The moments that matter

child with umbrella, boy, boy in the rain, blog about sorrow, overcoming sorrow, rainy day, hope beyoneWhen things are not right or even worse

We cry out to the air and wonder, “who is there?”

“Can anyone hear me on my bed of sorrow?”

“How long will this go on, how long?”

Oh the angst for enduring what simply should not be . . .

I could bemoan much pain in my heart this day:

From my spirit through my tender frame.

But why?  What will I gain by wallowing here?

As I listen to a friend who sounds like me over the waves,

I hear wisdom that comes with her years.

She doth declare that in her own time of prayer

The Lord spoke to her so gently.

In all of those times of suffering,

When surely no one cared He said,

“I was there with you.”

And her heart was full, no place untouched.

So today let’s heed this wisdom

Should we, too seek and hear His voice.

Don’t just want for the pain to end.

Reach into the moment to His love so grand.

Find people with mercy for the darkness of our lives

For we all have a burden to carry, each one.

And let us come together in prayer, in fellowship, in praise.

But most importantly

Kneel at the throne of grace often

In adoration of the Person who sees you always.

For Jesus loves you always.

And turn these into moments that matter for all time.

They will be sweet, and soften the burdens we will endure.

We can go on when held by His hand.

Yes, we can indeed.

JJ

Get this book!

Gentle Readers:

If you are dealing with chronic or unexplained illness, I encourage you to get this new book by Suzanne Sommers:

Tox-Sick

Mrs. Sommers uses her interviewing style to cover topics that are usually more difficult to understand when it comes to the complexities of serious illness.  She includes a broad range of diseases, treatments, and types of practitioners, only occasionally mentioning her other best-selling books!  I especially appreciate the index for locating topics of interest.

This book might have shortened my learning curve if it had been available 3 years ago.  May it shorten yours!

Take care,  JJ

The Extended Forcast is Good!

Cast your burden on the Lord, and He shall sustain you; He shall never permit the righteous to be moved.  Psalm 55:22

But I want you to know, brethren, that the things which happened to me have actually turned out for the furtherance of the gospel.  Philippians 1:12

I am 2 days post surgical removal of 2 root-canaled teeth and THE CONVULSIONS ARE GONE!!!  Yipppeeee and praise the Lord!  This 3 years of daily hell for me and my beloved husband, Steve, is finally over!

While there is still much work to do to detox mercury toxicity and re-evaluate chronic Lyme and mold illnesses, I feel more optimistic that I will be able to tolerate those treatments someday.  Until this week, I was failing.  I was bedridden most every day with convulsive episodes.  The grief and impact was huge on everything from our finances to my aching neck.  My husband no longer got a full night of sleep and this illness had changed virtually every activity inside/outside of our home.  How would Steve find me when he came home from work?  Would he have to make me my pureed dinner and feed me again before bed tonight?  Carry me to the toilet?  Our hearts were weary after 3 years of this living hell.

Nine months ago I began investigating how two sore molars in the upper left section of my jaw might be impacting my health.  Four dentists and three oral surgeons, a cone beam CT, MRI, and pano plus regular x-rays later (including a consultation out of State) we had no objective data to guide us.  Everything looked “fine.”  The teeth had bothered me for over 13 years!  Fifteen years ago I had all my amalgam fillings removed but was never guided to chelate for mercury.  Were there silver filings containing mercury remaining underneath the crowns over these two teeth?  We will never know the answer to that question.  My saliva had started tasting metallic.  Eating started triggering the convulsive episodes.  With Steve’s support, we took an expensive leap of faith and pursued a dental solution.

Additionally, seven weeks before what would become the big day, I started eating only on the right side of my mouth.  Two and one-half weeks later I started a pureed diet to eliminate the chewing action that seemed to make things worse; all this was quite a feat since my struggle to get well led me to eat low oxalate, virtually dairy-free, and completely sugar/sweetener-free, gluten-free, and mold -free foods too!  Another two weeks later and 1 week before the surgery I noticed that using plastic utensils delayed the onset of convulsions after eating.  Even drinking my foods through a straw helped initially then ultimately triggered episodes.  I feared eating anything at all!  The only problem with that was hunger and thirst could also trigger convulsions or make them worse.  I felt trapped!

Three and one-half days before the dental surgery my doctor recommended trying an EMF deflecting device.  “It might help” he said, like so many other recommendations I had received all over the spectrum of traditional and alternative medical care.  After one such technology (a Rife machine called a Beam Ray) I tried 3 years ago to treat “Chronic Lyme,” the daily tic attacks started.  Within a year these episodes would escalate to waking seizure attacks then convulsive episodes lasting 2 to 5 hours per day.  We had tried to shield me from wireless technology in our home in the past yet the results were initially helpful then inconsistent.  This time the GEOMACK from Spain reduced the intensity of the convulsions 50%.  That reduction gave me a tiny boost of strength that I needed to physically and mentally prepare for surgery.  My husband got some much needed sleep as well!  Could their be an electrical cause after all?  (See this blog for more anatomy and discussion.)

The morning of the surgery went as usual.  Convulsive episodes began shortly after opening my eyes and periodically as we prepared to leave the house.  Seizure zips ripped through my hungry and thirsty frame as my beloved drove us to the hospital.  We were still reeling from the large check we had to carry with us since the oral surgeon insisted on performing the extractions near a crash cart, I guess.  And after some prayers, many silly jokes and one last shake/rattle/and roll with placement of the IV in my arm, the time had come to let go and not look back.  We reviewed my situation with the anesthesiologist and oral surgeon, surgical tech, and several nurses.  They were not to abort the mission if I seized under anesthesia!  Just wait a moment and get the job done.

I’d like to say that I woke up in a calm, blissful state but that simply was not the case.  I became nauseous and pain management was a problem over the next day and one-half.  Oh well.  One thing was certain:  THERE WERE NO SEIZURES OR CONVULSIONS!   The “battery effect” of dissimilar metals in 2 adjacent crowns over root-canaled teeth WERE FRICKIN’ GONE!  No more tazoring of my brain would continue.  And hey, if there was hidden infection in the root-canaled teeth then the problems caused therein are now also “history.”  The hell is over.

My job now includes retraining my brain to relax when falling asleep instead of bracing for impact.  My job now includes remembering all of the relaxation techniques I used to train my patients in psychiatric hospitals to deal with anxiety.  I need to rework those memory pathways and feelings of impending doom that followed me, waited for me every night, every morning, every time when I was exposed to noxious stimuli, or even on the clothing or breath of my beloved anytime, anywhere.  Hey, no problemmo.  I am ready to live and the extended forecast is good!

Thank you and big hugs to those of you who have followed my story for any length of time,  You have been an important part of my lifeblood to go on when I could not.  Sometimes my husband could not be home with me and I was alone, feeling terrified mostly of even greater suffering and it came.  The worst episodes were never captured on YouTube videos because my warrior husband was needed to hold me tightly to keep me from greater harm instead of holding onto a camera.  Sometimes the Lord was silent even when I cried out to Him when breathless, facing death again and again when my breathing stopped.  When He did speak I gained the courage I needed to face the next trial.  In the end, death was not my greatest fear.  Dying without my Heavenly Husband was.

But you know what?  I made it through.  Steve made it through.  A new chapter in our lives is about to begin.  I’m going to take some time now and regroup.  I am very weak.  An infusion of my Jesus is needed.  The warmest embrace with my beloved must follow.  And really good food cannot be far behind.  After tomorrow the putty d’ jour will be history!  Yeah God!

Pureed Tri-Color Carrots, Cauliflower, Bacon, Ground Round, Potato Chips, Homemade Broth, and Sea Salt
Pureed Organic Tri-Color Carrots & Cauliflower, Bacon, Organic Beef & Potato Chips, Homemade Broth, and Sea Salt in the Recovery Room!

With love, JJ

But the Lord was my support. He also brought me out into a broad place; He delivered me because He delighted in me.  Psalm 18:18b-19

Cast your burden on the Lord and He shall sustain you; He shall never permit the righteous to be moved.  Psalm 55:22

UPDATE:  The holiday from convulsive episodes did not last, unfortunately.  There were many benefits from having these two infected teeth removed:  significantly less mouth pain, less congestion in the upper shoulder and neck, decreased TMJ symptoms, decreased auditory anomalies, reduced ringing in my ears, and more.  Then there was a miracle:  our insurance company covered most of the $10,000 bill.  Amazing!  :J

When there’s no where else to go

the crossSometimes I am not quite sure why I am crying, this late in the game.  I’ve been here before, I know my Heavenly Husband is in charge, and I haven’t died no matter how severe the symptoms have gotten.  My husband and I have seen the Lord work amazingly through this illness.  New skills have come, I am grateful to have met you Gentle Reader, and by the grace of God we have overcome tremendous trials together.  Healing is on the horizon with a new treatment direction  .  .  .  I even have my own company on the drawing board to fulfill my entrepreneurial dreams.  So how can I possibly be sad?

I am sad because it is normal to be sad when suffering.  I am sad, grieving if you will, for all of the losses even if it was good to let some people, places and things leave my life once again.  I am sad that Steve and I had to lose so much to gain so much goodness.  We almost missed “it” so many times!  I am glad that we are more in love now than ever before and it came though an extremely difficult path.  No longer do I ask the questions “why” and “what if?”  More often my question is “when?”  When will this hell be over?

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Stand fast therefore in the liberty by which Christ has made us free, and do not be entangled again with a yoke of bondage.  (Galatians 5:1)

Set your mind on things above, not on things on the earth.  (Colossians 3:2)

For God has not given us a sprit of fear, but of power and of love and of a sound mind.  (2 Timothy 1:7)

And let us not grow weary while doing good for in due season we shall reap if we do no lose heart.  (Galatians 6:9)

. . . but we also glory in tribulations knowing that tribulation produces perseverance; and perseverance, character; and character, hope.  (Romans 5: 3b-4)

. . . being confident of this very thing, that He who has begun a good work in you will complete it until the day of Jesus Christ.  (Philippians 1:6)

But I want you to know, brethren, that the things which happened to me have actually turned out for the furtherance of the gospel.  (Philippians 1:12)

Therefore I ask that you do not lose heart at my tribulations for you, which is your glory.  (Ephesians 3:13)

I can do all things through Christ who strengthens me.  (Philippians 4:13)

Let us therefore come boldly to the throne of grace, that we may obtain mercy and find grace to help in time of need.  (Hebrews 4:16)

And my God shall supply all your need according to His riches in glory by Christ Jesus.  (Philippians 4:19)

For we walk by faith, not by sight.  (2 Corinthians 5:8)

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I was hoping that somewhere between copying these lines of scripture and writing this blog that I would feel better.  Well, not yet!  When all else fails, I shall crawl up to the cross of my Jesus, place myself at the foot of His throne of grace, collapse in the shelter of His mighty wings, rest in the promise that He is always with me:  now and forever.  Yes, this is the best place to go after all.  Here is where I belong.  JJ

He loves me

“Why wouldn’t I?” he doth profess of his love to his bride

When the nightmare is lived whilst both still awake and the hour is well past midnight.

The softness in his blue eyes

Shines brightly even in the dimly lit room

As once again the nightly ritual of enduring madness

Takes them both to a place they could never imagine before . . .

Once upon a time in a land 200 miles away

A fine gentleman found his love then lured her away with his sincerity.

She could not possibly know the trials in her tender frame that awaited,

Testing everything she knew about life itself and sharing it with another.

His strength in the Lord, His leadership in their home

Brought agape love, bigger than life and transforming them both

Such that nothing when her wretched, convulsive late night episodes groaned on

Could shake their faith in the One who endeared them to Himself, to each other, no less.

So when will the darkness end?  They often wonder night and day after night

When hope is dashed once again as the optimism of the moment gives way to defeat.

Perhaps they will know someday:  a loving embrace will return unmarked by demons or tears

And in the meantime one thing will remain as clear as crystal with the Redeemer’s love blazing through:

HE loves her.  HE loves him.  And they love them both, no matter, not mattering when.

Indeed how could they possibly ask for more?

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Happy Valentine’s Day my beloved Steve.

Happy Valentine’s Day Gentle Reader. 

With love, :JJ

two hands heart sunset