It Just Doesn’t Matter that much anymore

What others think of me, especially online, used to concern me to the point of scrutinizing every typo and punctuation mark!  Tell you what, it just doesn’t matter that much anymore (IJDMTMA).

Keeping in mind the reason for every significant action in my life so I can justify it, rationalize any lapse in judgment, or simply give me another reason to criticize myself occupies less of my mental space these days.  It takes too much energy.  Any other reasons would go against what I just said!  IJDMTMA.

Cataloging significant records that document the divorce I endured, the major court case I lost, the medical conditions that have come my way, too many artifacts and photos of special events, and purchasing new file cabinets to keep track of these events and more (I have 15 packed drawers in various lateral files, desk drawers and file cabinets, plus quite a few plastic bins around!) involves more-purging-than-storing these days.  If I need it that badly surely I can find it online somewhere, right?  IJDMTMA.

I now live in a town where the cost of living is so affordable that a few people I know have a second home just to store their stuff!  Or folks rent storage spaces in addition to their primary residences (and I am not talking about those living in an apartment or condo!). Gratefully my husband, Steve, and I live in a modest home that requires us to purge stuff periodically!  We don’t want to keep accumulating stuff!  This Christmas I will need to discard numerous Christmas decorations that were up before we remediated our home for mold damage.  The most treasured items will be consolidated into one bin.  I’m going to have to get tough and proclaim:  IJDMTMA.

Similarly, musty memories, painful flashbacks, grief beyond what most must endure, and the drag-me-down burdens that comprise life’s worries have come to the surface with the wretched convulsive episodes of the illness I have been battling.  I simply could not stop the process if I tried.  Perhaps these came as a consequence of a few illnesses that have affected my brain?  No one knows.  What I do know is that If there are to be any redeeming benefits to the nightmares of these past 4 years it must include the involuntary healing that came as these demons were set free.  Yes, the seizures helped release some bad stuff going on in my head.  Carrying this mental baggage has gone down immensely along with the emotional pain.  A different kind of healing has occurred as a result.  Joyfully, IJDMTMA.

The losses of what I once held so dear (i.e. many relationships, my occupational role of 32 years, more financial freedom, certain activities, physical fitness, and the ability to function normally) has been heartbreaking.  But just like learning to let go of other people, places, and things in my life, these intangibles had to be released to the care of my Heavenly Father as well.  At this point I do not know if any of them will come back.  Amazingly I have discovered that I still can have some good moments, make new friends and memories, have everything that I really need, and experience love like never before even with a total life makeover.  To the need for having things be just so I say, IJDMTMA.  Life goes better when held more lightly in the wonder of the moment . . .

How do I convey that “IJDMTMA” is a relatively peaceful, not a sad or angry place in which to be?  I simply have to be here right now.  This attitude has become like a protective coating to keep me from falling apart, from losing what is left, from thinking that my Jesus has abandoned me. He has not!  IJDMTMA is the construct into which I must retreat lest the grieving of what is no longer here overtakes me and blinds me to the goodness that still remains.   In Ezekiel 3:8, the Lord shows His prophet that He will indeed allow him to become “hardened” so that Ezekiel may not lose heart as he carries out the work of ministering to the nation of Israel still in exile.  Wow!  A God-ordained rebellion of sorts will help keep Ezekiel from discouragement.  A toughening will help him and his gifts to continue to be used for God’s glory.  Yes, I want the will and glory of my Lord too.  In the cocoon my Lord has woven for me I can say to all that other stuff:  IJDMTMA.

It just doesn’t matter that much anymore that things aren’t the way they should be or used to be.  I am still here and that matters to me.  Much goodness still surrounds me as I look around this room where I am sitting and see the pictures, handiwork, awards, furniture, and records that tell the stories of Steve and Julie.  Cool beans.  Better yet, just look into our eyes or sit and chat a spell to see more closely what real life looks like in those who are grounded in trusting the Lord for each hour of the day.  It isn’t perfect.  We don’t want our lives to be perfect anyways.  I have a sense that maybe yours isn’t perfect either.  It’s going to be o.k. for those who are in Christ Jesus.  One day soon we will be in His presence and the real stuff of life will be revealed.  And with His glorious light shining all around us we will be with our Lord and Savior for always . . .

Coming to faith in Christ does matter to make this all possible.  Dwelling in the presence of the Lord for all time will bring lightness of heart for all of eternity.  I will be there.  Will I get to see you there too Gentle Reader?

I’m tired.  Goodnight all.  JJ  Ezekiel, harden not your hearts, suffering, endurance, it don't matter to me, what matters most, Christian, marriage, overcoming, chronic illness, chronic pain, hope, trust, the Lord

The Do It Sick Chef Makes 5 Part Vitamix Soup

You can’t beat a bowl or mug of a steamy, creamy, savory soup on a cool Fall day, right?  Oh yeah, and it can be an essential way to warm up in the Winter time too.  Well it ain’t getting any warmer here in the Midwest of the United States so get out that high-speed blender (the Vitamix is my favorite) and let’s get cranking!

Here you will find a video and recipe for my own 5 Part Vitamix Soup.  Feel free to substitute 1 or 2 other veggies, another crunchy element (such as corn chips, rice crisps, and the like), and your favorite high-fiber food for the pumpkin seeds used in this segment.  I am so grateful to be learning as I’m going in this Do It Sick Chef video series.  Hey, I even got sort of dressed up for this one!  Take care, JJ

5 Part Vitamix Soup Recipe as a pdf document.

5 Part Vitamix Soup Recipe as a Word document.

Can we talk here?

One of the most hilarious comedians in my humble opinion was Joan Rivers.  I got to see her live in Las Vegas many years ago and many of her skits are still fresh in my mind.  She would blurt out under her breath, “Can we talk here?” just as she was about to dish the dirt on a celebrity or delve into the hairy details of a sensitive topic.  While in more recent years I became a fan of Christian comedienne Chonda Pierce more than Ms. Rivers yet I will always remember this phrase, drawing me close, now drawing you close as well.

Can we talk about the bowel?  I have become more acquainted with this topic than I really should at my age!  Usually a discussion of bowel habits marks the conversation of persons over the age of 65 and especially those over 85.  I know this.  I have worked with thousands of seniors as an occupational therapist.  Improving independence in the skills required in toileting is one of our areas of expertise.  Need a raised toilet seat?  Secure handhold when transferring onto the commode?  Yeah, that usually triggered additional self-disclosure from my client on his or her last BM which went beyond my area of expertise!  (For more on toileting accessibility, see Part 1 and Part 2 in my professional website, Two Step Solutions.)  Older adults often talk openly about their bodies in such an intimate setting you know.

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From all of this I was determined NOT to talk about such matters . . . until today.  So let’s get to it.  The bottom line is that gut motility is a natural body function for all of us, right?  Soooo, I ended up in the Emergency Room this past weekend for abdominal pain and back pain.  Both exacerbated the daily convulsive episodes such that I could not bear to be me anymore!  The staff of the Regional Medical Center administered IV fluids and a battery of tests resulting in the seizures and back pain diminishing while the abdominal pain continued.  Flash forward to Monday afternoon and a call to my Primary Physician’s office.  Unfortunately I soon discovered that he was to be out of town on a family emergency for the entire week!  I prayed for him and then I prayed for me.  What should I do now?  The tummy pain was continuing.

By the grace of God and by phone, my incredible family doctor was able to figure out what to do and recommend treatment.  The CT scan had shown a severe bowel obstruction (B.O.) but the ER Doc never told me about it!  Imagine that!  I was admitted to the emergency department with the primary complaint of abdominal pain and no one bothered to tell me the findings clearly stated on the CT report.  Geez!  I have no idea how the “B.O.” came about (little humor here folks!) but today I am grateful for an amazing Doc and phone nurse willing to get medical records and review my case with him when I was unsuccessful.  The treatment worked!  Geez again!  And in the process I was introduced to an unsweetened form of a supplement that I believe I can use on an ongoing basis; I have battled for 4 years finding magnesium that I could tolerate; magnesium is critical to my recovery.

I hear-by recommend Natural CALM!  You will now find an unsweetened version of both Natural CALM and Lily of the Desert Aloe Vera Juice in my list of Julie’s Favorites at the end of this webpage.

I am so glad that we can talk here!  I know that this topic will touch the life of someone out there so I am not ashamed to mention it today.  Here is my takeway message this afternoon:

If you feel like you are going crazy, you are not.  It is just a feeling.  Try something new.  Get help and stay engaged in the process until you find an answer.

Don’t be afraid to politely ask for help even when others are busy.  Often the busiest person, if they agree to help you, will be the best person to get the job done.

Always say “thank you.”

Keep your bowels moving.  Keep your body moving.  Keep your mind moving forward.  Keep your eyes fixed on Christ.  Keep tough . . . you are not alone!

That’s it Gentle Reader.  Feel free to pass a link of this post onto someone who might need it.  Young and old, I am so glad that we can talk about it here . . .  :JJ

3 for 1 from the Do It Sick Chef

Finally the haze of a medical setback has lifted for me and I can make my food in regular clothing!  And that is a bonus for fans of the Do It Sick Chef!  Sweats have been replaced by a flannel shirt and jeans.  Woot!  Woot!

First and the best of the bunch are tips for making salad for one or more 1) meals or 2) people, conserving energy and resources as you go.

Next up are subjects important to those planning meals while restricted in dietary choices and dealing with a serious illness.  Not quite sure how I remained upright for the taping of this one!  (See the Six Deer and a Skunk post for the reason!)  Check out these simple tips for freezing food portions to help your meal planning when time and energy are lacking:

And third is a quick take on making your own ghee butter.  That’s butter without the milk solids for those who must be dairy free for health reasons.  It tastes very mild and tends not to burn when used for sautéing too.

To keep closer tabs on upcoming foodie tips from the Do It Sick Chef (yours truly!), “Like” the Facebook page Hope Beyond or Subscribe to my YouTube channel directly.  I will do summary blogs periodically here that will be filed under the “Do It Sick Chef” category at the end of this webpage.  Future topics will include fabulous 5-ingredient Vitamix soups, kitchen organization & simplification, and more.

Remember that food is fuel, food is medicine, and Lord willing we are going to get well!  I will be praying for you Gentle Reader.  Take care, JJ

Six Deer and a Skunk

We were heading south along a remote section of a newly created road when six deer, one by one, carefully stepped across the road in front of my truck.  My husband was driving and proclaimed that he was glad that he saw them just in time to slow down!  My proclamation was the awe of the gentle animals crossing our path on a night when the witness of God’s creation in the dark was the last thing from my mind . . .

Yes, we were on the way to the Emergency Room again.  After the third night in a row where convulsive episodes escalated with the setting of the sun coupled with unusual right, lower abdominal pain, we decided that our threshold had been reached.  The decision to drive off to the ER is never and easy one.  Am I really that bad?  If I am not dying should I just wait and see a little longer?  Now that our sixth trip in four years has come and gone we both agree that having an evaluation in the middle of the night is no worse than the alternative.  This trip was unusually unpleasant, however.

We waited almost 2 hours before being escorted back to exam room 22.  During that time we witnessed the collapse of a young woman in a wheelchair whose urine bag tube dangled over the edge of the leg rest and two family members looked on with worry.  We prayed for them.  Moments later one of the several children in the expansive waiting area spontaneously vomited all over her mother and the floor (about 15 feet away from us).  The mother and a nurse-type staff person whipped into action including spraying everything with a sure-to-be-aromatic cleaner.  In my heart I prayed and in the moment we moved to another section of the ER as I donned my mask so as to avoid the fumes and vomitus aerosols from further exacerbating the convulsive episodes.  In the distant section in which we landed was a double-wide chair that made a makeshift bed for my own weakened frame.  We later discovered that by the end of our tenure at the hospital there would be EIGHTEEN car accident victims that would filter through the emergency department that night.  Lord have mercy!

My own challenge was significant yet still I was filled with gratitude that it was not as bad as those around me.  Much later and somewhere after the halfway mark of the IV infusion of sodium chloride, the convulsive episodes subsided.  Yeah God!  Then came the abdominal CT scan and pelvic ultrasounds.  Each were laden with their own versions of torture just for me.  I guess I’m just “sensitive,” right?  (If I hear that phrase one more time I’m going to scream!)  No matter, the noxious symptoms accompanying these tests mixed with tears and additional pain were bonuses upon which I had not planned that night.  For example, I had planned ahead and brought my warmest fleece jacket for covering up in between procedures.  It just wasn’t enough to counter the cold life-size tongue depressor gurney of the refrigerated CT scanner!  Another episode added to the collection.  And for me, pelvic ultrasounds are very painful.  I was there for abdominal pain, right?  Oh yeah.  “Just breathe deeply honey.  You’re doing great . . . ”

Sometime later the nurse assigned to me returned.  She had already navigated through the comfort and pain medication options that I could tolerate then brought the latter in the wrong form for a person whose stomach was empty.  I declined.  Pain management Plan B never arrived.  Later I was sobbing after the ultrasound (US).  The US technician activated my call light requiring me to ask for my own pain medication to which a nursing assistant responded.  Someone beyond the closed glass doors and pulled curtain decided that a relaxant for the gut would be a good choice for me.  Perhaps that was indicated?  But the nurse appeared with an 8-inch long syringe including a 4-inch needle that was bigger than those I had become acquainted in my lifetime!  I thought surely she would administer it into the IV line.  Nope.  She started to pull up the sleeve of my hospital gown.  With horror I wondered how so many cc’s of fluid from that big of a needle would ever penetrate my deconditioned arms.  “It has to be given intramuscularly,” she instructed.  “How about my hip?” I replied.  And as I turned to reveal the warmth of my skin buried beneath 2 blankets and a flimsy gown I began to freak out.

“No.”  “I don’t think the pain is bad enough to endure the pain of an injection like this,” was all I could blurt out.  She said “fine” and some trained nursing replies as she discarded the second drug that I wondered if or not would be added to our massive bill that night.  She left the room.  And then I began to cry and cry and cry.  I just couldn’t take the whole ordeal anymore.  I wept some more.

Within the hour we were making our way to the all-night cafeteria in that large Regional Medical Center.  My beloved, Steve, and I scarfed down more food than we had in a long time!  French fries are a great comfort food at 2:30 in the morning!  The salads were reasonable too.  At last my brain and personhood began to revive.

Steve drove us home into the dark and near-drizzly night.  Perhaps he was a bit cautious as we went, knowing the numerous auto accident victims that were our unseen neighbors in their own suites at the hospital.  “How bad were they injured?”  I wondered.  Oh my Lord, please comfort them too.  My mind drifted to the half-dozen deer that welcomed us before the bright red lights of the “EMERGENCY” entrance had illuminated our path 4 1/2 hours earlier.  I felt so much peace when I had seen them.  It was like the Lord was showing me that things were going to be alright.  Then again, their crossing was followed by the stench of a skunk!  What on earth could that mean?  Who knows?

Maybe the deer were “skunked” before they crossed the road.  Hunting season has begun dontcha know?  Maybe Steve and I we were somehow skunked too.  We made our best decision and ventured out to the hospital instead of what most couples do on a Saturday night.  And through it all, my beloved Steve was a champ the entire time.  He always is, dontcha know?

Some of you know that in about a month the number of years that I have been sick will exceed the number of years that I have been well during my marriage to Steve.  When presented with this observation Steve never flinches and repeats his vow of promise to love me forever on either side of the road of life.  Sigh.

headstone, marriage vows, til death do us part, cemetary, his and hers, cemetary plots, funeral, graveside service, Christian marriage
Til death do us part . . .

Oh my Stevers.  YOU my love are such a precious dear!  JJ