Life 101

I really don’t think it works for me to have a young person in great health and some priviledge try and sell me on the latest fitness smoothie, butt workout, or prayer meditation. Pretty posts are meaningless to me!

So here goes an alternative from someone with decent skills and experiences from life but who is intensely focused on her health every day. I am “seasoned” by my years over 50 and fueled by the grace that comes with leaning on the Lord to see me through. If I can keep moving forward with crapoloaski (Polish, of course) all around and it makes a difference, so can you dear friends!

I keep going with a simple life-ism to, “do what you can with what you have where you are, with gratitude and reliance on the Christ who loves you, sees you, saved you, and gives you hope beyond that which you can see. Be a good steward of all the brains, stuff, experiences, and relationships I have been given.” Now break it down as follows:

break-it-down

MIND: Feed it or lose it. We must never stop learning. And deeper still: read the Bible, talk to Jesus, and blessings will come one way or another.

FOOD: Eat the food that provides fuel for your body even if you are tired or don’t feel like making it. (Avoid this and feel worse. Why do that?)

BODY: Move in a way for at least a few minutes TODAY that helps support the frame you live in if you want it work for you. Bear weight, even your own body weight, for best results.

WATER: Find water that tastes good to you to increase your hydration. Everything works better when, er, wet.

RELATIONSHIPS: Connect with someone you like every day. Ask for a hug if not freely given. Say “thank you.” Find something to at least smirk or even smile about. And if you can, do something nice for someone even if you have to pray for the strength to get it done. If you are blessed with a spouse, start with him or her, k?

INTEGRITY: Build upon something meaningful from your past even if it was from last week. This is how dreams are born, dreams are realized. God loves that. He very likely placed them there in your heart before you were born and that is cool beans folks.

KEEP MOVING FORWARD, one tiny step, one deep breath at a time. Those in Christ Jesus will have that perfect body in heaven one day, celebrating with the redeemed fitness models we once saw on Facebook. There is room for all of us here and there too. Perfection is not the goal here so let it go right now. Which brings me to my last point:

TAKE A NAP.

Seeya, :JJ

Slow But Sure

What will it feel like to be almost normal again?

Will the days fill with meaning, the nights rest with pleasure?

Alas I know not what tomorrow will bring —

So it’s it will be in the smaller moments that I will define who I am, who I will be.

At least as long as it is up to me . . . and little is of course . . .

*****************

An important decision came to me today that surprised me.  Oh there were the impossible ones that came in the hours beforehand which could be the subject of a tragic drama-blog here (ie. how to handle the seizure attacks overnight, sleep deprivation, heavy burdens, pain) but all that changed when I was catapulted awake at 8:17 a.m.  Could I make it to that appointment after all to the eye doctor?  They didn’t really cancel my appointment from that frantic message I left at 4:57 in the morning did they?  Well I was about to find out!

I pulled on some clothes; rushed back and forth throughout our humble abode; threw together the records, food, and drink I had loosely assembled the night before; and was practically out the door before my hubby emerged from shaving in the bathroom!  I’ll call the office on the way, I thought to myself.  And lucky for me my appointment time was still open for 8:45 a.m.  Holy cow.

Lord only knows how I function on days like these.  The headache pressed sharply into my skull with the plethora of medical testing and related tasks that fill my very full (medical) “work days” lately.  (That is a story for another time!)  Diarrhea delayed the first few steps of my eye exam as the technicians escorted me to rooms with various equipment, administered those dilating drops, etc.  So now my vision had become as blurry as my mental status.  Neat huh?  Sish.  Soon it was time to make some decisions about contact lenses and the potential replacement of eyeglasses.  Three years had passed since my last exam.  Clearly vision care has not been my priority of late!

I don’t even know her name yet her face will be memorable for many weeks to come.  The Optician in the big room with all those designer frames was an older lady with exquisite taste, professional temperament, mastery of her craft.  She quickly knew that I would benefit from some coaching in my selections and did so with style and grace.  I liked her eyeglasses, Silhouettes she called them, and decided it could be a new style that would work for me.  But was I ready for it?  Suddenly I realized that I was deciding about more than a functional facial dressing . . . no, I was crafting what presentation did I really want to make with my eyes, my facial expression to the world these days?

Makeup doesn’t work for me most of the time.  I do keep my hair colored and trimmed fairly regularly, styled about half of the time.  My clothing is rather casual favoring comfort not the fashion trends of the last decade.  Rarely do I adorn jewelry even though I had my own business making and selling colorful macramé jewelry for almost 3 years. My face has aged considerably.  The summer tan has faded.  I no longer wear contact lenses which used to give others direct visual access to my eyes, my soul.  My current eyeglasses with red and black frames are my only adornment, providing a little bit of covering behind which I can hide.

Soon I excused myself to the bathroom yet another time for a little moment of reflection.  Would I choose a new style behind which to mask my true self a little longer?  Yes it really does feel like that.  Would it be frames where the focus is on the shiny rhinestones or metallic finishes instead of the tender woman peering out from behind them?  Only after a few tears later did my choice become clear.  I selected the ones like those my teacher was wearing today.  Kind of like I did with Mrs. Heitkamp back in the 5th grade.  (Oh how I loved her so!)

Far be it from me to miss a moment where I can slowly but surely find a little extra meaning in what is happening and move forward too.  I really do want to be well some day and by golly I hope that my attention to the little things will help me to get ready for that day.  It’s just a pair of eyeglasses right?  Maybe so.  Behind them this time will be a little more of me and a little less of something else blocking the view of the woman inside coming back into view.

1 Peter 3:3-4 New International Version (NIV)

Your beauty should not come from outward adornment, such as elaborate hairstyles and the wearing of gold jewelry or fine clothes. Rather, it should be that of your inner self, the unfading beauty of a gentle and quiet spirit, which is of great worth in God’s sight.

If you are in a battle right now too, Gentle Reader, please do not lose hope.  Please don’t hide.  Our Lord Jesus Christ yearns for fellowship with each of us as He dresses the heart, infuses the spirit, loves the broken, and leads us to His throne of grace full of splendor beyond compare.  We are beautiful in His sight!  One day I pray that we will see these truths ever so clearly as the pains of this world give way to His richest glory forevermore.

And for that we are definitely going to need sunglasses, eh?  JJ

sunglasses, hiding, worth in Christ, Christian, woman, identity, self worth, self esteem, illness, disability, overcoming, recovery, getting well

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What did you learn today?

And let ours also learn to maintain good works for necessary uses, that they be not unfruitful.  Titus 3:14

I learned today that it pays to take good notes.  When I had to replace a healthcare supplier within a few days (or lose my mind!), I was glad to find my notes from the research that I did at the beginning of receiving home infusions 7 months ago.  Perhaps back then I should have gone with that other company instead?  Oh well.  I got to work with their Patient Care Coordinator this time and she is wonderful!

I learned this past week how being off from work and  having less income has helped me to find inexpensive continuing education credits that I never knew existed before I got sick.  Looks like NINE of the TWELVE hours required will be FREE!  Yeah God!  I will be able to keep my occupational therapy license one more year!

OT, occupational therapy, occupational therapist, work, medical leave, disability, license, licensure, renewal

I learned this past month a deeper definition of true love as demonstrated in the life of my husband, Steve.  First some background:  we had to cancel a trip to see his family this past summer when his dad was in too much back pain to travel cross-country to our rendezvous point in Branson, Missouri.  His mom was disappointed that the celebration of her 80th birthday was postponed until Thanksgiving.  Then our trip to meet up with his family in Texas in November got cancelled when I landed in the Emergency Room five days before departure with severe back pain.   I wasn’t even able to go out to dinner with Steve on Thanksgiving (which means I missed celebrating our wedding anniversary on the same day!).  As you saw from my last blog, Steve’s response was simply that we were, “saving money left and right!”  Well, yes and well, no.  His parents are aging.  Visiting them at their home in California is complicated due to my extreme sensitivities.  Perhaps Steve will be making a visit early next year and when my health is more stable.  In the meantime he just continues to be a wonderful loving husband.  I am so grateful for his love and devotion.  Often he is my “Jesus with skin on.”

I learned this past year the meaning of the phrase Carpe diem.  Each little trip, each tender moment between Steve and I, each time the garden got watered or weeds got pulled were realizations of moments when I could do a little more.  The numerous moments that were quite opposite just made “seizing the day,” more special.  We have learned to be more spontaneous to enjoy the good graces of the Lord even when they last but an hour or two.  Carpe diem baby!

I learned these past 5 years of serious illness to call upon the Lord for everything.

Proverbs 3:5-6 New International Version (NIV)

Trust in the Lord with all your heart
    and lean not on your own understanding;
in all your ways submit to him,
    and he will make your paths straight.

Whether it’s finding the money for medical treatments or getting myself up to go to the bathroom when seizing, my Lord and Savior cares for the details of my life and gets it done.  He is there when I am awake in the middle of the night.  He provided that relic airplane for me to sit under on a sweltering summer day so my husband could fulfill a dream at Oshkosh.  My Jesus will be joining us in celebration when I become well again someday too.

And lastly, I have loved learning the value of writing Hope Beyond.  It’s not quite an online journal but a way of looking from the inside out.  I hope to point you, precious Gentle Reader, to more than the saga of my situation but to the glory that awaits both of us when we place our trust in the Lord, Jesus Christ.  As Steve and I say in our Christmas letter this year:

No matter what our perspective may be, the most important view at Christmas (or anytime) is the one that brings us closer to the person of Jesus Christ. We stand in awe of His sacrifice for us that brings unspeakable joy, knowing Him as Lord and Savior over all.  He loves His own more than words can say:  the best Christmas gift of all.

Going beyond our temporal learning to the eternal love of Christ can be our gift today, next month, next year, 5 years from now, and beyond.

Gentle Reader, what do you say that you have learned?  Please let me know, k?  JJ

lake, couple, Christian, Lake Winnebago, Oshkosh, marriage

 

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Things come into focus

The recipe just wouldn’t do:  this brew concocted for my veins

I winced in shock when I saw the potential for disaster next week

And made the call to express my concerns, my fears in shaky voice.

The Assistant was gracious, no complaints there but what about him

Whom had not been available yet directs my care via messaging

And has way too many details engaged to respond to my simple needs?

Just to stop the seizures and minimize the suffering is all I really want

But that is the golden coin just beyond my reach now matter how long

And how far, how often, how many, how little, how far-reaching the attempts have been.

You’d think after nearly 5 years since this hell on earth began in my tender frame

That one of these brilliant folk would have figured it out by now, but NO(!), longer I wait —

And believe me I have tried, have prayed, have laid down my sword along the way too.

Nothing of  note has come to pass although the hell is generally shorter and less robust

I still live in impending doom every day, still waiting for the spike that rocks my world

And consumes me as much as it frustrates; I hold on to the moments in time I have here or there.

Someday this suffering will be over, I am assured since it was not always here

My Lord, my Savior is coming back for me and His to make all things new and right

And that includes an end to my daily trials:  oh how sweet that day will be, maybe soon!

Until then Gentle Reader, say your truth whilst asking for what you need

Let those in the know hear you and stick with those who bother to care

And one day soon, the focus will be on something else than your strife, my dear, guaranteed, guaranteed.  JJ

Ecclesiastes, 3:11, beautiful, in His time, waiting on the Lord, patience, waiting, burdens, trials, God, Lord, Jesus, trust, Christian, answers

 

 

Lift me up my Lord

Psalm-23 4

Lift me up my Lord, my King!

Don’t leave me here alone forgone

I am dying inside as one they have abandoned

Despite my attempts to serve, to obey, decaying inside all the while.

There is no reserve

To bring to life anymore

The light left me long ago when wretched darkness

Became the friend I never wanted and never invited to stay.

The desperation drips with tears

The emptiness has no where left for an infill

The days blur meaninglessly from one to the next

The prayers still go unanswered by the God who has always known best.

Grant me some goodness

Oh Lord of my heart, my King

I’m drowning here with no-nowhere left

To Google, to turn, to ask, to keep me going ’til the day You will speak.

Have I not done the things that are set

The ones I thought you showed me to do?

Yet the suffering ramps louder than my screams with each seize

Take me from this hell please oh Master of my heart.  Isn’t it my time?

waiting, wanting, scripture, Bible, patience, trust, suffering, His will

Humbly, I will wait.  JJ