If only I knew

If only I knew back then what my new life would be like, would I have chosen it? Probably not.

The summer of 2007 was a very exciting one for me. I had just met an amazing man of God and had established myself in a beautifully decorated condo in one of the nicest suburbs west of Chicago. I had a great job that paid my bills along with some extra resources that I inherited when my Mother passed away. The grief associated with her death was complicated by navigating the affairs of her estate. Regardless, a new love makes everything nicer, lighter, and bearable even exciting. In due time I would come to understand my Pastor’s advice not to marry in the same year that I lost my Mother to her complicated health issues. Steve and I married at the end of the year anyways and I was off and running in Indiana with my Intended Beloved. God was so good!

Before long I was completely overwhelmed by all of the changes in my life. When I worked in mental health, we used to give our patients a Stress Management Scale to check off how many changes they had experienced in the year prior to hospitalization. Life events were given weighted scores, tabulated, then matched to a scale predicting susceptibility to illness. Yeah, my score was over 300 which is ripe for a stress-related illness. But thankfully, it didn’t happen. The adjustment to a new family life, State, house, church, job, pet, grocery store, bank, yada, yada, and husband was still completely overwhelming. Then I had to leave my new job in Indiana to find another because of ethical issues. Holy cow. It was a lot of changes in a very short period of time!

Then my Dad, who had been estranged from our family for 27 years, contacted my brother in Michigan. Mike was still living in our Mom’s house so my Dad was able to use our old phone number to reach him. Soon I was in touch with my Dad as well, catching up and trying to figure out how to deal with the sordid memories and circumstances of his leave-taking from our lives so long ago. Overall it was a good process. He was kind and generous. He shared stories, many of which I hadn’t remembered. After a few years of slowly getting re-acquainted, it was time to meet in person at his home in Florida. Mike was invited to go separately but never accepted the offer. I did. Steve and I went under an extremely stressful set of circumstances with my job at the time that would later magnify how important that visit to see him would be to my future. It was really good to see my father again.

Less than 2 months later, my Dad passed away. Mike never got to see him. My own visit and especially having shared it with Steve, were instrumental in figuring out how to manage my Dad’s affairs from where we lived in Indiana. We had a dinner with my Dad’s “tribe” of friends along the Forgotten Coast (so telling, eh?) of Eastpoint, Florida instead of a funeral per se. And over the next year, it would take dragging my brother through endless legal procedures to settle our Dad’s estate especially the selling of his truck. Later on with the inheritance that I received, I bought a newer truck like my Dad’s and became a woman who drove a truck — NOT a compact SUV or car like every other woman I knew drove! After all, I now lived in Indiana. Seems like every 3rd person here has a truck for work or various projects where ya gotta haul something from here to there! I liked gardening so it worked better for me than my Hyundai Tuscon. Over the next 4 years I finally had an opportunity to take the class to become a Master Gardener. Perhaps the truck was part of the overall uniform? It sure hauled a lot of soil and mulch, paddling gear and other stuff. How did I ever live without a truck in the suburbs of Chicago? Well gee, back then I lived most of my years in a townhouse then a condo!

My life drastically changed at the end of the same year of 2011. I was barely past the grief and memories stirred with the ordeal of my Dad dying when I contracted a serious illness kayaking in a local reservoir. Perhaps this stressor finally broke me down. Viral hepatitis became the first domino in a cascade of serious health issues that challenged even our brilliant family practice physician. Sure I had some hormonal and orthopedic issues in the past, even chronic pain, but nothing compared to the daily convulsive episodes and myriad of severe symptoms that beat up my body as I practically crawled through 2012. By February, I could no longer work. I felt that I was putting both my occupational therapy patients and myself at risk should I continue. I struggled to concentrate, to function, to sleep, to complete basic activities of daily living. When my Doctor thought I had underlying chronic Lyme disease, the treatments he prescribed felt like they nearly killed me. Then came the first of a series of alternative medicine treatments. It was the Beam Ray Rife machine that triggered the daily tics, the seizure attacks that escalated into the worst hell I could ever imagine. The episodes wouldn’t be diagnosed as epilepsy but they were equally as devastating. It felt like my life as I knew it was over. Actually, it was.

If only I knew that I would become seriously ill just 4 years into my marriage with Steve, would I do it all over again? To me that is a rhetorical question. Who would choose the extreme stress of almost complete social isolation? This included separation from Steve’s wonderful adult children and family who hadn’t had enough time to get to know me from their homes out-of-state or out-of-country, let alone my own friends and family. Who would choose re-injury of chronic pain issues every day and every night when the involuntary, violent convulsive episodes would start about 10:00 pm every night and return upon wakening every morning? At one point I noted over 30 symptoms to my complicated, serious illness that baffled specialists in-state and out-of-state. Over the course of the next decade, over $100,000 of savings and income would be spent trying to find answers. Treatments would diminish the worst symptom but not remove it or the episodes would increase again after a few months of a reduction. It would take almost 9 years to find cranial nerve, especially trigeminal and vagus nerve roles related to a condition diagnosed as Autonomic Dysfunction. We found tools more recently to stop them after a period of time but not prevent them. The grief and frustration were crushing to both of us. Steve had support from his family and friends, work and church. My support circle caved in with each passing year. I made a few new friends online dealing with similar issues. I knew I wasn’t alone because of their friendship and prayers from them and believers who became distanced; the constant companionship of the Holy Spirit kept me alive and going most of all. He alone re-started my breathing hundreds of times . . . I now longer feared death but saw it as a type of relief should it come.

We simply cannot know what lies ahead of us in our little lives. The Bible tells us that man makes his plans but it is the Lord who orders his steps (Proverbs 16:9). The Bible tells us that He has plans for us, to prosper us and not to harm us, to give us a hope and a future (Jeremiah 29:11). The Bible tells us to trust in the Lord and not in our own understanding, that He will make our paths straight (Proverbs 3:5-6). The Bible tells us a story where He restored the years that the locusts had eaten (Joel 2:25). And so much more. When the months rolled into year after year after year of serious illness for me, when the convulsive episodes and tic attacks racked up into the thousands, when people close to me started to doubt their medical origin even when confirmed by tests and experts, when the money ran out for aggressive treatments, when the illness alluded three large research medical centers in the country and several specialists out-of-state . . . I hit terrible periods of despair. Then I planned my suicide in October of 2019. When I realized to follow-through on my plan would be to believe the lies of Satan himself as he smiled in my mind’s eye, I realized that I was being deceived. Death, like divorce, is not an answer but a new problem. Believe God’s word and promises instead. I chose to accept that I am simply too finite as a human being to fully grasp these Bible verses, God’s real plan for my life, what I cannot see, what my life is really about. I chose to follow Jesus.

All I have is here and now with you Gentle Reader. It’s not up to me to end the timeline. It’s not up to me to write the next chapter of the story of Just Julie Writes at Hope Beyond. My hope and future are in the hands of the Lord. I pray that my hands type as unto His grace, His redeeming power to overcome.

It is up to me to choose to enact a faith in an infinite God Who is beyond what I can see. He knows I have seen and endured a lot of horrible things in my life before I ever met Steve. What I could not even imagine before this past decade was what it would be like to go through it all with a man who loved me more deeply than I knew existed in life. He was often my Jesus with skin on. He is loyal and yet human, strong and tender, God-honoring and God-fearing, loving and still driven to pursue his own dreams too; Steve is my provider of all I would need in my earthly husband. I am truly blessed. We did reach a crisis point in our marriage twice during this nearly 10-year journey within our over 13 years together. We got through them and healed the pain of potentially losing each other. More intimacy grew between us as a result, along with trust. The spiritual battle that came along with each test melted away as unto the Lord. Only the Lord knows what those moments were really all about.

Only the Lord knows what all of the changes, the stress, the spiritual battles, the strife in our lives are really about. I’m sure that each of us would freak out if we really knew what the trials in our lives were really about. One day all will be revealed. For now tis better to lay down our swords and pick up His along with His shield of faith. Put on the entire armor of God while we’re at it. This life is not for wimps, I tell you. JJ

The Gentle Giant

Standing over 6 feet tall, the man could have been mistaken for the childhood Green Giant hero of the Television Age.  He let his hair grow long, beard get kind of scruffy, and middle section pudge just enough to make his bear hug just right.  The children squealed when he growled and chased them back up the basement stairs when he had enough of their antics and needed to get back to work in that mysterious and yet wonderful business within those concrete walls.  More on that story another time.

The man was as conflicted as any could be in this life.  I’ll call him the Gentle Giant or GG for short.  My knowledge of him is pieced together from some vague memories, his hand-written journal, a few newspaper clippings, internet searches, and the stories from family members. Call it a great tragedy or perhaps work of satire as he never reached his full potential in this world.  Lord knows, he tried.

GG grew up in the blue collar suburbs of Detroit, Michigan as the son of an auto mechanic and never-quite-satisfied mother.  His dad let his mother rule the household including harsh discipline for the boys of the family.  Beatings, torture, destruction of their few prized possessions, restriction of food, verbal abuse, and lying about it all to suspicious outsiders comprised his private hell.  She destroyed his model airplanes, locked him in the closet, and made him sit at the meal table all day and all night as abusive punishment for just being alive.  The next generation (grandchildren) would be treated differently as would the girly middle child; the oldest brother would turn gay and befriend his mother and father in a strange twist of survival-perhaps-denial until he died of AIDS in his forties.   The baby of the family barely made it out alive when the older siblings were no longer around to protect him.  GG, the second oldest of the four children, had finally found his way to break free.

GG made a plan to marry the first woman who would accept his hand in marriage.  It took a few years after high school to find a suitable mate who was willing to marry him, perhaps in an attempt to escape her own abusive and alcoholic father.  They quickly had 3 children and a relationship burdened by his physical abuse of the mother.  The oldest took an overdose of her mother’s thyroid medication requiring having her stomach pumped at only 3 years old; the middle child developed a life-long inferiority complex from being told by his dad that he resembled his mother’s family more than his.  And this was only the beginning of things that went wrong in that household.  By the time the five of them had moved from the trailer park to their new home, GG was having periodic psychiatric breakdowns.  Experts have determined later that these were likely the psychotic breaks of paranoid schizophrenia.

GG struggled with the adult responsibilities of work, raising a family, relating to his wife, and managing the internal chaos of his mental illness.  He came into the realities of adulthood with too much brokenness to overcome; he was a brilliant inventor and draftsman yet could not control his own mind to ever find true happiness or success.  GG defied the counselling offered and declined the psychiatric medication newly developed that could help control his thought disorder.  He took an extended leave of absence from work and, instead of getting well, used the time to build a business in the unfinished basement of their home.  It became wildly successful in the hobby world of the 1960’s. How his employer never found out is another mystery.

Unfortunately the same ingenuity that brought him initial success 1) as a non-degreed draftsman for a major automaker and 2) in the home business, did not work when he applied it to his mental illness.  He experimented in psycho-cybernetics, hand writing analysis, the occult, various activities of the hippie crowd, drinking alcohol, and more.   Eventually he left town on his motorcycle with some blonde chick for California with all the profits from the business . . .  The children saw his father come and go in a myriad of painful and confusing scenes over the next few years until finally their parents divorced. Their dad lived in another suburb across town thereafter but the holiday visits and false hopes for things to be right never fully materialized.  Eventually GG left town for good and had no direct contact with his family for the next 27 years.

GG sent threatening letters to his mother for several decades, perhaps wrestling with her years of abusing him and what to do with it.  Sadly he hurt his own children as well in other ways. Over the years, the oldest daughter had witnessed satanic rituals, was abused by some women in the course of some psychedelic mayhem at his house across town during a visitation weekend, and was then tortured herself by GG in an attempt to help her “forget” what had happened to her.  The middle child witnessed his father’s domestic abuse of his mother and personal self-degradation as his father used mind control techniques on him in a misguided attempt to try and help his son.  The taped messages he recorded ended up having an opposite effect!  And the spirited youngest boy got as far as he could in life then, as a young adult, tried to find his dad who had left the family when he was barely past kindergarten. His dad’s letter of rejection was found by loved ones in his wallet after the young man died of alcoholism.  The surviving family grieved deeply.

GG’s experimentation with mind control techniques inadvertently opened himself up to the demonic realm.  The darkness in his eyes reflected this in particularly frightening scenes recounted by his children.  Knowing this, understanding his abusive upbringing and resulting mental illness then their own coming to faith in the Lord, Jesus Christ, has helped the two surviving siblings forgive their father.  They have found peace with their past and with their dad. The man was simply lost.  He had no idea the dark world he had incited nor the abuse he ended up carrying from one generation to the next.  It took the daughter in particular, many decades to understand this and break free from the trauma and demonic influences.  How that happened is yet another story.  The miracle of overcoming such hell gives testimony to the incredible power of the gospel through our Lord and Savior, Jesus Christ.

Thirty years after the oldest sibling last saw her father and two months before he died, she got to meet with him at his retirement/trailer park in Florida.  They had slowly developed a new relationship by phone before he eventually agreed to a visit in person. The Gentle Giant was frail yet charmingly engaging.  He told her tender stories of her days as a little girl and of how proud he was of her.  He told her that he loved her and by the time of their visit had shared how he had to leave their family to protect them from further harm.  More psychological breakdowns had occurred over the years.  His isolation from family and most of society became part of how he managed his illness in addition to long sabbaticals from work. He jointly held over 27 patents with a major manufacturer of automotive parts and would say that was why they “put up with him” and his leaves of absence.  The woman would see how creative her father was in crafting his life with the fragments he had been given . . . how incredibly her Heavenly Father would sustain her own life until those sweet moments of reconcilliation with her dad could bring closure, bring healing, bring some sweetness too.

Our earthly fathers have incredible importance in how we turn out in our lives.  They are the first authority figures in our lives who initially influence how we relate to our heavenly Father who is exceedingly greater and perfect;  ways that our earthly father can never be.  A loving relationship with both are critical for grounding us in this life on earth.  Even in the absence of a good dad the yearning of our hearts can lead us to the One Who will never leave us, never forsake us.  I do pray that in this story you will see how the “seeking” of one young girl as she became one older woman led her to overcome the failings of her father by filling those empty and hurting places with the unfailing love of Jesus Christ.  Graciously she did get to feel at last, the love of her real father before he died.  Not everyone will have this kind of opportunity; others will experience it their entire lives.  Regardless, we all can be whole no matter what darkness has fallen on our journey through this life.

I understand these experiences very well nurtured with truth from the Words of our Lord in His scripture and the indwelling of the Holy Spirit.  Further, the Gentle Giant in each of us can be transformed from sorrow to joy if we but believe in His holy name, Jesus Christ. Healing and fullness of life will follow us all of our days into eternity.  I love that.  Oh Heavenly Father, I thank you for this story and for Your story of redemption too.  May you speak to the heart of the Gentle Reader who finds these words this day, filling him or her with your goodness. Bring them into the best of relationships found only with You.  Bring hope beyond what we all can see.  For your glory I pray in Jesus’ name I pray, amen.  JJ