One 15-minute increment at a time

Congratulations to my wife, Julie, on finally being able to get in some kayak paddling yesterday (even working on reentries)! She’s still facing a lot of challenges in recovering from Lyme disease, but it was awesome to see her out on the water again, doing something she’s been wanting to do for quite awhile. Watching her battle this often debilitating disease constantly reminds me to be ever thankful to the Lord for every blessing I have, and to never take anything for granted. And I praise Him always for the most precious gift of a most incredible and loving wife, who is as beautiful internally as she is externally!

This is a posting from my husband on Facebook this morning.  Wow, I am humbled.  Here’s my reply: 

 I am humbled and don’t deserve you my love. Thank you Lord for Steve!  Had to cancel a day trip today after a bad night and all you could focus on was our breakfast together this morning. This is what love looks like . . .

So Happy 4th of July.  Today is like any other day in the life of a person battling a serious illness.  You live in the moment:  15-minute moments for me.  Yesterday that included 6 of those increments of time getting back into my kayak and swimming for the first time since Thanksgiving.  Felt reeeeeallllly nice!  It was still over 90 degrees outside last night and even our “Elle-dog” was swimming and playing too.  Happy time.

Then the night was rough and we had to cancel a day-trip to Michigan.  I sensed that my husband was disappointed by his remarks as he attempted to hide it at breakfast late this morning.  Cooked him and his son, Daniel, something special despite my sad feelings.  I apologized for him missing the trip and he graciously said there was no need to apologize.  Wow.  This is a vacation day for him and part of it was spent watching me endure “neuromuscular events.”   And I needed him to turn on the Rife machine this afternoon when another episode hit and I couldn’t safely get to the Beam Ray.  The episode lasted an hour and a half.  Lord, have mercy.  Yet I was grateful.  I did get on the water yesterday . . .

It’s now evening and Steve and Daniel, are watching a Navy Seal movie that is of no interest to me.  It’s too hot to take a walk with the dog as I’m not doing well with the heat overall.  Besides, it’s already dark.  No fireworks:  there’s an open-flame ban for most of Indiana.  Everyone in our housing addition on Facebook agrees to call the police if we hear fireworks going off; it’s just that dry and brown everywhere.  Didn’t get to the Extension Office to water the veggie garden today (as Wednesday is my day) due to illness.  So many false starts, you know?  Flexibility is key to enduring and overcoming this illness.  Now to find something else to do, hmmmm, maybe make them popcorn for tonight and some homemade granola for breakfast tomorrow?   So back to the kitchen I go.

Thank you Jesus for getting me through this day, one 15-minute increment at a time.   :J

Goals for Today

  1. Complete treatment protocol for today.
  2. Try to get the “neuromuscular events” to stop.
  3. Eat breakfast in bed from insulated bag set up last night.  Take supplements.
  4. Post treatment rest period; try to get the profound fatigue to stop.
  5. Get out of bed no matter how I feel (usually by 2:00 pm.).
  6. Take a shower.
  7. Toss ball for dog so she can do her business.  Get the mail.
  8. Eat lunch.
  9. Take the rest of my supplements.
  10. Try to get some activities of daily living completed!
  11. Medical appointments or grocery shop.  (Shopping has been on “the list” for 3 days.)
  12. Water our flowers and veggies in the garden.
  13. Make dinner as able.
  14. Check internet.
  15. Take a walk with Steve and dog if able.
  16. Find a way to stop “neuromuscular events” so I can sleep.
  17. Repeat tomorrow.

When you ask me if I’m working, going to church, have any trips planned this summer, God bless you!  This is a different schedule than most.  I know you can’t relate.  No, I’m not back to normal yet.  I am in the hands of the Lord, living in 15-minute increments, one step at a time.  He makes His presence known to me all the time.  It’s a different kind of “rest;” a different kind of care. 

Thank you Jesus for being here with me.  I know that I am not alone.  Your word tells us that a man makes his plans but you order his steps.  (Prov 16:9 NKJV)  I trust you.  I love you.  I wait in the shadow of Your wings.Image

He Reigns!

When the darkness came today, my beloved and I prayed for protection, deliverance, and freedom.  It came.

Why this is such a dark journey I’ll never know.  The wretched symptoms I now experience brought me to the foot of the cross where Steve prayed Romans 8:38-39

New International Version (NIV)

38 For I am convinced that neither death nor life, neither angels nor demons,[a] neither the present nor the future, nor any powers, 39 neither height nor depth, nor anything else in all creation, will be able to separate us from the love of Godthat is in Christ Jesus our Lord.

Not only did the violent shaking and groaning end, I felt at peace with clarity of thought for the first time this week.  That was 3:00 p.m. and it is now 6:00 p.m.  Thought I would go grocery shopping but I am depleted.  Guess you focus on what is important at times like these.  By praying and singing the hymn linked below, I hope we that did just that. 

Glad Steve got in his kayaking race practice today and that I didn’t keep him from that too.  I feel humbled by this experience where I can do nothing on my own to get better.  I must submit to the Lord, pray, and let my husband lead us into both.  When I ask Steve how he can go through this with me and not be rattled by it, he says either, “why would I?” or “because I have faith in the Lord.”  Yes, I do too.

Thank you Lord for getting me and for getting Steve through this latest test of my faith.  Thank you that you give us the confidence we need to face these trials, that you are stronger, strongest, the victor over all.  Oh Lord, if it is your will, I pray that you heal me of this terrible disease and restore my life to joy and wholeness.  Protect me from further harm; protect my thoughts from doubt and discouragement.  Please guide and protect Steve as my Spiritual leader, instrument of your peace.  Help me keep my eyes fixed on You.  You said that you would restore the years the locusts have eaten (Joel 2:25).  I pray that you would restore the years the spirochetes and co-infections have eaten.   I will trust You and wait on You.  In Jesus name, amen.

It Is Well With My Soul :J

http://www.youtube.com/watch?v=BX_50AERr8M&feature=related

International Lyme and Associated Diseases Society

Intertnational Lyme and Associated Diseases Society