I was just wondering about something

I was just wondering how I can change my diet so drastically and barely notice a benefit?

I was just wondering how we can blast through another savings account and still not be “there yet?”

I was just wondering how I’m supposed to get out of bed when I’m hungry, can’t move, can’t speak, my body seizes and don’t even know if anyone else is in the house?

I was just wondering how the Lord keeps moving my jewelry business forward when I can’t seem to get the kitchen floor cleaned?

I was just wondering how my beloved Stevers still keeps on loving me when I can give back so little?

Hmmmmm.  Talk about powerlessness.  Talk about flying blind.  Talk about living in humility.  Talk about laying down your sword, your perceived strength and strengths, your hopes/dreams/plans.  I was just wondering if this is what true love looks like?

Romans 8:38-39

New International Version (NIV)

38 For I am convinced that neither death nor life, neither angels nor demons,[a] neither the present nor the future, nor any powers, 39 neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.

Matthew 6

25 “Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more than food, and the body more than clothes? 26 Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? 27 Can any one of you by worrying add a single hour to your life[e]?

Matthew 10:29-31

New International Version (NIV)

29 Are not two sparrows sold for a penny? Yet not one of them will fall to the ground outside your Father’s care.[a] 30 And even the very hairs of your head are all numbered. 31 So don’t be afraid; you are worth more than many sparrows.

1 Timothy 4:9-11

New International Version (NIV)

This is a trustworthy saying that deserves full acceptance. 10 That is why we labor and strive, because we have put our hope in the living God, who is the Savior of all people, and especially of those who believe.

Psalm 28:6-8

New International Version (NIV)

Praise be to the Lord,
for he has heard my cry for mercy.
The Lord is my strength and my shield;
my heart trusts in him, and he helps me.
My heart leaps for joy,
and with my song I praise him.

The Lord is the strength of his people,
a fortress of salvation for his anointed one.

 

Psalms are songs.  Here’s a contemporary one that fits the theme today and a place to start to understand His love:   http://www.youtube.com/watch?v=JoC1ec-lYps

Yes, I am not left alone to wonder, to wander.  And through faith in Jesus Christ, the promises in His Word become true.

Hmmmmmm, I was just wondering about something else:  do you know Him too?

One Step Forward, Two Steps Backward on a Diagonal

Still working with the new allergy free diet and have cooked someone’s pet rabbit three times now.  Just kidding!   Refer to Rascally Rabbit blog posting for details.

For four whole days I had fewer seizure-like tic episodes; most were tiny jolts for less than 2 minutes total at a time.  One day I HAD NONE!  I had not had a break like this one in 7 months!  Then everything changed.  Not sure what caused the change exactly but on Friday I had a two-hour episode plus the usual ones when falling asleep at night or for a post-treatment nap.  Geez.  I was hoping to take the dog out for a walk on the 60+ degree sunny day we had on Friday.  Instead I spent it in bed.  The headache was menacing.  I’m not able to take anything for pain right now so it was a major bummer.  The Epsom Salt/Baking Soda bath helped some.  Geez again.

In those 4 days I realized how altered my life has become.  I had no idea how much was altered until many abilities and returned to near-normal for a short time.  I was able to handle the many little frustrations that occur over the course of the day, like needing to get a tool to open a stubborn container or stop what I am doing to answer the phone.  I didn’t cringe when a closing door made a loud noise or the dog continued to bark at the neighbor kid coming home.  I went from one activity of daily living to the next without thinking about it ahead of time.  No need to plan what I would do next or to prioritize what was most important in case I got sick in the middle of something and couldn’t finish it.  I just got busy and got everything done without a “To Do” list.  My diet had become very complicated so I spent time making weird food and even got creative doing so.  By the end of the four days, I was making some food for my family as well as myself, not thinking about what I was missing.  The headaches, pain, ringing in my ears, nausea, etc. diminished and my sleep schedule started to become more regular instead of fractionated.  My sense of humor increased and I could begin to appreciate beauty, little things, blessings.  I got clarity on a grant project that has largely been on hold since April and presented a review in front of our homeowner association Board.  A new jewelry design came to mind and came to fruition just after the symptom-holiday ended.  (After all, I’ve made most of my pieces whilst feeling sick so I pushed to finish the task.)  And then it was over.

Tonight I tagged along with Steve to run some errands, feeling sick.  The Lord became my strength and my husband my confidant as we both faded by the time we were on our 5th errand.  (Steve has a bad cold and I pray that I don’t get it too.)  Times like these is when you really notice the high sensory stimulation/sensory overload of the grocery store!  Wow.  So I did what I had to do and put my mind on auto-pilot and finished shopping.  Then the race against my energy clock continued at home to help put everything away (thank you Christina!) make dinner, make my allergy-free foods, clean-up, and get to the computer before I would collapse.  Made it.  Here I am.  Doing it sick.  Just had another “sweats” episode.  Now I’m chilled.  Baby, I’m back.

Next week I’ll meet with the consultant who helped identify the food sensitivities as well as my Lyme Literate Doctor.  Hopefully we’ll be able to tweek a few things.  Oh how I want those 4 1/2 days back!  Well this is Lyme and its complications.  One step forward, then comes two steps in any direction possible.

I just don’t know how I would survive the crushing disappointment without my faith in Jesus Christ.  He is my Rock in troubled times.  He is my Shepherd, guiding me when my brain or body cannot.  He is my hope, my future, my reason for persevering.  He gets all the credit for the good and none of the blame for the bad.  I know He grieves for me in my time of illness.  I know He is close when I but say His name, seek His face.  He is with me, my Emmanuel.  Oh my Jesus, I need you tonight.  Meet me here and hold my heart.  This is all bigger than me and infinitely smaller than your Omnipotence, Omniscience, Omnipresence.  I need you to catch my tears.  Thank you, my King.  I think I’ll be o.k. now.

…we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not disappoint us, because God’s love has been poured into our hearts through the Holy Spirit which has been given to us. (Romans 5:3-5)

Rascally Rabbit!

Rascally Rabbit

Cooked my first rabbit roast yesterday!

No, I didn’t shoot it!  Picked it up at the local meat market when some testing showed that it’s a type of meat that might help calm my nerves, in addition to some other, higher fat foods.  Sounds like a ketogenic diet!  Maybe that’s where I’ll end up.  The seizure attacks are menacing and we’re still investigating, testing new strategies to diagnose and treat my noxious symptoms.   At least this Sunday was the best one I’ve had in 3 weeks!  Thank you Jesus.

It was weird rubbing a new, unfamiliar dead animal with a seasoning mix.  Somehow I don’t have this reaction to chicken!  After all, a chicken breast looks like the breast of a chicken.  I should be queasy but I am not.  A dead rabbit looks like a rabbit and somewhat like a dead cat.  Ewwwwww!  Just too close to our domesticated friends I guess.

The crazy part was our dog’s reaction.  Elle was on alert as soon as the package with the rabbit in it came out of the refrigerator!  I hadn’t even unwrapped it yet!  Did she know it was the (domestic) remains of the furry menacing critter she LOVES to chase at breakneck speeds through the neighborhood? Somehow, I think she did.  And I don’t mind it either because the wild rabbits eat my garden plants.  I would shoot them with a .22 if I could.  But I’m not that great a shot, yet, and it’s dangerous (and illegal) to shoot anything in a neighborhood.   I just wish she wouldn’t play with the bunny once she catches it.  Sends mixed messages you know.

After dinner I cleaned the rest of the meat off of the cooked rabbit.  It was actually very tasty:  a cross between chicken and crab meat and kind of sweet.  I understand that wild rabbit tastes different.  I’ll remember that if I’m ever in a position to eat wild rabbit.  Anyways, I gathered up the tendon and other tissue scraps and tossed them into the dog bowl of the now very attentive German Shepherd on guard.  “Dead rabbit!” was my command to her as the flesh hit the bowl.  She needs to know the delicacy of dead rabbit for when she’s standing guard in my garden.  I wonder if she got the message?

The Throne of Grace

He’s got the whole world in His hands

So much to let go.  So much that still haunts this troubled mind and body.  Troubled?  Yeah, a side effect of battling an illness that affects your central nervous system.   Negative emotions are magnified, fears are stronger than they need to be, stress responses come more easily, and a cynical attitude creeps into more and more moments.  It’s a battle and little of needs to be mine, actually.

As a believer in Jesus Christ, we have THE warrior on the throne, can embrace HIS spiritual armor, and trust that HE will be the victor in the end.  He promises all this to those who love Him and call Him Lord.  It honors Him to call upon His name with our praises and requests.  Remembering this fights against the workings of my brain these days a little more than the distractions and temptations we all face.  No, I’m not special.  I’m just selected!  And I get to write about what I learn along the way!

I used to have a God Box.  It was a tool introduced to me during my years in Al Anon Adult Children of Alcoholics’ meetings.  The Lord used 12-Step meetings as a first step to finding a personal relationship with God (AKA Higher Power); I now know God as my Savior, Jesus Christ.  By writing a prayer request, troubling thought, or need on a slip of paper, I had a symbolic way of turning people/places/things over to Him when I put the paper in the God Box.  My Box was a little plastic folder with imprinted with a world map.  Somehow it seemed significant to me as a reminder that the Lord is everywhere, cares about everyone including me.

So this blog is another form of a God Box.  Here’s the list on my piece of paper today:

Lyme Disease.  Treatment decisions.  $250 per week out of pocket for medical expenses.  Restitution I feel my ex-husband owes me.  Amount of money I was entitled to but didn’t take from the settlement of my father’s estate.  Daily physical pain.  Dreams for my jewelry business.  Upcoming craft show.  VISA bills.  Yard work I’m unable to complete.   Last few CEUs for my OT license that need to be done even though I ‘m not working.  Seizure attacks.  Headaches; will the new OTC med. that worked for me yesterday work when I need it again?  The need to exercise and the intolerance of most exercise.    Oh dear.  There is so much and it escalates to near panic if I don’t stop when the avalanche starts.  I’ll stop here.  I need a good word badly!

15 For we do not have a high priest who is unable to empathize with our weaknesses, but we have one who has been tempted in every way, just as we are—yet he did not sin. 16 Let us then approach God’s throne of grace with confidence, so that we may receive mercy and find grace to help us in our time of need.  From Hebrews 4 (NIV)

Lord I give you these heartaches this day.  I lay them at Your throne of grace.  I pray for your mercy and help in my time of need.  I also place before you the readers of this blog.  Bless them, Lord for caring about me and perhaps considering the role You may have in their lives.  I pray that each one would come to know you as Lord, lover of his or her soul, friend, and sojourner through this life.  Strengthen those who already know You.  For Your glory, Lord.  In Jesus name.  Amen.