I was talking to God the other day . . .

I was talking to God the other day, the night before the big snowstorm hit the Midwest and the night before this head cold took me out for a few days.  It was after 2:00 a.m. The house was quiet, the Christmas tree still stood tall and magical in the living room, the pup was warming herself on the rug in front of the floor vent in the kitchen.  My beloved was fast asleep in bed down the hall.  Here I was prowling about the house as usual in the wee hours of the morning.

Usually I head to the kitchen for a snack before my 3:00 a.m. bedtime and read the Bible verses for the previous day from the Android Bible App.  After that I’ll finish perusing any garden catalogs that have come in the mail, clean up the kitchen and head to bed.  But something gave me pause.  I believe it was the leading of the Holy Spirit beckoning me to come dwell before the throne of grace before retiring for the night.   And so I did.

I sat in my favorite little chair in the living room and looked out over our home.  Gratitude overwhelmed me as I realized all of the blessings laid out before me.  The Lord had restored the years the locusts had eaten (Joel 2:25) and provided nice furnishings, my husband’s shiny kayaking trophies, beautiful hardwood flooring and more for our lovely home.  Laughter and activity filled these spaces just 6 days before as all of my husband’s children visited with their loved ones in person or via Skype.  I was blessed to be able to serve them with treats and home cooked meals before turning in early to rest and recover for the night (sight unseen).  All they saw was the good stuff and that is o.k.  Sitting before me were opened gifts still gathered under the tree:  sweet and thoughtful too.  My Lord has been so good to me!

Then I heard a whisper, a presence as if my Counselor, Friend were sitting there right with me in the twilight.  He reassured me that everything would be o.k.  He allowed me to fill my heart with memories and reminders of His goodness that would be needed in the difficult days ahead.  He made it clear that He would always be with me and have my best interests at heart.  My Jesus filled me with His love that night.  It was a sweet treat indeed.

Taking time to be alone with our Heavenly Father, our Heavenly Husband, our Immanuel makes the days, the nights more meaningful.  I know that when I stop for a moment of reflection, I can see His hand leading me, holding me, carrying me, protecting me.  I trust that you will see Him too as this Christmas season draws to a close.  His omnipresence reassures me that He will be there with you in your time of need just as He is here with me now and the other day.  If you don’t know God personally, I pray that you will spend some time with Him and His Word alone somewhere meaningful to you.  I tell ya, it’s a really cool thing to do!

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13 You will seek me and find me when you seek me with all your heart.   Jeremiah 29:13 (NIV)

Where have I gone?

Sometimes I just don’t recognize myself anymore.  I have used many words for myself such as Julie Anne, Recovering Type A, Recovering Catholic, Adult Child of an Alcoholic, Jul, Child of the King, Snookums, Just Julie, and Booberry.  Many other labels inside my head will not make it to this blog as they are unkind and reflect the stinking thinking that was an outcome of my childhood.  While I have come a long way there is still so much to do!

all things have become new

My biggest challenge these days is having some kind of identity when my world is smaller; there is less going on.  I am sick a lot of the time.  I am isolated most days.  I go fewer places, see fewer people, engage in fewer activities, and generally do less than at any other time in my life for longer than any other time in my life.  Whilst engaging in various activities a person engages in various roles that comprise one’s identity, for example:  friend, church goer, Master Gardener, sister, sister in Christ, kayaker, exercise enthusiast, and so on.  All of the roles that I have mentioned have severely diminished for me in the past 2 years because of a serious illness.  I do not know when this will change.  The tendency is to ask the question, “where have I gone?”

girl in the rain

I really miss my life before illness.  Sure it wasn’t perfect.  I still had chronic pain, went to the doctor and had some type of treatment for pain a couple of times per month, and limited my work schedule to a maximum of 30 hours per week.  But I was also the most physically fit I had been in my entire life, had the greatest financial freedom that I have ever had, enjoyed rewarding work as an occupational therapist with a flexible schedule, and went to lots of neat places with my amazing husband.   My mind was sharp, my confidence was growing, and I felt really loved.  Things are more mushy now.  Most of the time I feel lost.  I am not even convinced I have the correct diagnosis or treatment plan.  So this translates into the reality that I don’t really know when I will be well again.  This is tough stuff indeed.

And yet there are many new activities that have emerged these past two years.  While I don’t work in all-things-gardening as much, I did become an Advanced Master Gardener AFTER I got sick.  That was an amazing and humbling accomplishment!  The Lord gave me the opportunity to explore blogging, learn more about social media, publish an eBook (Hope Beyond Lyme:  The First Year), learn to make macramé jewelry, and launch an online jewelry business (Trinity Jewelry by Design).   I’ve made some amazing friends via a local Lyme Support Group in addition to some compassionate folks online.  I have kept a journal for most of my life and now my blog has a growing list of really cool followers from around the world.  Talk about humbling!  Wow.  If only you could see my heart right now, transforming from an identity crisis between the lines of this blog tonight to a woman with a vision.  You do that for me, Gentle Reader, guided by the Holy Spirit.  Thank you for listening as this gets worked out within me . . .

broken to beautiful

If we were to examine the experiences of my life, we would probably agree that I have had a life that has been harder than most.  Over and over again I have had to find Little Julie then Jul and Just Julie amidst a firestorm of hurt, loss, and strife.  I have come to understand that the Lord has had His guiding hand, loving arms, and protective wing around me all along where the good people and perks of life were missing.  He has allowed the trials and tears to bring me closer to Himself, to help me to see beyond the circumstances around me.  The Lord has shown me that the bad stuff was not wasted or intended to hurt me.  The Lord wants me to be complete and allows all this to conform me into the image of Christ.  I pray that I will not lose heart during the refiner’s fire.  I pray that I will see His blessings soon as I have seen so many times in the past.  I just gotta hang on a little longer, let Him carry me a little more.

Where have I gone?  I am in another wilderness experience like Moses and the Israelites of the Old Testament who wandered in the hot, dry desert for decades wondering if they would ever be “there yet.”  I must keep my eyes on Jesus:  the light that leads and the cloud that blots out the forces of evil that taunt my doubts, fester my feelings of inadequacy.  It just doesn’t matter anymore where I have gone.  What matters now is where am I going?

Happy new year, Gentle Reader.  Will you go with Him too in 2014?

Forbidden Fruit

It’s everywhere.  I look in one area then into another and I cannot avoid seeing it.  I go to the store and displays everywhere tempt my senses.  I must be strong.  I look forward as if I am wearing blinders (those “harness winkers” or leather patches that keep horses from looking to their peripheral vision) so I don’t stray from my mission.  The forbidden fruit beckons.  “No!” I will not cave.

It’s not that I can do this in my own strength, by the way.  The cravings are too great.  Every cell in my body has probably been affected at some level since I’m without the glucose and carbohydrates that provide energy to battle the infection raging therein.  Oh you thought I was writing about something sinister, didn’t you?  Nope.  It’s an elusive fungus, partially protected in a mucous-y biofilm but not sinister per se.  It is CANDIDA!  And at level 3 of 4 levels, gut yeast is hurting me badly.  The “forbidden fruit” includes actual fruit plus food containing any form of sugar plus any simple carbohydrate or starchy vegetable.  This includes all grains, even the gluten-free kind.  Now even several months into this this extreme diet I have yet to see the endpoint.

Now let’s add another layer:  any food that is fermented, aged, seasoned with just about anything but salt, or at risk for trace amounts of mold!  Evidently even walnuts and pecans can harbor mold in the folded areas of the nut itself.  Leftovers in the frig for more than 24-hours can harbor mold.  Black pepper can harbor mold.  And the list goes on.  Tonight I decided to sacrifice some more seasonings to try to prevent the side effects of consuming the wrong foodstuffs.  The consequences have been severe:  three and one-half hours of seizure attacks plus hours of recovery yesterday convinced me of the need for some more tweaking.   I also stopped one of the medications that feels like it’s killing me.  When a pathologist stated online that seizures change the matrix of the brain, well that woke me up again to the seriousness of this battle.  Seizures can be a part of a level 3 Candida infection.  Geez.  And most people associate yeast with vaginitis.  That was a cakewalk compared to where I am these days.

Yes, this is tough stuff.  Yes, it takes total discipline, focus, endurance, and patience with the repeated setbacks.  Chronic illness requires grace from one’s family, especially one’s spouse.  I am grateful for a loving husband who relies more on the Lord for his happiness and peace than on me.  He sees things from a hopeful place and speaks to the little improvements or the sweet moments between us no matter how small.  His God-given strength is very humbling.  The only way we are able to endure this is through the love of our Lord, Jesus Christ and the leading of the Holy Spirit.  We believe that this is the Lord’s plan for our lives and that He is here with us no matter what happens.  And if it is His will, I will be well someday.  I will be able to put to use that awesome carbon fiber canoe paddle Steve bought me for Christmas!  Such a gift of confidence from my beloved.  I love my man!

The forbidden fruit of today have become the hedges of protection I need to keep me from getting worse.  Just like the corrective events of life (those we bring upon ourselves from our own mistakes and those the Lord allows for His Divine purposes), they are not to be hated, feared, avoided, or teased.  We must face that which is forbidden and directly choose otherwise, place a barrier (physical or mental) in the way of temptation, and simply go forth on a different path that leads to victory.  Nothing else will do if we want to win.  I did not dink around with my diet at all during Christmas and I still was very sick.  Imagine if I had “cheated” on my survival diet.  I would have not been able to visit with family for three consecutive days, cook for several hours at a time, and enjoy a delightful time of fellowship.  Sure I “crashed and burned” around 8:00 p.m. each night.  The sacrifice was worth the reward that was available to me.  The reward was greater this year than last year at Christmastime.  That’s cool.

From here the journey ahead is unclear.  I will continue the treatment approaches I have described above yet do not know yet if any new medical approaches are warranted.  I have an upcoming appointment with my Lyme and mold-literate medical doctor where we will review the difficulties I have had functioning these past two years.  There’s another functional medicine clinic of interest that is 3-hours away . . .   We sure will be praying for direction about all of this in the new year.  Wherever the path leads I know the Lord is already there.  I welcome His plan for my life that has created more joy than I ever could have imagined on my own.  If that joy must come through serious illness then I would not want it any other way.  Really.  I’m just believing what He tells me, you know.  Picture me and Steve in an outrigger canoe along a sandy beach somewhere warm . . .   Yes, I can picture it  . . .

Proverbs 3:5-6
Proverbs 3:5-6

Moments of happiness

If there is one thing that enduring a serious illness has taught me it is this:  to live in the moment is Divine!

The moment is all we really have anyways right?  I mean can you re-live the fabulous breakfast you had 6 hours ago or borrow the great night of sleep you might have in 4 more hours right now?  Nope.  While I do value reflecting on the past and hoping for events in the future, I try to LIVE in the moment.  This translates into a lovely collection of coping and being behaviors that keep me sane these days.  Let’s take 10:51 p.m. EST on Sunday, for example.

Steve and I had a really nice time visiting with his son, Daniel, and his girlfriend Elizabeth.  We enjoyed their happiness, love for each other, and sharing of their plans for the future.  Our time together went quickly and I thought little of my discomforts.  Looking ahead, I foresee many good things for them with the blessing of the Lord on their lives together.  Living in the moment, I refused to consider what it would be like, should they get married, trying to navigate various family activities whilst sick on my unpredictable schedule.  Living in the moment whilst lying in bed with seizures right before they arrived, I refused to spend energy trying to figure out what I would say should I not make it to the living room to see them.  The attacks stopped just after they walked in the door.  The worry would have been wasted if I had spent any energy there.  I praise the Lord for helping me in those tenuous moments.  I praise the Lord for our moments of happiness this evening.

Steve and I are looking forward to several family Christmas activities in the next few days, including a church service in the water-damaged building that is our church home.  This will require me to wear a carbon filter mask as soon as I walk in the door and wait to remove it until I enter the shower at home.  This will require both Steve and I to remove our outer clothing and coats when we get home and toss it all in the dryer as soon as we walk in the door.  This will require an awkward conversation with Daniel and Elizabeth about our mold decontamination procedures should they come back to our house later that evening.  So right now, instead of ruminating about all of this, I am choosing to spend my energy looking forward to worshipping in our church home for the Christmas Eve candlelight service.  It will be my first time with Steve there in over 6 months . . .

Moments of true happiness come easily sometimes and other times they require arduous, copious amounts of work.  All I can say is that in this one moment in time, now 11:04 p.m., I am grateful for a few happy moments today.  This is new for me.  Perhaps I am starting to live again?  Yes.  That makes me happy, happy, happy.

Snoopy dancing

Lost in Space

Lost in SpaceToday was a better day.  I almost don’t know what to do with myself!  I slept a total of 13 hours:  slowly moving through the motions of self care then made my way to the kitchen.  Five hours later I emerged having made dinner, homemade granola, no-bake cookies, bone broth, and roasted parsnips.  What the heck happened?

Who knows?  Maybe I don’t need to know.  I still had some rough moments this morning with feelings of sickness on and off.  But this is the first evening in many weeks when I have not had a major seizure attack episode for 1-3 hours before midnight.  Thank you Lord!

Tomorrow will be filled with appointments outside our home and we’ll see how that goes.  I kinda think that reducing my stress level was the right thing to do today, letting my energy level dictate what I would do rather than my calendar.  So as I go to bed I am massively humbled and a little lost.  Gee.  A better day happened to me!

Tee hee!  Goodnight all.  JJ