!
I woke up about 6 times with the tazoring thing. The last episode was shortly after I awakened Sunday morning around 11:00 a.m. Steve had already gone off to church so I lain there alone. Sometimes I just can’t sort out what is more terrifying: the symptoms themselves or experiencing them when home alone? Both are wretched. By the grace of God I managed not to panic as I have been through this torture hundreds of times before. Yes, that’s hundreds with thousands of individual incidences! The number is just enough to know that based upon my experiences, they will not kill me and at some point I will be able to function at some level. That level came shortly thereafter as I made my way to the bathroom then finally to the kitchen to satisfy my ravenous appetite. At least these episodes burn a few calories! Sish. Very weakly , today began.
So four hours of near normalcy (just one tic attack during the Garden Walk) was an exchange for 21 hours of hell plus some sleep. Not a very good trade-off I’m sure we would agree! And this is simply how life goes for me. I set in motion a will to participate in the event on Saturday knowing that for it to be possible would be a miracle. For at least 5 days prior to yesterday’s event, I had 1-2 hour seizure/tazor episodes from 8-10 in the morning in addition to nightly episodes. Falling asleep Friday night was typical: exceedingly awful as usual. Most every day this past week, morning activities had to be cancelled in response to either the episodes or the recovery time needed thereafter. Today I am exceedingly grateful for having the opportunity to participate in two activities that I love (i.e. gardening and jewelry-making) with sadness about missing Steve’s kayaking race.
Ah yes, the canoe and kayak race hosted by my husband. This is the last of the races to be held in our town for the United States Canoe Association Indiana points races and I had already missed the other one by a couple of hours. The reality is that I simply could not risk standing by the side of the murky St. Mary River with a biotoxin illness near other racers accessing the river. The noxious aerosols and risk of exposure were too great. I do try to avoid seizure attacks in public you know! I had checked out the riverbank earlier in the week on Tuesday before discussing it with Steve and making a final decision. Given my response to Steve after he came home, I knew that I had made the right, albeit difficult choice. Life is like that sometimes.
Further, while my own experiences often shared on this blog are particularly wretched, they are NOTHING in comparison to the sacrifices denoted above or in the Biblical record. I have not lost my life in my own rites, my own rates of exchange of one activity for another. I chose to participate in the Garden Walk out of an attempt to cope with illness, not to separate my self from the fellowship of the Holy God. My actions resulted in consequences. The result of my actions were not based upon sin but upon living in a fallen world because of mankind’s sin. Disease and strife exist because of the sin of two people in the Garden of Eden at the beginning of time. They were redeemed by God as we are redeemed by believing in God through His son, Jesus Christ. He makes all things new, bringing ourselves in eternal fellowship with Him when we humble ourselves and confess our transgressions, believing in what He did for us at His throne of grace. We also know that when He comes again in glory for His own that He will wipe out disease and strife forever. Knowing all of this gives me confidence that in the things that matter the most and that I have made the best decisions for my circumstances, for my life. Most importantly I have chosen to follow Jesus, Lord and Savior of my life. Someday I will be free from all of this suffering and there no longer will be an “exchange rate” of sorts. All there will be is JOY. Yes, joy!
You know, Gentle Reader, I’m hoping that these things that I write about are somehow of benefit to you. Please don’t spend more than a moment empathizing about me when you can spend the rest of your days experiencing joy with me for all of eternity. Look beyond this blog to the One who introduced me to you. I am so grateful that we have come together this day. May the Lord bless you! As He does I hope that you will choose to come closer to the One who paid it all for both of us. I want to meet you someday and in the family of Christ it will happen no matter how far apart we are in this moment. Then we shall walk together in fellowship with our King in the most exquisite of gardens for a millennia of days . . .
And that my friend is my “Hope Beyond” for this blog. Love to you, Just Julie
You bring me joy
How about playing a little tune while enjoying the view that encourages me these days: my beloved and my garden. Enjoy!
Song to play:
Pictures from my heart of gratitude. Thank you Jesus. You are so good to me. JJ
You have made a difference!
I am grateful for the love, care, and support of some special folks who have helped me make it through nearly two years of serious illness. I am also sad for those who have left my life or misunderstood this time in my life. Hardship is not contagious folks!
First, the good stuff. The person nearest and dearest to my heart is my beloved husband, Steve. I am amazed when I gaze into his blue eyes at the sincerity of his love for me and for the Lord too. When he comes close and holds me through a tough episode, cradling my neck in his hands to comfort me and minimize the trauma of various noxious symptoms, I am humbled! There are not many people on the planet that would do this even for a loved one two years “down the road.” Many would become exasperated, angry, indifferent, or worse by now. Thank you Lord for this amazing man. Thank you for my “Jesus with skin on.”
The next group of folks closest to the fire, so to speak, who have helped me to survive are my Lyme Literate Medical Doctor and our local Lyme disease support group (who are largely his patients). You understand! You get it! And you believe me! When my Doc calls me on a Saturday with the name of a pharmacy where I can get a medication almost $100 USD cheaper, I am grateful! When it’s my turn to share at our monthly Lyme group meeting and my tummy is happy from the yummy snacks we bring that fit our special dietary restrictions, I feel loved! And then when we exchange text messages or Cindy, or Roberta or Diana offers help with a special task, I am humbled. Oh how I pray I may serve you too in your time of need.
A few dear friends and family members have witnessed and endured much of the past 10 years of this incredible journey of transformation. I love the kind of relationships that go on no matter what life brings, picking up when we meet again as if no time has passed. I hope my brother Mike, Brenda, Deb, Kinsey, Patrice, Mary, Judy, Maria, Tami, and a few others feel the same way? Now that my parents and grandparents have passed away, I appreciate even more my extended family including my Other Mom, Other Dad, Uncle Dave, Aunt Lori, Aunt Patty, and Aunt Shirley. I love you and thank you for investing in my life.
There’s a special place in my heart for the online community. Whether I met you on a Facebook Lyme forum, your blog or when you commented on my blog, I credit you with keeping me sane at the odd times of day when no one else cares! Thank you for your “likes,” for following this blog, for your comments and suggestions, for your time. The greatest gift from a friend is a gift of his or her time. When you reach out to me I know that I am not alone. While the internet can be a ruthless place, I am grateful for it’s goodness, especially when I am awake in the middle of the night. It’s pretty cool that my buds in the UK or West coast of the US are online when I am! Please let me know how I may return your kindness.
I’ll save the best for last. In the interim, I’ll briefly state my sorrow for those who have chosen to leave my life. He or she will not be reading this so I won’t waste much white space gushing this or that emotion. I am grateful that when I have endured hardship in the past, I learned the importance of letting go of the people, places, and things that leave my life at these times. Perhaps saying goodbye makes room to welcome the blessings that are to come? Thank you for all that you have taught me. Godspeed, dear ones. I’ll be here if you want to stop by for a chat or walk around the block in the future. As for the things, well they are just things. So long.
And now for the best: the One who knew me and my frame before I was born, fearfully and wonderfully made by Your guiding hand. (Psalm 139) I love you Lord and thank you for saving me from my path of destruction as a young woman. I praise you for crafting the incredible events of my life to bring me more blessing than I could have ever imagined in the middle of my journey on this earth. While I do not fully understand the sorrows that have come, I am convinced that You hold my tears in your hand, counting and caring for each drop, every pain. I have never felt alone. Thank you Jesus for bringing me to Your throne of grace where I may dwell in Your presence now and forevermore. Grow my trust in Your promises, Your plan for my life, Your will for me all that is around me in this world that is troublesome. Come soon my Lord!
So for all of you and you and you and you and You who have made a difference in my life, I give thanks. If I have screwed up somewhere, please let me know and consider forgiving me. I want to make it right if I can. And if any good comes from me, these blogs, or anything else, to God be the glory. He is worthy to be praised!
Jesus is for the Wounded 
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