The Awakening

No plant reacts instantly to a brief change in conditions. But a change that persists is an invitation to wake up.  (From the Dirt Simple blog.)

Lately I am finding myself in a place in my world that brings me to a humbling yet screeching halt.  I ask:  what has happened to the me I once knew and where the heck did I land?  The Lord knows the journey that has transpired; the witnesses have varying accounts of this or that as well.  But it is the markers in time, the events out of the ordinary that bring the changes to light, that clarify what is actually seen.  Let’s see if I can explain a bit more about what is going on over here as one of those episodes hit me hard . . .

Three days ago the daily seizure attacks that I have suffered for 5 years ramped up to over SIX HOURS PER DAY.  One day these were all in a row, virtually without ceasing until the wee hours of the morning.  The next day I got a divided dose of 3 1/2 hours in the morning then an encore of SIX MORE HOURS in the evening!  I cannot even describe to you the mental and physical anguish this brings.  Time stops.  A single breath, one then the next, is the only measure in my mind of the clock of life ticking forward.  Difficult decisions got made between my beloved and I resulting in his cancelled trip getting replaced with the sights and sounds of another hospital emergency room.  The drug they gave me helped.  Miraculously, the convulsive spikes are but a blip here and there for now.

I have had over a day now to contemplate what life might be like to be normal again.  Indeed the pain has gone down some, the brain fog got less misty, and my ability to move improved.  So I completed a small garden project yesterday and walked our dog this evening.  I think that the ER Doctors who have told me that this illness isn’t biological are dead wrong.  Stop the seizing and I don’t need a psychiatrist to tell me to get back into life.  I don’t need convincing.  It just happens! 

There is much to figure out right now.  Will I get to work on more treatment like taking down viral infections?  How long will I stay on the new medication that could hurt me if it was too long?  What will I really do with my life should this process of healing continue?  I am hopeful again and that is good.  Alas it is poetic that these changes should occur as the earth warms from the cold of Winter outside.  Unlike the plants that are either remaining dormant out there or are testing their new growth with some surges in our Spring-like weather lately, I will wait to wake up all the way.  In the meantime maybe I can do some good with this wee bit o’ energy.  After all, there is no rushing a beautiful awakening to a new life.

Five years is a long time to have been asleep.

I bought a new truck like my Dad’s just 5 days before a kayaking trip changed my life forever.  I got sick from the water.  I don’t know why I told you that.  It’s been a long detour.  Now things are changing wildly.  Maybe the new beginning will need to involve a little road trip in my sweet ride?  To the nursery just out of town of course.  They sell bags of shredded pine bark compost that should fortify our garden vegetable beds nicely.

See what I mean?  It’s already happening . . .

JJ

garden dog, German shepherd, grass, sleeping, pet, pup, sneaky, dog
Elle awaits the awakening . . .

My Mantra for 2017, Lord willing!

inspiration, I made it, you will get better, hope, hang in there, when the going gets tough, resilience, endurance, hope, get better

Slow But Sure

What will it feel like to be almost normal again?

Will the days fill with meaning, the nights rest with pleasure?

Alas I know not what tomorrow will bring —

So it’s it will be in the smaller moments that I will define who I am, who I will be.

At least as long as it is up to me . . . and little is of course . . .

*****************

An important decision came to me today that surprised me.  Oh there were the impossible ones that came in the hours beforehand which could be the subject of a tragic drama-blog here (ie. how to handle the seizure attacks overnight, sleep deprivation, heavy burdens, pain) but all that changed when I was catapulted awake at 8:17 a.m.  Could I make it to that appointment after all to the eye doctor?  They didn’t really cancel my appointment from that frantic message I left at 4:57 in the morning did they?  Well I was about to find out!

I pulled on some clothes; rushed back and forth throughout our humble abode; threw together the records, food, and drink I had loosely assembled the night before; and was practically out the door before my hubby emerged from shaving in the bathroom!  I’ll call the office on the way, I thought to myself.  And lucky for me my appointment time was still open for 8:45 a.m.  Holy cow.

Lord only knows how I function on days like these.  The headache pressed sharply into my skull with the plethora of medical testing and related tasks that fill my very full (medical) “work days” lately.  (That is a story for another time!)  Diarrhea delayed the first few steps of my eye exam as the technicians escorted me to rooms with various equipment, administered those dilating drops, etc.  So now my vision had become as blurry as my mental status.  Neat huh?  Sish.  Soon it was time to make some decisions about contact lenses and the potential replacement of eyeglasses.  Three years had passed since my last exam.  Clearly vision care has not been my priority of late!

I don’t even know her name yet her face will be memorable for many weeks to come.  The Optician in the big room with all those designer frames was an older lady with exquisite taste, professional temperament, mastery of her craft.  She quickly knew that I would benefit from some coaching in my selections and did so with style and grace.  I liked her eyeglasses, Silhouettes she called them, and decided it could be a new style that would work for me.  But was I ready for it?  Suddenly I realized that I was deciding about more than a functional facial dressing . . . no, I was crafting what presentation did I really want to make with my eyes, my facial expression to the world these days?

Makeup doesn’t work for me most of the time.  I do keep my hair colored and trimmed fairly regularly, styled about half of the time.  My clothing is rather casual favoring comfort not the fashion trends of the last decade.  Rarely do I adorn jewelry even though I had my own business making and selling colorful macramé jewelry for almost 3 years. My face has aged considerably.  The summer tan has faded.  I no longer wear contact lenses which used to give others direct visual access to my eyes, my soul.  My current eyeglasses with red and black frames are my only adornment, providing a little bit of covering behind which I can hide.

Soon I excused myself to the bathroom yet another time for a little moment of reflection.  Would I choose a new style behind which to mask my true self a little longer?  Yes it really does feel like that.  Would it be frames where the focus is on the shiny rhinestones or metallic finishes instead of the tender woman peering out from behind them?  Only after a few tears later did my choice become clear.  I selected the ones like those my teacher was wearing today.  Kind of like I did with Mrs. Heitkamp back in the 5th grade.  (Oh how I loved her so!)

Far be it from me to miss a moment where I can slowly but surely find a little extra meaning in what is happening and move forward too.  I really do want to be well some day and by golly I hope that my attention to the little things will help me to get ready for that day.  It’s just a pair of eyeglasses right?  Maybe so.  Behind them this time will be a little more of me and a little less of something else blocking the view of the woman inside coming back into view.

1 Peter 3:3-4 New International Version (NIV)

Your beauty should not come from outward adornment, such as elaborate hairstyles and the wearing of gold jewelry or fine clothes. Rather, it should be that of your inner self, the unfading beauty of a gentle and quiet spirit, which is of great worth in God’s sight.

If you are in a battle right now too, Gentle Reader, please do not lose hope.  Please don’t hide.  Our Lord Jesus Christ yearns for fellowship with each of us as He dresses the heart, infuses the spirit, loves the broken, and leads us to His throne of grace full of splendor beyond compare.  We are beautiful in His sight!  One day I pray that we will see these truths ever so clearly as the pains of this world give way to His richest glory forevermore.

And for that we are definitely going to need sunglasses, eh?  JJ

sunglasses, hiding, worth in Christ, Christian, woman, identity, self worth, self esteem, illness, disability, overcoming, recovery, getting well

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In the thick of things

Just before the dawn breaks open the darkness

The night seems the blackest, the air the coolest.

But really what difference did it make to the day?

It was already breaking forth before anyone could see it.

Stumbling over rocks and brush and twisted debris

I would not think there was a way out of those woods . . .

Only the squirrels knew where the last canopy reached:

It was already marking the clearing before I could see it.

The shiny reflection on the pavement up ahead

When travelling along the road at high speeds

Suggests water on the horizon but alas, it is not to be

It was already stretching out forming a new illusion to see.

Things just aren’t what they seem along the darkest trails of our lives

Yet we pretend we know what is to come from the markings underfoot

Better to trust in the love of the One who sets us free to explore these

He is already there with adventures in-hand if we but open our hearts, widen our gaze, and keep walking ever nearer to Thee.

For He will never leave us, forsake us, forget us, deny us you see

Jesus loves us, precious in His sight and placed perfectly in the Father’s timely gifts

And the places He wants us to go will yield more good than that we ever could foresee

Oh how it will simply make more sense in the clearing someday under the sunshine beyond . . .

For now I am just going to keep walking.  Gentle Reader:  care to join me?  JJ

fall-colors-from-fb

Coming out of the fog

I just might be coming out of the fog

As I hit the 5 year mark of shroudedness

When some bugs in greenish water back then

Everyday put me under severe, daily duress.

I could sell you a book of

Five hundred blogs and two links

With tales of woe then and now that’ve

Filled webpages as I tried to keep on my “think.”

This forum here, now with you this Autumn night

Kept me sane so the cells in my brain did not go to mush;

While firing wacky-backwards without ceasing at times

For waaaaaay toooo long without hope of a rest with a cush.

Looking back, looking forward

And thinking it over some more,

I see da light coming through darkness:

The kind that stays and covers all.

Tis healing that’s on the brink to stay

If I but finish the course with everything

It takes what it takes and it ain’t over they say

And they’re right, “until the fat lady sings!”

Now I ain’t too fat or that big into musical things

There’s more dirt under my fingernails than bylines

Bits o’ gardening, sewing, medical cooking fills the

Hours not counting Heparin and saline syringes.

No matter anyways, anyhoo, anyhow

It’s just the way it went, the road less travelled by

I will be stronger for it in the end they say (and they know)

In due time, Gentle Reader, with the Lord we’ll one day know why.

JJ

Julie Horney, Lyme disease, get well, recovery, healing, gratitude, end of the road, end of the journey, smiling, woman, park, Rogers-Lakewood
Resting with mask in hand by a scummy lake here in Indiana!