A dose of gratitude

Today turned into a better day and I am grateful.  Steve and I got the 3 projects completed that had eluded me for the last 10 days.  Thank you Lord!

be grateful

 

Great things He hath done

 

Praise at sunrise 5 Many, Lord my God,
    are the wonders you have done,
    the things you planned for us.
None can compare with you;
    were I to speak and tell of your deeds,
    they would be too many to declare.

Sacrifice and offering you did not desire—
    but my ears you have opened
    burnt offerings and sin offerings you did not require.
Then I said, “Here I am, I have come—
    it is written about me in the scroll.
I desire to do your will, my God;
    your law is within my heart.”

I proclaim your saving acts in the great assembly;
    I do not seal my lips, Lord,
    as you know.
10 I do not hide your righteousness in my heart;
    I speak of your faithfulness and your saving help.
I do not conceal your love and your faithfulness
    from the great assembly.

11 Do not withhold your mercy from me, Lord;
    may your love and faithfulness always protect me.  (Psalm 40; NIV)

After speaking in adoration, gratitude, humility, and transparency, King David seeks compassion from his Lord and savior Jesus Christ.  He has been literally chased by his enemies to the cold, darkness of living in caves.  His very life, his promised kingdom, and all he knows is at stake yet he begins this song with faithful praise.  Thereafter he presents his request for the Lord’s mercy and protection.  Although not quoted here, this psalm of King David goes on to pray for the salvation of his people and desolation of his enemies.  In the end his hope that the Lord be glorified through it all.  Yes indeed.  Wow.  What a tremendous example for me!

Adoration.  Thank you almighty God for all that you have provided to this day.  I see your omnipotent power in the sequencing of events of my life to bring me into the best of fellowship to you my Lord and King.  I praise you here and forevermore.  You have provided exceedingly for my real needs.  The greatest evidence is in love of my life that is now here; I am honored to be at his side, his beloved too.

Gratitude.  For my times of sickness you have given me a warm bed in which to convalesce, healthy food, good medical care, and infused your strength into my weary frame to do the tasks that are needed each day.  No matter how I may be feeling, the facts remain true that you care for the details of my life and are here with me.  I am never alone.  Most of all your love changes my sorrow into joy.

Humility.  The striving, the determination of my youth were eventually broken well into my adulthood so that I might realize the plans you have for me.  Hurt has yielded to forgiveness and freedom.  Following the lead of my earthly kinsman redeemer instead of my own desires has brought me into the fullness of what it means to follow you.  Much goodness has come from all of these.  The motto that began the leap of faith to finding Jesus years ago has come true:  letting go and letting God reign in my heart must remain above all else.

Transparency.  You gave me a fondness for writing long ago, mentored by my own mother (a naturally gifted writer).  This blog has seen me through much suffering and challenged me to return my eyes to Your majesty, Your creation, and more.  I have learned that the truth about life is often separate from what I can see.  Lord keep me soft to submit to Your ways like the clay who gives its essence to the master potter craftsman.  Surely goodness shall be the result for Your glory.

 Prayerfulness.  I do ask for healing of this wretched illness that plagues me for hours each day.  Guide me in my interactions with others when frustrated by so many things; may I be a light for my true hope that is in my Lord and Savior, Jesus Christ.  Bring rest and lead my husband, Steve, in the decisions we are facing.  Grant him wisdom at home and at work, as a father to his four wonderful adult children, and as a leader in our church.  Thank you for his faithful witness to so many of what it means to be a man after Your own heart.  And please bless the fellow sojourners you have brought into my life, especially my Skype Bible Prayer partners Karan and Sherry.  Such sweet fellowship is salve to my soul.

Great things the Lord hath done in my life since I met my first Gentle Reader about three years ago.  Thank you for coming alongside me for the ups and downs, bunny trail side trips, victories, and more.  Know that I am praying for you as I write this, that the Lord be with you this day too.  He is so good and worthy of our praise.  Perhaps King David said it best later in Psalm 40 like this:

16 But may all who seek you
    rejoice and be glad in you;
may those who long for your saving help always say,
    “The Lord is great!”

If I get to see you . . .

 

If I get to see you in the coming year, please understand that I will be singing songs of joy in my heart!  Social isolation has been one of the most devastating effects of serious illness from these past 3 years.  Should the Lord allow the circumstances for me to get out for an activity other than medical or a trip to the grocery store, I CELEBRATE!!!

So if I might ask for a few accommodations when we get together and you graciously oblige and I still get sick then blame any negative symptoms you may witness in me as the consequence of illness and not you!  Very few folks live in a “clean room” like we have here at home.  I did not clean at this level either until it was a matter of survival.  Steve did not engage in my extreme mold/contaminant behavior strategies until two years ago.  These strategies are necessary for this season of our lives together.  Overall I do better when we follow certain guidelines resulting in less reactivity, the worst of which are fewer seizure-like and convulsive episodes which continue daily.  We are implementing some “due diligence” from what we have learned to reduce my suffering with the goal of eliminating this illness altogether.  We believe that the Lord has allowed these trials for mysterious reasons and ultimately His glory.  He is good!

Both Steve and I recognize that there are definite signs that I am getting better.  We have trained our eye to search for even tiny changes in the pattern and intensity of episodes, pain, and reactivity to keep us hopeful that one day I will be well.  It is happening!  So please don’t be discouraged when either one of us might mention that I had a rough night or you witness a significant setback.  Recovery is a long, jagged line of progress, setbacks, and lateral “bunny trails.”  The overall trending is positive!

The most important accommodations that would be helpful if we get together are as follows.

Meeting in a public place:  Select a place with less noise and less loud music.  Newer buildings are generally better than older ones; please no historic buildings or ones with known basements or crawlspaces and history of flooding.  Restaurants that make their own food with fresh ingredients are better able to modify dishes to meet my food sensitivities.  This rules out most fast food places!  Letting me know the name and phone number of the establishment ahead of time will allow me to contact them with my needs and make the experience of ordering food more pleasant for both of us!  Please do not wear cologne or perfume that day.  I will need to greet you and depart with a “virtual hug” to avoid exposures to hidden elements that might be on your clothing or coat.  Forgive me if I sometimes forget this step in the joy of the moment when I see you!

Meeting in your home:  This is still a situation that I avoid since there are too many variables at this time that may cause serious problems.  I cannot come over if you have 1) ever had flooding in your home of any kind from a leaky toilet to a wet basement or 2) have older carpeting.  If you are willing to have me then please remove all fragranced products at least the day before we are scheduled to be together (such as plug-in or spray air fresheners, candles whether lit or not, potpourri, etc.)  Keeping windows cracked open in cooler weather or open in warmer weather to allow fresh air inside always helps (unless someone is burning something nearby outside!)  I prefer to visit in the area of your home without carpeting and sit on non-upholstered furniture.  Wood, plastics, and leather are best.

Staying overnight:  If we are invited to stay overnight then we will either bring our own linens, blankets and towels, or ask that you wash and dry everything in fragrance-free detergent and softeners (including dryer sheets).  Please replace a moldy shower curtain liner with a new one!  I will bring most of my own food and hand soap where possible.  Providing non-cured, non-smoked meat cooked only with salt, plain oatmeal, plain salad-type vegetables or zucchini/cauliflower without seasonings will be a HUGE treat!  I will always bring the extra condiments and food that I can tolerate.

Yeah, I know that this is a lot for a busy household to prepare!  Thank you for helping us out with this stuff.  Steve and I are exceedingly grateful to have recently obtained a travel trailer which has helped manage all of this tremendously well.  (It is a lot of work for us too, I tell ya!)  Both of our families and many close friends now live out of State so travel is necessary to see them.  This single change in our mode of travel has allowed me to leave our home overnight much more safely and go places from which I have been cut off for most of the past three years.  We are humbled and blessed!  I really like having a mobile safe house that has already opened up my world, provided privacy during setbacks on the road, and aided sleep with a really comfortable bed that can be hard to find when away from one’s own humble abode at home.  Thank you Jesus!

Visiting Daniel and Elizabeth in Alabama
Visiting Daniel and Elizabeth in Alabama

 

We are hoping that the ongoing extreme avoidance and dietary strategies are temporary; some level of precaution albeit more relaxed than the current level will likely continue for some time.  How long will we need to do all of this?  We simply do not know.  We believe the Chronic Inflammatory Response Syndrome (or Multiple Chemical Sensitivity) is due to mercury toxicity and we finally have the correct treatment protocols to get me well.  I have excellent medical guidance and a proven treatment plan to follow.  We are hopeful that I will be in better health within this year!  I AM GOING TO GET WELL!!!

And that Gentle Reader, is much to celebrate!  JJ

Car guys young and old

oldcarguysI don’t care how old you get

Or what you end up tinkering with

As long as you save the best for last

And that is me, I do believe I will be happy!

Happy new year and many blessings to my beloved Steve.  Your love, devotion, selfless acts of service, and witness for Jesus Christ deserve a post all of your own.  I am so very grateful to the Lord for the privilege of being married to you!  Rock on my dear.  Shall we put together another year of adventure?

I love you truly, Just Julie

 

 

Numb but Hopeful

I love Patrick Klein’s words from the Vision Beyond Borders newsletter this week:

Psalm 143:10-12 says, “Teach me to do your will, for you are my God; may your good Spirit lead me on level ground. For your name’s sake, O Lord, preserve my life; in your righteousness, bring me out of trouble. In your unfailing love, silence my enemies; destroy all my foes, for I am your servant.” Doing God’s will does not come naturally; our natural tendency is to satisfy our fleshly and worldly desires. We must be taught and transformed by God to do His will. When His Spirit leads us, it is on level ground. He alone can make crooked paths straight. Our duty is to remember that what we do is for His name’s sake. It is not about us. He alone can best determine how He desires for us to bring glory to His name. It is not for us to determine. Despite hardships, trials or persecution that may be allowed in our lives, God can preserve us and bring us out of our trouble. 

Our only responsibility in all of this is to simply remember our role. We are to be servants of Christ. Often we grow weary because we are trying to do His part. We are trying to figure out where He is taking us rather than allowing Him to lead us. We are trying to figure out how to preserve our lives and bring ourselves out of trouble rather than allowing Him to bring us out. We are trying to silence our enemies and destroy our foes when that is not our work. We are not made for those things, and it is exhausting. Our duty is simply to look to God and serve Him, allowing Him to do these things for His servants! We don’t have to strive, we simply have to come to Him. His yoke is easy and His burden is light; we will find rest for our souls. May we faithfully seek Him, serve Him and remain completely in Him, trusting Him to show us each step! 

Thank you Patrick.  Last night I started using yet another binding agent (Zeolite) to try to encapsulate and detox mercury from my weakened frame.  Afterwards I felt very weird!  We were Skyping with my husband’s daughter in Thailand and it was all I could do to chat a bit, smile a bit, and keep my shoulders from hiking up to my ears!  The nightly seizure attack episode was significantly shorter and I fell asleep at a more reasonable time, around 1:30 a.m.  Hell was waiting for me this morning and returned with more violence a couple of hours later.  Can you say “mad as a hatter?”  Well if you were a hatmaker in the 19th century you might be more familiar with mercury poisoning than the current medical profession.   So let’s see if we can figure this one out, eh?

#1  Trust in the Lord and lean not on our own understanding.  (Proverbs 3:5-6)

#2  Follow the clues and think about how chelation works for mercury and heavy metals.  Most protocols require regular treatments for a given interval of time, sometimes as often as every 4 hours.  (See the Cutler protocol.)  The rebound occurred about 12 hours after the first dose of a true chelating agent.

#3  Consider a repeat, low level dose at regular intervals to bind and remove the newly circulating toxins.

#4  Relief came within minutes when the detox agent was consumed with lots of water.

And after resting, eating, sitting out in the lovely Fall sunshine, I am upright.  This is good.  I am also extraordinarily humbled by some incredible blessings this week and will end with four to match the points enumerated above:

#1  Unfailing love in the eyes of my intended beloved, Steve.  When I am in his arms no matter what the circumstances, I feel the love, care, and compassion of my Heavenly Husband too.  Thank you Jesus for Steve.  Please love and bless Him.  Cover our marriage with your grace.  May others see a good work in all of this for your glory Lord.

#2  Treatment options that provide some relief.  I believe that the pattern of suffering is about to change for the better and we are exceedingly grateful.

#3  Wisdom that ultimately comes from the Lord.  I have learned so much these past 3 years and have received blessings, gained new skills, met new people, cleared out some excess baggage, and found a voice that I pray will glorify you here.

#4  Hope.  No matter what the burden may be (and we both need not look far to see horrific burdens that our brothers and sisters in Christ must bear for their belief in Him), He will prevail.  As a new friend, Karan Gleddie, brought to light this week we are to “set (our) minds on things above, not on earthly things.”  (Col. 3:2)  Therein we too will find our hope, our peace, our happiness.  And as Patrick reminded me, we are to serve with the strength of Christ for His namesake.  With our eyes on Christ all things are possible.

Gentle Reader, how may I pray for you today?

Colossians 3:2
Colossians 3:2