Slow but sure

Whenever my Dad’s mom was facing a setback in her health she had one phrase regarding her progress, “I am getting there, slow but sure.”  She might be in the hospital with an exceedingly painful case of shingles but her response was just the same.  Surely this attitude endeared many of the medical staff to care for her just a little more.  I sure appreciated her more when she reassured me with these words over the phone 300 miles away.

slow but sure, slowly but surely, senior crossing, traffic sign, grandma, grandmother, sign

I have decided to borrow this attitude for myself.  Perhaps it will help with another temporary setback as I recover from a recent biopsy of my thyroid.  My neck hurts!  The procedures and resulting discomfort have triggered more noxious symptoms including those related to hormone fluctuations:  temperature dysregulation, blood sugar swings, occasional tearfulness, etc.  But it had to be done:  my third round of biopsies over the years at least this time was performed under conscious sedation.  Gratefully I did not have to be awake when they pushed that very long needle into my neck.  Eeeeek!

My recovery is coming along, slow but sure.  Today I was able to be upright more hours than yesterday and hopefully I will be able to leave the house tomorrow for an appointment before my infusion of antibiotics in the afternoon.  The latter continue 3x per week as they will very likely for the total of a year of IV ceftriaxone.  We are trusting the Lord to provide for all of this; we have had to pay thousands per month ourselves for most of this year.  With treatment by a naturopath and genetic coach, compounded medications and supplements, and every kind of co-pay there is, we should qualify for a medical tax deduction for the year without any problem!

At least now I am not failing unto death any more.  What good would I be to anyone to allow my health to decline without a fight?  I believe the Lord gave me a brain, five years, and an unusual provision of resources to get this job done so getter done I shall with my beloved Stevers leading the way.  Slowly but surely this train will reach the proverbial “Station*” just in time someday with a little less baggage for having fought the good fight.  And it looks like things may be looking up soon (provided the biopsy results indicate that the thyroid nodules are benign!).  Regardless:  God is good.  All the time.  God is good.

I hope that you know that to be true too, Gentle Reader.  Feel free to tell me about it below . . .

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*https://justjuliewrites.com/2013/03/24/the-station-by-robert-j-hastings/

In the thick of things

Just before the dawn breaks open the darkness

The night seems the blackest, the air the coolest.

But really what difference did it make to the day?

It was already breaking forth before anyone could see it.

Stumbling over rocks and brush and twisted debris

I would not think there was a way out of those woods . . .

Only the squirrels knew where the last canopy reached:

It was already marking the clearing before I could see it.

The shiny reflection on the pavement up ahead

When travelling along the road at high speeds

Suggests water on the horizon but alas, it is not to be

It was already stretching out forming a new illusion to see.

Things just aren’t what they seem along the darkest trails of our lives

Yet we pretend we know what is to come from the markings underfoot

Better to trust in the love of the One who sets us free to explore these

He is already there with adventures in-hand if we but open our hearts, widen our gaze, and keep walking ever nearer to Thee.

For He will never leave us, forsake us, forget us, deny us you see

Jesus loves us, precious in His sight and placed perfectly in the Father’s timely gifts

And the places He wants us to go will yield more good than that we ever could foresee

Oh how it will simply make more sense in the clearing someday under the sunshine beyond . . .

For now I am just going to keep walking.  Gentle Reader:  care to join me?  JJ

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It’s Legal: CBD Oil is Here to Stay

A couple of years ago, I ordered my first bottle of CBD oil from Bluebird Botanicals.  My hope is that it would take away the seizure attacks that I experienced on a daily basis as part of a serious and complex illness.  The preliminary research showed that CBD oil made from industrial hemp would be legal for me to purchase in Indiana, was effective for intractable seizure disorders affecting children, and would bear few if any side effects.

I tried it.  I slowly increased my dose over the next 3 weeks to the level indicated in the testimonies and research that I had found online.  Then things went terribly wrong.  I started to have frightful nightmares.  They increased in vividness and horror then were joined by waking night terrors.  These are the kind that don’t stop when you wake up!  I was scared to continue.  I backed down my dose, took a break, re-started and nothing seemed to bring relief.  The benefits of halting or preventing seizure attacks did not outweigh these horrible side effects.  Eventually I abandoned CBD oil altogether.

While medical marijuana has Cannabidiol (CBD) as an ingredient, you don’t need to live in a State where medical marijuana is legal to obtain CBD oil by itself.  Medical marijuana also contains THC which is a schedule 1 controlled substance in the United States.  CBD oil from industrial hemp only contains .3% THC.  This allows sale of pure CBD oil in all 50 States.  For me the .3% was still too much.  I would later understand that I don’t even have a genetic disposition in my opiate receptors to explain my hypersensitivity to THC.  Heck, I smoked pot occasionally as a young adult without any ill effects.  There would simply be no explanation for my intolerance of legal CBD oil from industrial hemp.

industrial, hemp, CBD, oil, seizures, convulsions, benefits, legal, legalize, Lyme, tremors, tics

Flash forward 3 years.  I became acquainted with a company who manufactured pharmaceutical grade liposomal products.  When they introduced a CBD oil product made from industrial hemp, I decided to try it again.  I still suffered from daily convulsive episodes although the number of hours lost per day to them had decreased after beginning IV antibiotics for chronic Lyme disease.  Seizures, tics of organic origin, non-epileptic seizures (or whatever you want to call them) were a definite neurological complication of latent Lyme disease.  The episodes were less per day but not gone.  I ordered a bottle.

I did not get past a single dose of the new product before suffering another waking night terror incident.  Dang!  The only difference this time was that the superior liposomal nanoparticle size delivered the CBD more quickly to my brain than the Bluebird Botanicals product — and for me that was not good.  I returned the bottle to the healthcare professional from whom I had ordered it.  And then I waited.  There would be no other compelling rescue remedies to reduce my suffering when the nightly episodes came.  No doctor would order medication for me to even try; I have been to the Emergency Room 10 times over these past 4 1/2 years because of wretched convulsions!  Even over-the-counter Benedryl would leave me unable to function very well the next day if it did stop them (and render me too sleepy to care about anything the next day).  A few herbal antibacterial supplements offered temporary relief on occasion and the reason for that will be another blog post about Small Intestinal Bacterial Overgrowth (SIBO).  Neurotransmitters and hormones that can give rise to seizures are manufactured in the gut dontcha know . . .

I learned that one of the better manufacturers of CBD oil was preparing to introduce a THC-free CBD oil so I contacted the owner.  I leveraged everything and asked to try a beta version of their new product.  Within 2 weeks the bottle arrived in the mail.  It took around 15 drops to get a significant response:  their THC-free CBD oil definitely helped reduce the intensity and duration of the nightly seizure attacks.  Yeah God!  This benefit happened even when herxing (or reacting) to a new antibiotic used in the treatment of SIBO.  Some relief came at last!  I am optimistic for the benefits that I might receive when the first round of antibiotics for the treatment of SIBO are completed in 5 more days.  Perhaps healing my gut will help everything as well.  In the meantime I have contacted the owner again to see if I might obtain additional product; my hope is to transition from using it as a rescue remedy to having enough for regular dosing that can help prevent the episodes altogether.  I may need to switch brands to get this accomplished.  We’ll see.

CBD oil is legal for purchase in all 50 States of the USA.  If you are frustrated with noxious symptoms especially tics, seizures, pain, depression, or anxiety, there may be hope in the use of CBD oil from industrial hemp.  Please do significant research on the track record of the manufacturer, look for independent lab testing of purity/potentency/concentration of active ingredients and absence of unnecessary fillers before making your purchase, especially if online.  Very likely you will not find a superior product at your local health food store as hemp seeds and hemp oil contain too low a concentration of CBD to make much difference for a serious health condition.  Here is one brand that is available only from healthcare practitioners nation-wide:  Colorado Hemp Oil.  And this website has some good general information although note that it used to be funded by a manufacturer of industrial hemp products:  Project CBD.  I am not sure of its current status.

This is my story and I’m sticking to it!  I am not an expert by any means just a gal trying to find some relief in an ethical, legal, and medically sound manner.  Feel free to share pertinent information below.  Please don’t try to sell me anything!

Take care, JJ

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The Medicine Cabinet

Pray tell how much do you think I can hold

In my shelves bursting forth from the orders?

“Try this, take that, or Google the one I heard about”

Becomes license for judgement once thought to be clinical.

Not learned in school but that of “hard knocks”

The ideas flow too simply during paid consultations

Such is the life of a lab rat in the cauldron of illness

Where test results get mixed with expensive remedies.

So I look up interactions online thanks to drugs.com

Although many will be borne out of a bad trip on a Tuesday

When I try your best guess out of desperation, my last dime

And occasionally find relief or find hope a fraction of the time.

“I’ll take it,” I say under my breath as a new protocol prints out

My medicine chest overfloweth, my fingers sore from researching

Til someday the Lord crafts a breakthrough I shall not give up:

For the Great Physician love me more than this infirmity for sure.

Just look up, look out Gentle Reader if you suffer along too

Have I not commanded you? Be strong and courageous.

Do not be afraid; do not be discouraged,

for the LORD your God will be with you wherever you go.

Proverbs,4:22, medicine cabinet, God's word, Bible, the word medicine, hope, healing, Great Physician

Coming out of the fog

I just might be coming out of the fog

As I hit the 5 year mark of shroudedness

When some bugs in greenish water back then

Everyday put me under severe, daily duress.

I could sell you a book of

Five hundred blogs and two links

With tales of woe then and now that’ve

Filled webpages as I tried to keep on my “think.”

This forum here, now with you this Autumn night

Kept me sane so the cells in my brain did not go to mush;

While firing wacky-backwards without ceasing at times

For waaaaaay toooo long without hope of a rest with a cush.

Looking back, looking forward

And thinking it over some more,

I see da light coming through darkness:

The kind that stays and covers all.

Tis healing that’s on the brink to stay

If I but finish the course with everything

It takes what it takes and it ain’t over they say

And they’re right, “until the fat lady sings!”

Now I ain’t too fat or that big into musical things

There’s more dirt under my fingernails than bylines

Bits o’ gardening, sewing, medical cooking fills the

Hours not counting Heparin and saline syringes.

No matter anyways, anyhoo, anyhow

It’s just the way it went, the road less travelled by

I will be stronger for it in the end they say (and they know)

In due time, Gentle Reader, with the Lord we’ll one day know why.

JJ

Julie Horney, Lyme disease, get well, recovery, healing, gratitude, end of the road, end of the journey, smiling, woman, park, Rogers-Lakewood
Resting with mask in hand by a scummy lake here in Indiana!