Sneak Peak: Hope Beyond Lyme: The First Year

HOPE eBook Cover

Here’s an important peek into the eBook borne out of this online blog with updated material, bonuses, and references.  Stay tuned for publication information, coming soon!  Thanks a bunch,  Just Julie

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Final Thoughts

August 24, 2013

“Life is like a box of chocolates.  Sometimes you don’t know what you’re gonna get.” 

Remember this famous line from the movie, Forrest Gump?  (Paramount Pictures, 1994)  Yeah, I “get” this message when the day begins with renewed hope and generally ends, well, somewhere else!  Gratefully, the day is never without hope at some level.

Perhaps you have wondered what you would “get” when you were beginning to read this eBook.  Maybe you downloaded it because of the words, “Lyme disease” in the title.  I appreciate you wanting to learn more about it as it seems I too can never learn enough about this complex and almost sinister disease process that is so difficult to diagnose and treat successfully.  If you would like more information on Lyme disease see the About Lyme Disease chapter at the beginning of this eBook.  I also encourage you to go to the websites of the International Lyme and Associated Disease Society and Mercola.com

By now you realize that you have gotten something quite different from me than a Wikipedia description of this and other serious illnesses.  I am hoping that as we close here, you have seen how there can be more to a journey colored by a chronic sickness than the illness itself. 

Most importantly, I hope that you can see how much of a difference it can make to have a personal relationship with God through His son, Jesus Christ, when enduring a serious illness.  He has changed my perspective and transcended my experience over and over again in a way that continues to make a difference.  I could not go on without Him!  Life is just too difficult otherwise.

I hope that you have come to understand that you too can have this personal relationship with God by coming before the Father in prayer and supplication, in the name of Jesus Christ.  As we each approach the “throne of grace,” we must first acknowledge that we are imperfect, live in an imperfect world, and have an imperfect life.  The world is imperfect not because of our mistakes but because of its falleness and that is due to the presence of sin.  Sin in turn affects us no matter who we are as a part of our human condition (Romans 3:23).  We come to understand that we can overcome sin by admitting our brokenness, asking for forgiveness from the Giver of life, and accepting the gift of saving grace to wipe the slate clean:  He then restores us to a right relationship with God.  We are forgiven and free, now and forevermore.  (John 3:16)

The faith needed to believe this truth and go forth comes from reading and hearing His inerrant Word, the Bible.  (Romans 10:17)  When we do make a decision to believe, we enter into a relationship with the God of the universe (and with fellow believers too) that can never be taken away unless we denounce that Jesus is Lord.  We are saved from the guilt of our sin and our perspective in life changes.  We are never, ever alone again as we receive the indwelling gift of His Holy Spirit:  our Counselor, Our Guide.  We also embark on an amazing journey that brings peace, love, joy, spiritual gifts, blessings, and promises that will take us through everything and anything that happens on this earth.  We will not truly know what this is like until we make a decision for Christ.

And one day when our time on this earth is over, we will enter into His presence to live with Him forevermore.  We cannot even fathom the infinite glory of heaven in our finite earthly minds.  In heaven there will be no more suffering, no more tears.  Wow.  None! 

If you have not already done so, and would like to have a personal relationship with Jesus Christ, I encourage you to pray a prayer of repentance and submission right now.  In doing so, you surely will receive:   Hope Beyond Lyme.  And if you do, would you send me an email and tell me about?  I’d like to be among the first to welcome you into the family of Christ.

Take care, Gentle Reader.  Just Julie

Blasting through the block

Just do it!

Carpe diem!

Go for it!

He who hesitates is lost!

What’s your excuse?

I don’t have a good excuse.  It’s simply a case of a block in creativity.  When I feel like crap-o-la-ski (there’s my Polish again) for days on end, I do not “create” new and exciting things very well.  Even my writing gets a little bland and I start posting pictures of green frogs saying cute things!  You saw that one, right?

So today I have a jewelry order due and I’m stymied by this block thang.  So today I will employ the only strategy I have the energy for:  a little cleaning, a little organizing, a little reviewing of records, and a little blogging.  Then if I can get myself to turn around from the computer and linger over my home studio area, surely the creativity bug will start to buzz a bit . . .

Gratefully, the Lord placed some fresh ideas in my mind earlier today when I was laid up in bed recovering from some noxious symptoms.  Receiving a gift of some new ideas without even trying to make them happen is a blessing indeed!  I guess all that time spent wandering around Pinterest, a LinkedIn jewelry forum, and watching You Tube videos last month probably helped some too.

Yeah, that’s the ticket!  If you can’t go forward, go sideways for awhile.  Like dwelling in the grace of my Heavenly Father.  Allowing His love to wash over me prepares me for all He has in store for me whether good, bad, or indifferent.  Often these days there is no label for the hours that pass, they just pass as I lie on the bed recovering from this or that, looking out the window at the variegated dogwood bushes on a sunny day.  Maybe I’ll just focus on the soft leaves waving to me in the wind and woosh of their “hello, how are ya?”  I’m sure if they could talk, the crimson branches would say that to me.  No one else is around so they wouldn’t be talking to anyone else, would they?

Oh no.  Did you see what just happened?  The creative juices started flowing again as I continued to write!  Better turn around quick and find some pink hemp cord before the inspiration leaves again.

Let’s see, it was a Breast Cancer Awareness bracelet for my sister-in-law’s friend, right?  Gotta go.  Seeya later!  :J

Breast Cancer Awareness Bracelet
Breast Cancer Awareness Bracelet

Author’s Addendum:  24 hours later, we have this fun wrap bracelet now available at Trinity Jewelry by Design.  Feeling some better and love this new direction!  :J

DSCF8965

From the bathroom mirror

Psalm 71:  20-22 (NKJV)

You, who have shown me great and severe troubles,

Shall revive me again,

And bring me up again from the depths of the earth.

21 You shall increase my greatness, And comfort me on every side.

22 Also with the lute I will praise You—

And Your faithfulness, O my God!

To You I will sing with the harp, O Holy One of Israel.

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Yes Lord, my Rock and my Redeemer,

My hope and my rest.

Thank you for Your timeless Words.

Thank you for revealing Yourself and Your truths to me this day.

May all who find them come to know you and love you exceedingly.

In Jesus name, Amen.

J

 

 

Brief treatment update

Here’s a brief update in my continuing adventure of recovery from Lyme, fibro, mold, and whatever:

Saw a new chiropractor for 7 visits and while the treatment got rid of my headaches and increased my overall ability to move, I had seizure attacks every visit!  I finally got word this past week that Dr. N did talk to my LLMD as I had requested.  Still  Dr. N referred me to another chiropractor for more “comprehensive” care.  That did not work out so well.  (See posting from Tuesday!)  I’ll probably go back to Dr. N after a few more magnesium treatments and after I’m able to drive 30 minutes to his office several times per week.

Began treatments of IV magnesium on Friday the 13th; spent the evening with seizure attacks/convulsions followed by 7 hours of tic/seizure attacks into the morning.  Yipes!  Had a better day by the time Sunday came, albeit weak from the previous 2 days.  (Only had one episode that night, on the way home from our Sunday church home group.)  Getting the IVs started has become an arduous, painful process with a minimum of 2 wretched sticks before the RNs find a suitable vein.  What follows on the day of treatment or the day after appears to be a herx reaction or healing crisis of sorts.  This treatment is scheduled to continue for a month; supplemental magnesium is a promising treatment for me despite the difficulties.  I’m praying that the Lord sustains me and that my tender vessels endure it!   Tomorrow I’m going to let them give me the PRN narcotic pain med. with the treatment.  I just need a break from these awful neck headaches that come from the wrenching head-n-neck motion during attacks.  Gratefully, there is improvement with one fewer attack per day, barely a few tics last night and significantly less chest compression pain!  Yes!

Rife or Beam Ray treatments are on hold.  My tolerance for this sound and light wavelength technology was decreasing so it’s on hold for now.

Waiting in the wings is a new round of low dose antibiotics after some lab testing pending soon to rule out a new UTI.  Got lots of itchy, burning, ringing, stinging, stabbing, aching symptoms all over right now possibly flared up by the stress of the IV treatments.  “Rest” is my focus at the moment in my weakened state.  I do make dinner most nights, however!

A neurology appointment is now scheduled for October 1st at the Indiana University Medical Center in Indianapolis.  IU is the go-to place for persons in the Fort Wayne area needing a special consultation.  So to Indy we will go at 5 in the morning.  Hey, if my beloved can take off at 6 in the morning for a kayak race, 5 should be a piece of cake, right?  Gooooo Steeeeeeve!  As for me, well I might still be up from the night before!

Steve and I are grateful for some help with a meal once per week from the lovely ladies at our church.  It seems like the night they bring dinner something bad happens later on, like an emergency room visit 2 1/2 weeks ago.  Their generosity is a real blessing and it sure breaks up the isolation for me when they stop by!

Well that’s the main stuff or at least the news for the masses.  If you wouldn’t mind praying for us that would be great.  My heart is tender for Steve right now because we had to cancel our trip to see his grandson for Jackson Rees’s first birthday and to see some dear friends in South Carolina.  I really need Steve in the evenings when the attacks and physical episodes of collapse are usually quite nasty.  This would be too much for a female friend to handle if a gal was staying with me at night and Steve went out of town by himself.

Steve has travelled alone 3 times since this process of illness began for me nearly 2 years ago.  We have cancelled a trip before but rarely decline local invitations.  Steve just goes to them without me and that is cool with me.  Travelling to Arkansas this past summer was very hard on me despite a couple of nice visits during the 5-day trip.  So to cancel the South Carolina/North Carolina trip is just what we have to do this time, although it’s a bummer.  JR is going to get a big box in the mail real soon!  Anyways, if you wouldn’t mind praying a prayer of sustaining grace (for me) and strength (for Steve) that would be super.  The Lord has helped us and even blessed us.  We are trusting Him and hopeful for all He has in store for us.  (Proverbs 3:5-6)

Take care all,

Just JulieProverbs 3.5-6

Sending in the big guns

As the old Kenny Roger’s song, The Gambler goes, ya gotta know when to hold ’em, know when to fold ’em, know when to walk away, know when to run . . . .

Today I chose to  . . . RUN!!!

Yes, it’s time for another crazy Lyme story.  Grab a cup of coffee and here we go:

The sharp neck headaches continue to be menacing, even with the recent slight slowing of intensity, duration, and frequency of seizure attacks.  Six months of intense daily episodes and a total of 1 1/2 years since they first began have taken their toll on my deconditioned frame.  It’s like having a little fender bender several times per day in a car that’s a little too small to support your head and neck correctly:  thrashing around, repetitively in one direction then another.  Enough is enough already!

Enter into the picture a new chiropractor.  He was referred to me by Dr. N because Dr. N thought he would provide a more comprehensive approach to treatment.  Dr. N has a no nonsense orthopedic practice that offers spinal decompression and traditional chiropractic care.  Dr. N had taken a long time to contact my Lyme Literate Medical Doctor (LLMD) so I kind of wrote him off after the first 7 treatments.  I wanted Dr. N to coordinate my care with the LLMD since I was experiencing so many tic and seizure attacks during treatment.  Paradoxically, even though I had seizure attacks during every chiropractic visit, I was feeling better!  The neck headaches had diminished, my range of motion had significantly improved, and I was back to taking short walks despite the ongoing episodes in the office and at home.  At least part of my body was functioning better!

But by the time Dr. N finally called me to share the results of his consult with my LLMD, 3 weeks had passed.  Dr. N referred me to another chiropractor whom he felt had a more “comprehensive” approach.  He was convinced that Dr. H could help me.  Seriously?

After meeting with Dr. H today it is pretty clear that they probably barely knew each other.  Dr. H had worked in the chiropractic building that Dr. N purchased when Dr. H opened his practice over 10 years ago.  I doubt that Dr. N knew much about what Dr. H really did as a chiropractor.  Today I met a wacko pervert salesperson who barely knew typical chiropractic treatment lingo, for example, pushing off an “automatic activator” as a type of chiropractic care.  The device looked like a football mouth guard with rubber tips attached to an electric handheld jigsaw.  Frightful.  I wondered if he had made it himself?

Shortly into what I thought would be a chiropractic exam, Dr. H asked if he could pray with me.  He had already professed to be a “Christian” and pointed to the pictures with scriptures on it in his waiting room.  Well that is nice.  Usually I look for the framed college degree certificates and a current professional license document — I did not see either, anywhere.  I said, “I guess so,” about the prayer thinking that I would learn a little about what he truly believed.  I had already disclosed that I was a Christian.  Ever notice that so many people throw around the term “Christian” and it has nothing to do with a heart surrendered to Christ?  The prayer was nice.  Then the “shoe salesman” song-and-dance began.

Dr. H’s sales pitch began right away guised as checking acupuncture points whilst holding a bottle of this or that supplement.  Later I recalled that he seemed a little nervous and displayed a very intense affect touching the pressure points around my rib cage.  I have seen many different chiropractors and acupuncturists in the past perform a similar exam so this one was not unusual, except for the collection of bottles.  His mannerisms were also unusual however.  He had started my visit 20 minutes late while finishing up with another patient.  (That patient left with a big bag of new supplements.  Hmmmmmm.)  I had mentioned at the beginning of my appointment that I needed to leave at a certain time (to go to the hospital to have my external IV flushed) so before long he started speaking faster and faster:  repeating himself, referring to the time, and bringing out a few more bottles.  Dr. H pressed for agreement with his assessment:  that the chiropractic adjustments would not hold unless I started a heavy metal detox protocol before my first adjustment.  The appointment today would be for “just talking.”  Would I like to start the protocol today?  Could I come back tomorrow to finish up the physical exam?  Or how about later this afternoon?  He could even meet me at his office at closing time!

Did I mention that his prayer sounded good?  Yes, it sounded like a typical prayer except for one word:  undressed.  He prayed to the Lord something about wanting help to “undress” the issues that I was having to be able to help me.  Undress?  The word stuck in my mind throughout the appointment.  What kind of a prayer is that?  Undress!  What kind of a medical term is that?  Undress.  Where the h*%$$ is your mind Dr. H?  I certainly am not a bombshell these days and was dressed very plainly with partially wet hair.  I would assess he is approximately the same age as I am.  SO WHAT.  And where is your office receptionist?  Do you always see female patients alone in your office in a more secluded part of the office park?

I did what I could to state that I would not be interested in any additional products at this time since I had just started IV treatments and could not risk ingesting anything else new.  I was interested in chiropractic care by a chiropractor who was skilled in manual adjustments of the spine.  He mumbled something about “manual” adjustments.  He could do those too but sometimes a patient needs the mechanical treatments of a device like the “U” jigsaw device.  I gathered my things as he was speaking and prepared to leave the office.  I paused and clarified if I needed to make a payment for his “consultation” and he said “no.”  We were “just talking” and I could take care of that in the follow-up appointment.  I said that I would need to call him back and went out the door.

Sitting in my truck I felt a strong tic zip rip out of my frame and jerk me around.  At this point I was aware that the session I had just endured was very intense and that there was a strong essential oil-type scent in the office and even stronger in the examining room.  Dr. H denied the use of any scented products and had opened the two windows for me, after which I expressed gratitude.  He also said that he was not aware of any water damage to the office (that would indicate a latent presence of mold).  So what was I reacting to now?  A short seizure attack followed.  I was pretty shook up that I’d had another attack in the middle of the day!  Why is this happening when I was not bothered at the time by the herbal scent in Dr. H’s office.  Of course I was definitely upset about Dr. H however!

I sat for awhile to allow time for my psyche and sensorium to recover.  Sometimes I never really know what sets off an attack.  Much later this evening I characterized the experience, the incident at “Health and Wellness” something or another as a form of spiritual warfare.  That guy was a fraud and weird!  He never smiled.  And he pushed products before ever completing a traditional chiropractic exam.  Yes, he completed a clinical interview of my history, reviewed the information that I provided on his intake form,  and threw up my x-ray films on his light box.  Yes there were two models of a spinal column on display in the corner and the typical educational posters on the wall that you might find in a chiropractic office.  But everything else was odd, was inappropriate.  Nope, I won’t be seeing Dr. H again.

One problem remains:  my x-ray films are still at his office!  I had not retrieved my films in my state of recovery after the seizures and time pressure to get to the hospital.  Well after talking to my husband about the whole ordeal tonight, what needs to happen next is perfectly clear:  it’s time to send in the BIG GUNS!  Steve graciously agreed to pick up the films for me.  Yes!  For me to go back could be an abusive encounter.  For my 6 foot 1 man of steel to go back to the office would be a different encounter altogether.  Tee hee!

Yeah, I was wrong when I was single, joking with my spinster girlfriends just 7 years ago:  sometimes you do need a man.  Sometimes you need to send in the big guns.  And this time I am grateful to have had some wits about me to get out of there before I made a bad decision or something worse happened.  As it turns out, Dr. H’s chiropractic license is current with the State of Indiana.   He has no sanctions or restrictions on his professional license.  Good for him.  Too bad for his next female patient.  I guess I’m going to have a neck headache a little longer.  This other headache is history!