When there’s no where else to go

the crossSometimes I am not quite sure why I am crying, this late in the game.  I’ve been here before, I know my Heavenly Husband is in charge, and I haven’t died no matter how severe the symptoms have gotten.  My husband and I have seen the Lord work amazingly through this illness.  New skills have come, I am grateful to have met you Gentle Reader, and by the grace of God we have overcome tremendous trials together.  Healing is on the horizon with a new treatment direction  .  .  .  I even have my own company on the drawing board to fulfill my entrepreneurial dreams.  So how can I possibly be sad?

I am sad because it is normal to be sad when suffering.  I am sad, grieving if you will, for all of the losses even if it was good to let some people, places and things leave my life once again.  I am sad that Steve and I had to lose so much to gain so much goodness.  We almost missed “it” so many times!  I am glad that we are more in love now than ever before and it came though an extremely difficult path.  No longer do I ask the questions “why” and “what if?”  More often my question is “when?”  When will this hell be over?

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Stand fast therefore in the liberty by which Christ has made us free, and do not be entangled again with a yoke of bondage.  (Galatians 5:1)

Set your mind on things above, not on things on the earth.  (Colossians 3:2)

For God has not given us a sprit of fear, but of power and of love and of a sound mind.  (2 Timothy 1:7)

And let us not grow weary while doing good for in due season we shall reap if we do no lose heart.  (Galatians 6:9)

. . . but we also glory in tribulations knowing that tribulation produces perseverance; and perseverance, character; and character, hope.  (Romans 5: 3b-4)

. . . being confident of this very thing, that He who has begun a good work in you will complete it until the day of Jesus Christ.  (Philippians 1:6)

But I want you to know, brethren, that the things which happened to me have actually turned out for the furtherance of the gospel.  (Philippians 1:12)

Therefore I ask that you do not lose heart at my tribulations for you, which is your glory.  (Ephesians 3:13)

I can do all things through Christ who strengthens me.  (Philippians 4:13)

Let us therefore come boldly to the throne of grace, that we may obtain mercy and find grace to help in time of need.  (Hebrews 4:16)

And my God shall supply all your need according to His riches in glory by Christ Jesus.  (Philippians 4:19)

For we walk by faith, not by sight.  (2 Corinthians 5:8)

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I was hoping that somewhere between copying these lines of scripture and writing this blog that I would feel better.  Well, not yet!  When all else fails, I shall crawl up to the cross of my Jesus, place myself at the foot of His throne of grace, collapse in the shelter of His mighty wings, rest in the promise that He is always with me:  now and forever.  Yes, this is the best place to go after all.  Here is where I belong.  JJ

He loves me

“Why wouldn’t I?” he doth profess of his love to his bride

When the nightmare is lived whilst both still awake and the hour is well past midnight.

The softness in his blue eyes

Shines brightly even in the dimly lit room

As once again the nightly ritual of enduring madness

Takes them both to a place they could never imagine before . . .

Once upon a time in a land 200 miles away

A fine gentleman found his love then lured her away with his sincerity.

She could not possibly know the trials in her tender frame that awaited,

Testing everything she knew about life itself and sharing it with another.

His strength in the Lord, His leadership in their home

Brought agape love, bigger than life and transforming them both

Such that nothing when her wretched, convulsive late night episodes groaned on

Could shake their faith in the One who endeared them to Himself, to each other, no less.

So when will the darkness end?  They often wonder night and day after night

When hope is dashed once again as the optimism of the moment gives way to defeat.

Perhaps they will know someday:  a loving embrace will return unmarked by demons or tears

And in the meantime one thing will remain as clear as crystal with the Redeemer’s love blazing through:

HE loves her.  HE loves him.  And they love them both, no matter, not mattering when.

Indeed how could they possibly ask for more?

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Happy Valentine’s Day my beloved Steve.

Happy Valentine’s Day Gentle Reader. 

With love, :JJ

two hands heart sunset

 

 

The decision to be tooth-less?

It’s not like I am planning another wedding or something.  I’ve done that twice and twice is enough!  If a couple of teeth are missing I just can’t smile or laugh really BIG so the void in my mouth is noticeable.  Not that anyone would be looking at my molars anyways!  I suppose there are the exceptions for some of you out there . . .

Then my beloved teased me that I might have trouble eating bacon and potato chips.  Not!  I grew up with a GIANT bag of Better Made potato chips on the refrigerator and a dad who had to have a generous helping every day plus ice cream.  When we visited his parents where they lived in the Irish Hills, between the view of the lake and the country kitchen was another HUGE bag of Better Made potato chips on the frig.  So if I have two opposing teeth anywhere in the yard then there will be Unsalted Kettle Chips too!  And bacon, just because we can.

Don’t you love Facebook?  Or maybe you hate Facebook?  Perhaps you would love to hate Facebook a little more since it can be such a “time eraser” extraordinaire.  Well anyways, I have joined many groups who have the answers to this or that ailment I have faced over the past few years.  Recently I joined the “Bottoms Up” group to learn more about digestive health, only to realize that I did not want pictures of worms in feces gracing the screen of my smart phone if I were to check it when dining out somewhere.  Yuck!  TMI for sure.  Delete!  The mercury, root canal, mold avoidance, Lyme disease, methylation, candida, etc. peeps have all greatly contributed to my vast brain swell of mixed anecdotal/psuedo research information.  There’s a cause and cure for everything right there in my newsfeed.  Even business opportunities, rudeness and meanness fit in where pretox/detox really should dwell.  But I digress.

These forums have been part of my lifeline too.  I have made some sweet friendships with gals who run in the same groups.  Members have helped shorten my learning curve and evaluate relevant research, news articles, and success stories.  Many folks really do get well!  Then they drop out of the group and the rest of us left behind try to figure it all out before we also leave the comfort of the group nest as well.  Hey, I won’t mind moving on if I can take a few happy FB Friends with me, eh?  Currently they are helping me navigate the potentially painful decision of whether or not to have two teeth with root canals extracted.  These puppies may be a source of years of discomfort from hidden infection, possibly contributing to some of my chronic health issues.  I am already in the preparation stage of mercury chelation which certainly wreaks havoc in one’s brain and body.  Gratefully my brilliant functional medicine Doc is leading the way along with acute spiritual discernment from the Lord and my beloved hubby.

This treatment crossroad is more confusing than some others.  Extensive testing has not revealed hard data on the need to extract two teeth (yet it just doesn’t seem like complications of a sinus infection or trigeminal nerve inflammation either).  Travel would be needed to a skilled biologic dentist who can meet my needs for extra TLC should we decide to proceed.  The requirement for all of this extensive screening became extremely clear this afternoon after a very bad appointment with a recommended, local oral surgeon in a musty office!  Bad, bad.  Steve and I prayed about all of this as we navigated a particularly rough evening for me tonight, placing our trust again in the Lord to guide us.  I’ll make a few more phone calls tomorrow.  At least a dear friend gave me the tip of a concoction with cloves to manage the moderate pain in my gums.  Cool beans.  It worked quite well!

So for now I’ll be eating bacon and potato chips on the right side of my mouth and cutting up other delicacies into small bits so as not to trigger seizure attacks or pain.  Thank the Lord for our VitaMix which chops, whips, cooks, and practically washes the dishes for you afterwards!  Like teeth, little things can mean a lot to a gal like me.  See how good my Jesus is:  providing for my every need and heart’s desire too.  Avocado-coconut smoothies anyone?

As I close I must profess that through it all God is good.  All the time.  God is good!  JJ

Toothless smile girl

 

Great things He hath done

 

Praise at sunrise 5 Many, Lord my God,
    are the wonders you have done,
    the things you planned for us.
None can compare with you;
    were I to speak and tell of your deeds,
    they would be too many to declare.

Sacrifice and offering you did not desire—
    but my ears you have opened
    burnt offerings and sin offerings you did not require.
Then I said, “Here I am, I have come—
    it is written about me in the scroll.
I desire to do your will, my God;
    your law is within my heart.”

I proclaim your saving acts in the great assembly;
    I do not seal my lips, Lord,
    as you know.
10 I do not hide your righteousness in my heart;
    I speak of your faithfulness and your saving help.
I do not conceal your love and your faithfulness
    from the great assembly.

11 Do not withhold your mercy from me, Lord;
    may your love and faithfulness always protect me.  (Psalm 40; NIV)

After speaking in adoration, gratitude, humility, and transparency, King David seeks compassion from his Lord and savior Jesus Christ.  He has been literally chased by his enemies to the cold, darkness of living in caves.  His very life, his promised kingdom, and all he knows is at stake yet he begins this song with faithful praise.  Thereafter he presents his request for the Lord’s mercy and protection.  Although not quoted here, this psalm of King David goes on to pray for the salvation of his people and desolation of his enemies.  In the end his hope that the Lord be glorified through it all.  Yes indeed.  Wow.  What a tremendous example for me!

Adoration.  Thank you almighty God for all that you have provided to this day.  I see your omnipotent power in the sequencing of events of my life to bring me into the best of fellowship to you my Lord and King.  I praise you here and forevermore.  You have provided exceedingly for my real needs.  The greatest evidence is in love of my life that is now here; I am honored to be at his side, his beloved too.

Gratitude.  For my times of sickness you have given me a warm bed in which to convalesce, healthy food, good medical care, and infused your strength into my weary frame to do the tasks that are needed each day.  No matter how I may be feeling, the facts remain true that you care for the details of my life and are here with me.  I am never alone.  Most of all your love changes my sorrow into joy.

Humility.  The striving, the determination of my youth were eventually broken well into my adulthood so that I might realize the plans you have for me.  Hurt has yielded to forgiveness and freedom.  Following the lead of my earthly kinsman redeemer instead of my own desires has brought me into the fullness of what it means to follow you.  Much goodness has come from all of these.  The motto that began the leap of faith to finding Jesus years ago has come true:  letting go and letting God reign in my heart must remain above all else.

Transparency.  You gave me a fondness for writing long ago, mentored by my own mother (a naturally gifted writer).  This blog has seen me through much suffering and challenged me to return my eyes to Your majesty, Your creation, and more.  I have learned that the truth about life is often separate from what I can see.  Lord keep me soft to submit to Your ways like the clay who gives its essence to the master potter craftsman.  Surely goodness shall be the result for Your glory.

 Prayerfulness.  I do ask for healing of this wretched illness that plagues me for hours each day.  Guide me in my interactions with others when frustrated by so many things; may I be a light for my true hope that is in my Lord and Savior, Jesus Christ.  Bring rest and lead my husband, Steve, in the decisions we are facing.  Grant him wisdom at home and at work, as a father to his four wonderful adult children, and as a leader in our church.  Thank you for his faithful witness to so many of what it means to be a man after Your own heart.  And please bless the fellow sojourners you have brought into my life, especially my Skype Bible Prayer partners Karan and Sherry.  Such sweet fellowship is salve to my soul.

Great things the Lord hath done in my life since I met my first Gentle Reader about three years ago.  Thank you for coming alongside me for the ups and downs, bunny trail side trips, victories, and more.  Know that I am praying for you as I write this, that the Lord be with you this day too.  He is so good and worthy of our praise.  Perhaps King David said it best later in Psalm 40 like this:

16 But may all who seek you
    rejoice and be glad in you;
may those who long for your saving help always say,
    “The Lord is great!”

It is enough

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We had decided to pack four gallons of water just in case something went awry during our second cold weather camping trip this season.  The related online blogs recommended this among other tips such as purchasing a heated hose and waiting to un-winterize the travel trailer until we had traveled enough south to avoid freezing temperatures overnight.  And so we prepared accordingly reviewing our long “To Do” list of stuff over and over again before heading out the door.  Check!

Just before our departure, arctic temperatures plagued the entire country east of the Mississippi River from Michigan to northern Florida!  Who knew that after driving nearly 800 miles due south we would still be facing weather more characteristic of Indiana than our first destination in the deep south of Fort Rucker, Alabama?  We had run the propane heater in the Camp Lite a few times back home to minimize the out-gassing of the relatively new-used mini furnace.  We intended to fire up both heaters (propane and electric) soon after hooking up everything upon arrival so we could sleep comfortably.  Check!  After all it would be about 5:00 in the morning when we got to stop number one.

For God is not the author of confusion but of peace . . .  (1 Cor 14:33)

We did not count on the entire camper freezing over along the way!  I grabbed the hair dryer and extension cord from the cab of the truck and proceeded to thaw out both door locks.  Once inside I discovered that the four “emergency” one-gallon jugs of water were frozen solid as was the entire water system “winterized” with special RV antifreeze!  We had our two sport-sized bottles of water 1/2 filled with us in the car and that was it.  Closer investigation found some frigid water sloshing around in one of the gallon jugs so we gave it to our pup figuring she would not mind the temp.  (Sure would hate to have to choose between man and beast on such a night!)  Steve used a, er, warm water stream to punch a hole in the toilet ice seal to make it operational for the night.  Check!

Hooking up the water and electric did not go well either.  The water spicket had frozen beneath the towel that our southern/Aussie host (formerly from Indiana) had prepared before our arrival.   Hmmmmm.  When the crochety 30 amp electrical hook-up proved to be broken, Steve plugged us into the standard outlet to get us through the night, thus preventing draining our battery overnight.   Oh well, we could live without hot drinks in the microwave:  we had the warmth of each other after all . . .

But our bedding felt like it had just come off the train from Siberia!  Steve bundled up head-to-toe in Smart Wool and collapsed into bed.  I tried to join him but the nighttime unpleasantries I often face reared their ugly head first. Eventually the buzzed feeling I had from the late night excitement, convulsions and checking of Facebook yielded enough fatigue to turn everything off in my head for a few hours.  Even the sound of street noise 50 feet from our pillows drifted into the distance.  We had made it to see my hubby’s darling youngest son and his wife the next day and I was glad.  Check!

Many are the plans in a person’s heart but it is the Lord’s purpose that prevails.  (Proverbs 19:21)

Who knows why our lives are so difficult these days.  The last two times this past year we gratefully were able to camp with the conveniences of a travel trailer in colder weather we certainly prepared as best we could.  It’s not like we did not know what we were doing!  I perused and posted questions on multiple camping forums to learn from more seasoned travelers.  We purchased some special gadgets and kept snow pants, hats and gloves nearby; Steve donned his biking/paddling headlamp upon arrival like a pro to keep his hands free during the late night procedures.  I had enough food prepared in individual and meal-sized portions to keep me compliant with my special diet and the skilled driver nourished for most of our first few days away from home.  We did the best we could to avoid disaster and this is just how it goes sometimes!

The next day was a blur for me.  Yes, we said hello to Daniel and Elizabeth when they stopped by in their Honda Fit (everything is so cute about these two!) midday.  I had not eaten breakfast yet and needed some more recovery/rest time so Steve took off with them while I headed back to the tin can ranch.  What happened next can only be called a near-death experience!  That one deserved its own blog story so I won’t go into it here.

What is clear is that my writing block of late is definitely broken with some new experiences ordained by my Jesus albeit AFGE if you will (aka “another fun growth experience”)!  As in the Wizard of Oz when Dorothy turns to her dog Toto after the great tornado, I’ll say it here, “Toto, we are not in Kansas anymore” and that is good.  My social and geographical isolation enduring illness at home is now broken for a time.  What matters now is faith in the Lord and obedience for His will and I know that His goodness shall prevail.  Yeah God!

. . . keeping the commandments of God is what matters.  Let each one remain in the same calling in which he was called.  (1 Corinthians 7:19b-20)

For I consider that the sufferings of this present time are not worthy to be compared with the glory which shall be revealed in us.  And we know that all things work together for good to those who love God to those who are the called according to His purpose.  (Romans 8:18; 28)

Be encouraged Gentle Reader.  The two partial bottles of water were all we needed that night anyways.  It was enough and in our hearts we knew it all along.  JJ

Camper mascot Kermit the Frog here!
Camper mascot Kermit the Frog here!