I was made for you

You looked at me with the bluest of eyes and said that we were going.

The ugliness of illness that had proceeded that moment held the rest of the day in the balance —

Obligations awaited us yet all the precautions, procedures, special preparations, and planning getting to this moment made no difference.

I could not move until you moved closer towards me and spoke into my moment of sickness.

And in a scene borne out of love that many will never find,

You gently lifted me to the edge of the bed so that I may dress, may push the mangled hair from my own eyes.

As if time itself breathed slowly from one moment to the next, I became able to sit up on my own again.

We chose the adornments to fit the occasion; we got me standing then walking forward.

I drank some water from a bottle nearby.  My brain moved more quickly and the next tasks came alive.

And as if what would be horror to a fly on the wall just minutes beforehand,

You tenderly called to me our next steps as we prepared to go meet the rest of our day.

We both had a bite to eat, groomed ourselves, and moved closer to the door:

The events of getting ready now no different than what has become the routine of trials endured many times before.

But this time it was your love that called me forth, moved me on; yes your tender words alone helped move me on.

And when we were along down the road a ways ready to meet the others,

I sat in awe of the life the Lord had crafted for me, for you.

Never would we have asked for heartache and sorrow that looked like this

Yet in a dreamy place would we have designed a magnificent love made just for me, just for you.

It doesn’t matter how we “getter done” when the Lord sits with us at His table

When His grace transcends the stuff of life, when I am carried by redeeming grace from both of you.

So when the happy couple says their vows at their own marriage supper in a day,

May they somehow come to know what true love lives like:  He looks like you dear one:  the Father of the Bride.

I love you Steve.

Just Julie

The love in my comb

Gently he pulled the brush through my hair as if each stroke was a special salve for my soul.  You could hear nothing in the silence, not even his breath or mine.  The darkness fell between us.  The moment hung there in time.  We had just witnessed so much . . . there was no need for words.  Only love moved from his hand to me, gently freeing the hairs once tangled in the madness that had just gone before us.  You might see this as an act of romance I suppose.  But this night no romance would explain this kind of tenderness that now drifted between us.  We simply enjoyed the silence, the calm, the love lain there slightly wounded just up from the floor.

That love was near me that night alright, well within my grasp.  Oh I felt it with each stroke of the brush that was the tool he could reach first in the awkward darkness.  I felt it from his warmth standing closely behind me as I sat with my legs uncomfortably collapsed underneath me on the hard tiled floor.  The rug, marred with uneven loops from the dogs paws underfoot where she slept each night, gave little warmth.  My hair was wet and so were my shoulders.  The stuggle that came with forcing myself to wash my hair in the tub at the tail end of a convulsive episode had subsided into a senseless stupor.  With my broken sentence my beloved found my grooming basket under the sink.  It made no difference what implement he chose.  His love would find its way to me with soothing swiftness followed by the tempo we might take one fine day, walking along a seashore somewhere beautiful.

Oh that I should have such an opportunity again!  Will his capable hands finger their way through my auburn hair blowing in the warm sunshine of a summer day?  Would he tighten the drawstring clasp beneath my chin of the paddling hat matched with our tandem outrigger canoe as we headed out onto the glistening lake?  Or when his arm slips around my waist as we laugh at our pup racing along the stream of a wooded path, will I forget that our tender moments were once matched with sorrow so deep?  I do hope so, Gentle Reader.  For all of us who suffer what we ought not to endure, I do pray that restoration, healing, and mercy will cover what was once ugly with that which is lovely again and again.

Until that glorious day for me, I shall keep my eyes fixed on the sunshine streaming through my bedroom window.  I know by Whose creation it shines and that one day all will bow and marvel in His glory, fully well, fully at peace.  The love of our Lord, Jesus Christ will comfort and redeem our suffering beyond what the ones we cherish could ever do for us.  And yet their heartache for sharing this journey with us shall be rewarded too.  The darkness shall fade away forever for all of us one fine day.  Only His light will reign and the darkness shall be no more.  In that day my friend, we will comb the heavens never finding an end to joy for all who believe, for all who hold out for the hope of heaven.  Together we will dwell in the presence of the King of Glory!  Yes, indeed.

Sigh.  That day is not here yet.  What is here is the love of my life holding my comb in the shadow of night.  He lifts me gently into bed and covers me with love that I could never imagine in the past.  He is my Jesus with skin on when I need them both.  I am so blessed.  How could I ask for more?

Off in the distance

Time is right

This is a tough one for me and likely for everyone reading this at some level or another.  Let’s add a Biblical perspective:

There is a time for everything,
    and a season for every activity under the heavens  (Ecclesiastes 3:1)

The Lord is good to those whose hope is in him,
    to the one who seeks him;
26 it is good to wait quietly
    for the salvation of the Lord.  (Lamentations 3:25-26)

And let us not be weary in well doing: for in due season we shall reap, if we faint not.  (Galatians 6:9)

And there is more from my own experience in life.  Waiting on the Lord in the past was where my faith in Him was strengthened.  I remember a time when the crisis was so severe that the Pastor and Elders in my church kept asking me how I was doing with the basics of life:  eating, drinking enough fluids and sleeping.  Yes, they were all a struggle.  By the grace of God and many good sojourners I got through that season of life with sweet victory.  And here I am again in another . . .

March 26th is the day that Steve and I hope everything will start to change for the better.  As written in the potato chip blog, we believe that a dental procedure will vastly reduce if not eliminate the hours of daily convulsive episodes.  Yesterday it was on and off for 24 hours!  You know it’s bad when you see stars and are gasping for air.  Despite nearly a hundred episodes, somehow I read a book while in lying in bed.  It served to protect my mind from dwelling on the wretchedness when I could focus.  I am hoping it preserves a few of the neuronal synapses in my brain from damage.  And focusing despite the pain does carry me through the daytime, the nighttime.  Talking to Jesus a lot is a given . . . .

Thirteen more days and this hell could be over.  In one month will be the 3-year anniversary of when the tics began while thinking I needed to treat a clinical diagnosis of Lyme disease with a fancy Rife machine.  The Beam Ray was a mistake for me.  It has taken 3 long years and many failed attempts at various treatments to figure out what is causing the tazoring of my central nervous system.  Lord willing with removal of the source of what could be “dental galvanism” in my head, I will begin to heal from so much.  And so in my weakness I rest at the throne of grace that delivers me each day unto the next.  Lord willing, I am going to get well.  Off in the distance is the hope of this new beginning for me and my beloved, Stevers.  We are hopeful that His goodness awaits.

Gentle Reader:  Just wait for the shining glory of His light through the words on this page as that day comes.  Are you ready for it?  Brace for impact!  It’s going to be a good day real soon!  Like the old Barbara Streisand song goes, “there ain’t no tellin’ what a satisfied woman can do!”  ;J

He loves me

“Why wouldn’t I?” he doth profess of his love to his bride

When the nightmare is lived whilst both still awake and the hour is well past midnight.

The softness in his blue eyes

Shines brightly even in the dimly lit room

As once again the nightly ritual of enduring madness

Takes them both to a place they could never imagine before . . .

Once upon a time in a land 200 miles away

A fine gentleman found his love then lured her away with his sincerity.

She could not possibly know the trials in her tender frame that awaited,

Testing everything she knew about life itself and sharing it with another.

His strength in the Lord, His leadership in their home

Brought agape love, bigger than life and transforming them both

Such that nothing when her wretched, convulsive late night episodes groaned on

Could shake their faith in the One who endeared them to Himself, to each other, no less.

So when will the darkness end?  They often wonder night and day after night

When hope is dashed once again as the optimism of the moment gives way to defeat.

Perhaps they will know someday:  a loving embrace will return unmarked by demons or tears

And in the meantime one thing will remain as clear as crystal with the Redeemer’s love blazing through:

HE loves her.  HE loves him.  And they love them both, no matter, not mattering when.

Indeed how could they possibly ask for more?

*****************

Happy Valentine’s Day my beloved Steve.

Happy Valentine’s Day Gentle Reader. 

With love, :JJ

two hands heart sunset

 

 

The decision to be tooth-less?

It’s not like I am planning another wedding or something.  I’ve done that twice and twice is enough!  If a couple of teeth are missing I just can’t smile or laugh really BIG so the void in my mouth is noticeable.  Not that anyone would be looking at my molars anyways!  I suppose there are the exceptions for some of you out there . . .

Then my beloved teased me that I might have trouble eating bacon and potato chips.  Not!  I grew up with a GIANT bag of Better Made potato chips on the refrigerator and a dad who had to have a generous helping every day plus ice cream.  When we visited his parents where they lived in the Irish Hills, between the view of the lake and the country kitchen was another HUGE bag of Better Made potato chips on the frig.  So if I have two opposing teeth anywhere in the yard then there will be Unsalted Kettle Chips too!  And bacon, just because we can.

Don’t you love Facebook?  Or maybe you hate Facebook?  Perhaps you would love to hate Facebook a little more since it can be such a “time eraser” extraordinaire.  Well anyways, I have joined many groups who have the answers to this or that ailment I have faced over the past few years.  Recently I joined the “Bottoms Up” group to learn more about digestive health, only to realize that I did not want pictures of worms in feces gracing the screen of my smart phone if I were to check it when dining out somewhere.  Yuck!  TMI for sure.  Delete!  The mercury, root canal, mold avoidance, Lyme disease, methylation, candida, etc. peeps have all greatly contributed to my vast brain swell of mixed anecdotal/psuedo research information.  There’s a cause and cure for everything right there in my newsfeed.  Even business opportunities, rudeness and meanness fit in where pretox/detox really should dwell.  But I digress.

These forums have been part of my lifeline too.  I have made some sweet friendships with gals who run in the same groups.  Members have helped shorten my learning curve and evaluate relevant research, news articles, and success stories.  Many folks really do get well!  Then they drop out of the group and the rest of us left behind try to figure it all out before we also leave the comfort of the group nest as well.  Hey, I won’t mind moving on if I can take a few happy FB Friends with me, eh?  Currently they are helping me navigate the potentially painful decision of whether or not to have two teeth with root canals extracted.  These puppies may be a source of years of discomfort from hidden infection, possibly contributing to some of my chronic health issues.  I am already in the preparation stage of mercury chelation which certainly wreaks havoc in one’s brain and body.  Gratefully my brilliant functional medicine Doc is leading the way along with acute spiritual discernment from the Lord and my beloved hubby.

This treatment crossroad is more confusing than some others.  Extensive testing has not revealed hard data on the need to extract two teeth (yet it just doesn’t seem like complications of a sinus infection or trigeminal nerve inflammation either).  Travel would be needed to a skilled biologic dentist who can meet my needs for extra TLC should we decide to proceed.  The requirement for all of this extensive screening became extremely clear this afternoon after a very bad appointment with a recommended, local oral surgeon in a musty office!  Bad, bad.  Steve and I prayed about all of this as we navigated a particularly rough evening for me tonight, placing our trust again in the Lord to guide us.  I’ll make a few more phone calls tomorrow.  At least a dear friend gave me the tip of a concoction with cloves to manage the moderate pain in my gums.  Cool beans.  It worked quite well!

So for now I’ll be eating bacon and potato chips on the right side of my mouth and cutting up other delicacies into small bits so as not to trigger seizure attacks or pain.  Thank the Lord for our VitaMix which chops, whips, cooks, and practically washes the dishes for you afterwards!  Like teeth, little things can mean a lot to a gal like me.  See how good my Jesus is:  providing for my every need and heart’s desire too.  Avocado-coconut smoothies anyone?

As I close I must profess that through it all God is good.  All the time.  God is good!  JJ

Toothless smile girl