The Day is Never Really Wasted

Missing my Dad.

Closing my online jewelry shop.

Cancelling a dinner invitation for me with new friends.

Spending the morning and evening in bed with complications of illness.

Questioning the utility of a new treatment before it really has begun to make a difference.

Perhaps you can see where I am going with this?  No where productive, positive, encouraging very fast.  These are the kinds of days when I question the value of each breath (that almost stopped twice today).  These are the evenings when I wonder why I try to plan anything away from our home anyways?  These are the days that I cry a little more than usual.  And these days are necessary, really, to grieve and move on.

When I worked as an occupational therapist in rehabilitation, we often told our patients that, “recovery is a jagged line.”  Oh how I have found that to be true these past 3 1/2 years!  Looking back to the beginning and middle of this period of time, there were many times when I am sicker than I am now.  There were many unanswered questions, new treatments to try, expenses that exceeded our income, strains on all of my relationships, and lifestyle changes that seemed too much to bear.  So many questions came to mind as the weeks extended into months and years:

I wondered if I could continue to get to know the gals I’d just met at my church or my husband’s adult children, make any new friends, or succumb to the ill-effects of isolation instead?  How much suffering could my body endure without permanent damage to my brain, neck, back, or other bodily functions when the convulsive episodes were so violent?  Would I embarrass myself in public, get into an accident in a public place, or be found on the floor some evening by my beloved husband (who was already stressed and sleep-deprived)?  Why on earth did I have to endure such hellish nightmares, flashbacks, and heart-wrenching grief at this time in my life when I had worked so hard to become free of so much sorrow in my past?  And most of all, would anything good come from all of this:  would it be wasted time and effort after it was all over?

Some of these questions have been answered by now and some have not . . . yet.  I have made many new friends.  The process of getting to know my hubby’s children has been slower than I would have liked yet it probably is for the better; we are living a long-distance from all four of them which makes everything a little different too.   My mind has actually become clearer with the extreme dietary measures, reduction in mercury toxicity/dental issues, and healing of my gut (since the brain and gut-health are related don’t ya know?).  The physical consequences of illness will require some more treatment soon but at least my weight is stable and the overall deconditioning has still allowed me to perform most of my activities of daily living.  Further, when I felt sick in public or driving down the road, I was always able to rest in my vehicle thus avoiding an incident, gratefully.  These last two are amazing to me:  the Lord’s angels must be protecting me when I am away from home.

Steve and I have found ways to cope with the nightly convulsive episodes, sudden physical collapses that require assistance with my self care, and challenges to our intimate life on occasion.  It helps that Steve is wonderful!  It helps that he relies on the Lord and fellowship with strong believers to see him through this season of our lives together.  His faith strengthens mine too.  Although we can’t be together as much as I would like to, it helps me to know that I can trust him and look to him for spiritual direction, spiritual leadership.  This is God’s plan for the home, for marriage.  And as that design plays out between us, I know that the Lord is strengthening me too.

The Lord has never left me or forsook my faith in Him.  Even in near-death experiences, demonic attacks (and there have been more than I can count), and times of deepest despair, my Jesus has carried me through it all.  The spiritual peace that developed certainly has served to clear my mind, bringing me to a place of clarity I had never seen before I got sick.  Renewal of our minds is a gift and a promise only the Lord can give as we read the Bible.  I am grateful for His work through this process.

I really don’t know if looking at the female hormone/menopausal connection with the onset of seizures (and its related testing and treatments) will be fruitful or not.  Is it catamenial seizures?  I do know that I am probably going to make some more new friends trying to figure it out!  Some more new connections will also be made in the synapses of my brain as I study a whole new body of information.  Letting go of my hobby business today and getting focused on a more professional venture will challenge these new skills, quite possibly moving me from this disabled state to one of productive living.  Oh how I hope so!  This incredible experience has inspired a new product that I invented and eBook that I am writing.  That is cool, eh?  Yeah God!  Perhaps things will come together just as they need to and when the timing is right?  This season of time will have served its purpose; it certainly will not be wasted.  This Father’s Day will just be a microcosm of the larger picture with all of its days, its parts playing a role:  good, bad, and ugly too.

And in the end I know that the good will outweigh the other two.  How compelling of a story would I be able to write if everything was always hunky-dory?  Nope.  It would be boring.  On the stage of life, we are to live fully no matter what happens to us.  We are to live like the sign on the wall of the therapist’s office that I saw when I was searching for meaning in my life at just 24 years old:

Bloom Where You are Planted, trust in the Lord, overcomer, overcoming trials, Christian response to, faith in Christ, hanging tough, Bloom, Christian blog

Yeah.  Evelyn at Catholic Charities had it right.  And the gardener in me wasn’t even awakened yet when I read that banner!  The motto of that poster has encouraged me over and over again, becoming the foundation of my life’s work as an occupational therapist and helping me to re-invent my career a half-dozen times.  As a believer in the Lord, Jesus Christ, I can see that He is the God Who uses all things for His glory.  Someday you and I will get to see how these gnarly threads of our lives have woven together to create a beautiful tapestry that characterizes the life of one surrendered to Christ.  With that hope I can face tomorrow and all that it brings.  With that hope I submit to the will of my Master Gardener, my Lord.

With that hope you can too, Gentle Reader.  Bloom!  With love, JJ

The love in my comb

Gently he pulled the brush through my hair as if each stroke was a special salve for my soul.  You could hear nothing in the silence, not even his breath or mine.  The darkness fell between us.  The moment hung there in time.  We had just witnessed so much . . . there was no need for words.  Only love moved from his hand to me, gently freeing the hairs once tangled in the madness that had just gone before us.  You might see this as an act of romance I suppose.  But this night no romance would explain this kind of tenderness that now drifted between us.  We simply enjoyed the silence, the calm, the love lain there slightly wounded just up from the floor.

That love was near me that night alright, well within my grasp.  Oh I felt it with each stroke of the brush that was the tool he could reach first in the awkward darkness.  I felt it from his warmth standing closely behind me as I sat with my legs uncomfortably collapsed underneath me on the hard tiled floor.  The rug, marred with uneven loops from the dogs paws underfoot where she slept each night, gave little warmth.  My hair was wet and so were my shoulders.  The stuggle that came with forcing myself to wash my hair in the tub at the tail end of a convulsive episode had subsided into a senseless stupor.  With my broken sentence my beloved found my grooming basket under the sink.  It made no difference what implement he chose.  His love would find its way to me with soothing swiftness followed by the tempo we might take one fine day, walking along a seashore somewhere beautiful.

Oh that I should have such an opportunity again!  Will his capable hands finger their way through my auburn hair blowing in the warm sunshine of a summer day?  Would he tighten the drawstring clasp beneath my chin of the paddling hat matched with our tandem outrigger canoe as we headed out onto the glistening lake?  Or when his arm slips around my waist as we laugh at our pup racing along the stream of a wooded path, will I forget that our tender moments were once matched with sorrow so deep?  I do hope so, Gentle Reader.  For all of us who suffer what we ought not to endure, I do pray that restoration, healing, and mercy will cover what was once ugly with that which is lovely again and again.

Until that glorious day for me, I shall keep my eyes fixed on the sunshine streaming through my bedroom window.  I know by Whose creation it shines and that one day all will bow and marvel in His glory, fully well, fully at peace.  The love of our Lord, Jesus Christ will comfort and redeem our suffering beyond what the ones we cherish could ever do for us.  And yet their heartache for sharing this journey with us shall be rewarded too.  The darkness shall fade away forever for all of us one fine day.  Only His light will reign and the darkness shall be no more.  In that day my friend, we will comb the heavens never finding an end to joy for all who believe, for all who hold out for the hope of heaven.  Together we will dwell in the presence of the King of Glory!  Yes, indeed.

Sigh.  That day is not here yet.  What is here is the love of my life holding my comb in the shadow of night.  He lifts me gently into bed and covers me with love that I could never imagine in the past.  He is my Jesus with skin on when I need them both.  I am so blessed.  How could I ask for more?

It depends on . . .

Don’t you just “love” when you ask what appears to you to be a focused question and the person to whom you are speaking starts his or her answer with, “It depends on . . .”  Yeah, I have heard that a lot lately as I discuss product specs for my new company, Two Step Solutions.  My husband is a brilliant mechanical engineer and a bit more focused than me, I guess.  There is so much to consider so it depends on this or that parameter, application, material, use, and so on.  Yet this reply can be a bit maddening too, ya know?  :}]

Enter here a somewhat unusual perspective on the somber topic of suffering.  I would have never wanted to hear a blanket answer as to how to handle my own private hell.  I understand that Ravi Zacharias and Vince Vitale gently take an “it depends on”  approach in their new book, Why Suffering.  They recognize that for Christians, suffering poses both intellectual and emotional challenges:  God loves and cares about all of our needs yet desires to meet us amidst the unique circumstances in which we find ourselves in as well.  Here are some further insights from Vince Vitale in the Fall 2014 Issue of RZIM:  Quarterly News, Views, and Insights.

But while pain can be a great obstacle (to belief in Christ), it is also one of the greatest reasons to turn to God.  The more seriously we take the problem of suffering — indeed, the more seriously we take the people who suffer — the more we will be led to trust the God who can do something about it.

The challenge, I find, is that what each person needs when suffering is very personal.  There is no one-size-fits-all . . .  Ultimately, what we need is the presence of a loved one.  And when we have the chance to be that loved one for another, our temporary presence can act as an invitation to a life with the One who is always present.  One of the greatest gifts of the Christian life is that you never need to wonder if a loved one is near; you never need to wonder if a loved one understands.  That Person is always with you even within you.

While suffering can be traced back to humanity’s fall into sin, Jesus is clear that we cannot assume from the fact that a person is suffering that it is their fault or that they are being punished.  A second distinctive of the Christian response to suffering is this:  God promises that one day He will wipe away every tear.  What an amazing claim, that God himself will wipe away our tears.

And perhaps most unique is that the Christian God chose to suffer with us.  Suffering’s greatest cruelty is its isolation.  The Christian never suffers alone.  (We point) emphatically to the Cross of Jesus Christ, to the Cross of the only God loving enough to suffer with us and for us.  (p. 7)

May these words encourage you or your loved ones who are suffering.  While the experience of suffering is unique to each of us, we are not alone in our time of need.  God takes our angst seriously, suffers with us, and will deliver us one day.  My prayer is that you will seek comfort in the person of Jesus Christ who loves you more than anyone, more than you can ever imagine.  His Scripture reassures us this fact in Psalm 139:17-18:

How precious to me are your thoughts, God!
    How vast is the sum of them!
18 Were I to count them,
    they would outnumber the grains of sand—
    when I awake, I am still with you.

And that’s way more than my words can say.  Take care Gentle Reader and do let me know how I may pray for you, k?  JJ

Psalm 139 17 18

When there’s no where else to go

the crossSometimes I am not quite sure why I am crying, this late in the game.  I’ve been here before, I know my Heavenly Husband is in charge, and I haven’t died no matter how severe the symptoms have gotten.  My husband and I have seen the Lord work amazingly through this illness.  New skills have come, I am grateful to have met you Gentle Reader, and by the grace of God we have overcome tremendous trials together.  Healing is on the horizon with a new treatment direction  .  .  .  I even have my own company on the drawing board to fulfill my entrepreneurial dreams.  So how can I possibly be sad?

I am sad because it is normal to be sad when suffering.  I am sad, grieving if you will, for all of the losses even if it was good to let some people, places and things leave my life once again.  I am sad that Steve and I had to lose so much to gain so much goodness.  We almost missed “it” so many times!  I am glad that we are more in love now than ever before and it came though an extremely difficult path.  No longer do I ask the questions “why” and “what if?”  More often my question is “when?”  When will this hell be over?

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Stand fast therefore in the liberty by which Christ has made us free, and do not be entangled again with a yoke of bondage.  (Galatians 5:1)

Set your mind on things above, not on things on the earth.  (Colossians 3:2)

For God has not given us a sprit of fear, but of power and of love and of a sound mind.  (2 Timothy 1:7)

And let us not grow weary while doing good for in due season we shall reap if we do no lose heart.  (Galatians 6:9)

. . . but we also glory in tribulations knowing that tribulation produces perseverance; and perseverance, character; and character, hope.  (Romans 5: 3b-4)

. . . being confident of this very thing, that He who has begun a good work in you will complete it until the day of Jesus Christ.  (Philippians 1:6)

But I want you to know, brethren, that the things which happened to me have actually turned out for the furtherance of the gospel.  (Philippians 1:12)

Therefore I ask that you do not lose heart at my tribulations for you, which is your glory.  (Ephesians 3:13)

I can do all things through Christ who strengthens me.  (Philippians 4:13)

Let us therefore come boldly to the throne of grace, that we may obtain mercy and find grace to help in time of need.  (Hebrews 4:16)

And my God shall supply all your need according to His riches in glory by Christ Jesus.  (Philippians 4:19)

For we walk by faith, not by sight.  (2 Corinthians 5:8)

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I was hoping that somewhere between copying these lines of scripture and writing this blog that I would feel better.  Well, not yet!  When all else fails, I shall crawl up to the cross of my Jesus, place myself at the foot of His throne of grace, collapse in the shelter of His mighty wings, rest in the promise that He is always with me:  now and forever.  Yes, this is the best place to go after all.  Here is where I belong.  JJ

He loves me

“Why wouldn’t I?” he doth profess of his love to his bride

When the nightmare is lived whilst both still awake and the hour is well past midnight.

The softness in his blue eyes

Shines brightly even in the dimly lit room

As once again the nightly ritual of enduring madness

Takes them both to a place they could never imagine before . . .

Once upon a time in a land 200 miles away

A fine gentleman found his love then lured her away with his sincerity.

She could not possibly know the trials in her tender frame that awaited,

Testing everything she knew about life itself and sharing it with another.

His strength in the Lord, His leadership in their home

Brought agape love, bigger than life and transforming them both

Such that nothing when her wretched, convulsive late night episodes groaned on

Could shake their faith in the One who endeared them to Himself, to each other, no less.

So when will the darkness end?  They often wonder night and day after night

When hope is dashed once again as the optimism of the moment gives way to defeat.

Perhaps they will know someday:  a loving embrace will return unmarked by demons or tears

And in the meantime one thing will remain as clear as crystal with the Redeemer’s love blazing through:

HE loves her.  HE loves him.  And they love them both, no matter, not mattering when.

Indeed how could they possibly ask for more?

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Happy Valentine’s Day my beloved Steve.

Happy Valentine’s Day Gentle Reader. 

With love, :JJ

two hands heart sunset