A Christmas Gift

A Christmas Gift

Isaiah 9:2  New International Version (NIV)

The people walking in darkness
    have seen a great light;
on those living in the land of deep darkness
    a light has dawned.

Some of you know that I was in the hospital earlier this week with the searing pain of shingles on my face. I was crushed to face such a serious disease on top of the daily seizure episodes that accompany chronic Lyme disease: a battle that consumes me with treatment and related activities for most of every day. How could I possibly bear one more grief?

The answer:  with Jesus Christ. Inside the treatment plan of this new illness came a drug for nerve pain that also happens to help seizures. And fibromyalgia pain. I was humbled to have a couple of seizure-free days thereafter! Managing everything took strained breaths as I tried to get beyond the few 1-2 hours of sleep in those first days and other complications. There were setbacks that crushed my spirit: aggressive, violent episodes of a kind I had never seen before. Then they all nearly stopped. And very few “little zippies” have followed as sleep has returned too. I am humbled, hopeful, grateful. What a Christmas gift!

We have no idea what lies before me in this long journey of illness and hope for complete recovery. I am grateful for those who have followed my story, prayed, and offered encouragement just when I needed it. Thank you! I believe this story goes beyond me, however, as neither of us knows what lies ahead. But don’t waste your time worrying about that. Put your faith in the one who came to save us from this hell, these trials, the sorrows that plague our lives here on earth big or small that began as a consequence of the Fall of Mankind. He grieves for our loss, our struggle, our suffering. And He gives us a choice what to do with it.

Choose to join me in the celebration of a new life that comes from the belief and surrender to the Lord: Jesus Christ. One day He will return to make all things right. No more sorrow, no more tears. Until then we can have a good bit o’ the joy, the strength, the love that supernaturally exceeds this life: our eternal destiny begins the day we place our faith in Him. Do you now Him this way? He is the only way to peace. He is the only way to joy. He is the only way to love. He invented them after all.

Merry Christmas Gentle Reader. Hope to connect with you more in 2017 and most importantly at the celebration that awaits believers in Jesus Christ in heaven.

I love Christmas.

With love, Just Julie

snoopy-christmas

The Medicine Cabinet

Pray tell how much do you think I can hold

In my shelves bursting forth from the orders?

“Try this, take that, or Google the one I heard about”

Becomes license for judgement once thought to be clinical.

Not learned in school but that of “hard knocks”

The ideas flow too simply during paid consultations

Such is the life of a lab rat in the cauldron of illness

Where test results get mixed with expensive remedies.

So I look up interactions online thanks to drugs.com

Although many will be borne out of a bad trip on a Tuesday

When I try your best guess out of desperation, my last dime

And occasionally find relief or find hope a fraction of the time.

“I’ll take it,” I say under my breath as a new protocol prints out

My medicine chest overfloweth, my fingers sore from researching

Til someday the Lord crafts a breakthrough I shall not give up:

For the Great Physician love me more than this infirmity for sure.

Just look up, look out Gentle Reader if you suffer along too

Have I not commanded you? Be strong and courageous.

Do not be afraid; do not be discouraged,

for the LORD your God will be with you wherever you go.

Proverbs,4:22, medicine cabinet, God's word, Bible, the word medicine, hope, healing, Great Physician

If the story made a difference

A blog is an interesting vehicle in one’s life.  You get to write about anything you want and just about anyone, anywhere can read it.  At least that is how this blog is structured.  Funny thing is that once you get going on a particular topic, there’s a high likelihood that you might reveal a little more about yourself than you might if you were in person.  The ideas just flow when here alone at the keyboard and if it is a personal blog (instead of a professional or business forum) well things can get personal quite easily!  If you are honest, that is!

Why bring this up?  Well I have come to realize that some tragic events in my childhood are influencing the nature of my recovery from illness.  The question I have grappled with of late is whether or not to write about it.  Oh the story is juicy enough to draw some interest and you bet I’ll let you know how the Lord has helped me endure and overcome the pain of it all.  Healing has come for these hurts because of the love of my Heavenly Father manifest in my personal relationship with His Son, Jesus Christ.  The Holy Spirit has guided the process:  providing counsel, “Jesus with skin on” in the form of loving sojourners, helpful tools, and His glorious written Word leading me to hope.  So why share the hairy details anyways?

Possibly I would because horrific illness may trigger past hurts for others more than me.  I don’t want you to feel alone if that is part of your story.  New trauma often stirs up old wounds:  at least the one we might find are not fully healed.  We might not know that they are not fully healed until something new happens in our lives as in the course of serious illness.  I view many of these events as “another involuntary growth experience” and am often left feeling more whole when I work through the tender issues correctly.  The problem is that when you happen to mention to a medical professional that waking nightmares, seizures, involuntary screaming episodes, and convulsions have triggered scenes that might be from your past YOU GET A PSYCHIATRIC LABEL AND THEY STOP TRYING TO TREAT THE MEDICAL ILLNESS.  This is frustrating indeed!  The medical illness came first.  Healing secondary issues is a bonus, like clearing out cobwebs in a musty garage.  Cool beans and all that jazz.  Keep the treatment focus on the root cause people!

So for me to share old or emerging facts from my abusive past runs the risk of my physical symptoms not being taken seriously.  Convulsions require serious examination, eh?  I paid dearly this past Saturday for venturing out on a private lake for my husband’s canoe and kayaking class hosted with a friend.  Even though the water was treated with blue dye to prevent algae growth, it was there anyways.  I have never had such violent, animalistic, horrifying convulsions in these 2 1/2 years of seizure attacks as I did one hour after I returned home.  You would not believe the level of torment I endured continuously for 2 wretched hours!  The rest of the evening was awful too with a rebound of episodes on Sunday.  I lost over a day of my life in payment for enjoying a paddling outing with my beloved and some friends.  The biotoxin illness won and I lost.  Tell me how this is all in my head as the working out of an unhappy childhood?  NO WAY.

If the story of my sorry childhood made a difference to the “Hope Beyond” I would like the Gentle Reader to find, I would write about it here.  However in doing so I would risk selling myself short in the process for those who might not follow my whole story.   One of my blogs generally covers only one topic as in a chapter of a book.  Further, reading a posting about a waking nightmare that was remarkably similar to a very bad day a long time ago would put the focus on the past and not on the exposure to cyanobacteria earlier that afternoon.  And in the end we bloggers don’t need to share everything about ourselves to be heard, to make a difference in the literary world.  We only need to be genuine to ourselves, to our subject matter.  Should I need to share a scene from my past to make a point I might do so briefly.  To say more will put the focus in the wrong place.  I need to keep my eyes fixed on my great expectation for what lies ahead of me (and all who believe), in the glorious presence of my Lord and Savior.  One day when my life on this earth is over He will make right all that was not right back there and heal me then, if not sooner.  I believe there will be a blessing for my stewardship of the experiences, sacrifices, ministries, and choices of humility He allowed in my life if I have succeeded in acting according to His will.  And if I have acted according to His will then it is only because He helped me to do so!  This stuff is way too hard to make it on my own.

The story that truly makes a difference is not mine.  The story that has the power to transform the lives, the hearts of mankind is that of the person of Jesus Christ.  Let His own  Words of His life, His pain and suffering as chronicled in the Gospels (the first 4 books of the New Testament in the Bible) lead you to His throne of grace.  Lay your burdens before the One Who is, Who was, and Who will forever be.  Let His love redeem the pains of the past so that both you and I may live freely in His presence forevermore.  What great fellowship we shall enjoy one day soon!  What great joy we will know when He calls each of us by name Who knows Him as Lord and Savior.  Oh how I long to hear His stories of how much He loves us, He takes our prayers to the Father, and has prepared a glorious place for us to dwell in together:  Him and I; you and Him; the fellowship of believers; the cherubim and seraphim.  Yeah that’s where my focus outta be!

Philippians 4:8New International Version (NIV)

Finally, brothers and sisters, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable—if anything is excellent or praiseworthy—think about such things.

Oh yeah!  Now that’s some great writing!  ;J

Recovery is a jagged line

Today my words came back to me.  My beloved Steve was comforting with his encouragement that there can be many setbacks even when on the road to recovery.  Ah yes.  The old, “recovery is a jagged line” speech.  I have let those words fly many times when working with my patients as an occupational therapist.  There was the cardiac patient who was frustrated with having to restrict his activity level to basically mope-ing around the house for his first week home from the hospital.  I also recall a lady practically quarantined in a back bedroom of her home with a great view of the surrounding woodlands.  She had a portable refrigerator, phone, laptop, accessible bathroom, hospital bed, wheelchair, walker and many conveniences to help her recover from a knee replacement surgery.  I had to encourage her to push up her jagged line a bit lest she become too comfortable in her hospital room at home!

occupational_therapy_no_limitsOne of the many reasons I enjoyed working in home health care was the ability to use the person’s real-life situations, supplies, and responsibilities as part of his or her occupational therapy.  The role of an O.T. is to evaluate the daily activities of an individual and the skills needed to complete those activities.  When there is a breakdown due to an illness, surgery, mental health problem, developmental delay, disability, or disease process, the O.T. works with the patient and his or her resources to restore function.  I was always amazed at how “resourceful” some patients could be!  I think the farmers were the best.  I’ll never forget the industrious wife of a patient suffering after several failed back surgeries.  The lady of the house had built from scrap wood a rolling cart with a seat on top and rope attached to move it along the floors in her home.  What was she moving?  Well her husband of course!  He was eligible for a wheelchair rental but evidently the subject never came up.  I don’t think they even wanted one when it became available.  The downside:  the gentleman would not likely become independent in household mobility and related activities when sitting on a cart that had to be pulled by others.  Recovery is sometimes a flat line too:  no true recovery at all.

As for me, the recovery is moving forward.  I am 12 days into using high CBD hemp oil to attempt to control daily seizure-like tic episodes.  Today I had a setback for about 2 hours but at least the episode was low grade without a severe neck headache or pain.  And when night time rolled around to my bewitching hours of 9-11:00 p.m. there were pre-tic symptoms and nothing else.  This is the second night in a row with relief!  Every night prior to this and for the past 8 months I have had 2-4 hours of intermittent seizures.  Virtually every day or night for the past 2-1/2 years I have had intermittent waking seizures.   Praise the Lord, the pattern is changing!  At either set intervals or when noxious symptoms start I take a full or partial dose of high CBD hemp oil and get relief.  Nothing has ever done this before!

It’s not like I haven’t prayed, submitted, waited, or tried more diets/supplements/drugs/manual therapies/technologies/chiropractors/testing/remediation than, as they used to say, “Carter has got pills!”  I am actually still preparing to see methylation and biotoxin illness specialists in Michigan later this month.  It is likely that the cause of illness is related more to exposure to biotoxins than Lyme disease.  All that may be clearer sometime down the road.  At this time my husband and I are rejoicing for the relief from our hellish nights.  He just might start getting a full night of sleep before too long!  That is if we don’t stay up for other reasons . . . ;J

If you are curious about high CBD hemp oil then I offer this informational website:  www.mycbdresearch.com  and join the discussion on Facebook at:  www.facebook.com/CBDhempandseizures  There’s hope here for many with seizures and other neurological, intractable health conditions.  For all of us there is one ultimate source of hope that will sustain us whether recovery is a straight, jagged, or invisible line:  a relationship with the Lord, Jesus Christ.  To find Him we only need to get on our knees and open our hearts to His enduring love, His love letters to each of us in the Bible.  I would have never made it this far without my Jesus.  I am humbled and grateful for many aspects of these past 2 1/2 years:  I’m working on accepting the wretched parts.

Meeting you, Gentle Reader, along the way is a sweet gift.  Thank you for being a part of my recovery too.  JJ

To Blog or Not to Blog, That is the Question

Shall I blog for my own aggrandizement or to edify the Lord?

If I sign my name and not His with His Word, have I turned the attention to my finite mind and wisdom instead of His omniscience?

Will the cutsy comics and quips create a stir in the moment and not an eternal fire in the hearts of men and women?

Can coping for the moment or finding the next cure become a substitute for finishing the race of life well no matter what, for His glory, His purpose, His plan?

If suffering is my best result in this life, will it still be wasted if I do not see the fruit of my labors and toils in the next 24 to 48 hours?

The apostle Paul wrote many letters inspired by God while in chains, in prison, in recovery from tortuous beatings and deplorable conditions.  If we own a computer and can read this, we will not be able to fully understand how God used this broken man to change the world forever.  He had His own infirmities on top of this such that others had to record the words for him so that we would know the heart of God centuries later.  God’s Word, though Paul inspires me to look beyond the blog, the news headline, the Facebook posting for real, enduring answers and truth.

And this is my prayer: that your love may abound more and more in knowledge and depth of insight, 10 so that you may be able to discern what is best and may be pure and blameless for the day of Christ, 11 filled with the fruit of righteousness that comes through Jesus Christ—to the glory and praise of God.  (Phil 1)

The questions noted earlier are among the important questions for Christian bloggers no matter what the topic of conversation.  I doubt that each of us will ever really know the answer to the question, “why do I blog?”  Oh we might think we have a purpose, a theme, a mission for our works .  .  .  I just hope that for me, my words have little to do with my drama and more to do with the One who created me!

24 but let the one who boasts boast about this:     that they have the understanding to know me, that I am the Lord, who exercises kindness,     justice and righteousness on earth,     for in these I delight,” declares the Lord.  (Jer 9, NIV)

Your thoughts?