How about playing a little tune while enjoying the view that encourages me these days: my beloved and my garden. Enjoy!
Song to play:
Pictures from my heart of gratitude. Thank you Jesus. You are so good to me. JJ





How about playing a little tune while enjoying the view that encourages me these days: my beloved and my garden. Enjoy!
Song to play:
Pictures from my heart of gratitude. Thank you Jesus. You are so good to me. JJ





New International Version (NIV)
1 I waited patiently for the Lord;
he turned to me and heard my cry.
2 He lifted me out of the slimy pit,
out of the mud and mire;
he set my feet on a rock
and gave me a firm place to stand.
3 He put a new song in my mouth,
a hymn of praise to our God.
Many will see and fear the Lord
and put their trust in him.
4 Blessed is the one
who trusts in the Lord,
who does not look to the proud,
to those who turn aside to false gods.
5 Many, Lord my God,
are the wonders you have done,
the things you planned for us.
None can compare with you;
were I to speak and tell of your deeds,
they would be too many to declare.
6 Sacrifice and offering you did not desire—
but my ears you have opened—
burnt offerings and sin offerings you did not require.
7 Then I said, “Here I am, I have come—
it is written about me in the scroll.
8 I desire to do your will, my God;
your law is within my heart.”
9 I proclaim your saving acts in the great assembly;
I do not seal my lips, Lord,
as you know.
10 I do not hide your righteousness in my heart;
I speak of your faithfulness and your saving help.
I do not conceal your love and your faithfulness
from the great assembly.
11 Do not withhold your mercy from me, Lord;
may your love and faithfulness always protect me.
12 For troubles without number surround me;
my sins have overtaken me, and I cannot see.
They are more than the hairs of my head,
and my heart fails within me.
13 Be pleased to save me, Lord;
come quickly, Lord, to help me.
14 May all who want to take my life
be put to shame and confusion;
may all who desire my ruin
be turned back in disgrace.
15 May those who say to me, “Aha! Aha!”
be appalled at their own shame.
16 But may all who seek you
rejoice and be glad in you;
may those who long for your saving help always say,
“The Lord is great!”
17 But as for me, I am poor and needy;
may the Lord think of me.
You are my help and my deliverer;
you are my God, do not delay.
(Amen.)
As I described in my post on May 28th, becoming a kayaker mid-life can be a daring adventure. When your intended beloved becomes a United States Canoe Association racer (State and now Nationally-ranked) you have a couple of decisions to make. The first one was whether or not I would also learn to kayak. Would I become a “kayaking widow” a couple of nights per week as my River Bear practices then races throughout the State of Indiana? The second one is if I did paddle, what kind of kayaker would I become? Recreational? Racer? Eeeeek, no!
Steve dons his dry suit here in the Midwest by about April or as soon as there is open water in our local rivers after the long Winter. Initially he would borrow my Think Fit (sea kayak) to start his season as it was more stable and forgiving when wearing this neck-to-toe zoot suit. As the weather warmed up he transitioned to either his Thunderbolt (open cockpit racing kayak) or surf ski (sit-on-top ocean vessel) as I reclaimed the Think Fit to join him with our Tuesday night Fort Wayne Kayaking Group. As I described in my previous post, one of the fears a paddler must overcome is that of falling into the water and drowning. To help guard against this outcome you can wear a paddling life vest, choose a more stable boat, or upgrade to a surf ski. When you topple out of a surf ski you will have a much easier time re-entering the boat, especially in deeper water. The kayak won’t fill up with water since the hull is a closed system. This provides you an excellent flotation device to hang onto should you topple over, until you can either re-mount the boat or swim with it to safety. This surf ski design began to look appealing to me in my second season of paddling. So did having a kayak that was even lighter and narrower making it easier to paddle.
You could say that I was the first in the Midwest to bring home a Think Fit and then a Stellar SR. In time the introduction of the Stellar line would open up opportunities for my River Bear, Steve, to become a representative for both Stellar and Epic kayaks here in Indiana. Cool beans. Wifey-poo done good! I had so many offers to purchase the Think Fit that it wasn’t hard to sell it when a suitable Stellar SR became available. Our friend Allan took to it easily and made waves, literally, that I could have never accomplished as a recreational paddler. My baby found a good home and served her new racer well. He even won a medal at his first Nationals in his age class: his first year competing and finishing in a torrential thunderstorm! Ah, the things that become normal when racing enters your life. Yes of course we were cheering him on equally drenched at the finish!
At first I doubted my decision to upgrade to a beginner surf ski. Sure there would be a learning curve but when my maiden voyage in a friend’s private ski lake yielded a nearly effortless glide with my winged carbon-fiber paddle, I thought I “knew” that I had made the right decision. Or did I? I can recall nearly panicking as I paddled between lakes in a local chain-o-lakes: my legs outstretched and straddling either side of the boat for stability. What had I done? The cross-winds were fierce in open water! Forget the great secondary stability it’s the initial stability that I was sorely missing! Once in the channel I could calm down a bit. Whew. “This is going to take some practice,” I muttered to myself. But was that what I wanted as a recreational paddler? Not really. I like to stop and grab a drink of water or bite of a snack bar along the way in addition to taking advantage of navigating a more streamlined, lighter vessel. Learning the sport from my racer husband had landed me in unfamiliar territory for sure! Now that Allan had already bonded with the Think Fit there was no use looking back to my first love (the kayak, that is!). Back to the calmer lake we went for more practice before the next outing . . .

The Fort Wayne Kayaking Group was headed to the Cedarville Reservoir in Leo, Indiana early in October. The boat launch just over the bridge provides access to the St. Joe River to the north and to the reservoir to the south. Later Steve would remind me that my first paddle when we were dating was in that reservoir. Sweet. Now it was three years later in the Fall: October 11, 2011 to be exact. I did pretty well that beautiful night for my third outing in the Stellar SR, continuing to wear a life vest for added security. Unfortunately I made 4 costly mistakes that evening. First, I let the mouth of my water bottle make contact with the greenish water. Second, I ate a snack that I had saved in the zippered pouch of my life vest even though it had become a little mushy, perhaps melted. I was hungry and it hit the spot! Third, a winged paddle tends to throw a lot of water into the air, particularly for beginners just learning the more efficient racing stroke for which it is designed, which also sent blue green algae aerosols into the air. And fourth, I doubt that I washed my hands after we loaded up the boats and sampled one of the member’s luscious peanut butter cookies she often brought to top off the Tuesday night paddles. Within 24 hours I was deathly ill and it was not from the cookie!
Within 36 hours I thought I was going to die. Seriously. Have you ever been in so much pain that all you can do is moan, holler, and moan in agony some more? After the second trip to the doctor’s office that week, he sent me to the emergency room for IV fluids mixed with anti-nausea medication. We figured by then that it was from something in the water but what could it be? The weekend was hell on earth. In between vomiting, diarrhea, nausea, and unbelievable abdominal pain eventually my brain started to put the pieces together in what was left of my mind. Early the next week some blind internet searching found a report documenting the testing of Indiana rivers and lakes. In a chart written in 2005 describing various cyanobacteria populating stagnant waters in the Spring and Fall I found it: cylinderospermopsis. I matched all of the symptoms listed for exposure. The treatment? “Supportive measures” as needed. I already had that. What else? I didn’t need the other recommendation thankfully: intubation or life support. My liver enzymes were elevated but that didn’t indicate any additional treatment at the time. These days I wish that I had been administered activated charcoal back then. Oh well. It’s amazing what 2 1/2 more years of research yields that could have been helpful at the beginning of this exceedingly difficult journey.
I never paddled the Stellar SR again. Here’s a picture of me in the one that has now gotten away. We never fully bonded. I never fully mastered her. ‘Tis bittersweet you might say for the wife of a kayak racer. I had learned so much and come so far since my maiden voyage in that plastic Sirocco in the summer of 2007 only to stop as they say, “dead in the water.”

The next 2 1/2 years was a wretched process trying to figure out why I wasn’t getting well. Was it Chronic Lyme disease? Biotoxin illness such as cyanobacteria and mold? Non-epileptic seizures? For more on finding hope during the medical part of this story just scroll through this blog a bit for the good/bad/ugly of overcoming a serious illness. As for kayaking and while the battle continues today, there have been enough recent improvements that I am able to get back into the water for limited outings. I am exceedingly grateful for the improvements. The Lord appears to be restoring the years the “locusts” (as in pesky little cyano-bugs) have eaten (Joel 2:25), slowly but surely. He has sustained me through this hellish journey and many nights home alone while I supported Steve in his continuing to progress as a USCA racer. He has done well and I am proud of him. That’s the benefit for me of having a Heavenly Husband at home with me in my heart while my earthly husband is away. It works that way for us gals whether we are married or single. It’s all good: whether or not you are with your paddling buddy or not you are never really alone when you have Jesus in your heart.
My watercraft of choice has now changed. When I did try to sit in the cockpit of the Stellar SR, I realized that my balance skills were now altered. How in the world would I ever enjoy paddling a tippier kayak with an altered center of gravity? It was just too much for me. But I also did not want to go backwards into a heavier, wider, shorter sea kayak either. I had tasted the sweetness of performance race boats and longed to be with Steve back out on the water. The lighter kayaks and paddles made this all possible in the first place, minimizing the stress of my underlying fibromyalgia. I would have never been able to paddle in the past due to chronic pain. My Stevers had helped me find a way. Now could we find a way to get me back on the water again?
By this time we were grateful to have acquired a tandem outrigger canoe. The first time out in the OC-2 after the onset of the recent illness were meaningful minutes and happened at the end of last summer. We went out again on our friend’s ski lake earlier this year and even took it to the smaller Oliver chain-o-lakes last month. Yes, my first outing in 3 summers happened a couple of weeks ago! Having a River Bear at the helm made it all possible as I could rest in the front seat when needed. THAT was an emotional day for sure: tears of joy to be out again and tears of sorrow for all of the lost time.
The question remained as to what would I paddle solo? Could I even paddle solo? The answer came with our one-man outrigger canoe. She is beautiful. In carbon fiber she weighs in at 22 pounds despite her 21 foot overall length. And she looks so very cool too. Oh how I love Steve! I get to do so many cool things because of him! Anyways, here’s a picture of the boat I will be paddling, Lord willing, as I get stronger. These days I still have seizure attacks every day, including in the evening after paddling for awhile. I’m not sure yet how to modulate this other than making sure my body temperature doesn’t fluctuate, stay hydrated and nourished, and avoid contact with nefarious waters underfoot! Oh well. The answer to the unknowns lie in the Lord’s hands. I’ll just go slow and remain grateful to be paddling a bit once again.
See there? Who says you can’t paddle an ocean-faring outrigger canoe in the Midwest? Just like the Think Fit then the Stellar SR, sometimes you get to start a crazy trend that works for you and others follow along too. Good ideas breed good company. Thank you Lord. Guess it was meant to be. God is so good. All the time. God is good!

Perhaps it is a silent presence, a type of mindfulness that can speak as loud as a mountaintop yodel in a life-changing moment. Or maybe you must shout it out, screeching through a resistant case of laryngitis just what is on your mind. Then there are those measured words spoken through gritted teeth; oooooh, I hated when my mother uttered those when I was a child! A crazy person makes sense only to his or herself when the disemboweled utterance emerges from the trouble soul within. And the most agregious is the spine-tingling barbs of an angry person that can cut to the heart every time. Sure wish I had more of the first one and less of the others in my history!
A gentle answer turns away wrath,
but a harsh word stirs up anger. (Proverbs 15:1)
Yes indeed.
The seizure attacks came quickly this evening as soon as my face hit the head of the bed, elevated with folded blankets to promote sinus drainage and ease the chest compression of a recent infection. My left arm was tucked along my left side with my head turned to the right as I lain partially face-down. This position causes less neck and shoulder pain so it is often my go-to position when I sense the episode ramping up. The head-banging and shoulder trauma are minimized but the wrenching of my neck is nasty. Oh well, that’s what the chiropractor is for, right? Sigh.
Eventually I screeched out some “help me Lord” utterances with what was left of my voice box today. That came whilst straining to cry out to my Jesus with an acute illness on top of the mysterious seizure-like tics that plague me every morning, evening, and after exposure to noxious stimuli. I can’t even cry right! Then things got incredibly darker. In defense of my sanity I won’t go into details here so let’s just say that frightful images passed through my mind. Then in my mind’s eye I could see the images on my arms. Just then I noticed that Steve was stooping over the side of the bed beside me in the dark. Holy crap! His sudden appearance in the dark scared me further. My body writhed with seizures, now lying on my right side with Steve behind me. My arms flailed in the air, my legs flapped together then apart, and the screeching sound of my hoarse voice screaming holy terror would exceed any scene I’ve viewed from a psycho thriller for sure. But this was not a movie. This was ME!
A few decades ago some really bad things happened to me when I was a kid. I spent about 12 years as a young adult in many kinds of therapy, therapy groups, 12-step recovery groups (Al Anon Adult Children of Alcoholics), faith-based and 12-step weekend retreats, and reading tons of self-help books. True healing came when I got saved and the person of Jesus Christ showed me his love, care for me, and plan for my life if I would follow His lead. He was restoring the years the locusts had eaten (Joel 2:25) when I met my intended beloved and married Steve. I felt happy and free at last. Four years later I got very sick with viral hepatitis, Lyme disease, and Chronic Inflammatory Response Syndrome (related to mold). I haven’t been able to work in two years largely due to the seizure attack episodes multiple times per day. They are heartbreaking for both of us in addition to many other folks who have witnessed them too.
Over and over again I have searched for meaning, a purpose for this extended illness. The incredible expenses of remediating our home for mold in early 2013 surely tested our marriage for sure. We were living in a hotel while navigating a myriad of details and tough decisions as Steve travelled between work, home, and the hotel; his daughter chose to continue living in the house and help us out during the entire process. Eventually our dog joined us in the hotel. Eventually we completed the remediation, opted not to sell our house, and moved back home. However, the seizure attacks never stopped! By summer of 2013 they increased to up to 4 hours per day! No medical professional or online research has found an answer yet. Somehow Steve and I grew closer through it all as our hearts were breaking; the pain and suffering has been great.
Recently the Lord did show me a few tasks that needed to be completed in our marriage. The love between Steve and I over these past 2 1/2 years has become strengthened, deepened because of this difficult journey. We have now turned our residence into a “safe home” which restricts visitors or the conditions under which others may enter our home. This helps prevent exposures for me that could cause a negative reaction (aka seizures!). I love that my beloved is helping to protect me in this way so that I can get well. I love that he has been faithful to the Lord and to me through this entire journey. Others are watching us and I understand that we are doing some things right! My own restoration and healing from the past may have provided a foundation for the important growth in me that has happened of late. I am grateful to be able to recognize the good that is here along with the challenges. There is always good along with the challenges if we look closely enough . . .
Back to the scene in the bedroom. I asked Steve to move from where he was stooped behind me to the other side of the bed where he would be in front of me. The uncontrollable hell that was ravaging my weakened frame was frightening enough not to have a sense that someone, even someone I dearly loved, was lingering over me from behind. Steve knows all too well that if he touches me during an episode it can magnify the symptoms significantly. I just couldn’t risk a casual brush of a hand; my distress was already unbearable. Then the breakthrough began to happen. Speaking up despite the hoarseness of my voice rose up some inner strength I had never sensed before. I had to ride out the frightening images and thrashing about, my estimation of what weeping and gnashing of teeth might be like in a Biblical description of hell. Tears came. Silence followed. I was able to ask for what I really needed when scared.
Soon my gracious and godly husband was gently sitting beside me. I’m not sure if he was more horrified or moved to compassion! We processed the scene. His eyes held mind for a long time in the darkness before I was able to reach out and touch his arm. Soon he was able to reach out with comforting touch for me as well. Somehow we knew that my intolerance to intimate touch for the past 6 weeks was finally broken. I was able to lie in the arms of my beloved once again.
My writing this story includes a great deal of literary and intellectual license. I mean that I think I might know what is going on, the purpose and meaning in some of this suffering, but there is only one person who actually knows the truth: my Heavenly Father. I am glad that I found my voice in the darkness this evening. I am glad that I survived a wretched scene without too much damage or lingering baggage. I am grateful to have reconnected with Steve and that he could look beyond the ugliness to the beauty imbedded in this crazy journey together. I trust that the Lord will go before us in the next scene and lead us in His way everlasting for His purpose and glory. Lord willing it won’t be so bad next time.
Thank you, Jesus, for your redeeming grace. You make all the difference in the world for me, tonight and always. Thank you for your enduring mercy, giving me have the strength to do that to which you have called me (Philippians 4:13). Be my voice in the darkness and in the light. In Jesus’ name. Amen.
Hey how about playing this: The Heart of Worship
When the music fades
And all is stripped away
And I simply come
Longing just to bring
Something that’s of worth
That will bless Your heart
I’ll bring You more than a song
For a song in itself
Is not what You have required
You search much deeper within
Through the way things appear
You’re looking into my heart
I’m coming back to the heart of worship
And it’s all about You
It’s all about You, Jesus
I’m sorry, Lord for the thing I’ve made it
And it’s all about You
It’s all about You, Jesus
King of endless worth
No one could express
How much You deserve
Though I’m weak and poor
All I have is Yours
Every single breath
It’s all about You…
Matt Redman speaks to my heart with his ballad on guitar: words I can’t seem to get out any other way. You see I have laryngitis! Tee hee. It hasn’t been fun lately on top of everything else so Ima gonna keep it simple and just dwell in the presence of my Lord and Savior, Jesus Christ . . . Dwell with me for a spell, Gentle Reader. The lover of your soul is waiting! :J
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