After enduring hell on earth with dental professional #5 in my search for answers, I have decided to go another direction. Nine hours from now, my beloved hubby and I will be in the office of a new oral surgeon who will examine me and remove my infected tooth in the same visit. The procedure will include IV sedation in his office and not in a hospital setting. By this afternoon, we will be home and I will begin another process of recovery. The shutdown of “elective procedures” due to the corona virus which has delayed this procedure 5 weeks since my diagnosis will thus be overcome.
Lord willing, the convulsive episodes triggered by virtually every meal, even the pureed ones over the last week, will diminish. Will the episodes stop completely? Only my Lord knows the answer to that question.
We have been here before in: 1) 2015 with the extraction of 2 infected teeth (one of which had a root canal with a hidden amalgam) and 2) 2018 with the fabrication of specialized dental appliances by a Craniomandibular specialist. Both interventions brought significant gains however they did not fully eliminate the problems related to the trigeminal nerve complex on the left side of my face. Looks like there is another tooth involved. Looks like that problem is about to be extracted, i.e. it’s OUTTA HERE!
I am weary, Gentle Reader. I am concerned about pain management. I am concerned that while this procedure will solve an immediate problem, it will not stop the convulsive episodes that continue every day. Actually lately it has been multiple times per day: every night falling asleep is when they occur most consistently. My neck and upper traps are quite painful from the wrenching and rapid repetitive movements of the seizure attacks. Everything hurts in my broken frame. I have a headache every day. The mandated quarantine orders and fear of viral infection has kept us at home for most of the past 5 weeks. No Doctor, Chiropractor or Physical Therapy or Detox or IV Ozone treatments. What a crazy time in history to be chronically ill.
With nothing left to give, I submit the appointment later today to the will and covering of my Lord, Jesus Christ. Please carry me and my beloved this day . . . .
Life never ceases to be an adventure if that is the perspective you choose.
Perhaps an underlying theme of the Hope Beyond blog when it began would have been, “the plot thickens.” Or “deadens.” Flash forward about 7 years since my first blog in August of 2012. At my current stage of recovery from serious illness and a turn for the better-but-not-done-yet, I’m going to attempt the theme of “a new adventure awaits.” How is that for positive thinking?
I haven’t written in awhile. Since March of 2019, there are more moments of functioning better each week and I am taking advantage of them. There are also more very long naps of which I am forced to take advantage as well! The the new direction in my healthcare of getting off of thyroid medication created some problems then had an unexpected turn when parathyroid issues were discovered. My labs in both and related camps are all over the place, making for a Peter Faulk’s, Columbo-style of in-depth investigation raise more than one eyebrow of intrigue. Could there be another causative factor to consider in the convulsive episodes, requiring its own investigation? Yes, it appears so. Sure could be possible that the thyroid nodules, albeit shrinking, hid parathyroid tumors that are additional culprits in serious illness. Both hyper/hypothyroidism AND hyperparathyroidism can explain my clinical presentation. It appears that I am dealing with both. Who knew?
Well the Lord knew all along, the factors and their purpose for a nearly 8-year derailment in life as I once knew it. I am beginning to see that everything I have learned to date has NOT been wasted. I would not be able to respond as quickly to new information if there were still dozens and dozens of other medical conditions to rule out or address. I would not have a deep compassion for those suffering chronic illness today. My faith would be weaker and very likely my marriage. I could go on.
Very few folks have had as many medical tests that I have had, even in the community of persons dealing with chronic illness. Some folks stop after medical professionals label you with depression or anxiety. And if a person persists with extensive testing, very likely it’s peppered with questionable, even dangerous energy techniques akin to quackery. Thank the Lord that I didn’t spend very much time with energy medicine. He let me see the demonic influences and/or lack of science then helped me get away quickly thereafter (e.g. Rife treatment using sound and light frequencies hurt me badly.) Other times my Jesus simply closed the door to a promising yet deceitful avenue even before I was tempted to get near it (e.g. tai chi and yoga). This was very difficult at times when I felt desperate in my personal hell or conversely, when the testing and treatments were recommended by my brothers and sisters in Christ. I simply had to decline with blind faith even if that decision appeared to prolong my suffering in their eyes. Very tough road indeed.
Today I welcome the new answers with more of a sense of adventure than fear. Will I need neck surgery if a parathyroid adenoma is discovered? We are not sure yet. My labs don’t fit the typical profile and I have been in that camp dozens of times before. But when 1) both cardiovascular AND osteoporosis can be related to both thyroid and parathyroid anomalies and 2) calcium trafficking/dis-regulation problems can contribute to neurological symptoms, then it seems logical that both would need to be addressed. Incredible. Separate body processes in which anomalies can be the root cause of disease in the 2 different organ systems. And to think that this new adventure would have never happened if I had not gone to Mayo Clinic in February looking for answers about autoimmune disease. But there is no AD. Maybe not even a Functional Movement Disorder. Just another new answer to a question I did not ask. Holy cow! JJ
Psalm 34:8 New International Version (NIV) 8 Taste and see that the Lord is good; blessed is the one who takes refuge in him.
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