The Day is Never Really Wasted

Missing my Dad.

Closing my online jewelry shop.

Cancelling a dinner invitation for me with new friends.

Spending the morning and evening in bed with complications of illness.

Questioning the utility of a new treatment before it really has begun to make a difference.

Perhaps you can see where I am going with this?  No where productive, positive, encouraging very fast.  These are the kinds of days when I question the value of each breath (that almost stopped twice today).  These are the evenings when I wonder why I try to plan anything away from our home anyways?  These are the days that I cry a little more than usual.  And these days are necessary, really, to grieve and move on.

When I worked as an occupational therapist in rehabilitation, we often told our patients that, “recovery is a jagged line.”  Oh how I have found that to be true these past 3 1/2 years!  Looking back to the beginning and middle of this period of time, there were many times when I am sicker than I am now.  There were many unanswered questions, new treatments to try, expenses that exceeded our income, strains on all of my relationships, and lifestyle changes that seemed too much to bear.  So many questions came to mind as the weeks extended into months and years:

I wondered if I could continue to get to know the gals I’d just met at my church or my husband’s adult children, make any new friends, or succumb to the ill-effects of isolation instead?  How much suffering could my body endure without permanent damage to my brain, neck, back, or other bodily functions when the convulsive episodes were so violent?  Would I embarrass myself in public, get into an accident in a public place, or be found on the floor some evening by my beloved husband (who was already stressed and sleep-deprived)?  Why on earth did I have to endure such hellish nightmares, flashbacks, and heart-wrenching grief at this time in my life when I had worked so hard to become free of so much sorrow in my past?  And most of all, would anything good come from all of this:  would it be wasted time and effort after it was all over?

Some of these questions have been answered by now and some have not . . . yet.  I have made many new friends.  The process of getting to know my hubby’s children has been slower than I would have liked yet it probably is for the better; we are living a long-distance from all four of them which makes everything a little different too.   My mind has actually become clearer with the extreme dietary measures, reduction in mercury toxicity/dental issues, and healing of my gut (since the brain and gut-health are related don’t ya know?).  The physical consequences of illness will require some more treatment soon but at least my weight is stable and the overall deconditioning has still allowed me to perform most of my activities of daily living.  Further, when I felt sick in public or driving down the road, I was always able to rest in my vehicle thus avoiding an incident, gratefully.  These last two are amazing to me:  the Lord’s angels must be protecting me when I am away from home.

Steve and I have found ways to cope with the nightly convulsive episodes, sudden physical collapses that require assistance with my self care, and challenges to our intimate life on occasion.  It helps that Steve is wonderful!  It helps that he relies on the Lord and fellowship with strong believers to see him through this season of our lives together.  His faith strengthens mine too.  Although we can’t be together as much as I would like to, it helps me to know that I can trust him and look to him for spiritual direction, spiritual leadership.  This is God’s plan for the home, for marriage.  And as that design plays out between us, I know that the Lord is strengthening me too.

The Lord has never left me or forsook my faith in Him.  Even in near-death experiences, demonic attacks (and there have been more than I can count), and times of deepest despair, my Jesus has carried me through it all.  The spiritual peace that developed certainly has served to clear my mind, bringing me to a place of clarity I had never seen before I got sick.  Renewal of our minds is a gift and a promise only the Lord can give as we read the Bible.  I am grateful for His work through this process.

I really don’t know if looking at the female hormone/menopausal connection with the onset of seizures (and its related testing and treatments) will be fruitful or not.  Is it catamenial seizures?  I do know that I am probably going to make some more new friends trying to figure it out!  Some more new connections will also be made in the synapses of my brain as I study a whole new body of information.  Letting go of my hobby business today and getting focused on a more professional venture will challenge these new skills, quite possibly moving me from this disabled state to one of productive living.  Oh how I hope so!  This incredible experience has inspired a new product that I invented and eBook that I am writing.  That is cool, eh?  Yeah God!  Perhaps things will come together just as they need to and when the timing is right?  This season of time will have served its purpose; it certainly will not be wasted.  This Father’s Day will just be a microcosm of the larger picture with all of its days, its parts playing a role:  good, bad, and ugly too.

And in the end I know that the good will outweigh the other two.  How compelling of a story would I be able to write if everything was always hunky-dory?  Nope.  It would be boring.  On the stage of life, we are to live fully no matter what happens to us.  We are to live like the sign on the wall of the therapist’s office that I saw when I was searching for meaning in my life at just 24 years old:

Bloom Where You are Planted, trust in the Lord, overcomer, overcoming trials, Christian response to, faith in Christ, hanging tough, Bloom, Christian blog

Yeah.  Evelyn at Catholic Charities had it right.  And the gardener in me wasn’t even awakened yet when I read that banner!  The motto of that poster has encouraged me over and over again, becoming the foundation of my life’s work as an occupational therapist and helping me to re-invent my career a half-dozen times.  As a believer in the Lord, Jesus Christ, I can see that He is the God Who uses all things for His glory.  Someday you and I will get to see how these gnarly threads of our lives have woven together to create a beautiful tapestry that characterizes the life of one surrendered to Christ.  With that hope I can face tomorrow and all that it brings.  With that hope I submit to the will of my Master Gardener, my Lord.

With that hope you can too, Gentle Reader.  Bloom!  With love, JJ

A Wittle Update

I am grateful to announce that I sold my hobby business, Trinity Jewelry by Design!  DeAnn got her package in Minnesota this week and is excited to learn about making handmade jewelry!

All macramé, leather, and friendship jewelry is 25% off until Sunday, June 21st with Coupon Code FINALSALE.  This includes wholesale lots and Threads of Hope ministry jewelry featured in my shop at:  Trinity Jewelry by Design.

Moving forward, I have obtained my LLC for my new company, Two Step Solutions and obtained legal assistance for my logo and business motto trademarks.  And wouldn’t you know that after some prayer and Bible study, I realized that the initial logo just won’t do for the vision the Lord gave me for my company.  So I’ve hired a great family friend to craft a new logo before submitting my application to the US Patent and Trademark Office.

I’ve changed the name of my upcoming eBook to Caring for the Sandwich Generation.  With the sale of T J by D, I hope to have this guide for Baby Boomers completed early this summer.  Stay tuned for your free copy!

Oh and on a personal note, I’ve learned that the most wretched and lingering part of my biotoxin illness may be female hormone-related.  A new product from Quicksilver Scientific looks promising and has reduced the intensity of the convulsive episodes already.  We are hopeful over here!

Thank you for your support during these transitions Gentle Reader.  Summer in Indiana is looking up and I am both humbled and grateful . . .  JJ

jewelry sets, friendship jewelry, Threads of Hope, handmade jewelry, macrame, leather, wrap bracelet, layered bracelet, cotton fiber jewelry, jewelry sale
Here’s a sample from my shop closing sale at: https://www.etsy.com/listing/237409229/wholesale-lot-nine-mix-n-match-party?ref=shop_home_feat_3

The Height of Fear

Camplite, Camp Lite, fear of heights, roof vent, roof fan, cleaning roof vent, cleaning roof fan, roof of trailer, on top of trailer
That’s me up on the roof of the Camp Lite cleaning the covers of the three fans up there.

It’s all very simple really.  The vent covers of the three fans in the roof of our Camp Lite travel trailer had not been cleaned and there was visible dirt.  I had hoped it wasn’t mold but we just couldn’t be sure.  The only problem was that to clean it, I had to climb up over the top rung of a very tall ladder to get onto the roof.  “Just don’t look down,” became my strategy.  So up I went over 10 feet into the air . . .

Before I knew it everything was as clean as it could be.  Now it was time to figure out how to get down.  “Just roll onto your belly and throw your legs over the edge,” was the coaching of my beloved Stevers safely on the ground below.  Yeah right.  Easy for you to say.  I decided to reverse the procedure I had used to get over the edge and onto the roof, whilst clinging to the lip of the first open vent.  The rubber gasket over the aluminum panel had held me once, surely it would hold me again?  Yes it did.  And with a few very clear requests to have my spotter stop cracking nerve-wracking jokes, I was able to make my way down the ladder and into earthbound civilization once again.

The view was pretty neat up there.  The sky was painted orange sherbet with streaks of steel blue against the line of trees behind the homes of our neighbors.  As long as I stayed away from the edge and didn’t look down, I was fine.  Hmmm.  I quickly remembered during my descent, one of the first times I had to employ such a strategy.  It wasn’t on the roof of a travel trailer.  We’re talking many decades ago . . .

My dad was always afraid of heights.  They call it acrophobia.  I suppose you could hypothesize that I somehow identified with his fear, taking it on irrationally at an early age.  I really don’t know how that works.  What I remember is his frightful reaction to taking a ride on the Space Spiral at Cedar Point:  an amusement park in Sandusky, Ohio.  He would not go near the edge to look out the window.  He stood frozen like a statue with his back to the wall of the elevating compartment in which we rode up then down.  He said nothing but to scold us when we asked what was wrong.  Wow.  That was crippling fear.

Space Spiral, Cedar Point, Sandusky Ohio, going up in the air, amusement park, fear of heights, overcoming fear
Space Spiral rotating observation tower (1965-2012). Cedar Point, Sandusky, Ohio

The Space Spiral was a central attraction of the Midway or carnival area at Cedar Point.  When I worked at the amusement park my sophomore year of college, I found it kind of relaxing to take a ride up over the park as I “played animal” on my day off.  The energy of people screaming from the roller coasters, indulging in sugary treats, and sun-burning themselves while running from one attraction to another was kinda fun, amusing even to watch.  Later in the summer I spent more of my free time taking the ferry from The Point to Sandusky to shop for real food.  The employee cafeteria menu tasted too much like the commons in the dormitories at Eastern Michigan University and many of us know what dorm food is like, eh?  Eeeek!

The feeling of my guts dropping into my loins when leaning over a ledge or riding the Space Spiral had never left me though.  Sure, I visited other amusement parks and even returned to Cedar Point over the years.  I even rode in a 4-seater Cessna transport plane over the mountain tops of the Sawtooth Mountains in Idaho with the windows open in the late 1990’s with little more than a quick prayer to pass my worries.  But when I got back on the ground this past Sunday after climbing over the edge of our camper, I felt that very old fear flooding to the surface.  The emotion overtook me for a time.

I stood in our driveway bleeding with tears.  I had chosen to face my fear of heights, or rather my fear of leaning over the edge of a tall ledge, and finally won.  I made an adult decision and the child inside became less afraid; I’ll know for sure the next time I have to crawl someplace ridiculously out of reach if the task is really complete or not.  For now, I am no longer sad but rather pleased.  I did it!

Who knows where this stuff that holds us back really comes from anyways.  Only the Lord knows if we will have victory when that day comes and our countenance is tested.  As for me, I believe that He also knows the activities, the experiences, the fullness of living that I have avoided over the course of my life due to this fear or that.  I can see clearly that to live in any type of fear is not the way to go through my days.  My Jesus is with me always.  I will be o.k.  I can take a look around, like the 360-degree turn of a Space Spiral and take in all there is before me with my eyes wide open, my arms wide open too.

Gentle Reader, there is so much living left to do!  Won’t you join me in embracing something new today?  I tell you: the sky is the limit!  Tee hee.  JJ

 

a question of character: no April’s fool.

Learning from one’s mistakes is a given for any reasonable person.  We must learn from our mistakes or we will sucuumb to foolishness in due time.  Learning from the unforeseen negative consequences of a reasonable decision is more difficult yet still a given for any reasonable person.  Figuring out how to do this is, well, rarely given!

In the event a reasonable person makes a difficult decision after heartbreaking circumstances leading up the decision, and the outcome is good, we all celebrate.  In the event a reasonable person makes a difficult decision after the heartbreaking circumstance and the outcome is not good, we all are either:  1) sad and hang in there anyways or 2) indifferent then simply walk away from the painful truth for a time.  And it could be a long time, in my observation.  Some folks watching you may never return.  When folks have left my life my response has wavered from “let them go” to “seeya next time.”  Both are the same really and have served to preserve my ego, my character.

How I feel about the good or bad of the total circumstances must not drive who I choose to be.  In other words my identity must not become destroyed by the mistake, the misfortune.  My character must remain fixed on the fact that I am who Christ has made me to be.  He knows me, love me, leads me, and will be there whatever the outcome of a situation may be, long before I ever know about it.  So using the insight of John Maxwell and applying it to my ramblings this April Fool’s Day, no matter what may come I must go forth with wisdom.  The best source of wisdom is the Bible and the words of my Savior, Jesus Christ.  Here’s some I like today:

10 He replied, “You are talking like a foolish woman. Shall we accept good from God, and not trouble?”   Job 2

The fear of the Lord is the beginning of knowledge,
    but fools despise wisdom and instruction.  Proverbs 1

23 Search me, God, and know my heart;
    test me and know my anxious thoughts.
24 See if there is any offensive way in me,
    and lead me in the way everlasting. Psalm 139

Therefore, there is now no condemnation for those who are in Christ Jesus, Romans 8:1

being confident of this very thing, that He who has begun a good work in you will complete it until the day of Jesus Christ; Philippians 1

Well cool beans.  Now that I have settled the matter at least in my own mind, I will put my feelings of foolishness aside.  I mean, how could I have known that a painful, expensive dental procedure that I had researched for 9 months would only get rid of wretched convulsions for a couple of days?  Holy cow.  Or is it holy crap?  Crapolaski?  (I’m Polish dontcha know.)  Of course right away I wanted to share my joy with the online world and posted the news everywhere!  You are my peeps these days, my tribe during these years of relative isolation.

So there you go:  the truth.  My “Hope Beyond” must remain in the Lord Jesus Christ and not in my circumstances.  He will use this for His glory:  the good, the bad, the ugly.  My character remains despite my misfortune, despite my weakened and pained frame.  And this Sunday I will rejoice with 2 fewer root-canaled teeth the promise we Christians remember at Easter.  Christ is risen and He will come again in glory!  On this we can be certain.  As for my situation, I probably just need more time to heal these fried nerve endings.

It is still a beautiful day outside and my garden is coming back to life.  Hang tough, Gentle Reader.  In due time, I AM GOING TO BE WELL!  Just Julie

Only my potato chips remain crushed today

Who knew that finely crushed, Unsalted Kettle Potato Chips would be like a salve to my wounded frame today?  In the spirit of my previous foodie post, I must say that finely crushed chips make my creamy beef stew-ish soup puree quite special.  Since there are potato chips in my belly, life will go on after all!

Yes, there is other good news after enduring 36-hours of hell, ending about an hour ago:  we believe we have identified the trifecta-root cause of much of my illness.  However, unlike a horserace where a bet on a trifecta identifies win, place, or show, we are not sure of the order of these little fillies:

  1. Two infected teeth with root canals
  2. Inflammation secondary to the infection and
  3. Dental galvanism from dissimilar metals in the crowns of the root-canaled teeth.

Now we recognize that while we certainly won’t know the exact cause until the teeth are extracted and I have treated the infection, if needed.  I am on a waiting list for a local surgeon after a trip to see a qualified biologic dentist out-of-state resulted in being passed on to someone else equally far from home.  My husband has led us to the decision to find someone else locally; I am on a waiting list to have my appointment moved up from April 2nd with the best local oral surgeon.  Those Gentle Readers who have followed me for awhile know that I have thought before that we found the “root cause” of everything.  The “it” still could be complicated by underlying Lyme disease, mold neurotoxins and the definite mercury toxicity fueling it all.  Yet one thing is now clear:  these teeth still have to come out!

Here’s a brief summary of these three new factors in my own words:

1.  When a person has a root canal procedure, a dead tooth is left behind.  The primary root canals consisting of nerve tissue and blood are scraped out and a rubber-like substance called gutta percha is stuffed into the remaining cavity.  While the opening is treated with an antiseptic, no one can ever know for sure if any secondary root canals were left un-cleaned and untreated.  Any remaining nerve and blood tissues dies and can provide food for aerobic and anaerobic bacteria.

Between the root canal channel and the outer enamel of the tooth is the dentin, consisting of 3 miles of dentil tubules.  These are too numerous to be completely sterilized before placement of the gutta percha.  Thus there is a possibility of infection seeping into the dentil tubules.  When a tooth is healthy, all of the dental tissues are washed with blood but this is no longer possible with the severing of the blood vessels during the root canal procedure.  However, if the infection grows, the bacteria can eventually seep from it’s hidden little factory in the tubules into the jaw bone and surrounding blood supply thus potentially affecting the mouth and rest of the body.  It is well-recognized that these bacteria can be exceedingly dangerous.

Lastly, during a root canal procedure the periodontal ligament is often left in place around the dead tooth, adding further risk for infection and necrosis from this dead tissue lying next to the gums or jaw bone.  Only in the dental industry is a once-living, now-dead tissue and a dead structure (the tooth) allowed to stay in the body; otherwise this tissue would be surgically removed as in the examples of damaged frostbitten fingers, gangrenous toes, severely burned skin, etc!

2.  As spoken by the nurse in my doctor’s office this past week, reddened tissue means inflammation and often indicates the presence of infection.  Pain in the upper left portion of my jaw has lasted over 13 years, increasing lately to the point of requiring periodic Ibuprofen and topical treatments such as (diluted) clove oil.  I now chew food only on the right side of my mouth, avoid hot and cold temperatures, and consume soft/pureed foods so as to minimize the chewing and pressure on my teeth that trigger convulsive episodes.  Geez!

3.  Though considered controversial by traditional dentists, it is easy to find hundreds of mainstream and holistic dentistry sites that have described the dental galvanism (aka “battery effect”) that can occur from the use of dissimilar metals in amalgam fillings, crowns, and dental appliances.  I had my amalgam fillings (generally consisting 50% of mercury) removed many years ago yet there remains a question if there is any remaining underneath one of my crowns.  The bigger issue is that three of the four crowns in my mouth consist of a combination of metals.  To establish if the presence of metals (in the presence of saliva) creates any currents between my teeth, yesterday my husband and I touched the probes of a voltmeter to the surface of the two teeth in question.  The voltage was TWICE that of my skin on my arm!  Steve questioned if this small amount of voltage would be of any clinical significance?  Note that microcurrent (significantly less than the voltage we measured on my teeth) is used in rehabilitation for the treatment of pain.  This means that the body must be affected by tiny currents.  Too bad the current in my teeth is not mitigating pain!    Conversely, I wonder if this battery-effect is over stimulating a part of my brain, triggering the convulsions instead?

Now to flesh out number 3 a little more, I refreshed myself on a little neuroanatomy.  The upper branch of the trigeminal nerve innervates the upper and lower jaw of the mouth.  The trigeminal nerve originates from a part of the brainstem called the “Pons” which sits on top of the spinal cord inside the back of the skull; three branches extend on each side of your head and across the face with the mandibular branch dividing over the top and bottom of the jaw.   During dental procedures, this is the nerve into which a dentist injects a numbing agent such as Novocain.  The motor division of the entire trigeminal nerve derives from the basal plate of the embryonic pons, and the sensory division originates in the cranial neural crest.

Fifth Cranial Nerve Distribution:  Trigeminal Nerve (from Wikipedia 2.27.15)
Fifth Cranial Nerve Distribution: Trigeminal Nerve (from Wikipedia 2.27.15)

To hypothesize what electrical stimulation from 1) this battery-effect flowing 2) BACK TO the brain in the first two of these three areas could mean for a person, I took some liberties and looked up the symptoms of the person who has a stroke affecting these three areas.  (The cranial neural crest has more significance in embryonic development and stem cell research than the discussion here so I left it out.)  My findings are fascinating.  Please note that the exact symptoms will depend on which biological “electrical circuits” and junctions are affected since the structures are so small and interrelated; we cannot know for certain which structures will be affected.  Regardless, I have listed a few symptoms that I do experience from each of these respective areas during my own seizure attack or convulsive episodes.

  • Damage to Basal Plate Symptoms:  Loss of movement, such as stiff, rigid or weak muscles; tremors or body shakes; aphasia (difficulty speaking); changes in eye movements; or changes in motivation or personality.
  • Damage to Embryonic Pons Symptoms:  Weakness of upper and lower extremity (arm and leg on same side as damage); dysregulation from inhalation to exhalation (difficulty breathing); sleep paralysis (inability to move when falling asleep or after waking up and altered dreams); difficulties with balance (ataxia); dizziness due to vertigo; or clumsiness of a hand or arm.  A person with a severe stroke may need help with self-care or feeding as a result.

Wow.  These all have happened in some combination with each “tazoring” as I call it.  Thankfully there are higher parts of my brain in the cerebral cortex that appear unaffected and thankfully the symptoms are not permanent so far!  I would not be able to write this blog if the damage was permanent.  But I know I cannot overthink all of this.  After the onset of acute upper back pain two days ago, I feared what the range of random electrical charges on my weakened frame could do to my heart.  Or was it a heart attack?  Well, no.  I had gone too far.  Pain comes from thrashing around and will be dealt with when I return to physical therapy and chiropractic care sometime after dental surgery.

Wasn’t this interesting?  There is much hope in putting all of this together.  Please join me in praying for the Lord’s will in all of this.  And if it is the Lord’s will, I would love to have these two crazy teeth outta here ASAP!  Time for these little ones to go!  I prefer to be toothless in Indiana with crushed potato chips on my soup of the day instead of this saga continuing.  Even if my hypothesis was wrong, I am grateful for the mental stimulation, the challenge of the hunt.  I trust that the Lord will use all of this for His glory.  Maybe this insight will help someone, somewhere, someday?

And you know and Lord willing, this year I AM GOING TO GET WELL!!!  Yeah baby.  Take care Gentle Readers.  JJ