Twas the morn of endo

Twas the morning of endo

And all through the house

Not a creature was stirring

Not even a louse.

The kind buried deep inside

The caverns of thy bowel

Who knows what’s it’s name

To be extricated via trowel.

I digress to my gardening

Terms instead of “incision”

For to bear more pain, discomfort

Is not something I can envision.

So to sleep, aye to dream

Via chemistry or exhaustion lo

We soon will have answers

Perhaps by time of ho, ho, ho!

Will this be a blessing

In disguise as gone before

Suffering giving birth to hope

We shall pray as inside goes the scope.

For H. Pylori messes the axis

Of the gut with the brain

And causes problems like mine:

Seizures on top of stomach pain.

Could this be the work of the Lord,

The prayers at once coming true?

Oh heck at least the deep snooze

Will be sweet on this Tues.

Will you still love me tomorrow?

The question we simply don’t need to ask.

The question that I simply don’t need to ask again, yet have wasted too many moments wondering, is the one posed in this song by the Shirelles.  Oh and Dionne Warwick.  And maybe Amy Winehouse too.  Such a classic song!

Each time I wind up in the Emergency Room, I wonder if my beloved will still love me the next day.  This morning he referred to yesterday evening as “another date night!”  Unbelievable.  All this love continues after about 16 trips to the ER in the past 7 years.  I am humbled and blessed beyond measure.

This blessing is hard to see sometimes when my body is breaking down in a new way once again.  Looks like an ulcer in the lower part of my stomach is the reason for a month of abdominal pain.  Over-the-counter and walk-in clinic medications did not solve the problem.  So after a CT scan under the influence of anti-allergy drugs and some more potent medication, I am in less pain . . . but oh so worn out.  I’ll see a gastroenterologist this coming week with an endoscopy likely to follow.  Going to try to keep my stress level low in the meantime.  I mean I don’t have any other of the risk factors that contribute to an ulcer (e.g. spicy foods, caffeine, alcohol) unless of course there’s a hidden H. pylori infection.  So more testing is needed to figure this one out.

The other “love” that could be easy to question is that of my Heavenly Father.  But I don’t.  I look around and see tremendous blessings in my life in that I have a warm home in which to convalesce, enough food and clothing, and finances for the important stuff.  My beloved is faithful and loving like “Jesus with skin on.”  What I don’t understand is how these illnesses isolate me from friends and family outside of our home and most notably, my husband’s adult children. 

My extreme sensitivities continue and are triggered by the fragrant products they (and many folks) tend to use.  We are just not sure how to manage this reactivity with our Christmas gatherings rapidly approaching.  We already had to decline having both daughters stay with us (which was a delight to host them in years gone by).  A trial of having his oldest stay with us for about a week 2 months ago, despite extreme precautions, triggered a violent relapse in the convulsive episodes.  I am now sensitized to even trace amounts of fragrance on her coat that was kept in a suitcase in our garage in between scheduled visits.  Then I had a seizure spike 2 days ago when she returned from some travels to pick up her suitcase . . .

My heart is breaking from more than the loss of acquaintances and friendships:  my relationships with my husband’s children never really got going.  Steve and I have been married for 11 years and I got sick just 4 years into our marriage.  I have been battling a serious illness for most of our marriage!  You could say that my limited visits with his adult children gave them more time to adjust to the fact that their father is remarried.  Well, o.k. maybe that’s it.  I already sensed that I needed to lie low during their visits in the beginning anyways, focusing on serving them good food and comforts and not speaking up too much nor complaining when their Dad jumped to see them, rescue them when the trials of young adulthood came along.  No problem.  Fix the car?  Pick them up at the bus stop?  Join them at church?  I just had to stay home due to illness factors and couldn’t go with their Dad to help them, that’s all.

They don’t really know me either though.  We profess the courteous “love” greetings yet would I ever really see them again if something happened to their Dad?  Oh dear, I should not even go there.  I now realize that this barrier between us is completely out of my hands.  Remember when I sent along baked goods with Steve for when he visited his family in Arkansas without me 2 weeks ago?  Yes, I need to rest in the hope that what I could do has been done as unto the Lord.   My Jesus and my beloved know my heart.  They hold together the parts in me that are breaking and the inner tears.  And the Lord also holds me in tender moments like these right now.

I need to know that your love.  Is a love I can be sure of.  So tell me know so I won’t ask again.  Will you still love me tomorrow?

Yes, for sure.  JJ

Jeremiah, 31:3, everlasting, love, doubting, Christ's, Lord's, faithfulness,what He thinks of me, endurance, love through the trials

In a far-off land the LORD will manifest himself to them. He will say to them, ‘I have loved you with an everlasting love. That is why I have continued to be faithful to you.’

This but that, but this!

The plan began with a desire to see my husband’s family for an upcoming holiday.  But gathering in Texas would require 2 very long days of driving for us, pulling a travel trailer.  One family member suggested we meet in Arkansas instead which would be closer to the university where a younger family member is studying.  Cut off one full day of driving for us?  Yes, let’s go to Hot Springs, Arkansas instead.

This plan continued with the hope that we could camp at the RV Park inside Hot Springs Village.  My Mother-in-Law has a house in the Village and we would be closer together.  But the campground will be under construction for the months of November and December to have sewer hook-up lines installed.  It’s going to be closed!  Yes, let’s go to an RV Park about 30 minutes away on top of a picturesque mountain top instead.

The plan originally included having Steve’s daughter travel with us then the idea popped up to have both of Steve’s daughters stay with us in our travel trailer.  Oh what a blast that would be!  We now have the room to accommodate them but I simply cannot do so at this time.  I was devastatingly sick for 4 days this past week when some new fragrances triggered my worst symptoms of Chronic Inflammatory Response Syndrome.  Geez, we don’t even know how we will have family over during the Christmas holiday let alone have them visit overnight when both are back in town.  (Our attempt in September failed.)  But to stay in closer quarters of a travel trailer while away from home in a less-controlled environment?  Yes, we want to be together but no, let’s at least travel and stay separately this time.  Again really.

This plan got even more complicated when planning our trip scheduled for departure not long after that horrific flare up last week.  I saw my newer Functional Medicine Doctor who spoke frankly and clearly:  I don’t think you should travel now.  What?  She said it would set me back even further, even if she could find a replacement for a treatment that contributed to the flare-up last week.  So her recommendation posed a dilemma for my saint of a husband who wants to see his elderly parents-n-family AND be with me.  Did I mention that our wedding anniversary is coming up?  But I really don’t want to be alone on a holiday much less our anniversary!  Yes, we want it all and may need to split up the holiday into a shorter trip, a shorter anniversary celebration.  We are used to compromises.

The planning behind the scenes for this month involved a recall notice for our new-to-us travel trailer.  We bought it after the original owner had it for about 3 months so we never got the national recall notice; it was for a safety feature that could pose a grave threat if not corrected.  We found out about the recall in a Facebook group!  Nineteen phone calls over the past 15 days resulted in a plan to have the recall work done at a local RV repair shop.  But it got too close to our potential departure date to get the trailer to the shop-and-back:  2 trips of 3-hours of travel each time.  Yes, we are no longer travelling with the travel trailer so we have more time now to get it fixed!

This trip required me to get the oil change and tire rotation for my truck that was coming due.  We just figured out that we were not travelling cross-country but I decided to get the maintenance done anyways.  On the way to dropping off my truck at the shop last night I HIT A DEER!  The impact trashed the right-front quarter panel and headlamp of my Nissan Frontier.  The turn signal stopped functioning correctly.  There is no way we could travel cross-country (which always includes nighttime travel for us) with a damaged headlamp.  Yes, you can see now that the door to travelling this holiday is now fully closed.

Nissan Frontier, deer, impact, hit, accident, crossed the road, Coldwater Rd., Fort Wayne, Indiana, white, truck

The plan may change to include my hubby travelling alone for a shorter time while I rest up; we are holding our breath for now.  But what if it snows?  He needs new tires on his car before the next time it snows, according to the professionals.  Yes, we will find $800 for tires if we need to . . . That’s about how much a longer trip would have cost anyways, if we helped with housing for Steve’s daughters.  Which we would offer, of course.

This but that, but this!  Such is life in this fallen world in which we find ourselves.  Many times I have said that when the trials have come, seemingly often of late, that I am holding out for the hope of heaven.  Heaven indeed.  The late Pastor Billy Graham wrote:

Paul wrote, “If only for this life we have hope in Christ, we are to be pitied more than all men” (1 Corinthians 15:19). But our hope isn’t only for this life! In the midst of life’s storms, our hope in God’s promise of heaven is “an anchor for the soul, firm and secure” (Hebrews 6:19).

He said that if we are ever going to live for Christ, then do it now.  I was reflecting on these themes when I was emptying the trash the other day.  I hit my head leaning over to remove the top of the can as the can was positioned between the toilet and the bathroom sink cabinet.  The top slid back behind the toilet, my head brushed against the toilet paper dispenser, and something fell back there too.  I wondered if in heaven things like emptying the trash would always go smoothly?  Then I realized that there is no trash in heaven!  We know this from Revelation 21:4 that tells us:

He will wipe every tear from their eyes. There will be no more death’ or mourning or crying or pain, for the old order of things has passed away.”

I imagine that there will be no long days of driving with cracked headlamps, recall notices, endless phone calls to make things right, separation from loved ones, suffering, cramped bathrooms or travel trailers, worn tires from roads traveled, nor heartache in the dwelling place of our Lord, Jesus Christ.  This is a plan upon which we can depend for those of us who believe.  Now that’s a trip I’m already on.  How about you Gentle Reader?  JJ

Stuck in the middle with you

My beloved is most gracious, loving, and kind to me

For these I am grateful.

My ventures out into community work were wrought with struggle then success

For some good results I am humbled.

My convulsive episodes have lessened then spiked on occasion, giving more clues than questions of late

For this I am, alas, perplexed.

My  labs raise questions about new things that need attention more than providing answers about a cause, per se, oh my

For the discouragement I will turn a cheek and trust my Lord, the Yahweh.

My distant family faces tragedy so we love on those who have come nearer for a time

For them we will simply give our love, again and again.

My life sprints and spurts in a race against time, energy, resources, wisdom, and fatigue

For the long naps this past week I shall be grateful.

My most prized moments are those stuck in the middle of all with you my dearest love

For your tender arms bring Jesus with skin on:  tis a really good thing, being here with you, even now.

My life would matter less if not witnessed, not shared by one who cares for me so and me for him

For such a time as this, you are the most incredible gift.  I love you Steve.  Thank you.

JJ

 

I long for you

My intended beloved, oh man of my longing

How is it that these things come between you and me?

I lie next to your warmth, oh so ready to imbibe

Til the horror of illness keeps me far, far away once more.

Albeit evil it must be:  a test for my weary, so weary heart

You know my lord and my Lord that I do shake with grief so!

Perhaps just for a time, please wait for me love

I shall return soon when illness has gone one day, I promise, I do.

Until then know that you are the one for whom that my heart sings

The one who loves me so, beyond that which I can even wanton,

My knight in shining aluminum, we jest, but you are indeed more

And know me well, I love you too . . . this is all I need to know to live.

Our Jesus is out in front of us two leading us on

When darkness comes, oh here it is again, we shall not be moved;

Hold me as you are able or as my frame lets you in

Forever in my heart you know you will for always be with  me.

Solomon, 3:4, Christian, marriage, trials, chronic illness, sickness, intimacy, sexuality, wife, husband, Lyme, seizures