Gently he pulled the brush through my hair as if each stroke was a special salve for my soul. You could hear nothing in the silence, not even his breath or mine. The darkness fell between us. The moment hung there in time. We had just witnessed so much . . . there was no need for words. Only love moved from his hand to me, gently freeing the hairs once tangled in the madness that had just gone before us. You might see this as an act of romance I suppose. But this night no romance would explain this kind of tenderness that now drifted between us. We simply enjoyed the silence, the calm, the love lain there slightly wounded just up from the floor.
That love was near me that night alright, well within my grasp. Oh I felt it with each stroke of the brush that was the tool he could reach first in the awkward darkness. I felt it from his warmth standing closely behind me as I sat with my legs uncomfortably collapsed underneath me on the hard tiled floor. The rug, marred with uneven loops from the dogs paws underfoot where she slept each night, gave little warmth. My hair was wet and so were my shoulders. The stuggle that came with forcing myself to wash my hair in the tub at the tail end of a convulsive episode had subsided into a senseless stupor. With my broken sentence my beloved found my grooming basket under the sink. It made no difference what implement he chose. His love would find its way to me with soothing swiftness followed by the tempo we might take one fine day, walking along a seashore somewhere beautiful.
Oh that I should have such an opportunity again! Will his capable hands finger their way through my auburn hair blowing in the warm sunshine of a summer day? Would he tighten the drawstring clasp beneath my chin of the paddling hat matched with our tandem outrigger canoe as we headed out onto the glistening lake? Or when his arm slips around my waist as we laugh at our pup racing along the stream of a wooded path, will I forget that our tender moments were once matched with sorrow so deep? I do hope so, Gentle Reader. For all of us who suffer what we ought not to endure, I do pray that restoration, healing, and mercy will cover what was once ugly with that which is lovely again and again.
Until that glorious day for me, I shall keep my eyes fixed on the sunshine streaming through my bedroom window. I know by Whose creation it shines and that one day all will bow and marvel in His glory, fully well, fully at peace. The love of our Lord, Jesus Christ will comfort and redeem our suffering beyond what the ones we cherish could ever do for us. And yet their heartache for sharing this journey with us shall be rewarded too. The darkness shall fade away forever for all of us one fine day. Only His light will reign and the darkness shall be no more. In that day my friend, we will comb the heavens never finding an end to joy for all who believe, for all who hold out for the hope of heaven. Together we will dwell in the presence of the King of Glory! Yes, indeed.
Sigh. That day is not here yet. What is here is the love of my life holding my comb in the shadow of night. He lifts me gently into bed and covers me with love that I could never imagine in the past. He is my Jesus with skin on when I need them both. I am so blessed. How could I ask for more?
Cast your burden on the Lord, and He shall sustain you; He shall never permit the righteous to be moved. Psalm 55:22
But I want you to know, brethren, that the things which happened to me have actually turned out for the furtherance of the gospel. Philippians 1:12
I am 2 days post surgical removal of 2 root-canaled teeth and THE CONVULSIONS ARE GONE!!! Yipppeeee and praise the Lord! This 3 years of daily hell for me and my beloved husband, Steve, is finally over!
While there is still much work to do to detox mercury toxicity and re-evaluate chronic Lyme and mold illnesses, I feel more optimistic that I will be able to tolerate those treatments someday. Until this week, I was failing. I was bedridden most every day with convulsive episodes. The grief and impact was huge on everything from our finances to my aching neck. My husband no longer got a full night of sleep and this illness had changed virtually every activity inside/outside of our home. How would Steve find me when he came home from work? Would he have to make me my pureed dinner and feed me again before bed tonight? Carry me to the toilet? Our hearts were weary after 3 years of this living hell.
Nine months ago I began investigating how two sore molars in the upper left section of my jaw might be impacting my health. Four dentists and three oral surgeons, a cone beam CT, MRI, and pano plus regular x-rays later (including a consultation out of State) we had no objective data to guide us. Everything looked “fine.” The teeth had bothered me for over 13 years! Fifteen years ago I had all my amalgam fillings removed but was never guided to chelate for mercury. Were there silver filings containing mercury remaining underneath the crowns over these two teeth? We will never know the answer to that question. My saliva had started tasting metallic. Eating started triggering the convulsive episodes. With Steve’s support, we took an expensive leap of faith and pursued a dental solution.
Additionally, seven weeks before what would become the big day, I started eating only on the right side of my mouth. Two and one-half weeks later I started a pureed diet to eliminate the chewing action that seemed to make things worse; all this was quite a feat since my struggle to get well led me to eat low oxalate, virtually dairy-free, and completely sugar/sweetener-free, gluten-free, and mold -free foods too! Another two weeks later and 1 week before the surgery I noticed that using plastic utensils delayed the onset of convulsions after eating. Even drinking my foods through a straw helped initially then ultimately triggered episodes. I feared eating anything at all! The only problem with that was hunger and thirst could also trigger convulsions or make them worse. I felt trapped!
Three and one-half days before the dental surgery my doctor recommended trying an EMF deflecting device. “It might help” he said, like so many other recommendations I had received all over the spectrum of traditional and alternative medical care. After one such technology (a Rife machine called a Beam Ray) I tried 3 years ago to treat “Chronic Lyme,” the daily tic attacks started. Within a year these episodes would escalate to waking seizure attacks then convulsive episodes lasting 2 to 5 hours per day. We had tried to shield me from wireless technology in our home in the past yet the results were initially helpful then inconsistent. This time the GEOMACK from Spain reduced the intensity of the convulsions 50%. That reduction gave me a tiny boost of strength that I needed to physically and mentally prepare for surgery. My husband got some much needed sleep as well! Could their be an electrical cause after all? (See this blog for more anatomy and discussion.)
The morning of the surgery went as usual. Convulsive episodes began shortly after opening my eyes and periodically as we prepared to leave the house. Seizure zips ripped through my hungry and thirsty frame as my beloved drove us to the hospital. We were still reeling from the large check we had to carry with us since the oral surgeon insisted on performing the extractions near a crash cart, I guess. And after some prayers, many silly jokes and one last shake/rattle/and roll with placement of the IV in my arm, the time had come to let go and not look back. We reviewed my situation with the anesthesiologist and oral surgeon, surgical tech, and several nurses. They were not to abort the mission if I seized under anesthesia! Just wait a moment and get the job done.
I’d like to say that I woke up in a calm, blissful state but that simply was not the case. I became nauseous and pain management was a problem over the next day and one-half. Oh well. One thing was certain: THERE WERE NO SEIZURES OR CONVULSIONS! The “battery effect” of dissimilar metals in 2 adjacent crowns over root-canaled teeth WERE FRICKIN’ GONE! No more tazoring of my brain would continue. And hey, if there was hidden infection in the root-canaled teeth then the problems caused therein are now also “history.” The hell is over.
My job now includes retraining my brain to relax when falling asleep instead of bracing for impact. My job now includes remembering all of the relaxation techniques I used to train my patients in psychiatric hospitals to deal with anxiety. I need to rework those memory pathways and feelings of impending doom that followed me, waited for me every night, every morning, every time when I was exposed to noxious stimuli, or even on the clothing or breath of my beloved anytime, anywhere. Hey, no problemmo. I am ready to live and the extended forecast is good!
Thank you and big hugs to those of you who have followed my story for any length of time, You have been an important part of my lifeblood to go on when I could not. Sometimes my husband could not be home with me and I was alone, feeling terrified mostly of even greater suffering and it came. The worst episodes were never captured on YouTube videos because my warrior husband was needed to hold me tightly to keep me from greater harm instead of holding onto a camera. Sometimes the Lord was silent even when I cried out to Him when breathless, facing death again and again when my breathing stopped. When He did speak I gained the courage I needed to face the next trial. In the end, death was not my greatest fear. Dying without my Heavenly Husband was.
But you know what? I made it through. Steve made it through. A new chapter in our lives is about to begin. I’m going to take some time now and regroup. I am very weak. An infusion of my Jesus is needed. The warmest embrace with my beloved must follow. And really good food cannot be far behind. After tomorrow the putty d’ jour will be history! Yeah God!
Pureed Organic Tri-Color Carrots & Cauliflower, Bacon, Organic Beef & Potato Chips, Homemade Broth, and Sea Salt in the Recovery Room!
With love, JJ
But the Lord was my support. He also brought me out into a broad place; He delivered me because He delighted in me. Psalm 18:18b-19
Cast your burden on the Lord and He shall sustain you; He shall never permit the righteous to be moved. Psalm 55:22
UPDATE: The holiday from convulsive episodes did not last, unfortunately. There were many benefits from having these two infected teeth removed: significantly less mouth pain, less congestion in the upper shoulder and neck, decreased TMJ symptoms, decreased auditory anomalies, reduced ringing in my ears, and more. Then there was a miracle: our insurance company covered most of the $10,000 bill. Amazing! :J
Don’t you just “love” when you ask what appears to you to be a focused question and the person to whom you are speaking starts his or her answer with, “It depends on . . .” Yeah, I have heard that a lot lately as I discuss product specs for my new company, Two Step Solutions. My husband is a brilliant mechanical engineer and a bit more focused than me, I guess. There is so much to consider so it depends on this or that parameter, application, material, use, and so on. Yet this reply can be a bit maddening too, ya know? :}]
Enter here a somewhat unusual perspective on the somber topic of suffering. I would have never wanted to hear a blanket answer as to how to handle my own private hell. I understand that Ravi Zacharias and Vince Vitale gently take an “it depends on” approach in their new book, Why Suffering. They recognize that for Christians, suffering poses both intellectual and emotional challenges: God loves and cares about all of our needs yet desires to meet us amidst the unique circumstances in which we find ourselves in as well. Here are some further insights from Vince Vitale in the Fall 2014 Issue of RZIM: Quarterly News, Views, and Insights.
But while pain can be a great obstacle (to belief in Christ), it is also one of the greatest reasons to turn to God. The more seriously we take the problem of suffering — indeed, the more seriously we take the people who suffer — the more we will be led to trust the God who can do something about it.
The challenge, I find, is that what each person needs when suffering is very personal. There is no one-size-fits-all . . . Ultimately, what we need is the presence of a loved one. And when we have the chance to be that loved one for another, our temporary presence can act as an invitation to a life with the One who is always present. One of the greatest gifts of the Christian life is that you never need to wonder if a loved one is near; you never need to wonder if a loved one understands. That Person is always with you even within you.
While suffering can be traced back to humanity’s fall into sin, Jesus is clear that we cannot assume from the fact that a person is suffering that it is their fault or that they are being punished. A second distinctive of the Christian response to suffering is this: God promises that one day He will wipe away every tear. What an amazing claim, that God himself will wipe away our tears.
And perhaps most unique is that the Christian God chose to suffer with us. Suffering’s greatest cruelty is its isolation. The Christian never suffers alone. (We point) emphatically to the Cross of Jesus Christ, to the Cross of the only God loving enough to suffer with us and for us. (p. 7)
May these words encourage you or your loved ones who are suffering. While the experience of suffering is unique to each of us, we are not alone in our time of need. God takes our angst seriously, suffers with us, and will deliver us one day. My prayer is that you will seek comfort in the person of Jesus Christ who loves you more than anyone, more than you can ever imagine. His Scripture reassures us this fact in Psalm 139:17-18:
How precious to me are your thoughts, God! How vast is the sum of them! 18 Were I to count them, they would outnumber the grains of sand— when I awake, I am still with you.
And that’s way more than my words can say. Take care Gentle Reader and do let me know how I may pray for you, k? JJ
Sometimes I am not quite sure why I am crying, this late in the game. I’ve been here before, I know my Heavenly Husband is in charge, and I haven’t died no matter how severe the symptoms have gotten. My husband and I have seen the Lord work amazingly through this illness. New skills have come, I am grateful to have met you Gentle Reader, and by the grace of God we have overcome tremendous trials together. Healing is on the horizon with a new treatment direction . . . I even have my own company on the drawing board to fulfill my entrepreneurial dreams. So how can I possibly be sad?
I am sad because it is normal to be sad when suffering. I am sad, grieving if you will, for all of the losses even if it was good to let some people, places and things leave my life once again. I am sad that Steve and I had to lose so much to gain so much goodness. We almost missed “it” so many times! I am glad that we are more in love now than ever before and it came though an extremely difficult path. No longer do I ask the questions “why” and “what if?” More often my question is “when?” When will this hell be over?
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Stand fast therefore in the liberty by which Christ has made us free, and do not be entangled again with a yoke of bondage. (Galatians 5:1)
Set your mind on things above, not on things on the earth. (Colossians 3:2)
For God has not given us a sprit of fear, but of power and of love and of a sound mind. (2 Timothy 1:7)
And let us not grow weary while doing good for in due season we shall reap if we do no lose heart. (Galatians 6:9)
. . . but we also glory in tribulations knowing that tribulation produces perseverance; and perseverance, character; and character, hope. (Romans 5: 3b-4)
. . . being confident of this very thing, that He who has begun a good work in you will complete it until the day of Jesus Christ. (Philippians 1:6)
But I want you to know, brethren, that the things which happened to me have actually turned out for the furtherance of the gospel. (Philippians 1:12)
Therefore I ask that you do not lose heart at my tribulations for you, which is your glory. (Ephesians 3:13)
I can do all things through Christ who strengthens me. (Philippians 4:13)
Let us therefore come boldly to the throne of grace, that we may obtain mercy and find grace to help in time of need. (Hebrews 4:16)
And my God shall supply all your need according to His riches in glory by Christ Jesus. (Philippians 4:19)
For we walk by faith, not by sight. (2 Corinthians 5:8)
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I was hoping that somewhere between copying these lines of scripture and writing this blog that I would feel better. Well, not yet! When all else fails, I shall crawl up to the cross of my Jesus, place myself at the foot of His throne of grace, collapse in the shelter of His mighty wings, rest in the promise that He is always with me: now and forever. Yes, this is the best place to go after all. Here is where I belong. JJ
When things are not right or even worse
Jesus is for the Wounded 
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