Earlier Today

The salesman said that the service guy dropped the bed liner in earlier today (yesterday).  I noted that the General Manager said that they could drop in a bed liner in the truck for me for the same selling price.  There are 2 problems with this:  1)  I had just gotten off the phone with the GM about an hour ago and 2)  the bed liner the salesman was showing me was DIRTY!  There would not have been enough time to install it and it should be at least as clean as the truck in time for my test drive, right?  The salesman said that they often had old bed liners left lying around.  And since I wasn’t born yesterday, I didn’t believe him.  I took a test drive to Steve’s workplace for him and me to have a little fun with it, accepted the man’s business card, and parted ways.  It wasn’t even the year of vehicle for which I had asked and the cheap air freshener smell had given me a headache!

We are not sure if we are in the market for a new truck or not.  The added expense comes at a time of a few life transitions, the biggest one being the visit and possible moving in of my Aunt Lori very soon.  Transporting her across the country in our Nissan Frontier, towing a travel trailer, has challenged several logistical parameters even our  German shepherd pup traveled in a kennel in the bed of the vehicle.  (The cage is on order, just in case!)  Renting a full-sized truck proved to be extraordinarily expensive and it’s a bit late to arrange airline tickets.  The latter involved staging a car at a local airport, a fair amount of expense that would come from the purchase of two air fares (since she is unable to travel alone), and my hubby returning from Florida separately with the pup and Camplite.  Doable, yes, however not so easy to implement when my Aunt couldn’t decide what she wanted to do about any of her affairs.

And so we are making decisions based upon prayer, speculation, clinical judgement from my experience as an occupational therapist, delay/disinterest from my Aunt’s adult children to act on their Mom’s behalf, already considerable costs-to-date, and reading between the lines of communication with extended family at a distance.  Sadly her health continues to fail, that is for sure.  We will be in her home State soon for my next medical appointment so it made sense to begin her trial visit with us with our return trip home.  I have been very stressed attending to all of the details of this process.

Regardless, plans are still coming together except for one big one:  deciding if our Nissan Frontier King Cab 4×4 SV is adequate to make the trip.  Can we tow a larger travel trailer that is just within the specs of our tow vehicle even with the new Anderson load bearing hitch?  Can I survive in a jump seat of a King cab for a cross-country trip, modified with pillows and a step stool?  Will Elle survive alright in the 90+ degree heat in a kennel in the open air, if shaded from the sun?  I have my concerns for her!  She was born and lived as an “outsider dog” before we got her 10 years ago.  A lot has transpired since then, including her becoming a lovely house pet and indoor companion for me!  Sorry pup!

dog in truck, jump seat, German shepherd, woman and dog, travelling, Nissan Frontier, pet dog

The expense of a larger truck is considerable.  Stay tuned.  I do like the 2017 Ford F150 Super Crew 4WD . . . but I won’t be visiting salesman Jim anytime soon!  Ugh.  Next!  JJ

UPDATE 6.29.18:  No new truck at least for now!  We considered last minute airline tickets for me and my Aunt and staging a vehicle at the airport to get us home from there.  But it is time for us to come together as a family for this 3-week visit and it was my hubby who decided the best way to do that was a road trip together.  Low and behold with one day to spare, a full-sized rental truck with towing capacity became available in our city.  IT IS EXPENSIVE yet the right thing to do.  For now anyways.  :J

 

The Battery Effect

A transition was coming.  I did not know that at the time.  I longed for a change of some sort yet continued to struggle.  And then the Lord moved in a BIG WAY.  Did the man the Lord used to help me  know the difference he had made?

I was two years into the role of a divorced woman and much of the rough road had become smoother.  The Lord provided a cute condo just for me in a nice suburb of Chicago, a “little black race car,” and good job.  Physical limitations required me to work 3/4 time yet gratefully my profession of occupational therapy pays well so I could still support myself.  It was still a tough time in my life.  The stress contributed to a back injury that put me out of work without pay then right when I might default on my mortgage payment I was able to return to work.  Amazing.  And that is how the Lord provided for me during a total of 3 tough years:  just in time, right on time, and only after completely submitting to my Heavenly Husband and Father.

The Thursday night Bible study at the home of Pat and Mary was an important refuge for me during those years.  Pat brought to life the books of the Bible with detailed history and applications that made a difference for all of us.  He led us in prayer where we lifted each other up before the Father in the name of Jesus Christ; the love was palpable.  Members came and went yet were never forgotten.  Most of them knew my former spouse from years together in that living room.  It didn’t matter later on.  I am grateful that Craig led me to the fellowship that would make a difference then and even this past weekend.  Here’s why.

His name escapes me of the younger-than me gentleman who was a part of the Bible study who offered to help me with my car.  I understood that he was happily married with children and thriving in the IT field.  I needed a new battery for my Honda Civic but could not find the money for it.  Through Pat within the following week, I learned that the guy whom I barely knew had offered to pay for it!  I was grateful and humbled.  Life went on and the car worked great however I did not see this man again for many weeks on a Thursday night.  I’m sure I sent a thank you note but never got to tell him in person the difference and encouragement that came from his actions.

And then my life changed again:  my mother passed away.  I was already exhausted from the grievous circumstances surrounding her death and, at the same time, grateful that I got to see her out-of-state the day before she died.  Incredible.  Then much to the surprise of my brother and I, she had left behind an inheritance that would meet all of my needs in the near future.  Whew.  Such a paradox!  So many mixed emotions.  I had no idea; I thought she had squandered her hard-earned income that came from years working as an office manager at Hercules Machine Tool and Die in the Detroit area.  There was more leftover.  My brother and I had more to focus on than this so we each proceeded as we thought best while dealing with our childhood home, his ultimate need to find another place to live, etc.  An extended family member’s role saw to all of that for sure as my Mom’s chosen Executor of her estate.  (No, that was not me.)

So I decided to purchase a new car!  And then I felt guilty!  So I sought the counsel of my Bible study leader who taught me to enjoy the Lord’s financial blessing yet hold it lightly.  As a Christian the stuff of life has no eternal value yet we are to be good stewards of the resources bestowed to us.  I tithed then proceeded with my purchase, enjoyed my saweet Hyundai Tuscon.  Sure was nice having a good vehicle to take me to-and-from my new love interest in Indiana.  Things started looking better in some ways, in others there was still a cauldron of confusing emotions.

The gentleman who bought me the new battery for my old Honda Civic showed up sometime later at the Thursday night Bible study.  I was at the stage of purchasing the new car and trading in the old one, sharing my incredible mix of events.  The look on his face seemed to express “incredulous.”  Not sure if he was happy for me or sad.  His donation of a new battery was now in the hands of an unknown party.  The look on his face stayed with me for the next ELEVEN YEARS.  Did he know that his encouragement gave me the courage to go on with my life?  To trust in the provision ultimately of my Heavenly Father?  I didn’t think so.  And I never got an opportunity to thank this man in person; he left shortly after the end of our prayer time that night.

Eleven years later I ran into Pat and Mary at the Memorial Service of a brother in Christ:  this past weekend.  We laughed, we reminisced, we spoke of our mighty Lord and how He had restored the years the locusts had eaten in my life, twice!  (Well, probably more than that actually!)  My intended beloved, Steve, and I enjoyed a lovely time of fellowship with Pat and Mary in addition to many others who helped walk me through those important years when I worshiped at Village Bible Church; many were there on Saturday.  Before we left I had to ask Pat one more thing:  did the gentleman who bought me the new  battery ever knew the incredible blessing he gave me?  Did he understand that I really needed it at the time?  That his actions gave me the courage I would need to move on when a time of financial restoration would follow, albeit quickly?  Pat said that he did.  He said that it was a blessing for him to help me.  Sigh.  Really?  Oh Lord, I do hope so.

The gentleman’s name is Rich.  Lord, please bless Rich and his family, work, and life this day.  Let him know the generosity and goodness that you brought to me so many years ago and lead Him in your ways always.  I pray that he continues to seek you and bless others with what gifts you have given him as he did for me.  May our Lord be glorified in all this goodness that comes to any of us amidst the trials of this life.  Your fingerprint is here for me, for Rich, and for you too, Gentle Reader.  In due time for those who believe in the name and sacrifice of Jesus Christ, we shall be lifted up and made new one day, sharing in the glory beyond our wildest dreams.  Tis a decision worth making, a journey worth taking.  Thank you Jesus for Pat and Mary too.  I pray that you bless them as well for their faithful teaching and living every day for You.

1 Peter 4:8-10  Above all, love each other deeply, because love covers over a multitude of sins. Offer hospitality to one another without grumbling. Each of you should use whatever gift you have received to serve others, as faithful stewards of God’s grace in its various forms. If anyone speaks, they should do so as one who speaks the very words of God. If anyone serves, they should do so with the strength God provides, so that in all things God may be praised through Jesus Christ. To him be the glory and the power for ever and ever. Amen.

Beep!  Beep!  :J

Hyundai, Tuscon, German shepherd, garden, light pole, garden bed, Dodge Magnum, paddling gear, front driveway, holding things lightly, Christian man
A few of my favorite things in 2010 including Steve, Elle, and the blue Hyundai Tucson!

On the Cusp of Many Changes

Here’s a post from last week when I almost didn’t know where to put my focus at any given moment.  Maybe it’s time for a brain dump, prayer, and some quiet before the mayhem?

Inside

The bout of pneumonia is largely past now with occasional coughing spells and nasal rinses to get me through the occasional flare-ups.  Unfortunately this illness has exacerbated the seizure attacks when trying to go to sleep.  It is definitely time for an adjustment to my specialized dental appliances however the trip to go see my Craniomandibular Specialist got cancelled due to the pneumonia.  Oh well, the fact that it has been raining in Florida virtually every day for the last few weeks including a tropical storm this week makes me glad we were not camping in all that mess.  Ever camp and travel in hot, muggy, wet conditions with a large dog?  Yeah, it would have been a moldy, muddy mess for sure!

Outside

We are in the process of selling our Livin Lite Camplite 16 DB that has served us well for the past 4 years.  We very likely will need to accommodate one or more family members during some upcoming travel so we are pursuing the financing of a more suitable travel trailer.  This is a week of finalizing the sale of our “Tin Can Ranch” and the purchase of the new unit, Lord willing, requiring many tasks and 2 long days of travel:  one day this past weekend to scope out the new travel trailer and another day soon to go pick it up.  Travelling a total of 4 days to my medical appointments in Florida was out of the question yet 2 shorter trips over the period of a week was more doable yet very tiring.  No problemmo.  My beloved River Bear is a skilled “bus driver” too!   The cancellation of medical and other appointments this past week (because we were supposed to be out of town!) has allowed for plenty of time for rest-n-naps!  Hopefully the new owner of the 16 DB will be able to solve her delays soon as well.

Things got crazy when late Sunday night in the middle of the Memorial Day weekend we found the perfect travel trailer and price point for our situation!  Within 24 hours of the posting of the listing and us finding it, we were on the road and ultimately making an offer.  Do you think that the Lord cares about the special thingies of our lives?  I submit to you that He does.  The morning of Memorial Day that we were scrambling to take a day-long road trip to see the travel trailer, Steve sold a performance surf ski for his River Bear Racing!  We delivered it to a gentleman along the shores of Lake Erie then headed south to check out the new Camplite.  A week later it was in our driveway!  However, the timing of this transition has found us with TWO travel trailers, much paperwork, a couple of trips to the Bureau of Motor Vehicles, yada, yada, yada.   We are a little nervous but trusting the Lord that things will also be resolved in time for our first camping trip in June . . .

Family

Looks like my family member in Florida will be visiting us for most of the month of July.  It’s still a month away yet many travel arrangements and accommodations are needed to both get her here and have her in our home.  Steve and I still must practice extreme avoidance procedures (changing clothes and showering when coming home from being away) which is tough on an older family member who needs care.  We will make as many preparations as we can before she leaves her home (in a moldy State), have initial provisions for her when she arrives, and hope for the best that her clothing can be sanitized and de-fragranced so she can travel and visit with us in July.  She has many fears, concerns, demands, yet is asking to come.  That is kind of weird since she has traveled with virtually no care just a few months ago and did alright.  So I will be very busy taking care of many details.  Thank the Lord I am less reactive to fragrance and trace amounts of mold, etc., and my activity level has increased some overall these past 2 months!

Home

Getting out in the garden continues to be a great therapy for me in many ways.  The vegetables are now in the ground including a new asparagus bed . . . until the bunnies find it of course!  No worries as I am working on my rascally rabbit defense system as we speak.  Overall I am still months ahead of schedule for Spring clean-up as compared to the past 6 years battling a serious illness.  I am humbled and grateful.  When my days in the past focused on basic household chores and a plethora of medical appointments and treatments.  Was really nice yesterday to sell a piece of medical equipment that I no longer need and then drive directly to a local nursery with the cash to purchase a lavender plant!  The rains today shall nurture the earth and my garden refuge wonderfully.  Thank you Lord for the lovely view out our windows to encourage me on my recovery journey.  You are soooooo good!

I am in awe of the overall goodness of these changes happening in our lives.  Steve an I are grateful and humbled, tired and excited, stressed and energized all at the same time.  So I’ll end with my happy place that provides refuge through it all.  (Can you find the pup in the photo?)

Thank you Lord for your blessings and goodness, love and care.  Gentle Reader:  He is so good!  JJ

Front Door 6.18

 

Clarity Came to the Caregiver

Sometimes the moments of frustration break away to clarity and decision.  Gratefully, the crisis is over for now in our care-giving responsibilities.

Recently I vented about the stress and trials of caring for a family member at a distance.  She is having difficulties making decisions.  She is having difficulty trusting anyone to help her despite reaching out to a few family members to do just that.  Then she changes just about everything after you have helped her establish according to her wishes at the time.  I am concerned for her safety.  Mostly I have been concerned for my own sanity and stress level, caring for a lady for whom nothing is quite good enough.  What a tough place for us both to find ourselves.

So we will back away for now until she finds that she really needs us.  Her summer visit is now cancelled.  Her indecision really is a decision of sorts!  My beloved saint of a hubby and I will see this family member within a month where we will regroup in person.  Until then I will focus on the tasks of recovery from my own serious illness.  More about that next . . .

Fiji, water, patio, covered porch, Indiana, Spring, garden, relaxing, healthy food, carrots, Bible reading, prayer time, shade sail, flagstone

This Distance Caregiver Thing

I may not be cut out to be a personal caregiver.  After 3 decades of working as a healthcare professional and caring for a thousand or more adults over my career, you would think that this would come easy for me.  It is not.

It’s one thing to work with up to twenty different personalities in a single day for 30 to 60 minutes at a time, trying to facilitate a therapeutic experience that is meaningful for the person and billable to his or her insurance company.  I learned to quickly develop a rapport with each individual, turn our focus to the therapy evaluation and treatment process, and wrap it all up with a plan for the next session or discharge.  Often the most challenging patients were put on my schedule because of my experience working in mental health settings and with persons diagnosed with dementia.  Many were depressed, angry, resistant, unable to focus for more than a brief moment, or simply were not coherent at all.  I would often have to come back to a person’s room several times a day or miss my own lunch break to facilitate a feeding session during his or her mealtime while my tummy growled.  There were the difficult families, co-therapists who would “steal” your patient throwing off your schedule, the CNAs who wouldn’t bring the client to the clinic, or the patient who almost always needed a diaper change before we could fit in any therapeutic activities.  Standing tolerance, functional transfers, and self care were easy goals to fit in when the nursing staff just couldn’t fit in the care needs of their residents; occupational therapy gotter done.  I wiped a lot of bums in the process.

It’s another thing to try to help an aging family member 1,000 miles away with a range of personality, behavioral, cognitive, and early physical changes.  I am having difficulty managing the frustration of dealing with a person who can make decisions one day and not the next, seem to engage in manipulation/pity partying/whining then be as sweet as sugar, ruminate on minute details for hours, and complain more than converse about most everything else.  She has changed this past year for sure then other times she seems just like her old self.  I just didn’t see some of these more difficult characteristics before this year and before I understood that the diagnosis of a brain disease has made everything in her life more complicated.  Of course she wants to make her own decisions and we agree.  Of course it is hard even a year after diagnosis to accept that she is having problems and needs help.  And when depression, anxiety, and compulsive tendencies take over, it is nearly impossible to help her to keep moving forward.  I just don’t know what to say or do sometimes.

I could do nothing.  My husband and I could do nothing.  Instead we have offered to help and have devoted probably 100 hours of such thus far.  She has asked to stay with us this summer then backpedaled when picking apart every detail of the visit that will not be perfect, problem that will not be solved in the way she would like.  I am sorry.  We just cannot move across country to cater to your every need in sunny Florida my dear!  There are always limitations to what any caregiver, professional or family member, can do for a person in need.  We will likely continue to help her and have started to set some boundaries too.  I am still in recovery from a serious illness and, while I can do more than when I first discovered her illness just 3 months ago, there are limits.  Should she come she will have to contribute some financially and is reluctant to do so.  She will need to follow the routines of our household and is reluctant to do so.  She will need to leave a tropical climate for the ravages of the four seasons in the Midwest and is reluctant to do so.  She wants to see what it would be like to live with us but isn’t sure she wants to come for a visit.  Whatcha gonna do lady?

Tonight I am frustrated.  The Lord has set me on a path to healing with a trip to a medical specialist that happened to reside in a town near my beloved family member out of state.  It seemed to be providential that I would spend some time caring for her as I could when in town for medical visits.  We prepared for each trip for many hours on the phone and followed up for many more thereafter.  I helped her with 2 day-long projects in-person with great physical consequences for me after the last time I was in her town:  travelling alone for the first time in over a decade and only 5 weeks into recovery from a new treatment that is working!  Geez oh man.  I just don’t know how much more I can do until I am further along in my healing process.

The stress of caring for my beloved family member, even at a distance, is weighing heavily on my heart and frame tonight.  I know I am called to help her some.  The amount is unclear for every time I set a boundary there is push-back.  My ability to manage stress has changed since battling a serious illness  for over six years.   I am saying no, making things as clear as I can.  My hubby wants to accommodate her this summer (and permanently if desired) as best we can yet to do so could create some financial and scheduling chaos.  My beloved family member is not yet willing to consider some things that we see need to be done for her personal protection and safety long-term.  We understand that these are big decisions.  However, waiting seems to just foster more indecision on her part, more stress on our part as her potential caregivers.  Dear Lord, what shall we do?

We are grieved that my family member has strained relationships with several family members who are not fully ready to attend to all that is needed to care for her.  She hasn’t been able to talk directly with them yet which puts us in an awkward situation with them should she have us proceed in our role as caregivers.  We are grieved for the sorrows that her and her children have endured trying to make sense of the heartaches in their pasts and how it strains their relationships today.  Conversely, I have only good memories with my family member so I’d like to think that I am a little more level-headed in honoring her wants and needs.  Who knows?  It is still hard to care for her varying emotional states on a daily basis.  Good golly, why still struggle when there are two people who love you, seem to care about you the most right now, and are willing to invest their time and energies in doing so?  Help us out here my dear:  will you be spending the summer with us or not?  Will we be making some major purchases to help make the visit more comfortable for all of us or not?  I do hope we know the answers to these questions in a couple of days.  This distance caregiver thing is running me ragged!

Stay tuned, Gentle Reader.  We are praying for guidance, peace, and the same for our family.  Let’s all take a deep breath and take care, k?  JJ