What Dairy Farmers and Angels have in Common

outrigger canoe, OC-1, canoe racing, racing, USCA, USCA Nationals, Warren PA, 2015 Nationals, wife of a racer, wife of an athlete, alone on the weekends, downside of illness, missing life, river rat, Allegheny River

Usually I refer to myself as a “kayaking widow,” as soon as the weather warms up in the great State of Indiana.  My beloved Steve races kayaks and now an outrigger canoe (OC-1) on the United States Canoe Association circuit.  This requires practice and travel to river or lake events at least twice per week during the warmer months, in addition to work and church commitments.  Since I am largely homebound I send him happily on his merry way . . . with snacks and a kiss, of course!

But it wasn’t always this way.  Just 3 years ago I joined him on Tuesday nights for the paddles of our local kayaking group.  (See the About Julie blog for details on the day that I got pulled from the water!)  If the races were local I would join him on Saturday mornings to cheer him on from the start and possibly the railing of a bridge along the course.  “Goooooooo Steeeeeeve” was my mantra and I loved it.  I am so proud of Steve, having watched him progress over these past 7 years of our marriage from a recreational paddler to a National competitor in surf ski racing.  And this year he added the OC-1.  Oh yeah!

For the first time in THREE YEARS, I would be joining Steve at the USCA Nationals scheduled this year in Warren, Pennsylvania.  The last time I was in PA was when I had purchased my first sea kayak (Think Fit) as I was progressing from a tandem, pedal-driven, plastic Hobie Oasis to a real fiberglass boat suitable for racing.  I had a near-drowning experience as I was testing out that boat which only served to reinforce that I had what it took to face the worst of perils when paddling in open water.  Dozens of paddling experiences followed over the next few years including upgrading to an introductory surf ski myself:  the Stellar SR.  That is the kayak in the photo of the article referenced above.

Flash forward FOUR YEARS and we now are grateful to have a travel trailer aka as a “mold avoidance clean room” that affords me the opportunity to travel with Steve and stay overnight.  The plan for this trip was to stay at a local KOA Kampground while shuttling to and from the stages of the two racing events in which Steve was registered to compete.  Miraculously and despite convulsive episodes each day and night, I was able to join him at the side of the Allegheny River on Friday for a full day of events.  We were bushed by nightfall:  Steve having paddled 15+ miles at breakneck speed and me having participated in over 12 hours of outdoor activities for the first time in a very long time.  It was a win-win for both of us!

Then came Saturday morning.  The night was a rough one for me but not as bad as they could be for sure.  Steve overslept 45 minutes and scurried about to get himself, his special nourishments, breakfast, and doggie duties covered before leaving for a second day of racing.  Adrenaline was pushing him beyond the fatigue he too was battling.  As for me, the morning seizure attacks died down as I pulled myself out of bed just as he was leaving!  It was clear that I was NOT going anywhere and would be a kayaking widow in the woods of the campground that day.  Swell.  Sadly I heard my truck pull away along the dirt road with my beloved therein, headed past the Kinzua Dam and beyond to the water’s edge without me.  To see my River Bear in action WAS WHY I CAME!  I was crushed.

And then my brain cleared.  A few crumbs of achiness remained yet I was upright and thinking straight.  “I should stay home and rest,”  I reasoned, “maybe take the dog for a walk later and be, well bored out of my mind for the rest of the day thereafter for sure!  Who wants to read Suzanne Summer’s book, Tox-Sick, when there’s an exciting USCA race going on out there?!  Not me.  I AM GOING TO THE RACES!!!”

There was one BIG problem with this:  how the heck would I get there?  I had no vehicle and the race start was a 17-minute ride away by car.  I had no car.  I had no truck.  I had a dog and that was it!  Looking back I believe it was the Lord nudging me on to keep getting ready.

“Pack up your stuff, grab some food and get out to the office.  See when it opens and maybe someone will be going into town this morning and can drop you off.”

Alright.  “Shouldn’t I eat some breakfast?  I mean, I get sick sometimes when I don’t eat breakfast?”  And so I bemoaned some more as I continued in motion, getting dressed and figuring I would have to leave the pup behind in the locked travel trailer with the air conditioner running all day.  “Keep moving,” was the leading of my heart.  “You might have to leave on a moment’s notice if this works out so you need to be ready!”  Out the door I scurried, hoping that most of me was covered with clothing and foot-coverings suitable for a campground!

The office didn’t open until 9:00 a.m.  It was around 8:15 a.m.  I had seen what I deduced was the owners shaking out their rugs out the front door of the adjacent mobile home so I could maybe knock on their door . . . No that would not be nice.  But look!  There’s the car leaving their campsite that left yesterday morning around this time.  Maybe they are long-termers who are leaving for work or something and can take me?  So I stood near the middle of the dirt road in between the office and campsite Number 2, waiting for the car to drive by.  Surely the driver would see me and stop?  Nope.  She never even looked up from her steering wheel as she drove straight by me.  Sish!  Surely I could not have looked that threatening, no?

What to do now?  “Stay put,” was the leading in my heart.  Maybe I could go back to our CampLite and wait for the office to open?  Someone would drive me to the Visitor Center and I would get our truck and just catch up with Steve somewhere along the race course.  He would be shocked to hear, “Goooooo Steeeeeve” from the side of the river like the day before.  Our reunion at the finish line would be sweet.  Well, no.  Then I saw around the corner of the dirt road in front of some other campsites a car with its lights on!  In front of it was a large motor home that I soon discovered was travelling with the small SUV behind it that had its lights on.  They were leaving too!

The driver of the motorhome stopped when I motioned from practically the middle of the dirt road as he approached.  My heart was beating fast and my voice trembled as I poured out a quick version of my dilemma then waited for his response.  The man got out and talked with his wife who was driving the vehicle behind him as I stood shaking like a schoolgirl waiting for permission to go to the bathroom from the headmaster who had seen enough already.  The man got back into the motorhome.

“I’ll take you,” was all he said through the window he opened.  Oh wow!  He said yes!  She said yes!  I REALLY AM GOING TO THE RACES!!!  So I quickly gathered my things; said goodbye to the big brown puppy-dog eyes that were ready for another day of fabulous sniffs, hugs from cute little girls, and wide open spaces; locked the door and did not look back.  I hopped into the passenger side of a stranger’s large motor home and hitched a ride to my second day at the 2015 USCA Nationals.  I was going to be with my River Bear!

The gentleman was in town with his wife to visit their daughter at a local Mennonite college.  They owned a large dairy farm in southeastern Pennsylvania and had just opened a restaurant with a storefront too:  September Farm.  They were headed to Bradford for the day which is over 12 miles in the other direction from where I was headed.  His low-fuel light had just turned on and he did not know where to find a local gas station.  Later I realized that it is possible that he might not have made it all the way to Bradford if he had not backtracked to Warren (5 minutes of travel beyond where he had dropped me off) without running out of gas.  Dave talked about him and his wife, Roberta, meeting a sweet couple through Farm and Ranch magazine that were like angels to them.  I said to Dave that he was my angel that day.  Yes, I do believe in angels!

Steve was shocked to say the least, when I came up behind him with a gentle, “Goooooo Steeeeeve!” to let him know that I had made it and in time for the starting gun.  He was still getting ready after the 8:30 a.m. race meeting, leaning over his Stellar SEL when I kinda snuck up behind him.  I had made it in time to see him launch in what would become a great day of racing.  We embraced with tears.  Steve said he felt a magnificent boost carry him down the river, through the Plume Rapids, and passing paddlers with greater ease than he had ever noticed before.

USCA Nationals, 2015 Nationals, K-1 Unlimited, kayak racing, surf ski racing, senior kayak, 50+ kayak, racing, paddling, USCA, awards ceremony, male paddler
Steve takes 1st place in The Senior Class, K-1 Unlimited at the 2015 USCA Nationals

Later Steve was awarded a first-place medal in K-1 Unlimited for his age group and finished in the first group of a large field of athletes.  We laughed the rest of the weekend about me hitchhiking just to see him.  Steve said he had never felt so loved!  I laughed then shuddered to think of the dangers that I had not experienced in the fearlessness I experienced when following the leading of the Holy Spirit in my heart that day.

Camplite, Camp Lite, Livin Lite, 16DB, travel trailer, 16 foot trailer, 16 ft travel trailer, Nissan Frontier, camper, trailer camping, aluminum camper, aluminum trailer, Kinzua KOA, Kinzua Dam, Bradford, Bradford PA, Pennsylvania, camping in PA, camping in Pennsylvania
I am grateful for so much these days!

I made it to the races despite the odds against me and learned some new things on Saturday:  Dairy farmers can be angels.  Love transcends the greatest of heartaches then brings us back to what or who matters most.  Follow the leading of the Holy Spirit!  And life is a daring adventure or nothing at all.

In the end I got a taste of what it means to live again.  And that is a good thing my Gentle Reader!  JJ

He really cares: Part 2

Please forgive me for leaving you hanging, Gentle Reader!  I left you hanging by a thread in this blog almost 2 weeks ago.  Clearly I made it out o.k. from the doctor’s office!

charcoal sketch, sketch of woman, side view of woman, head shot, female drawing, picture of lady

Since there were many hairy details in the horrible situation I was in on July 29th, I will shorten things up a bit here.  In my last post, I ended whilst lying on my side, paralyzed and inches from the floor after a convulsive episode in the exam room of a Physician’s Assistant (PA).  The second of two severe seizure attacks had occurred since entering this room and the second of two episodes of neurological collapse was in progress.  Eventually the PA returned and forgot everything I had ever told her about what to do in this circumstance; she even forgot that in the first episode (that she had witnessed) I was unable to speak or move.  All she kept asking was, “Do you want me to call an ambulance?”

Finally I was able to break through what was happening in my brain to express the greatest need in my life at that moment, “PLEASE REMOVE MY GLASSES!”  As she wrenched my neck and lifted my head I screamed in excruciating pain from having had my eyeglasses and sunglasses wedged against my face for so long.  Extreme sensory sensitivity accompanies the worst convulsive episodes; pain in particular is magnified as if you had tried to electrocute me!  So when the PA tried to remove them, it was as if a bolt of lightening had jolted through my face!  She asked again about the ambulance.  “Did I want to get up onto the table to be more comfortable?”  I could not speak or move at all.  Then she left.  A long time later she returned.  Then she left.  A long time later she returned.  Then she left.

To pray was my focus since the trained medical professional was of no help!  Thankfully after a long time, it was the Lord Who helped me twist and turn my torso so I could lie on my back across two chairs with my legs pulled up underneath me.  It took about a dozen tries before I could lift my head segmentally to reach a sitting position with my head supported by the wall behind me.  Never did a wall seem so comforting . . .

Eventually a nurse, the really sweet one, came into the room with a wheelchair so I could be taken to the bathroom.  Herein I benefitted from my training in transfer techniques as an occupational therapist.  My arms were starting to regain motor control but my legs were like dead weight .  I lifted them one at a time with my right arm (more functional than my left) off of the leg rests of the wheelchair and onto the floor, braced myself with the grab bar along the wall next to the toilet and pivoted myself around; I reversed the procedure with more adaptive techniques to do all of the things I needed to do in the bathroom.  By the time I was wheeling myself out of the bathroom, the really sweet nurse had returned to take me to the hospital in the building next door.  At last, over three hours later and feeling majorly beat up, I would be getting the IV fluids as ordered!

Unfortunately the IV “Lactated Ringers” didn’t help me much.  The nightly convulsive episodes returned followed by wake-up tazoring the next morning.  I was so beat up from everything.  The following evening I did make it to the grocery store when things had temporarily stabilized.  Such an ordeal!  Calming my anger at my medical providers has taken every day since then.  The doctor never mentioned it when I saw him last week.  He did not even ask if the IV fluids helped me to feel any better.  Sometimes that guy is just too focused on test results (or whatever) to examine the overall process of this patient’s sickness, the clues that might be hidden in plain sight.  Oh well.  The second appointment to review additional test results last week was cancelled (as are about 35% of his appointments).  A minor flare up of the ol’ anger distracted me once again, gratefully for less time . . .

So who really cares if I live?  Suffer?  Die?  I have spent the last 15 days meditating on this.  The real question emerged beneath these cries and it was not to find out if anyone really cares or not.  There are people in my life who love me and for this I am grateful.  The real question turned out to be whether or not I had submitted this illness to the Lord as a living sacrifice.  Who is really in charge here?  Did I offer it to the One Who sees all, loves me more than anyone?  Could I view laying this illness at the Lord’s mighty throne of grace as an act of both obedience and worship?  He calls believers to do this, by the way in Romans 12:1-2

Therefore, I urge you, brothers and sisters, in view of God’s mercy, to offer your bodies as a living sacrifice, holy and pleasing to God—this is your true and proper worship. Do not conform to the pattern of this world, but be transformed by the renewing of your mind. Then you will be able to test and approve what God’s will is—his good, pleasing and perfect will.  (Romans 12)

The Lord knows that our bodies are not perfect and that our world is not perfect.  Why would the God of the universe desire me to make alms to Him with my weaknesses?  He desires our devotion in all things and loves me and you just as we are.  But wouldn’t he rather have a tithe or act of service?  NO!  He is God not some distant authority figure or Santa Claus.  He loves us, has mercy on us, completes us, pours out His blessings, defends us, and promises to make good out of the fallen things of this world no matter how ugly.

1 Peter 5:6-11New International Version (NIV)

Humble yourselves, therefore, under God’s mighty hand, that he may lift you up in due time. Cast all your anxiety on him because he cares for you.

Be alert and of sober mind. Your enemy the devil prowls around like a roaring lion looking for someone to devour. Resist him, standing firm in the faith, because you know that the family of believers throughout the world is undergoing the same kind of sufferings.

10 And the God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm and steadfast. 11 To him be the power for ever and ever. Amen.

I am holding out for the promise that lies within these words.  He will restore me in due time.  Who cares for me?  Who cares for you?  The Lord Jesus Christ, that’s Who!  In Him we will find rest no matter what may come our way.  We can be sure of it!  JJ

He really cares: Part 1

The initial blog title rattling around in my brain for the last 24+ hours was, “You are THE ONE who really cares.”  After all, when each of us is alone in the midst of a trial (particularly when it is medical), it is only you that bears the greatest burden of the suffering.  Others offer comfort, prayer, helps of various levels, and if you are lucky will actually stick around for more than a few moments.  But it is you, one and only, who must bear the pain . . .  And that can be frightening to say the least!

Rather than rant about what to do with fear, give platitudes and verses with which to train your mind, and otherwise avoid ministering to the weeping heart, I will simply offer this:

Just lay your head on the lap of Jesus.

More than anyone, Jesus Christ knows what it is like to be killed, pained, abandoned, betrayed, falsely accused.  He is the only one Who can be with you as the Holy Spirit, in your time of sorrow from its beginning until its end.  He will never leave us or forsake us and always be there if we but call upon His name.  He is worthy of our

praise

tears

anger

weakness

alms

thanksgiving.  I was reminded of all of this just yesterday!

About 3:30 p.m. in the afternoon I was abandoned in a treatment room of my doctor’s office.  The nurse practitioner (NP) had left the room after writing an order for me to get IV fluids and after “catching” me collapse during a short convulsive episode during the appointment.  After all, that’s why I was there:  to document the crisis, get the orders, and head over to the hospital for treatment thereafter.  I was sitting there kind of dazed.  Soon after she left the room (and after another nurse came into the room to revise the scheduling of some other appointments), I began to list to one side.  There was a chair next to me with my purse and water bottle resting on it.  The weakness increased and a few inches at a time, I began falling to my right side, coming closer to the purse on the chair.  I could not speak.  I could not brace myself.  I could not do anything but be glad there was a chair next to the one upon which I was sitting so as to break my fall.

The next 20-30 minutes were very ugly.  My body collapsed fully onto the chair next to me.  My face smashed into the zipper of the purse while my glasses and cover-style sunglasses pressed into my face.  I looked straight ahead with my head rotated completely to my left, straining my neck most uncomfortably.   The front of my right ear was crushed underneath me on the purse whilst the back was free-falling unsupported; the back of my head pressed into the vinyl backrest of the metal chair.  Not exactly pillow material!  My right hip was twisted and pushed into the thinly padded, vinyl seat of the chair upon which I was sitting.  The ringing in my ears had already increased with the headache that had been working its way into action over the past hour.  Legs cramping, toe tips burning as much as my finger tips, and feet struggling to keep contact with the floor to stabilize my position . . . herein I would remain for the next 90 minutes.

I thought about many things.  First, I prayed.  I prayed again and again and talked to God about many things.  Will they be coming soon?  Do I hear them coming?  Was I expected to go out to the nurse’s desk after the NP left the room or was she coming back with more instructions?  I really could not remember since I was already in the brain fog of recovering from the earlier episode that she had witnessed before she left the room.  Surely the staff would notice that I had not left the room yet?  Or maybe not.  I waited in that same treatment room (#4) TWO HOURS the last time I saw the NP before I stepped out to mention that I was in there waiting.  “I didn’t know you were in there waiting for me,” she explained with her soft, sweet voice that I would learn never changes even in the midst of an emergency . . .

Time passed.  It was hard to ignore the searing pain of the two pairs of glasses being pressed with my full upper body weight into the side of my nose.  I could not move to get more comfortable.  I still couldn’t speak.  I tested this out and nothing happened.  In a while when I tested it again, my arm would start shaking; if I tried my leg, my leg would start shaking.  This is what I call, “neurological collapse” at it’s finest.  I learned on in a Catamenial Epilepsy Facebook page that in true epilepsy (which I do not have) has a name for this phenomenon called, “Todd’s paralysis.”  It can go on for up to 48 hours and mimic the signs/symptoms of a stroke.  Todd’s paresis usually resolves on its own without any residual effects.  I have experienced this complication at least once per week for the last 3 years.  Gratefully, most of the time the residual effects for me resolve within 2 hours, at home, in the evening, and within reach of my beloved husband!

There is nothing I can do to quicken the process of recovery from an episode.  It takes what it takes.  Knowing this I tried to calm myself down and focus on my breathing despite my twisted posture.  My rib cage was constricted so I did what I could to at least slow down each inhale, each exhale.  I did what I could to keep my neck and shoulder muscles tensed a bit so as not to twist my upper torso any more extremely than it already was.  I tried to relax the crushed tissues on my face so the pain would subside.  This worked poorly.  Suddenly the voices beyond the closed door seemed louder.  Then I heard the doctor’s voice.  This would be the time to try and vocalize something for help.  My voice was weak.  help.  Help.  I tried many times.  Probably no one in the same room with me would have heard those first cries.

I redoubled my efforts.  I took a deeper breath and vocalized a little louder, “Help!”  Then I rested and made more attempts, “HELP!”  Surely the door cannot be that thick!  I can see a crack at the bottom between the wood of the door and the low pile carpeting.  “HEEEEEEELP!!!”  I cried again.  My nose was running from the first time I had started to cry, dripping onto my purse.  Fortunately it is made of an outdoorsy, washable fabric.  Your mind thinks of all kinds of things when you are trapped.

To be continued in Part 2

Let us bring our praise where praise is due

Psalm 34

Of David. When he pretended to be insane before Abimelek, who drove him away, and he left.

I will extol the Lord at all times;
    his praise will always be on my lips.
I will glory in the Lord;
    let the afflicted hear and rejoice.
Glorify the Lord with me;
    let us exalt his name together.

I sought the Lord, and he answered me;
    he delivered me from all my fears.
Those who look to him are radiant;
    their faces are never covered with shame.
This poor man called, and the Lord heard him;
    he saved him out of all his troubles.
The angel of the Lord encamps around those who fear him,
    and he delivers them.

Taste and see that the Lord is good;
    blessed is the one who takes refuge in him.
Fear the Lord, you his holy people,
    for those who fear him lack nothing.
10 The lions may grow weak and hungry,
    but those who seek the Lord lack no good thing.
11 Come, my children, listen to me;
    I will teach you the fear of the Lord.
12 Whoever of you loves life
    and desires to see many good days,
13 keep your tongue from evil
    and your lips from telling lies.
14 Turn from evil and do good;
    seek peace and pursue it.

15 The eyes of the Lord are on the righteous,
    and his ears are attentive to their cry;
16 but the face of the Lord is against those who do evil,
    to blot out their name from the earth.

17 The righteous cry out, and the Lord hears them;
    he delivers them from all their troubles.
18 The Lord is close to the brokenhearted
    and saves those who are crushed in spirit.

19 The righteous person may have many troubles,
    but the Lord delivers him from them all;
20 he protects all his bones,
    not one of them will be broken.

21 Evil will slay the wicked;
    the foes of the righteous will be condemned.
22 The Lord will rescue his servants;
    no one who takes refuge in him will be condemned.

psalm 34, psalm 34:4, praise, worship, raise our hands, the Lord, our God, our Savior, He reigns