You not Me

If my eyes can gaze upon you not me

To care, to serve, to pray, to worry some

Then maybe my burdens will soften a bit

For I have fixed my angst off my tender frame.

If I can plan my day to give more away

My time, talent, and resources to you not me

For a new challenge that maybe stretches me a bit

Then we shall both emerge stronger when tomorrow comes.

For what good is a man if he gains the whole world

And weakens his soul by burying it deep in self-pity

When we can travel together for awhile

You and I, carrying your bags then you lifting mine.

Seems like a better deal dontcha think

For the moments when I do return home to rest, to reflect

Will find new meaning in what it means to live

When the Lord dwelling in my heart spills over to you.

He is the One Who makes all these things possible

These ups, these downs, these trips veering off that away

We must but trust in His gracious plan, every detail

As He is the reason for you, for me, for glory and goodness too.

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Thank you for your response. ✨

A Tender Place

Hellebores, hybrid, tender, lenten rose, blog, poetry, prose, Winter, early Spring

So if the Lenten rose can bloom amidst the snow

Yet if I not carry forth my joy past the continuing rain

Does that make me a bad person, my beloved, my dear?

He told his tale with passion once and again and again

Yet I have not seen the same victory these many years

Does that make me ungrateful before my Savior, my King?

To celebrate this one’s renewed life, ’twas hard-won indeed

Doth makes me part of this man’s humanity in Christ

Yes, takes little, no none from my own pool of goodness . . .

And yet I cried and pushed myself away, away for a time

Lest my tears steal more than the punch line to come,

Dost my ingrace keep me from moving forward one day?

Aye this is a tender place whereat I have landed

Not bad, non-indifferent, full of meaning that I like

Where life meets the road upon which it travels and perceives.

My Lord knows this woe:  He cried for the sorrows we do endure

Then gave the breath from His very lips so that we may live,

Be free of it all at last, the strife, every bit, you and I both.

For we two understand what it means to face death

To fear the life places that would ignite some others to thrive

But it took a tragedy beyond belief to get us moving right.

We may have wrestled then let go as our Redeemer carried us along

Finding one day that peace hath returned:  covering the tenderness

Becoming the places that defined us whilst ending the story done well.

[My hope is that I am in one of them right now, Gentle Reader.]  JJ

Progress not Perfection

All it took was one hard drug (the prescription variety) and suddenly I can function a few more hours each day.  PRAISE THE LORD!

First up:  finish cleaning the house to keep the risk for exposures down.  Dust/mold/smells can trigger significant sickness if I don’t so gratefully I got it done today.

Second:  keep up with scheduled treatments and keep trying to add in items that are recommended for me.

Third:  organize medications, oils, supplements, and medical supplies that have spilled over to various locations in our home.  Prepare items to donate that are no longer needed.

Fourth:  begin the next filing projects needed to gather our tax records.

Fifth:  prepare tax records for filing with our accountant.

For the first time in a very long time, I am making progress a “To Do” list.  Lord willing tomorrow I will dig into number four.  Dang this feels good!

God created our world with a masterful order, hierarchy, time table, and purpose all to bring Him glory.  He knows and sees and orchestrates and cares for every minute detail of life as we know it.  We get to see His handiwork:  look closely and you will find it as nature wakes up again this Spring.  We get to participate in the majesty of life as His children whom He dearly loves.  While we will never duplicate the perfect order of the stuff and events of our lives, perfection is not our calling (it’s His!).  So the stuff stacked neatly on our microwave instead of the kitchen counter is just alright with me.  Perhaps we would agree that our lives do simply work better when things are cleaner and neater? 

Lift up your eyes on high And see who has created these stars, The One who leads forth their host by number, He calls them all by name; Because of the greatness of His might and the strength of His power, Not one of them is missing.  Isaiah 40:26

Perhaps then I will submit my wittle accomplishments today to the Lord as alms of worship and thanksgiving for the gains He has granted in my health.  I am making progress in a perfect path created by my Lord and Savior, Jesus Christ.  And that is all it took to make some sense of my world on a Sunday.

Let’s add a little encouragement, a little promise also from Isaiah 40 for those who are weary this night:

31 but those who hope in the Lord
    will renew their strength.
They will soar on wings like eagles;
    they will run and not grow weary,
    they will walk and not be faint.

Isn’t that just wonderful Gentle Reader?  JJ

 

The Awakening

No plant reacts instantly to a brief change in conditions. But a change that persists is an invitation to wake up.  (From the Dirt Simple blog.)

Lately I am finding myself in a place in my world that brings me to a humbling yet screeching halt.  I ask:  what has happened to the me I once knew and where the heck did I land?  The Lord knows the journey that has transpired; the witnesses have varying accounts of this or that as well.  But it is the markers in time, the events out of the ordinary that bring the changes to light, that clarify what is actually seen.  Let’s see if I can explain a bit more about what is going on over here as one of those episodes hit me hard . . .

Three days ago the daily seizure attacks that I have suffered for 5 years ramped up to over SIX HOURS PER DAY.  One day these were all in a row, virtually without ceasing until the wee hours of the morning.  The next day I got a divided dose of 3 1/2 hours in the morning then an encore of SIX MORE HOURS in the evening!  I cannot even describe to you the mental and physical anguish this brings.  Time stops.  A single breath, one then the next, is the only measure in my mind of the clock of life ticking forward.  Difficult decisions got made between my beloved and I resulting in his cancelled trip getting replaced with the sights and sounds of another hospital emergency room.  The drug they gave me helped.  Miraculously, the convulsive spikes are but a blip here and there for now.

I have had over a day now to contemplate what life might be like to be normal again.  Indeed the pain has gone down some, the brain fog got less misty, and my ability to move improved.  So I completed a small garden project yesterday and walked our dog this evening.  I think that the ER Doctors who have told me that this illness isn’t biological are dead wrong.  Stop the seizing and I don’t need a psychiatrist to tell me to get back into life.  I don’t need convincing.  It just happens! 

There is much to figure out right now.  Will I get to work on more treatment like taking down viral infections?  How long will I stay on the new medication that could hurt me if it was too long?  What will I really do with my life should this process of healing continue?  I am hopeful again and that is good.  Alas it is poetic that these changes should occur as the earth warms from the cold of Winter outside.  Unlike the plants that are either remaining dormant out there or are testing their new growth with some surges in our Spring-like weather lately, I will wait to wake up all the way.  In the meantime maybe I can do some good with this wee bit o’ energy.  After all, there is no rushing a beautiful awakening to a new life.

Five years is a long time to have been asleep.

I bought a new truck like my Dad’s just 5 days before a kayaking trip changed my life forever.  I got sick from the water.  I don’t know why I told you that.  It’s been a long detour.  Now things are changing wildly.  Maybe the new beginning will need to involve a little road trip in my sweet ride?  To the nursery just out of town of course.  They sell bags of shredded pine bark compost that should fortify our garden vegetable beds nicely.

See what I mean?  It’s already happening . . .

JJ

garden dog, German shepherd, grass, sleeping, pet, pup, sneaky, dog
Elle awaits the awakening . . .

Do you see me?

I shook for almost 3 hours in that clinic recliner chair after a treatment that was supposed to help me.  Why did the nurse wait to answer the call light when I finally figured out what I needed to do?

treatment, recliner, hospital, bark a lounger, adjustable, IV infusion

I couldn’t speak properly but had to go to the bathroom greatly, knowing it would require transport via wheelchair and considerable physical assistance.  Why do I have to risk the episode worsening as I attempt to blurt it all out and even help operate the dang chair?

My left arm and leg were too weak and unstable as they seized with the rest of me so pivoting on a leg opposite the grab bar was the only way to land on the toilet dontcha know?  Why do I have to keep repeating that initiation of speech or movement makes the convulsions worse then be forced in a situation to have to do both anyways?

Each jolt repeated hundreds of times that night made the headache spike while wrenching my neck, spine, low back but alas I could do nothing to stop it or change its course.  Why did not voiding alleviate the symptoms like it had so many times before?

The infusions of fluids were supposed to help me treat the dysautonomia they said and address the dehydration but instead pushed me deeper into an exacerbation of my worst symptoms.  Why did not both doctors return my calls about my care that week, that day?

My beloved rescued me, drove me home, and helped me start the decontamination procedures to minimize the influence of exposures that could make the episode persist.  I feared falling in the shower after mumbling that I thought I could do it myself after he left.  Why do these heartaches keep happening to us?

I am still so very sick a year post IV antibiotics, genetic coaching, IV and compounded nutritional treatments, testing and treatments beyond that most experts would ever comprehend.  Why am I still at this level of strife FIVE YEARS down the road with no money for a big new direction, a possible cure?

The symptoms concerning me most recently are the ones where my cognition becomes dulled.  Why . . .  How in the world will we figure this out if my mind goes dim now?

I place this need to know “why” at the foot of my Lord’s cross who crafted this journey for me and my beloved for this time in our lives.  Thank you Jesus for Steve’s love.  I surrender my questions, my suffering, the thorns in my flesh, and the weakening of my mind to Your mighty hand with trust o’ God of the universe Who reigns!  Whether the battle is in the heavenlies or in my heart, my flesh, I let it all go to you now and ask for your covering my Jesus Christ.

God’s Word captures the submission of Job to the Lord in His time of suffering:

25 I know that my redeemer lives,
    and that in the end he will stand on the earth.
26 And after my skin has been destroyed,
    yet in my flesh I will see God;
27 I myself will see him
    with my own eyes—I, and not another. (Job 19)

“I know that you can do all things;
    no purpose of yours can be thwarted.
You asked, ‘Who is this that obscures my plans without knowledge?’
    Surely I spoke of things I did not understand,
    things too wonderful for me to know.

“You said, ‘Listen now, and I will speak;
    I will question you,
    and you shall answer me.’
My ears had heard of you
    but now my eyes have seen you.
Therefore I despise myself
    and repent in dust and ashes.” (Job 42)

Me too.  I trust that You always see me.  I will trust in you.  JJ