Twas a dark and rainy night deep in the heart of Texas . . .

‘Twas a dark and rainy night deep in the heart of Texas.  We had just travelled over 1200 miles the past two days when the 5-pointed star on the black metal gate came into view.  In just a few minutes we would be safely in bed, asleep at last.  Or so we thought anyways!

Rain had sprinkled the roads without incident for the last few hours as our caravan had made its way from Indiana to Texas.  Since when does it rain in the Lone Star State?  Well it’s good for them but not for the weary travelers who must set up camp in the muddy grounds of my in-law’s ranchette.  As it should be, the horses roam free here and reminders of this are soft underfoot as we park near the barn.  Holy crap!

The plastic mat near the door, that I read on an RV forum to be a nifty idea, went from good to bad in a matter of minutes!  It would be another hour before we would realize that we should not wear shoes inside the newly outfitted travel trailer that would be our home for the week.  Remnants of Armani and Buddy would grace our socks and that’s just the way it would be.  Eventually we tucked our shoes underneath the camper to keep them dry.  O.k. That works!

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Our pup Elle adapted quickly to the wide open spaces.  I never really saw where she decided to potty over the course of our visit and that is just fine by me.  Eventually the mounds of racquet-ball sized horse manure would dry on all of us and we would figure out the clearest path from the trailer to the house in the daytime and in the nighttime too.  We simply opted to wipe Elle’s feet every time before she entered our humble abode for the night.  The rest of the time?  I just cannot account for that.  She settled in with the old girl lab, Leah, and darling retriever, Molly, in their respective pecking order and all was well with the world.  Elle would be depressed for days after returning home for having bonded with everything furry out there . . .

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But the tasks at hand upon our arrival to KK Ranch were not done yet as morning drew near.  Attaching our heavy duty power cord tripped the breaker in the barn no matter how my beloved Steve tried to configure it.  At 4 in the morning we just did not feel comfortable waking up Kyle and Katherine for advice.  Lights, refrigeration, and microwave/convection power would have to wait; we had what power we needed from our stored battery power.  Then in a stroke of genius, Steve attached the charger to the shore power via the smaller outdoor cord provided then attached the charger to the battery of the trailer.  Ola!  We had enough AC to run the lights and tickle the frig until we could figure out a better configuration in the daylight.  In the end Steve ran two separate cords from each of the two outlets to the camper:  one for the frig and a second one for the lights and electric heater.  We simply would not use the microwave for this leg of our trip.  No problemmo.

Then our attention turned to connecting water supply.  Most folks not familiar with trailer and RV camping have probably seen the American Lampoon and Robin William’s RV movies that magnify the importance of good sewer lines and running H2O!  If you don’t have access to fresh water, things go bad really fast!  Steve attempted to connect our two hoses to the spicket adjacent to the barn only to find that the short threading of the former prevented attachment.  No problemmo once again.  That’s why we brought extra water in case of an emergency for flushing the toilet, rinsing our hands, and nourishing the dog.  Within a day we were able to get everything together but the spicket leaked badly, flooding the ground around the barn.  Within another couple of days our gracious host purchased some new hoses, pulled everything together with a firm twist of a massive wrench, and all was well with the world.

The day we over-filled the black water tank underneath the trailer came as a surprise.  Only 3 1/2 days had passed and we were nearly maxed out!  By this point we had already dumped the gray water tank onto the ground ’cause hey, this is the country ya know?  A little soapy water from the sink and shower is good for the land anyways.  But dumping raw sewage even softened with an biodegradable enzyme tablet is not exactly the best gift to leave behind after a holiday weekend with relatives!  This created a dilemma for me.  I need to get up multiple times in the middle of the night pre and post-seizure episodes to use the facilities.  Walking 50 yards in the dark to go into the house would surely keep me up more of the night than would be advisable to sacrifice.  Somehow in the end, we made it to the max of our capacity just one day before departure and visiting the free dumping facilities of the Flying J truck stop north of Austin.  It is amazing how much “stuff” that tank can hold!

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And just when we thought the initiation of the newbie travel trailerers would be complete, there was one final challenge and it came in the light of day at the end of our stay.  Ya know, we don’t intend to use the television anyways!  My beloved whacked the T.V. antenna on a lower branch of a tree as we were preparing to leave KK Ranch.  The mushroom shaped projection on the roof got sheared off at its base leaving a black cord dangling mercilessly from beyond our reach.  Oh well.  Our roof is more streamlined now!

Arriving in a foreign land in the middle of the night poses a test of character for even the most seasoned of married couples.  In the end I had to smile at the interpretation each of us had at all of the unfortunate circumstances we faced together.  While Steve was facing the elements in the crud and cool evening air when we arrived, I was setting up camp inside our humble abode and taking care of the pup.  This is how we work as a team and that is nothing new for us.  We both get busy completing the tasks at hand.  The bigger picture was telling a different story however; we shared that one with each another after some sleep.

My beloved was concerned that I might be upset that he requested we drive very long days to get to our destination in just two days instead of the almost three days we spent over the same route last year.  Arriving in the middle of the night came as a consequence of driving 12 or more hours each day and leaving later than expected trying to get everything prepared for each leg of our journey.  On the other hand I was concerned he would be upset with me that we have to bother with all of this travel trailer stuff and expense to meet my health needs.  When the Lord graciously provided the resources to purchase a new-used unit and outfit it according to my sensitivity needs I did not realize that I had overwhelmed Steve with this project.  Making allergy-free cushions, finding the right wheel chocks, assembling enough linens from here and there, and so on was fun to focus on when so much of my time is spent in the throes of illness and recovery.  In the end we worked through all of it and had some fun creating this new memory together.

Somewhere in the middle of this night in a land far away is another starry-eyed couple making a cross country journey.  Somewhere in the course of things they will encounter wacky setbacks and have to go to bed with remnants of those unpleasantries still stuck to their feet between the sheets.  I hope that they too will discover the wonder of it all:  ’tis better to smile and say goodnight than to expect things to be perfect and crash into bed in a different heart-place.  “Trust the process” has been my mantra over many years as a believer in the Lord Jesus Christ and over many trials.  Besides if everything worked out right all of the time, what would we all blog about anyways?

Happy trails campers!  JJ

 

I am sure of it

 

Multitasking cartoon

Unlike the brain fog of this cartoon, I am going to get well.  I am sure of it!

The second week into the use of an atypical chelating agent (Zeolite by Zeo Health)  for very high mercury levels has brought more moments of mental clarity than I can ever remember in my entire life.  Oh sure there are ongoing seizure attack episodes yet they are generally 50% improved overall!!!!!!  I could not say this after any other treatment protocol attempted these past 3 years.  I could not say this even after the initial relief from high CBD hemp oil (the industrial hemp counterpart to cannabis oil).  I could not say this after antibiotics or Rife treatment with the Beam Ray.  I did not say this after (27) IV infusions of magnesium last Fall.  I could not say this after extensive and expensive mold remediation in 2013.  Even after aggressive treatment for candida over 2 years, I could not say this.  But I will say it again:

I AM GOING TO GET WELL!!!!!!

There is only one person to thank for this new direction:  the Lord, Jesus Christ.  At a time when multiple factors have come together at last, the path has cleared and hope is restored over here because of His mercy and grace.  A key factor in this process is humility.  More on that in a moment.  I also want to thank my chiropractor:  Dr. Lee Nagel at DeKalb Chiropractic Center in Waterloo, Indiana.  He had a hunch early on in my care that I was suffering from mercury poisoning.  After all, two hair analysis tests revealed mercury and other heavy metal toxicity in the year 2000 and again in 2011 but both times my respective Family Practice Physician (FPP) minimized the results.  Both times the Dr. thought I would be unable to tolerate a special type of detoxification protocol called chelation that would be required to remove heavy metals.  So off we went each time in another direction instead until my life of hell began with viral hepatitis October 11, 2011 and escalated into daily seizures beginning in March of 2012.

Dr. Nagle had high mercury levels discovered by his cardiologist.  His health improved after treatment thus placing mercury issues on his clinical radar.  Dr. Nagle, father of three, is one of the most adventurist and athletic people I have ever met (behind my beloved Stevers of course!).  His chiropractic practice rarely includes medical testing but he made an exception with me.  Thank you!  It took a month to get the testing protocol right then the results revealed the shocking reality of a probable root cause of illness for me:  very high mercury levels.  (Please refer to this excellent summary to learn more about this devastating substance.  Original citation available upon request.)  After a false starts with a quack-y Dr. who claimed to provide chelation, my current FPP is guiding me in the use of chelation and increasing other gentle methods of detoxification that have worked well for me.  By the way, my FPP has also recovered from mercury poisoning that almost took his life!

All of this is very humbling after 3 wretched years of illness and 23 years of chronic pain aka fibromyalgia.  While I do recognize that I have a new, long course of treatment ahead of me, I am exceedingly grateful to discover a root cause of much of my suffering.  Holy cow!  A successful outcome could help more than the seizures.  Yeah God!  Both Steve and I are really hopeful this time.  And it is with mental clarity at 4:30 in the morning that I write this to you!  So grateful for the 3-hour nap earlier tonight.  Yeah, the weird sleep schedule continues a bit!

And now about humility.  These entire three years have presented challenges requiring me to trust God for everything up to my next breath.  I submitted to the loving care of my gracious husband as he needed to carry me to the toilet a hundred times; help me to shower, feed or dress me when I could not about once per week; carry me to bed often so he would be near as he tried to catch some sleep before work,  rush me off the emergency room FIVE TIMES, and so much more.   Oh Gentle Reader, have you sensed that I am a recovering Type A personality?  A first born of my siblings in my family of origin?  That I started working when I was 16 years old with babysitting jobs before then?  That I am capable of taking care of myself thank you very much?  This is the longest and most extreme period of need that I have ever experienced.  I have had to let go of everything during these past three years.  At another time I will write about facing death when my breathing would freeze multiple times during seizure attack episodes.  And with all of this, I did not die of embarrassment or lack of oxygen.  My Heavenly Father and earthly husband have carried me through to this next season of recovery.  I AM HUMBLED!  Thank you seems too small.  I love you both!

Briefly, there were two other tasks I believe needed to be completed during this time:  1) learning to depend completely upon my husband for material needs and 2) realizing that the little activities I got to do here and there would become new skills, new relationships, and new activities that would become my future.  Both were tasks that probably would not have come without grounding in Jesus Christ or needing to cope with the crises of severe illness.  I probably would not have seen so clearly and (hopefully) fully submitted to the incredible character strengths of my beloved had I not become so broken.  Steve is my spiritual leader and head of household and I am grateful.  Long before we met I know what it took when my life fell apart in 2003 to soften me into the kind of woman that my beloved would choose to love.  I now see more clearly what kind of man the Lord has provided for me to love in return.  I AM EXCEEDINGLY BLESSED!

So join me, if you will, for an amazing adventure of recovery from serious illness.  IT IS HAPPENING!  So much fun awaits!  Thank you for riding along with me.  May we both praise the Lord for the good that is here now.

Hope is a good thing, eh?  I am sure of it.  JJ

Psalm 62:5-8 (NIV)

Yes, my soul, find rest in God;
    my hope comes from him.
Truly he is my rock and my salvation;
    he is my fortress, I will not be shaken.
My salvation and my honor depend on God;
    he is my mighty rock, my refuge.
Trust in him at all times, you people;
    pour out your hearts to him,
    for God is our refuge.

 

Numb but Hopeful

I love Patrick Klein’s words from the Vision Beyond Borders newsletter this week:

Psalm 143:10-12 says, “Teach me to do your will, for you are my God; may your good Spirit lead me on level ground. For your name’s sake, O Lord, preserve my life; in your righteousness, bring me out of trouble. In your unfailing love, silence my enemies; destroy all my foes, for I am your servant.” Doing God’s will does not come naturally; our natural tendency is to satisfy our fleshly and worldly desires. We must be taught and transformed by God to do His will. When His Spirit leads us, it is on level ground. He alone can make crooked paths straight. Our duty is to remember that what we do is for His name’s sake. It is not about us. He alone can best determine how He desires for us to bring glory to His name. It is not for us to determine. Despite hardships, trials or persecution that may be allowed in our lives, God can preserve us and bring us out of our trouble. 

Our only responsibility in all of this is to simply remember our role. We are to be servants of Christ. Often we grow weary because we are trying to do His part. We are trying to figure out where He is taking us rather than allowing Him to lead us. We are trying to figure out how to preserve our lives and bring ourselves out of trouble rather than allowing Him to bring us out. We are trying to silence our enemies and destroy our foes when that is not our work. We are not made for those things, and it is exhausting. Our duty is simply to look to God and serve Him, allowing Him to do these things for His servants! We don’t have to strive, we simply have to come to Him. His yoke is easy and His burden is light; we will find rest for our souls. May we faithfully seek Him, serve Him and remain completely in Him, trusting Him to show us each step! 

Thank you Patrick.  Last night I started using yet another binding agent (Zeolite) to try to encapsulate and detox mercury from my weakened frame.  Afterwards I felt very weird!  We were Skyping with my husband’s daughter in Thailand and it was all I could do to chat a bit, smile a bit, and keep my shoulders from hiking up to my ears!  The nightly seizure attack episode was significantly shorter and I fell asleep at a more reasonable time, around 1:30 a.m.  Hell was waiting for me this morning and returned with more violence a couple of hours later.  Can you say “mad as a hatter?”  Well if you were a hatmaker in the 19th century you might be more familiar with mercury poisoning than the current medical profession.   So let’s see if we can figure this one out, eh?

#1  Trust in the Lord and lean not on our own understanding.  (Proverbs 3:5-6)

#2  Follow the clues and think about how chelation works for mercury and heavy metals.  Most protocols require regular treatments for a given interval of time, sometimes as often as every 4 hours.  (See the Cutler protocol.)  The rebound occurred about 12 hours after the first dose of a true chelating agent.

#3  Consider a repeat, low level dose at regular intervals to bind and remove the newly circulating toxins.

#4  Relief came within minutes when the detox agent was consumed with lots of water.

And after resting, eating, sitting out in the lovely Fall sunshine, I am upright.  This is good.  I am also extraordinarily humbled by some incredible blessings this week and will end with four to match the points enumerated above:

#1  Unfailing love in the eyes of my intended beloved, Steve.  When I am in his arms no matter what the circumstances, I feel the love, care, and compassion of my Heavenly Husband too.  Thank you Jesus for Steve.  Please love and bless Him.  Cover our marriage with your grace.  May others see a good work in all of this for your glory Lord.

#2  Treatment options that provide some relief.  I believe that the pattern of suffering is about to change for the better and we are exceedingly grateful.

#3  Wisdom that ultimately comes from the Lord.  I have learned so much these past 3 years and have received blessings, gained new skills, met new people, cleared out some excess baggage, and found a voice that I pray will glorify you here.

#4  Hope.  No matter what the burden may be (and we both need not look far to see horrific burdens that our brothers and sisters in Christ must bear for their belief in Him), He will prevail.  As a new friend, Karan Gleddie, brought to light this week we are to “set (our) minds on things above, not on earthly things.”  (Col. 3:2)  Therein we too will find our hope, our peace, our happiness.  And as Patrick reminded me, we are to serve with the strength of Christ for His namesake.  With our eyes on Christ all things are possible.

Gentle Reader, how may I pray for you today?

Colossians 3:2
Colossians 3:2

 

Moments so dear

wed-5In the closeness of our embrace

I longed to stay there all night.

Alas I could not for the darkness shook within my soul:

An unknown sort that is staying longer than its welcome.

He went away to catch the rest sorely needed

After caring for me again late into the moonlight as every night for awhile.

Sometimes it’s just to say “hey,” sometimes to nourish my weakened frame:

Oh how his love has shown true in sickness and in health as promised.

How will I love thee as you have loved me my dear?

Could there ever be a way to fill your coffers with sweet blessings as you have mine?

I hope we have many years to find out together my humble knight

To explore the longings of nights ended much to soon —

In this I too shall rest, with hope and great expectation

Of a day languishing with you in a string of moments so dear.

For now it’s “goodnight my love.”  Until that day comes I shall love thee in my heart more than my touch can say . . .

The life I once lived

I’ve taken on a few phrases from others and made them my own over the years, ones that put a bunch of thoughts into a phrase or short sentence.  Not that these would bode well as my epitaph or anything like that mind you!  They just seemed to stick with me.  Here’s a biggie from an old supervisor named Jim.  He was a social worker by training and the director of the inpatient geriatric psychiatric unit where I was contracted to work.  When asked how things were going he would often reply:

“Same story, different day.”

Funny thing is that it was largely true.  On the Generations Unit there generally was at least one person every day screaming non-stop, voiding in an inappropriate location, wandering into another patient’s room unannounced, refusing to eat, refusing to get out of bed, or making up a story to convince him and psychiatrist that he/she did not need to be there.  Yes it was a crazy place.  That’s what you get when the nursing homes send their residents whose behavior can no longer be managed in their facility.  It is also where a depressed little old lady or your suicidal Uncle Pete would go for supportive therapies, meds., daily structured activities, and a round of ECT if needed (aka shock therapy!).  The latter actually worked very well for older adults.  The short term memory loss and massive headache was a major drag for awhile, however!

I worked there as an occupational therapist.  My role was to evaluate the functional level of the patient and assist the team in forecasting discharge plans while providing therapeutic activities.  The goal was always to achieve improved mental status, mood, and functioning for discharge to the least restrictive environment.  That might translate to a person returning home instead of assisted living or remaining in a private room in a nursing home instead of a locked dementia unit.  Sometimes the patient’s goals were reached and sometimes not.  Educating the family on the patient’s needs post discharge was also my role:  an important and sometimes delicate process.  I loved all of it.  I got to apply my skills in standardized assessments, grading activities for the best outcome in lower and higher level cognitive groups, patient and family education, and knowledge of community resources that may be of assistance post discharge.  The two latter skills were collaborated with the unit social workers who also loved working with older adults.  We had a great team back then . . .

I’ll never forget the two weeks that c-diff ran rampant through the unit.  C-diff is short for Clostridium difficile:  an infection of the colon causing horrific diarrhea and inflammation.  It’s a bacterial infection I can now diagnose by smell.  O.k. perhaps that’s too much information?  When virtually all of the inpatients become sick it is only a matter of time before the staff contract the infection as well.  There are just too many common areas in a locked unit that too many people end up touching with a contaminated hand after caring for a patient.  The motto those days was, “please pass the yogurt” or something similar!

Ruth was the best during situations like that.  She was older than me and had been a Certified Nursing Assistant for years.  She could get the toughest old bird to take a shower when he was resisting for days then she would turn around and feed a tender soul in the late stages of Alzheimer’s disease bringing out the patient’s long-forgotten smile producing a long-lost twinkle in her eye.  Ruth often told us stories of her pet pot-bellied pig.  Seriously!  The beast weighed a couple hundred pounds but was part of their family, inside the house, potty-trained and behaved like a favorite feline or pup.  I could not imagine it!  Ruth lived in a suburban neighborhood like the rest of us!  Actually more recently while living in a smaller town with Amish homesteads not far away I can now start to imagine it a little better.  It’s still not for me, however!

The life I once lived was in the suburbs of Chicago amongst 8 million other people.  I was married and lived in a townhouse as it was the only affordable option even for two Master-degreed professionals or DINKS:  double income no kids.  We attended a mega church then a smaller Bible church, organized a yearly block party in the court of our neighborhood, and took walks together in regional parks called Forest Preserves.  I enjoyed neighborhood walks and riding my hybrid bicycle (between that designed for road touring and trail riding).  Holidays were spent with family in various cities as everyone was out of State for our Illinois locale.  Sure there were ups and downs with health issues or financial stressors but largely each day of our lives was the “same story, different day.”  When this got to be too much for my former spouse he found a way out and took it.  Hmmmm.  Alternately I found that you don’t really need a way out, per se.  Sometimes the “difference” we are seeking finds us as part of the Lord’s plan for our lives and it comes from within us instead of in the form of persons, places, or things . . .

Flash forward a myriad of moves of my residence, a change in the car I was driving, changing my job four times, transitions to new hair and clothing styles, some weight loss, and eventually moving to Indiana to marry Steve — over 10 years later I rarely say that old phrase anymore.  Oh even if nothing much has changed lately in my health or the circumstances of battling a serious illness, there are always new discoveries meeting me each day.  Things simply cannot be boring when you marry a man with as much energy as Steve!  He keeps me going just keeping up with all of his activities even when he is not home!  First there’s his four adult children and their families, then there’s his hobbies and sports, and his participation in the worship of our Lord Jesus Christ; the latter always brings news related to our church fellowship in addition to an intriguing message from the pages of the Bible.  That’s a lot to keep track of and I love it.  My garden, online jewelry business, and this blog fill in much of the rest of the time not taken with health-related activities.  How could I ask for more when my heart is full?

Sure my life has changed in the last decade or so and I’ll bet it’s the same for you too, Gentle Reader.  Is that o.k. with us?  As for me I would never have asked for the difficulties that have come in recent years that have added more “excitement” and stress than I could ever have imagined.  The crazy thing is that I would also have never known how to ask for the blessings that have come from this particular path either.  I would not want to be without the blessings just to have had an easier life.  I believe that I am exactly within the will of my Heavenly Father, that He has His hand on my life and my heart warmed in the shelter of His mighty wings.  He goes with me, goes before me this moment and the next; there are signs of His wonders sprinkled everywhere in my days.  I am so glad that I am not bored with my life.  Well yes of course there are times I’d like a little less “excitement!”  Yet that’s when I need to rest my cares at His throne of grace, allow Him to carry me like the famous Footprints in the Sand poem so graphically portrays, or wait on the Lord in the quietness of a moment of prayer . . .

I’m going to keep my head up and do like my brother, Mike, always used to say:  “keep moving forward.”  The life I once lived is gone but not forgotten.  Those memories bring gratitude for all that the Lord has placed in my life today:  a story that is never really the same.  In time my Lord will make all things beautiful.  In the meantime though I think it is finally time for me to go to bed!  There is a calmness in my spirit at last.  The sun is coming up and the birds are singing their morning hello just outside my window.  For me it will serve as a happy goodnight lullaby as I snuggle up to my intended beloved who brings me more joy than I could ever imagine.  Real love and more is here now.

Yes, Lord, it will be a good day I think.  :J

footprints-man-beach-morning