
A higher calling for sure


The plot thickens, my angst flares
Why more nasties when hope came near?
I thought we had it, the Doc and I
But my body freaked out putting me in arrears.
Three infections at once
With more at bay for now
Is much to address
Each in it’s own particular way.
Many calls at night
Hubby running here and there
He is so tired as I
Writhing on the sectional in despair.
Call it die-off
Whatever you may
Take this binder and that
With another remedy in the fray.
I have no idea
If I will ever catch up
The beasts within me win
Or do they? It is not yet clear.
My eyes are burning
My tummy aching with nausea
The pain is less, hoo-rah!
Unbelievable at a time like this.
So what will I do
To get through another day?
Cancel everything again
Sit tight and hold on as we go this way.
Rougher than most healing
The prize won’t be for wimps,
We elite patients stand strong
In the arms of our Lord holding us up.
Keep your eye on the prize
Solve the problems that arise
One day all will be gone
For in heaven we will be fine!

Time for a treatment update and some good news! Yes, things aren’t as bad. 🙂
My major focus with my health since I started this blog has always been to stop the residual, daily convulsive episodes that have plagued me for over 5 years. More recently my treatment plan has centered around treating a gut infection that appears to be related. Some call it Small Intestinal Bacterial Overgrowth (SIBO) and specifically for me it might be due to a clostridia species infection. Regardless, the gut-brain connection is real and affects neurotransmitters in the brain. A myriad of neurological issues can result when these chemicals are deficient or out of balance. Specific medications and nutritional supports directed by a functional medicine doctor in the past nor my genetic coach/naturopathic physician more recently seemed promising but did not help. Over the past 5 1/2 years, my medical doctor and I have also addressed or ruled out a plethora of other avenues (biotoxin illness, Lyme disease, mercury and lead toxicity, nutritional deficiencies, dental factors, epigenetic expression, pain/structural complications, the endocannibinoid system with CBD oil, psychological issues, ruling out brain or cardiac anomalies, sleep issues, etc.). But what about the dull ache in my tummy?

I did an experiment with a hand held far infrared (FIR) device designed to treat pain. I used to sell the KenkoWave when I was an Independent Wellness Consultant for a Japanese health technologies company called NIKKEN. Pain in the right lower quadrant of my abdomen has persisted for over a year. A comprehensive medical workup yielded no clues so I decided to shine the FIR light onto my tummy. After just 2 minutes, I had a 2-hour, violent, non-stop convulsive episode that would not respond to any remedy we tried! I hung on for dear life! I experimented some more the next couple of days with the same result: an hour of non-stop episodes after only 60 seconds! Holy cow! Maybe the cause is in there somewhere? By this time I had gotten the results for the THIRD SIBO test coupled with an Organic Acids Test (from Genova Diagnostics and Great Plains Laboratories, respectively) with severe and high markers respectively. Over the next month, a plan of attack came together.
Somehow treating SIBO last year with an antibiotic (that stays in the gut called Xifaxan) was not enough to solve the problem. The current round began with about a week of a powerful bio-botanical followed by a nasty antibiotic called Flagyl or Metronidazole. The drug makes me nauseous so I take another pill for that. I am not fond of drugs but at this point I will do it if it KILLS THE BEAST!!! Gratefully, the abdominal pain has already come down. This leads me to the good news:
The changes also appear to have been impacted positively by taking Low Dose Naltrexone. Persons with autoimmunity diseases and fibromyalgia often use it to reduce a variety of symptoms. I did not do well on a different dose in the past but I believe the Lord led me to do some research and prompt me to try it again at a lower dose. This started the list of improvements noted above with the reduction in chronic muscle and joint pain. Praise the Lord! Treating the gut infection followed and here we are.
I am encouraged and hope you are as well, Gentle Reader. Lord willing, I am going to get well!
If you are someone reading this who is struggling with severe illness, please let me know so I may pray for you. And please don’t give up! If I can make it through hours per day of head-banging, you can make it through what you are dealing with too. You are not alone. Keep trusting in the Lord to see you through each moment, to guide you and comfort you as only He can do so. He promises to never leave us or forsake us and will always be near if we but call upon our Lord and Savior, Jesus Christ. He sees us on our bed of sickness. He hears us. And one day He will come again in glory for us, taking us to a place where there will be no more suffering or weeping. He promised!
Thank you for following my journey dear one. Take care, JJ
Camping is not for the faint of heart, even in the “posh” conditions of a travel trailer! Having a trusty companion or two and the right tools can make the difference between success and failure. For me that would be the guard dog, handy husband, jugs of water, and very long extension cord. Gotter done!

I am grateful for our Camplite (aka Tin Can Ranch) that allows me to go places with my hubby and stay in a mobile “clean room,” away from the hazards of hotels and limited choices of restaurant menus. Preparing for these trips is an incredible amount of work all by itself: just about the same amount of tasks need to be completed for a week-long vacation as an over-nighter. I have a sense that we won’t be doing the latter again anytime soon! Regardless, I rallied the strength and off we went with great expectations to the Illinois Beach State Park north of Chicago, Illinois. I was to attend the day-long Designs for Health: A Prescription for Wellness seminar at the beautiful Chicago Botanical Gardens and Steve was to tackle the surf along Lake Michigan. Later we planned to meet up with some friends for dinner on the north side of the city before heading south around the city and back to NE Indiana into the wee hours of the morning. Whilst the latter plans were complicated by severe rain and traffic issues for all parties, it turned out to be an “easier” part of our itinerary!
Our wacky adventures began soon after we pulled into the campground along the shores of Lake Michigan. Up first: hooking up the electrical. Not! For the next several hours we battled a worn breaker system that kept tripping no matter what we did to avert the issue. Was it the breakers in the trailer that were overloaded? The eroded contacts in the refrigerator switch plate that requires a few minutes of babysitting to turn on? Figuring this out required much problem-solving with wifey-poo dressed in early Spring/Winter garb, very weary from travelling and following orders from the friendly but not-so-helpful front office staff. To sort this out, we ran our extension cord to a few adjacent sites to no avail. Very likely it was the campsite breakers that were worn and not our camper since everything had worked fine at home the day before. Too bad the real on-site expert had the day off!
Finally my husband figured out two work-a-rounds: 1) hooking up our battery charger to the battery to run the water pump and 2) running our 100-foot extension cord to a 3rd campsite and through the kitchen area window to run the electric heater. In the morning I disconnected the heater and attached it to my blow dryer to make some order of the bed head that came with the morning. What about just taking a shower you ask? Well don’t! That didn’t happen . . . for me anyways. The campground did not have water or sewer hook-ups so we had filled our modest, 30-gallon water tank at home thinking it would be enough for bathroom needs with quick “Navy-style” showers. We were wrong. Steve did get a shower . . . then a paddle in Lake Michigan . . . then another shower in the only open bathroom facilities in the campground. I made the most of things and had a quick cooooold sponge bath before heading out to the seminar! Oh well. I was definitely AWAKE for the day of lectures to follow!
A few other tidbits further enhanced our experience such as Steve gashing his lip on the rusted breaker box in the midst of trying to figure out things! So glad for our first aid supplies! Then there was the brand new hot water pot that I had plugged in through the cord dangling in kitchen window to make some hot tea ended up not working; I used an electric frying pan instead! Additionally I took every remedy that I had with me to ward off noxious symptoms from ongoing illness and to consume before-and-during the seminar (with copious amounts of food-n-bacon, of course). And guess what? The seminar was incredible! Steve had a great time paddling our outrigger canoe 7 miles along the lake shore and the pup got in a few long walks at the beach. Cool beans.

Forrest Gump logic applies very well to almost all of our camping experiences these past 3 years: you never know what you are going to get! This trip was no different. We are now home and pooped. Massive loads of laundry and cleaning are now underway to decontaminate everything for our next adventure having something to do with trailer demolishen derby races or something. With our luck, let’s just hope we don’t end up on the figure-8 track. Should be fun. Or maybe not. I’ll be sure to letcha know. Eeeeek!
JJ

No, he didn’t die. He just goes away for large swaths of time as soon as the forsythias start their yellow bloom season up north here until the crimson leaves begin to fall into the local waterways. Then he “comes back to life” again when I need him to keep me warm when the snow flies, that’s all. Such is the life of a kayaking widow!
For those of you who have taken a break from reading your cereal box and picked up your beloved’s issue of Canoe News* instead, this one’s for you! You may or may not be a paddler and that is o.k. If you are not a RACER, however, and HE IS then you are invited to join me in this paper support group! We are not alone! (He does eventually come home to sleep and eat, right?) I mean, I understand girlfriend.
So we must stick together, you and me, and figure out alternatives to dreamy picnics in the park with our men. It probably won’t happen. Our guys are either out fulfilling the requirements of their United States Canoe Association (USCA) membership or too tired and sore from the workout the day before to take a walk on the local Prairie Path on a Sunday afternoon. “Would you massage my back?” is more likely heard than, “the moonlight sure is lovely reflected in your hair tonight.” But I digress. Just focus on the other scenic benefits of being married to an athlete if ya know what I mean? J
And try these tips to get past the USCA Nationals in August at least!
Surely there are a virtual bevvy of strategies for us land-lovers as I am only getting started here. Actually I was a fan of boating under power when I met my River Bear. What happened? Who knows but her name might be “Stella(r)” or something like that! I would love to hear from you ladies (and possibly widowers?) with your best tips on making the most of the paddling season.
Until then, gardening anyone? JJ
*Published in the Summer 2017 issue of Canoe News

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