The view from here

Strangely dim or so it seems at times with

My cries, my prayers, the scripture that rolls off my tongue to no where

All serving as a cathartic drug I suppose I suppose.

My mind is stunned in an electric shock of sorts:

Body thrashing, limbs violently shaking, breathing withheld for a very long time

Until the darkness that seizes me lifts its grip on my life with the deepest sigh.

Living in hell will bring weeping and gnashing of teeth it is written

Surely worse than mine yet I still don’t like the taste that visits me,

Not knowing from whence it comes, from whence it goes rendering me useless for hours on end.

The next big thing keeps me chasing that miraculous dream inside:

To find a cure, the right Doc, the right stuff to end it all already

Should it exist this side of heaven we both ponder my sweet friend.

“What will be the villain’s name?” I wonder then do not care

The left side of my brain is tired and just wants to go home, to settle here in my heated bed

To sleep perchance to dream, aye, there is the rub as Hamlet said.

Not much has changed:  the beaten-down headache remains the same;

The husband lacks sleep and cries softly as his love tears our heart strings painfully once more.

What will his own lean on the Lord reveal from the Divine gift of a brilliant  mind?

We ponder a move.  We ponder a Mayo run.  We try variations on old remedies.  We pray for fumes to carry on —

As day falls into night and our intimate distance is lengthened over and over again.

Psalm 41.3

Yes, this is hard, Gentle Reader, and not a path for you I would ever choose.

It came this way anyways ordained by my Lord exactly for now as you have faithfully watched it unfold . . .

The nightmare is not over yet:  the final scene unwritten with the cast still shy of their curtain call.

So we will hang tough for the fourth year, the fourth act, that melts into a joyous season as they say

Of Christmastime when all we should do is look up anyways from our worries, from our homested.

It’s all about that Baby right (the One in the manger with stench all around His head)?

Yes:  He has come to save me, to save you, to make right that which hangs low on a starry night, for those who believe dontcha know?

My Jesus Who saved me with perfect grace once and for all

Will bring me to a better place with a view I cannot see from here:  one that faith beautifies beyond hope, beyond dreams, beyond the best love that has carried me thus far.

And when that moment comes when heaven is the only expanse of scenery from here

Twill be no matter the bumps, the downhill runs, the heights with hind’s feet lighting on high.

I pray that I will get to see you there Gentle Reader:  it is with you I want to celebrate it all!

For someday our cares, our view will be transformed and it will be as beautiful as promised.

But just assure me this:  will you be there in my view?

With love, Just Julie

 

If you like to kayak . . .

If you like to kayak then my River Bear has just the right kayak for you!  With new layups, two-tone color combinations, and options there is something here for every paddler.

My first surf ski (open cockpit where you sit on top of the cockpit instead of inside) was the predecessor to the Stellar SR that you see in this photo.  (See the About Page for a picture of me during my third time out in the SR.)  This one is way cooler for sure!  Having started in a wide and heavy plastic Sirocco sea kayak, you could say that my hubby has succeeded in helping me to make my way across the water with style.  These days I actually prefer a solo outrigger canoe with a single-bladed canoe paddle until my balance skills get back up to par.  Lord willing I’ll be back into an SR next year!

Until then and for persons in the Midwest of the United States, feel free to contact River Bear Racing to see a Stellar recreational or racing kayak.  You’re only as good as your gear ya know, eh?  JJ

Winter 2015 RBR Ad

Be true to who you are

This song will make the point of this post more clear.  Have fun as you listen to this upbeat tune from the Beach Boys!

<img class=”alignnone size-full wp-image-4432″ src=”https://jesusisforthewounded.com/wp-content/uploads/2015/12/beach-boys.jpg” alt=”Beach Boys” width=”480″ height=”360″

“Just like you would to your girl or guy.  Be true to your school.  Rah rah, shish boom bah!”  And Gentle Readers I submit that this also applies to US TOO!

In a recent trip to the Emergency Room (yeah same story, different day) I was received by the male nurse who did my initial evaluation less than a month ago.  I remembered the gooley, inappropriate look on his face as he handed me a hospital gown and asked me to change clothes then waited for me to do so right in front of him.  He had the gown opened just below his eye level.  His eyes were staring at my chest.  The expression on his face was blank.  And I didn’t buy it one bit.

I really don’t know how I had the presence of mind in the middle of non-stop convulsive episodes and a struggle to breathe to ask him for some privacy.  He paused for a moment then looked up at me.  “Of course,” he said or something similar and handed me the gown.  He pulled the hospital curtain and continued typing on the portable computer just beyond what is also called the “privacy curtain.”  My beloved husband, Steve, assisted me in changing my clothing thank you very much!  My dignity in an extreme moment of vulnerability was spared.  Thank you Lord.

I know that this nurse is a medical professional.  He has probably seen thousands of naked bodies and women a lot better endowed than yours truly.  In a time of crisis, the medical professional assists a patient in changing clothes as a part of the procedures.  Yeah but they are not to do so while acting in an unprofessional manner.  He was not going to help me in that moment unless I was dead!  Period!  The rest of that visit went more cordially and more appropriately.  I changed clothing on my own after the assessments and treatments were completed about four hours later, thank you very much.

Flash forward to this past Tuesday night.  Mr. un-Wonderful was working the p.m. shift again in the ER and begins his nursing evaluation.  I cringe.  This time it was a petite, blonde nurse co-worker who asked me to donn a hospital gown.  The dude was within arm’s reach of the gurney upon which I am lying.  I felt his eyes upon me.  In that moment, shaking violently with convulsive episodes and struggling to breathe, I was glad that I had been trained as an occupational therapist and muttered as much.  As such I know more ways to dress and undress than the average person with virtually any disability that you can imagine.  I laid the gown over my clothing, covering my personhood, and struggled then succeeded to doff my own clothing and get into the approved garb.  Steve might have helped some; I don’t know as my eyes were closed.  The nurse  wasn’t happy but I was.  And in doing my own thingy, I remained true to myself.

The rest of the ER visit went as they usually do.  After about 750 cc of fluids, IV Rocephin, and a shot of Morphine (my first ever!) I was feeling better.  While the second bag of IV fluids diminished the severity of the episodes, the tremulous part of the episodes didn’t stop until after the Rocephin.  And that improvement lasted for about a day with barely a tic attack here and there.  Yeah God!

Now I am in the aftermath of trying to decide what to do.  The prescription Keflex (same cephalosporin drug class as Rocephin) has begun irritating my stomach.  While there were findings of a urinary tract infection in the ER, the urine culture was negative.  There are still fewer and less intense episodes overall:  the hell that plagues my life and keeps me clinging to the Cross of Christ for hours every day.  My Doc says to stop the Keflex.  I held the herbal Biocidin (anti-microbial) after the ER visit to avoid an interaction with the new prescription drug.  What shall I do now?  Hmmmmmmm.

I know what my gut is telling me to do:  be true to myself.  I will pray for the Lord to guide my very wise husband and me.  I will strive to be respectful to those trying to care for me with as much courtesy as I can muster in any given situation while protecting my own privacy and integrity when it is all that I have.  In due time we will figure all of this out and be much better for the journey the Lord has allowed for His purposes and our good.  Of this I am still sure.

And if anyone tries to tear down my alma matter, Mott High School and the mighty Marauders, well then I will be “true to my school” as well.  “Go team,” I will shout on high!   Lord willing, we are going to win!  JJ

 

 

Hope Beyond

My hope this day and always:

Fernando Ortega Home

It Takes Time: My Wife Is Crazy!

Thankfully my beloved Steve never said this to me.  I wondered it myself many times though!

Check out this husband’s perspective  on mold and how it can affect your life.  You may search the words “mold” and “biotin illness” for more on this topic from Hope Beyond.

And hang in there fellow sojourner.  Praise the Lord that I am getting well!  JJ

http://moldrecovery.blogspot.com/2012/05/my-wife-is-crazy.html?m=1#.VmdYd4SFbzJ